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Lorene View Drop Down
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    Posted: Sep 20 2020 at 3:35pm
I have been blessed!  It will be 19 years next month in October I was diagnosed with breast cancer, had chemo, and radiation.  I've had no recurrence!  My faith has been strengthened throughout this process, as the Lord has been with me every step of the way.   I thank you for this site and all the encouragement I received from many of you in those earlier years.  
                
In Christ,
Lorene

dx10/01@age59,IDC TNBC, St.IIB,Gr3,2.5cm,3+nodes, epirubicin,5FU,cytoxan,33Rads,No recurrence, 2018
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Lindz View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lindz Quote  Post ReplyReply Direct Link To This Post Posted: Sep 20 2020 at 1:33pm
oh I needed to see this today!! I was recently diagnosed - IDC, triple neg, stage 3
This week I started to look for long term survivors with a similar diagnosis, you’re the hope I needed 💓
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Annie Quote  Post ReplyReply Direct Link To This Post Posted: Sep 17 2020 at 10:36am
Hello All!   It has been some time since I posted.
             Be encouraged everyone!! I remember when I was first diagnosed in the Fall of 2008 looking at archives of survivors 10 years and more and wondering...It hasn't been easy due to a marriage separation however the Good Lord got me through. One step at a time, one day at a time! I am very thankful. No matter what you are going through there is always HOPE!! God Bless everyone and be encouraged. You are not alone!

        Love, Annie
Annie TNBC Stage IIA Gr 3 1cm lesion 2/5 lymph nodes+ lumpectomy,FEC & D 30Rads finished(08/2009) BRCA- Chronic Cellulitis due to Radiation-- L.Mastectomy Jan 2012
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 11:14pm
Dear Donna,

The years go by so quickly. I remember when we first met on the board (2009?) and then a few years later, I think in Houston, in person? Congratulations!!!!!!

What is most remarkable to me is your continued support for all here including some very tough days for you, personally, but somehow, someway you managed to be such a wonderfully important, informative, supportive part of our TNBC family. 

We are all so fortunate that you have given so generously of your time. Thank you!!!
You truly have blessed us with your presence. 

Be well/safe dear Donna.

with my love to all here,

Steve




I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 10:23pm
Hi Rigatonismom,

Thanks for posting and thanks for your participation in clinical trials. 

So uplifting to read the stories.

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 4:22pm
Hello!

Hope I can give some encouragement.  I was diagnosed 11 years ago, Stage 1.  Second diagnosis was a recurrence 10 years ago, Stage 3.  With the help of a clinical trial and extensive radiation, I'm still in remission and no evidence of disease.  I finished treatment for the recurrence a little over 9 years ago, but still see the oncologist yearly, more for my peace of mind.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote rigatonismom Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 3:44pm
Hi All, 
It was 10 years today when I was diagnosed with stage 3c tnbc. I was in treatment for quite a while. I stuck with the treatment and told my oncologist to throw everything they had at it. I think they did that but I am here to tell about it today. I was a part of several clinical trials and that I am proud of and think that one of them might be the reason I am here writing this. I plan on having a celebratory toast tonight to mark this day.
DX 09/10 TNBC Stage3c, grade3, Tumor 2.7cm, chemo started 9/29/10, AC x4, Taxol x12, lumpectomy 4/11/11-tumor .6cm, 3+/22 nodes, radiation x 30 finished 6/30/11.Clinical Trial Cisplatin,PARP 8/23/11
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 3:37pm
Hi Ima,

So wonderful to hear from you, again. Please put us on your calendar for Spring 2021 so we can rejoice with you.

I hope more survivors post. It will greatly help us a community to hear the positive stories and I know there are a lot out there.

with my love to all here,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 1maJ Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 3:14pm
Hi everyone, I posted to this thread in 2017, and here I am in 2020 and still free of cancer.  I am more than 5 years from diagnosis, and will be 5 years from end of treatment in spring of 2021.  I think that is going to be my official celebration :) 

This group was SUCH great support to me, especially in the beginning when I was so scared.  Thank you all!

xxxx
Ima 
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Lillie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 21 2018 at 10:46am
Hello Lindakay,
 
I love your name. One of my best friends in school was Linda Kay.  So glad you came to the TNBC site to share your story.  Expect a lot of love and help, in many ways, from the ladies on this site.  When you get the complete story of your diagnoses, please share and we are here to give you assurance that you are not in this battle alone.  We are here to encourage, answer questions and so many other things for you.  So sorry you are facing this diagnoses. You are in our prayers.
 
Love,
LillieHeart
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lindakay Quote  Post ReplyReply Direct Link To This Post Posted: Mar 21 2018 at 10:17am
Hello, Im new to this site, I was just diagnosed with Triple Negative, dont have my stage or anything yet, ready for the ride, I guess...

Prayers for all of us.

Linda
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cheeks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Mar 20 2018 at 7:54am
Hello Lillie!
It is so wonderful to see you post about how many years you have had as NED
I am still so sorry about Donald's passing. I know he was the love of your life, your companion and your best friend.

Love,
Blair
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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Lillie View Drop Down
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Post Options Post Options   Thanks (1) Thanks(1)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2018 at 9:49am
Dear Darcy,
Congratulations on your 2 years NED.   I remember that time in my recovery and longing to hear success stories. That is why I am still posting. It is not easy to stay positive, but as time goes by it gets easier. God Bless

Lillie

Edited by Lillie - Mar 19 2018 at 9:50am
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (1) Thanks(1)   Quote darcyd Quote  Post ReplyReply Direct Link To This Post Posted: Mar 18 2018 at 7:38pm
Hello,

It is so good to see so many here with multiple years of being Cancer free. I just celebrated 2 years myself.   

Yeah us!!!

Darcy
IDC with extensive squamous differentiation,1.5cm,stage 1,Grade 3,Ki-67 25%,TNBC
TX-TC q21 days x4, Neulasta x3,mastectomy 3/1/16. dx's 10/15 age56
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2018 at 9:26am
Dear snugltz,
So good to hear from you.  Thank God for your good checkup and mammo.   I am living life without my sweet Donald and it is difficult in different ways at different times.  My adult children have been so good to me and I to them also. 
Yeah! 8 years NED, CongratulationsHug
Love,
LillieHeart
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote snugltz Quote  Post ReplyReply Direct Link To This Post Posted: Mar 16 2018 at 1:48pm
Lillie

You were an inspiration to me also. I have prayed for you daily for several years since you posted your husband died   Its nice to know God is helping you. I also feel the cancer helped me face challenges. Thanks for posting. I was wondering how things were.
It will be 8 years for me in May. Just had my checkup and mammo. All good.
1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 16 2018 at 9:52am
Thank you Kellyless for your sweet message.  My husband died in Aug. 2014.  That created the tough times I have experienced, but I am now in a better place, Thank God.  So glad I could make you day, as you have made mine.
Love,
Lillia
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Mar 16 2018 at 9:34am
I have been so worried about you, my cancer twin thank you so much for posting, it made my day!
I'm so sorry you've been facing tough times Lillie. You've been the most positive force here since I joined all those years ago. Your faith, kindness and positivity has always been a source of inspiration for me. We've truly been blessed by your presence.
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Mar 15 2018 at 4:40pm
Hello Sisters,
 
It has been a few years since I posted on the TNBC site, so I though I owe some of you an update.
 
On June 9, 2018 will make 12 years since I was diagnosed with TNBC.  I feel obligated to share this wonderful news with all.  When I came on this site in 2009, I received so much help from so many sisters.  I hope my story will give hope and courage to many.  Actually I formed friendships here that are still in place to this very day.  It is a wonderful site, and I have missed it.  I've had a lot of changes in my life during this last 11 1/2 years, and I am confident that God gave me the strength to face the changes because of having breast cancer.  We all know that it is a battle and we have to summon all the courage we can.  It makes us stronger.
Love,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TripleTip Quote  Post ReplyReply Direct Link To This Post Posted: Mar 07 2018 at 6:58pm
It's been almost 11 years since diagnosis and 10 years since treatment completion! (I did go on after pondering my BRCA2+ status to having a BMX/reconstruction)
I just wanted to check-in since I'm still here    Maybe it's time I lose that extra 40 pounds...

Lump discovered May 07
Stage IIa, Grade 3
Lumpectomy, SNB, 2/5 nodes +
4 DD A/C, 10/12 Taxol
Radiation 28 with 5 boosts
BRCA2+
PBM with free TRAM, Salpingo oophorectomy Dec 08
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