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Kellyless View Drop Down
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    Posted: May 09 2020 at 8:59am
I got this.... Hug I PM'd you Rere! 

 Ladies and Gents :-)
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Rere Quote  Post ReplyReply Direct Link To This Post Posted: May 09 2020 at 1:49am
How do you recommend we contact these doctors? Particularly at UT Southwestern? 
(Im a 3rd stage TNBC in Dallas)
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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 05 2020 at 8:06pm
Any updates or new recommendations?
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote kati1983 Quote  Post ReplyReply Direct Link To This Post Posted: Sep 03 2019 at 12:29pm
Just wanted to added these 2 doctors I have seen that are fantastic and TNBC focused.

CALIFORNIA - Stanford 
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Kellyless View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Aug 22 2019 at 5:59pm
I'm sad to report that my awesome radiation oncologist at UT Southwestern Dr. Anne Spangler retired. But I'm told Dr. Asal Rahimi who trained under her for many years is amazing
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Aug 21 2019 at 9:25am
Any updates or new recommendations?

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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cheeks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Oct 26 2018 at 10:17am
Lisa,

I posted a reply on the other thread about who i see at Vanderbilt.

Blair
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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Kellyless View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Oct 26 2018 at 9:27am
Our member Blair travels from N. Carolina to Vanderbilt, she's been pleased with her doctors tjere. She goes by cheeks here on the board, you can PM her here or I'd be happy to text her for you.
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lisab Quote  Post ReplyReply Direct Link To This Post Posted: Oct 25 2018 at 7:50pm
I recently moved to the Knoxville, Tennessee area.  I've been looking for an oncologist who specializes in TNBC, with no luck.  I have not researched Vanderbilt oncologists in Nashville yet, but that would be an option, as Nashville is only 2-1/2 hours from Knoxville. I was so glad to see this thread and am going to browse through it for any recommendations.  In the meantime, if anyone has any oncologists they would recommend in the Knoxville/Nashville area, please post if you don't mind.  Thank you.

Lisa
Diagnosed June 2004. Lumpectomy and radiation. BRCA2+. PBM w/DIEP Recon March 2005. Mets in chest wall June 2007. Chemo (Gemzar and Carboplatin) with radiation completed January 2008 - 5+ years ago.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jul 12 2018 at 12:24pm
Recommendations for Missouri (St. Louis area):

Dr.Julie Margenthaler (Breast Surgeon)

http://siteman.wustl.edu/doctor/margenthaler-julie/

Dr. Michael Naughton (Breast Oncologist)


Dr. Foluso Ademuyiwa (Breast Oncologist) with interest in TNBC


Dr. Imran Zoberi ( Breast Radiologist)



DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote winnetkatnbc Quote  Post ReplyReply Direct Link To This Post Posted: Apr 02 2018 at 12:35pm
Onc Reources for Illinois

University of Chicago Dr Rita Nanda
Northwestern Dr Bill Gradishar
Rush University Dr Melody Cobleigh
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Mar 14 2018 at 9:59am
In North Texas UT Southwestern Simmons Cancer Center continues to reign supreme, with MD Anderson in Houston being the best in Texas (and the world).

Dr. Vincente Valero at MD Anderson is mentioned several times here for IBC, but he is also an expert on TNBC and HER2+ as well.  He's awesome professionally, and personally!

Dallas, TX - at UT Southwestern (since my docs mentioned years ago are gone now)
Surgical Oncology - Dr. Marilyn Leitch - head of the dept. of Surgical Breast Oncology - she's a rockstar
Medical Oncology - Dr. Nisha Unni - Gifted Dr. and so supportive!
Radiation Oncology - Dr. Ann Spangler - She's still my husbands favorite Dr. I've had all these years.  She's wicked smart, always on top of all the latest and greatest treatments and trials available.
Wound Care Specialist - Dr. Jean de Leon - currently my favorite Dr. in the world :) she blew my mind the way she healed my wounds in 6 weeks, after 8 months of all my other Dr.'s trying.  When I think of "Healer" I think of her - Love Her Dearly. If your wounds take even ONE WEEK longer than they are supposed to for healing, demand an appointment with her - it makes her sad when someone has suffered for months needlessly, she WANTS to get her hands on you early if you have any healing issues at all. I have zero lymph nodes left on the left side and had 3 removed on the right - making me compromised in both arms.  Now that I've seen her, when I hurt my arms or hands I take a pic of the wound and email it to her, she answers me on how to proceed with care, or tells me to come on in that day for her to check it.  She's my anti-lymphadema weapon now Heart
Gynecology - In case you are changing all your Dr.s to UT, Dr. Karen Bradshaw, she's the medical director of the Dept. of OB GYN and specializes in 40+ year old women, "disorders affecting the mature woman, Menopausal symptoms, post-menopausal, mood disorders and preventative bone loss treatment"  Yep, she's tailor made for the post TNBC treatment woman!  She cracks me up every time I see her.  Another very smart Dr. with loads of experience.  
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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cheeks View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: Mar 12 2018 at 12:36pm
I see Dr Ingrid Mayer at Vanderbilt in Nashville, TN

Edited by cheeks - Mar 12 2018 at 4:00pm
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 11 2018 at 10:35pm
Bumping for new members.  Any new suggestions or recommendations?


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 12 2017 at 12:09pm
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 11 2017 at 9:16pm
Any updates for your state or city/area?
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Jun 09 2016 at 1:23am
University of Tennessee Health Science Center
Dr. Gustavo A. Miranda-Carboni, Ph.D. -he has ongoing research studies in TNBC - and a research hospital is a good thing!
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Deidre18 Quote  Post ReplyReply Direct Link To This Post Posted: Jun 08 2016 at 3:04pm
Any suggestion for oncologist in or near Memphis, TN?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Apr 15 2016 at 11:05pm
Bumping for new members
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Parker Quote  Post ReplyReply Direct Link To This Post Posted: Dec 14 2015 at 10:01am
Thank you!
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