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Post Options Post Options   Thanks (0) Thanks(0)   Quote annafriday Quote  Post ReplyReply Direct Link To This Post Topic: Alternative Treatment Support
    Posted: May 13 2013 at 1:14am
Mindy,

I am a newbie but am very interested in complimentary, holistic, alternative therapies! I watched Cancer the Forbidden Cure on You Tube...very good its about 1.5hrs. But wish I could talk to more people who have done this and had good results..especially since Big Pharma wont allow nearly enough clinical trials on these things! Any suggestions etc would be greatly appreciated. I did 2 iv vitamin c infusions before surgery and felt better. Im taking lots of herbs and supplements and feel like they prevented my disease from further progressing to lymph nodes given the large size of my tumor.

Thanks,

Anna
DX:3/20/13 right breast multifocal stage 3a TNBC. Bilateral Mastectomy 4-18-13 largest tumor 6.2cm. 1 microscopic sentinal node positive. KI-67 77%. ACx4..doing Taxol now x12 weekly.
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arabella View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote arabella Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2013 at 3:18pm
You got my curiosity going about mistletoe....the following was informative for me:

Dx TNBC 1/2013; age 63; 1.1 cm; Stage 1, Grade 1(?); lumpectomy clear margins; ALND -; severe SEs to first TC and treatment stopped; radsX25; BRCA -
Recur 6/2015 Mastectomy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote arabella Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2013 at 1:06pm
I know nothing about this, but mistletoe is what Suzanne Somers used a few yrs. back in treating her BC I think because that's when I first became aware of it.

Kaye
Dx TNBC 1/2013; age 63; 1.1 cm; Stage 1, Grade 1(?); lumpectomy clear margins; ALND -; severe SEs to first TC and treatment stopped; radsX25; BRCA -
Recur 6/2015 Mastectomy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2013 at 12:53pm
3 wishes,

I am not familiar with the use of Iscador for breast cancer.
Think I would discuss the use of Iscador with my oncologist and maybe even ask to get the opinion
    of "Integrative Oncologist" who are sometimes at the NCCN Cancer Centers
Thank you for asking a question about Iscador as some of the articles found were interesting.
    Some of the articles were older and involved other types of cancer not breast cancer.


A few references/resources related to Iscador:
(Viscum album L. extracts (VAE, European mistletoe)
From MSKCC: Mistletoe (European)
       Scientific Name     Viscum album, Viscum coloratum
       Common Name     Viscum, all-heal, birdlime
       Brand Name           Helixor®, Iscador®, Iscador Qu®, Lektinol™, Eurixor®, Abnoba-viscum Quercus


First and foremost:   A discussion with your oncologist and/or Integrative Oncologist.

NCI information on mistletoe
http://www.cancer.gov/cancertopics/pdq/cam/mistletoe/HealthProfessional/page5

From Breastcancer.org. Refers to European use. http://www.breastcancer.org/tips/nutrition/ask_expert/2007_07/question_14

From Memorial Sloan Kettering website: Mistletoe (European)
with WARNING: Mistletoe berries and leaves are highly poisonous - more than 2 berries or 3 leaves can produce toxic effects.
The references include a 2012 article with most other article not within the past few years.
http://www.mskcc.org/cancer-care/herb/mistletoe-european

Efficacy and safety of mistletoe preparations (Viscum album) for patients with cancer diseases. A systematic review.   (Authors: Germany/Switzerland, 2009)   "there remains controversy about its clinical role"
http://www.ncbi.nlm.nih.gov/pubmed/19729932

Safety and effects of two mistletoe preparations on production of Interleukin-6 and other immune parameters - a placebo controlled clinical trial in healthy subjects.   Germany, 2011
http://www.ncbi.nlm.nih.gov/pubmed/22114899

Viscum album L. extracts in breast and gynaecological cancers: a systematic review of clinical and
preclinical research.   (Germany, 2009)
http://www.ncbi.nlm.nih.gov/pubmed/19519890


My post is based only on a brief Google Scholar search.   
Any member who is knowledgeable about mistletoe extracts, please add any important information
   that should be included in a discussion of mistletoe extracts......and/or any corrections to what I
   have posted.


With caring and positive thoughts,
Grateful for today.........Judy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 3wishes Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2013 at 9:37am
Thank you Judy. I understand completelywhat you are saying as is what I am finding in reading everything.  Although my tumor was small is was nottingham graded a 6 out of 9 grade 3 which makes it unusal.  I wish I could find more information on my particular situation.  Do you know of anyone who choose no treatment or choose Iscador?  Also I have read alot about bio-identical hormone replacement...I have been reading so much my head hurts.
dx2/14/2013 age 59 3mm tnbc no nodes testing for braca pending treatment
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Grateful for today Quote  Post ReplyReply Direct Link To This Post Posted: Apr 20 2013 at 12:34am
3 wishes,

Glad you found this site. There are a lot of caring and knowledgeable women and men here.
Many/if not most feel overwhelmed at the time of initial diagnosis. You are so right......there is
so much information.
Sloan-Kettering website has some excellent videos on "Support for the newly diagnosed"
http://forum.tnbcfoundation.org/support-for-newly-diagnosedvideos_topic9641.html

Be careful when reading TNBC (triple negative breast cancer) information on this site and elsewhere.
Why?    You are in a small group of women with very small tumors.
With a 3mm tumor, you have a very small TNBC tumor. Many TNBC tumors that are found are larger.   Would suggest whenever you post a question, you emphasize your tumor is 3mm (not 3cm) just to be sure we all remember you have a very small tumor. Noticed you did include the 3mm in your signature.
You may like to consider a thread with your questions.......maybe a thread titled "3mm" or whatever you choose.

You may find an article by Lisa Carey, MD , a TNBC expert, encouraging in relation to your small tumor
size. Link: http://www.cancernetwork.com/conference-reports/mbcc2013/content/article/10165/2131856

The thread http://forum.tnbcfoundation.org/tnbc-info-on-this-website_topic10166.html
has some links to other threads which may be helpful to someone newly diagnosed.

When it comes to abbreviations on the forums, you might find the thread................
"Abbreviations on the forums" helpful:
http://forum.tnbcfoundation.org/abbreviations-on-forums_topic9524.html

You have in your signature that BRCA pending. Hopefully, you have seen both a surgeon and
oncologist that have treated many TNBC patients.........and they have explained the pros and cons
of all your options.


With caring and positive thoughts,
Grateful for today.............Judy



Edited by Grateful for today - Apr 20 2013 at 12:36am
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3wishes View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 3wishes Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2013 at 9:18pm
Thank you.  I am so overwhelmed and totally consumed by all this. It's just so hard to take it all in.
dx2/14/2013 age 59 3mm tnbc no nodes testing for braca pending treatment
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mindy555 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2013 at 7:41pm
Sorry to have my head up my tush.  We DO have an Alternative Therapy section now.  DUH.  This seems to be a good place to discuss complimentary therapy also.

What's my name again?

xxx
Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mindy555 Quote  Post ReplyReply Direct Link To This Post Posted: Apr 19 2013 at 6:53pm
Hi 3wishes ;)

NED means no evidence of disease

A BSO is the abbreviation for a procedure called a bilateral salpingo-oophorectomy.  In simple terms it means removal of both ovaries and tubes.  It was advised I have this procedure done as a prophylactic measure.  I'm at high risk for ovarian cancer since I carry the BRCA 1 mutation.

Please let me know if you have any other questions... and take care!
Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 3wishes Quote  Post ReplyReply Direct Link To This Post Posted: Apr 18 2013 at 9:40pm
Hi Mindy,
I'm new here what does NED and BSO mean?
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mindy555 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 19 2013 at 9:18am
I wish we had a complimentary, holistic and alternate therapy section.  We're all adults capable of making the right decisions for OUR treatment.  I really hate to see this die out.

Thanks to Donna and others for keeping the Vit D and other vital supplement threads alive.  If it weren't for the Big Pharma I guarantee there would be a cure for a lot of diseases by now.

I want to know how we're really going forward w/ breast cancer - where's the great progress in the last 25 years?
Dx July 2011 56 yo
Stage I IDC,TN,Grade 3
Grew to Stage IIa- No ev of node involve- BRCA1+ chondroid metaplasia
Daughter also BRCA1+
Mass grew on Taxol
FEC 6x better
BMX 3/19/12 pCR NED
BSO 6/2012
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jun 07 2011 at 7:42pm

Tea mechanism in preventing autoimmune disease uncovered



In an article published online on May 20, 2011 in the journal Immunology Letters, researchers at Oregon State University's Linus Pauling Institute report a mechanism for green tea in suppressing autoimmune disease: an imbalance of the immune system which results in the body attacking itself. Autoimmune diseases range from childhood allergies to fatal diseases including amyotrophic lateral sclerosis (ALS). Although treatment with pharmaceutical agents can help regulate immune function in autoimmune disease, the drugs are frequently associated with toxicity.

Oregon State University Department of Nutrition and Exercise Sciences associate professor Emily Ho and her associates studied the effect of the green tea polyphenol known as epigallocatechin gallate (EGCG) in cell cultures and in mice. They found that EGCG increased the amount of regulatory T cells (which help dampen the immune system), whose function is regulated by processes that involve transcription factors and DNA methylation.

“EGCG may have health benefits through an epigenetic mechanism, meaning we aren’t changing the underlying DNA codes, but just influencing what gets expressed, what cells get turned on,” Dr Ho elaborated. “And we may be able to do this with a simple, whole-food approach.”

“Epigenetic regulation can be potentially exploited in generating suppressive regulatory T cells for therapeutic purposes, and is of significant clinical importance for the suppression of autoimmune diseases,” the authors note.

Dr Ho concluded that EGCG "appears to be a natural, plant-derived compound that can affect the number of regulatory T cells, and in the process improve immune function. When fully understood, this could provide an easy and safe way to help control autoimmune problems and address various diseases.”

http://www.lef.org/newsletter/2011/0607_Tea-Mechanism-in-Preventing-Autoimmune-Disease-Uncovered.htm?source=eNewsLetter2011Wk23-1&key=Article&l=0#article
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Angelight Quote  Post ReplyReply Direct Link To This Post Posted: May 21 2011 at 3:45am
Wasn't sure where to post these hope its ok to post here .. 2 books ive found a great help & support
Brandon Bays The Journey & Martin Brofman Anything can be healed ... both have accompanying CD's & visualizations Martin's healing Vibrations is a wonderful relaxing visualization I do this one before I sleep its helped me Smile hope it will be of some help to others very reasonable I got mine from amazon
Diag 21/4/11 Stage 1 IDC grade 3 HER2 neg ER neg PR not teste ? 0/6 node lump 7mm smooth 'free' no attached blood vessels
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Angelight Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2011 at 8:46am
thank you donna I did that
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2011 at 7:45am
Hi Angelight,

Thank you for sharing your story.  You might want to post it in the Welcome thread as more women will see it and give you feedback.  There are several women on our forum that had a similar size tumor as you.  I hope they will share their story.  Here's the thread:

http://forum.tnbcfoundation.org/topic8_post83323.html#83323

Donna


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Angelight Quote  Post ReplyReply Direct Link To This Post Posted: May 18 2011 at 5:33am
Hi Ladies
its refreshing to see a thread & topic that is close to my heart. I was recently diagnosed with a grade 2 IDBC .. on the 3rd May I had surgery lump & wide margin removal + 5 nodes.
I went back this Monday & was told I was stage 1 but upgraded to a grade 3 triple Neg... my lump was 8mm on last scan (2 weeks) b4 opp & on path report it was 7mm .. I will definately be having the radiotherapy. When I asked about chemo they agreed in the meeting that I was "boarderline" if to have it or not .. I have spoken to a few women in my situation who despite the low % rate seem to chose chemo as a precaision. I was told by my Doc at the hospital that I needed to talk to an Oncologist which will happen this coming Monday. So right now im feeling a bit stressed & unsettled just as I did when I was 1st diagnosed.
I HATE the thought of chemo .. if there had been any invaision in the margin or my nodes were not clean I would def say yes to chemo Also I do think there are alot of woman less brave than me that go for it. I suffer terrible anxiety & suffered agraphobia for many years so the fact I got to the hospital for all my appointments I thought was a major strength in itself.
I too have changed my diet cut out fats & eating natural food / Juices .. the 2 weeks after my surgery I felt very confident & listened to Brandon Bays *the Journey* I also do alot of Angel meditations & have now tracted down a Journey practitioner in my area who im hoping will come work with me on the Journey Prosseses
Im dreading this Monday .. I got that feeling in my bones that the Oncologist will say the % of survival after 10 years & its just going to put my brain into over drive .. I too have studied alot of stats .. I know there is no guarentees with chemo even for those with hormone poss BC
How I see it now is my cancer is OUT of me ... theres the saying in't there " dont try fix what is not broken"   !   Im asking myself do I want to have chemo put my body through the grueling side affect ? weaken all my internal organs which is never guarenteed that they ever recover fully . Im also a GREAT believer that chemo may kill cancer but it does not get to the root cause to why the cancer appeared in the 1st place & unles that is addressed, spiritual level or whatever .. then are we doing ourselves any favors
It will be interesting to see what the oncologist has to say, I too have known many people go through many rounds of chemo to lose their battle & that seems so unfair IF chemo is so brilliant WHY does this happen I ask myself
I would love to hear from anyone who has same stage & grade of tripple neg that chose just to have Radiotherapy & still kicking high many years on
Thank you
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Post Options Post Options   Thanks (0) Thanks(0)   Quote krisa Quote  Post ReplyReply Direct Link To This Post Posted: Mar 06 2011 at 12:54pm
Cancer cells are a mystery, yet to be unraveled. I would consider all therapies in conjunction with one another rather exclusively one or the other.
Take care and good luck with your research!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote lpham Quote  Post ReplyReply Direct Link To This Post Posted: Mar 05 2011 at 11:57pm
Hi,
I'm new to this thread. I didn't know it existed so I'm so glad I stumped upon it.

I was diagnosed in September 09 and went through surgery, chemo and radiation. In January I noticed a tumor on my neck and PET scan shows another tumor in the chest again tnbc.

I haven't started treatment yet and is seeing a homeopathic specialist. I've spent the last month researching alternative medicine and is convinced that integrated or complimentary medicine is the way to go. I want to avoid conventional chemo but can live with lose dose. I've changed my diet and started taking supplements, many are the same as the ones listed on this board. In addition, I take fucoidan supplement and detox drink.

I'm considering going to an alternative clinic for treatment. A friend of mine referred me to the Century Clinic in Reno by Dr. James Forsythe. He uses insulin potentiation therapy and other supplements. Her husband went there 6 months ago. I was wondering if anyone on this site has use this clinic or any alternative/integrated medicine clinics. I even consider going to Germany. Since the expense is a huge factor for me, the decision is a difficult one.

Thank you for your feedback.
Lpham
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LauraT Quote  Post ReplyReply Direct Link To This Post Posted: Feb 24 2011 at 4:14pm

Danielle,

I am just now seeing your post, but I read 2 books I that I thought were very helpful and balanced as far as not knocking traditional medicine, but at the same time offering some evidence-based recommendations on lifestyle, diet and supplements.
 
Anticancer by David Servan-Schreiber, MD
Life Over Cancer by Keith Block, MD
 
I am also following the EDGE-CAM supplement recommendations at http://www.nosurrenderbreastcancerhelp.org/index.html
 
How are you feeling?  I did not have radiation, but I did have the same chemo you will have.  If you have any questions, let me know!
 
Take care,
Laura
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Feb 10 2011 at 2:23am
Hi there!
 
I haven't come to this site for quite some time now.  Couldn't get a proper thread going here and out of frustration most of us moved over to the breastcancer.org site.  There are some great TN threads there and I hand out on the naturegirl thread.
 
Best,
MBJ (this is what I go by on bco)
Diagnosed TNBC 9/2009. Stage 3, Chemo TC
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