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Anyone have ACT Chemo Treatment?

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    Posted: Dec 25 2009 at 3:08pm
Unklez, I agree, awesome, your wife is a lucky woman.Smile
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 22 2009 at 3:47pm
Thank you! I try.

Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Dec 22 2009 at 3:27pm
WOW Unklez, you are absolutely awesome. 
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote unklez Quote  Post ReplyReply Direct Link To This Post Posted: Dec 22 2009 at 1:44pm
Dear GirlPower,
My wife has been taking Vitamin B Complex and L-Glutamin daily since 2 weeks before the first Abraxane dose.  I also massage her hands and feet with lotion, cream or baby oil every night. She has not had any neuropathy to speak of and she has had 3 doses of taxanes, same as you I believe.

The neuropathy effect of Abraxane is believed to be more intense and in a higher % of patients although shorter lived than Taxol. She has had every single side effect from chemo other than neuropathy. So I have to believe it is the Vitamin B and L-Glutamin and the daily massages that have helped :-)


Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Dec 22 2009 at 1:32pm
My first Taxo my hands started going numb, and I was losing the use of a couple of fingers.  My doc had me do an ice bath for the last four treatments and it worked amazingly well.  Once the pre-meds were done and they were about to start the Taxol infusion, I was given a small container of shaved ice & water.  I would plunge all 10 fingers in and off we'd go.  When it started feeling TOO cold I would pull them out for a few minutes, then plunge them in again.  I would do this the entire 2 1/2 hours of the infusion.  My husband kept an eye on me because the Benedryl made me woozy, and if I started to tip the ice he'd correct it.  It sounds like a big pain in the butt, but it wasn't a big deal and it worked AMAZINGLY well.  My feet continued to get a little more numb, while my fingers NOT AT ALL.  And it stopped the changes in my fingernails, I think I would have lost my nails if I hadn't done the ice bath.  My onc offerd to do an ice bath for my feet as well, but it never got that bad - I was lucky.  My onc did this for ALL of her Taxol patients and said she had a remarkably good response.  I highly recommend it!
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 22 2009 at 9:30am
Hi Girlpower,
 
So sorry to hear about your feet problems.  Neurothpathy can go away or it can come later on.  We are all different.  I am still on meds for Neuropathy from treatment over 2 yrs ago.
 
But others aren't bothered by it or as I said it goes away so time will tell.
 
 
 
 
Maybe one of the above links will help.  I sure hope you find relief soon.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Donna Z Quote  Post ReplyReply Direct Link To This Post Posted: Dec 21 2009 at 10:53pm
Just a further thought. I had big blisters that were turning black and blue prior to starting my soak routine and this actually healed them up.

Donna
Dx 03/09 TN, Stg 2a, gr 3, 1.7 cm Taxol X 12, FAC X 4, segmental mastec Sept 10/09,
1 pos/29, from Canada, Treatment MDAnderson, rads X 30 started Oct 29/09. Zometa start Nov 24/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Donna Z Quote  Post ReplyReply Direct Link To This Post Posted: Dec 21 2009 at 10:52pm
Hi girlpower. I had something similar on taxol. Every night I soaked my feet in Vit E oil added to warm water and epsom salts. Then put a really good thick non scented cream on them. This worked. The Vit E I used was the concentrated kind in capsules. I just snipped the end off and squeezed it into the water. I used about 10 capsules per pan of water. The pan was the size to soak my feet; not a big basin. But you could put whatever amount of Vit E you wanted to and my feet would feel a bit oily so put a light cotton socks on after so it is not slippery to walk. Hope this helps. It also feels good just be careful the water is not too hot as with neuropathy you could burn yourself so check it with your hands or elbow.

Donna
Dx 03/09 TN, Stg 2a, gr 3, 1.7 cm Taxol X 12, FAC X 4, segmental mastec Sept 10/09,
1 pos/29, from Canada, Treatment MDAnderson, rads X 30 started Oct 29/09. Zometa start Nov 24/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote girlpower731 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 21 2009 at 10:20pm
I've noticed that the bottoms of my feet are peeling off.  Basically the area that most of my weight goes to and my toes.  Is there anything that I can do to help my feet?  I have been making a mental note to wear socks at night for as long as I can, but at bedtime when I get hotflashes its hard.
 
Also another question I had was regarding neuropathy.  Does it go away once chemo is over or is it something that I am stuck with the rest of my life?
 
I am happy to say that I have 1 more chemo treatment left -- Jan 4th!  I truly didn't think this day would come.  There was a point in my journey that my upbeat attitude was damaged after going to the ER a couple times and sick of vomiting and even passing out.  Somehow I pulled through and got through it and my attitude became whole again (positive). 
 
Girlpower
dx: age 31. Stage 2a, BRCA1/2 -, Lumpectomy 8/09, AC/Taxol dense dose 9/09-1/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2009 at 3:19pm
Tasoula,
Here is another site you can go to immediately as the book is on line for combining standard & complementary therapies:
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Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
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Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
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Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
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Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
Location: Los Angeles
Online Status: Online
Posts: 54
Post Options Post Options   Quote maryjahn Quote  Post ReplyReply New Post: Direct Link To This Post Posted: Today at 3:14pm
regarding mamograms:
Hi Nancy,
 
You have been posting some really informative stuff lately!  Thank you.  I will prefer to never have another mamogram!
 
I just went to Commonweal's site (retreat & learning center for cancer) and there is a book on line or available for purchase on amazon that combines the best of standard and integrative therapies!
 
 
Mary
http://www.commonweal.org/pubs/choices-healing.html
 
Mary
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2009 at 2:17pm
A link from breastcancer.org, where a woman asked about Melatonin and a doctor replied.
 
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2009 at 1:48pm

Tasoula,

There is a wonderful cook book by Rebecca Katz called The Cancer Fighting Kitchen.  This entire book is devoted to those trying to heal from cancer and to get you through chemo.  She has worked for years cooking for people with cancer so there are many tips on how to make food taste better, what to eat when--it's an absolute gold mine.  The bonus, the recipes are amazing.  Really yummy.  there are many I have yet to try, but it's all low sugar, low fat, high grain and vegetable foods. 
 
As all breast cancer patients do, I have low vit d so I take a supplement for this.  Also, I recommend this site:  breastcancerchoices.org, which has many supplemental complements to standard therapy.  I am doing the iodine protocol which you can read about on this site.  I believe that because I am taking all of these many supplements, plus juicing plus yoga that I am experiencing low pain from chemo.  Granted, I am not doing ACT which is worse, but if the TC doesn't work for me I will have to do ACT so I am trying to do everything in my power to complement my therapies.  Everyone, including my onc, tells me how great I look and how healthy I look.  Also, for those who have weight issues, I have lost 10-15 pounds doing a vegan + fish only diet!   
 
I have a friend who teaches yoga who is teaching me but I plan to sign up for the group classes as training with my friend is sporadic.  I have been doing this since my diagnosis 2 1/2 months ago.  It truly feels amazing.  I plan to sign up for group therapy and meditation courses as I hear that this can double your survival chances.
 
Best,
Mary
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2009 at 12:11pm
My appt with my oncologist was moved to Friday, and I'm asking for the Vitamin tests.  There was double help when I got on the Effexor, it helps with the hot flashes and the depression that set in after round 5 of chemo, and the realization that the Taxol wasn't going to be MUCH better, which is what I had told myself.  I set myself up for failure!  It was a smidge better than the A/C, but it comes with it's own barrel of new and different complications. 
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2009 at 3:49am
Hi Kelly,
and thank you for your lovely compliments!!
I'm trying to do all the best i can for my mum for this difficult situation.......
The chemo makes your body weak and you feel mentally weak also as it makes you psychologically down....
Are you receiving any Vitamin D or Omega 3? Did you get tested for Vitamin D?

All the best ,
Tasoulla

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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: Dec 15 2009 at 3:01am
Hi--I am at the beginning of having taxotere & cytoxol treatment.  I am just starting to lose my hair and the hot flashes are horrible.  I have been taking 4-5 5mg of Melatonin to help with the sleep and it makes a huge difference--I still wake up a few times per night but I do sleep and feel rested upon waking which wasn't possible without the Melatonin.  You may have strong and vivid dreams at first but this does go away with prolonged use, is nonaddicting and has been proven to be a very helpful therapy with breast cancer.  I also take a Magnesium supplement 2 x per day which helps alot.  Yoga has made a huge difference in my life and doesn't require going outside in the cold--it will help with the aching bones and is really great first thing in the morning and also at the end of the day--Most hospitals here in California offer free Yoga classes along with treatment and it has been found to be incredibly helpful and also lengthens life and quality of life. Best
Mary

Mary: when did you started yoga classes? While on chemo or before?
Hot flashes are indeed horrible, i can tell from seeing my mum sufferring from them, but Melatonin is hormones , is that ok receiving them?
Did you get tested for Vitamin D or are you receiving other supplements?(Omega 3, etc).
It is very useful to have a balance diet and i'm searching now for the right diet while on chemo but i can see it is very difficult due to strange taste my mum has. It seems that you can't have the right diet while on chemo.
Mary and Kelly What does your diet inlcudes and did you visit a nutritionist for helping you?

Wishing you all the best!!


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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Dec 14 2009 at 4:55pm
And Tousoulla - what a wonderful daughter you are coming to the board to look for help for her!  I would be proud to have you as my daughter! I promise, your love, care and concern are the very best medicine your mom could have right now. 
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Dec 14 2009 at 4:54pm

Tasoulla - exercise on this chemo is kind of a double edged sword, usually by the time you get to the Taxol you're suffering from anemia, the physical exhaustion is very real.  It feels very weird and kind of wrong to take more and more drugs when you are in chemo, but this is a time where you really need to treat the problems and take the drugs when you need them.  The Taxol/Nuelasta  pain is miserable, top that with hot flashes keeping you awake - UGH!  I strongly suggest she contact her doc and try some strong pain meds and see how she does.   I also started on Lunesta for sleep for a few days after each Taxol, and other nights here and there when I was having sleep issues.  I'm so glad the Melatonin is helping you Maryjahn, but the Taxotere & Cytoxol is not nearly as harsh as the ACT - stronger drugs might be in order for her mum.  And as always - don't take ANYTHING without consulting with your ONC first, no herbs, suppliments - anything OTC - without the OK from the doc. 

Also - my white counts leveled out on Taxol, I was able to skip my final two Neulasta shots with the Taxol, that helped with the bone pain as well.  It's worth asking! 
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote maryjahn Quote  Post ReplyReply Direct Link To This Post Posted: Dec 14 2009 at 2:41pm
Hi--I am at the beginning of having taxotere & cytoxol treatment.  I am just starting to lose my hair and the hot flashes are horrible.  I have been taking 4-5 5mg of Melatonin to help with the sleep and it makes a huge difference--I still wake up a few times per night but I do sleep and feel rested upon waking which wasn't possible without the Melatonin.  You may have strong and vivid dreams at first but this does go away with prolonged use, is nonaddicting and has been proven to be a very helpful therapy with breast cancer.  I also take a Magnesium supplement 2 x per day which helps alot.  Yoga has made a huge difference in my life and doesn't require going outside in the cold--it will help with the aching bones and is really great first thing in the morning and also at the end of the day--Most hospitals here in California offer free Yoga classes along with treatment and it has been found to be incredibly helpful and also lengthens life and quality of life.
Best
Mary
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Post Options Post Options   Thanks (0) Thanks(0)   Quote tasoulla Quote  Post ReplyReply Direct Link To This Post Posted: Dec 14 2009 at 9:01am


Hi Kelly,
my mum is under the same chemo you had, and she's now at the 1st Taxol.
She's having terrible pains in her bones, all over hair body and she's having also hot flashes which makes her not to sleep at night and stay awake.The result is to feel very tired and weak.
What your oncologist did recommended you to have while taxol?hot flashes are the result of the period stopped and definetely you can't receive hormones.What other choices onco. reocommended you? I think some exercise is good while chemo but when you feel tired and the weather is bad unfortunately now in winter is not possible.
What kind of tests you are having after chemo and how often you visit your onco.?

all the best to you all!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Dec 13 2009 at 9:41pm
girlpower,  sounds like you are doing well. I only had AC [ but this was years ago] and was completely bald by 3rd tx. I started wearing beret's 4-6 weeks after last chemo. They covered up majority of the head, I had enough hair coming in where it showed that I didn't look bald and they were comfortable. I did get hemmoroids but they did go away once I finished tx. I now only get bothered during times of stress. Good luck with the yoga. I started that up after tx finding it easier on my system. Other excersize regimes brought hot flashes on. Who knows why ! Don't overdo during tx. Especially if you are working. The end is in sight.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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