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xo_ro View Drop Down
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Direct Link To This Post Topic: Quote Request- How has TNBC Foundation helped you?
    Posted: Apr 17 2018 at 7:12am
TNBC was the main forum I would constantly visit to learn about my diagnosis and intended treatment plan.

Rosanna from Guam
Dx: Feb 4, 2017
Diagnosis: TNBC Stage 2B left breast
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MMcKinney View Drop Down
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Direct Link To This Post Posted: Nov 12 2016 at 7:03am
TNBC foundation is helping me stay motivated.
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Direct Link To This Post Posted: Jun 14 2016 at 12:11am
This site was the best thing that I found after my dx the support and information was every thing I needed got me through very tough times still does.This site is surely my second family don't know what I would do with out you.
Thank you so very much!
Denise
DX Idc 10/07,st2,gr3,2/6 lymphnodes
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Direct Link To This Post Posted: May 31 2016 at 10:10am
hi...i found out about this site just after the dx....i can honestly say i still dont understand how dangerous this kind of cancer is....i know its crazy for reacurrances or even for having fatal outcomes so the best we can do is think possitive...say online and talk to the women who are alos fighting this cancer....this type....any way.....this site is great!!! and i will return repeatably  Wink

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Direct Link To This Post Posted: Jun 06 2014 at 9:19am
TNBC reminds me I am not alone.... even though feeling far away.  And that I have friends out there who really do understand where I am at now.   And where I would like to be in the future   NED! 
BRCA1+, Bilat oopherectomy @ 46.
now 52 Dx: CDI, BilatMastect 3/1/14 1.5cm w/ 3mm met SLN, Nottingham8/9, IIA, Chemo: Genoxal, Fluoracilo, Epirrubicina, TAXOLx8 start 6/25; rad. 6wks, Expanders
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Direct Link To This Post Posted: Mar 25 2014 at 6:46pm
TNBCF has been a great source of community, compassion, and comraderie, as well as a place to give back by being there for others in their time of need.  
Denise, Berkeley
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Direct Link To This Post Posted: Mar 25 2014 at 3:00pm
An invaluable source of information, comfort, friendship and advice.
Susan, dx July 2009 London
DOB 09.11.51Dx July09,TNBC,GR3,IDC Nodes removed & clear,R.Mst,Chemo. Rads April 10 dx bone mets wrongly in spine for 2 months. BRCA1. LBreast removed + ovaries in 2012
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Direct Link To This Post Posted: Mar 05 2014 at 6:49pm
TNBC Foundation was a great POSITIVE resource for me, family history of hormone positive cancer, didn't know anything about TNBC.
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Direct Link To This Post Posted: Mar 03 2014 at 1:20pm
When I first went to the doctor and received the dx of TNBC, I was so scared and drove home crying.  Everything that made me happy also made me sad.  I felt that I couldn't talk to anyone about what I was going through because they wouldn't understand so I told very few people I had it.  But being so scared with no one to talk to, I found this site and everyone's insight and comforting posts made accepting my cancer much easier.  Everyone's support made me a much stronger person with the will to fight.
 
Carol, New Jersey 
Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010.
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Direct Link To This Post Posted: Feb 27 2014 at 3:32pm
The TNBC Foundation helped me in 2010 when I was diagnosed with it & the valuable information & support I received helped me immensely. Thank you for all your support.

Nonna
Dx: age 70 IDC TNBC Grade 3 5/10 left mastectomy Stage IIB 5.1 cm no reconstruction followed by chemo of Taxotore & Cytoxin then radiation
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Direct Link To This Post Posted: Feb 22 2014 at 9:02am
Triple-stars for the TNBC Foundation website and forum!!  It's been an invaluable resource for me during this unwanted journey.  The forum has been absolutely incredible. I really don't know what I would be doing without it - and these amazing warrior women I have had the pleasure in "e-meeting."  The website is also filled with insightful tools and patient-friendly.  I am also grateful for the suggested questions to ask all of your doctors - they have been enlightening, educational and much-needed.
DX 9/26/13 IDC TNBC; Grade 3 tumor; Stage 1; tumor deep, about 2.3 cms; surgery post chemo
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Direct Link To This Post Posted: Feb 17 2014 at 4:15pm
I found this forum almost a year after it started and 5 years after my diagnosis. It was great to have a better understanding of my particular cancer, with others in the same boat. It was nice to be able to give hope and give back to those newly dx.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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Direct Link To This Post Posted: Feb 17 2014 at 1:54pm
"TNBC Foundation has helped me connect with many courageous women whom has walked a similar journey and have personally met and bonded with several survivors in our unique Sisterhood."
Melissa, Ohio dx. 2009    Thumbs Up
"Hope for more Tomorrows"
TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads
Triple Negative Breast Cancer, "I Won't Back Down!"
mlsspaskvan.blogspot.com
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Direct Link To This Post Posted: Feb 15 2014 at 4:25pm
The Forum on the TNBC foundation website has connected me with so many knowledgable survivors.  It's made a real difference in my treatment and my management of side effects to get the input from all these women, and it has also given me an opportunity to help others.   The ability to share with people who are going through the same thing makes it so much easier.  The positivity and faith and prayers of so many who post on this site helps to keep me optimistic and reminds me to live each day to the fullest.
2008 Stg1 TNBC, LX, FEC+T, rads
2010 2.5cm tumor BRCA-, BMX,CMF
2011 LN mets, Gem/Carbo, surgery, rads
2012 lung mets, PI3Ki/taxo
2013 anti-PD-1
2014/15 Xeloda, IMMU-132, eribulin
Aug 2015 Keytruda
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Direct Link To This Post Posted: Feb 10 2014 at 4:50pm
The wealth of information that members shared was invaluable. I could educate my doctors about triple negative breast cancer because of what I read on the TNBC forum.
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Direct Link To This Post Posted: Feb 09 2014 at 11:37am
Not knowing anyone else diagnosed with TNBC, I went looking for information online very quickly.   TNBCfoundation.org is a goldmine, to put it simply.   I've received knowledge, direction, hope, support and the assistance of my sisters in the same fight as I.   I am not alone.   I never was.


Edited by nancykind - Feb 09 2014 at 11:37am
Lg lump never visible on any films but found 9mm. Lump 1/25/12, DX 1/31@50yrs IIIC/TN/DCIS/INV, Margins Unclr, Ki67 40%,Gr2. MX L 2/24. 3.1cm total. 11/17nodes. AC/T 2xWk,33rads. 12/12 MX R. 9/13 NED!
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Direct Link To This Post Posted: Feb 07 2014 at 7:45pm
This site has been so helpful to me. I learned a lot. After being on this site I knew the right questions to ask and to not except anything but the best care.

Here's to good health xoxoxo
DX 6/14/13 TNBC-IDC
7/15 BRCA 1 Positive
7/16 double mastectomy
7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr.
8/16/13 4 A/c and 4 Taxol
1/6/14 implants
3/13/14 ovaries and tubes removed
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Direct Link To This Post Posted: Feb 07 2014 at 10:35am


       The TNBC Foundation was a blessing to me in 2008 when I found it on line. A wonderful caring group of people welcomed me and provided assurance, helpful tips and tremendous support which to this day continues and I consider this family of friends a great great source of strength.    A hundred thousand Thank You's!!!
Annie TNBC Stage IIA Gr 3 1cm lesion 2/5 lymph nodes+ lumpectomy,FEC & D 30Rads finished(08/2009) BRCA- Chronic Cellulitis due to Radiation-- L.Mastectomy Jan 2012
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Direct Link To This Post Posted: Feb 07 2014 at 9:53am
The TNBC Foundation gave me the strength and insight to deal with my diagnosis. In this community the shoulders are strong for everyones worries and tears. I never felt alone while connected here.
Natalie,  Bay Shore N.Y.
Diagnosed April, 2011


Edited by Natalie - Feb 07 2014 at 12:52pm
TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg
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Direct Link To This Post Posted: Feb 06 2014 at 9:15pm
TNBC Foundation is the only place that addressed the needs of my cancer with hope, honesty, and sincerity, offering me a place to take care of me and my concerns without worrying my friends and family.  Now this community is family to me. 

Barb,  Woodbury, MN 02/12/2013
02/12/13 DX TNBC, Grade III, Stage 3, 3.3cm tumor, IMN and 1 lymph Positive, Chemo A/C T complete 6/13
BRCA1-/BRCA2+ Variance, BIL 7/13, 33 RADS complete 10/13 Remssion :)
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