Tnbc with the BRCA gene |
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cherylbrca 
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Joined: May 15 2012 Location: Pittsburgh PA Status: Offline Points: 5 |
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 Topic: Tnbc with the BRCA genePosted: May 25 2012 at 12:39pm |
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Looking for others that are have tnbc and also the brca gene. So that we can see what is being tried and working and to support one another. Please come to the fb page that was just started.
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henn9438
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Joined: Dec 07 2013 Location: Pakistan Status: Offline Points: 1 |
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Posted: Dec 07 2013 at 1:44am |
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Thanks for the support. Will keep in touch.
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adem
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eschindler
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Joined: Jun 13 2016 Location: Wisconsin Status: Offline Points: 1 |
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Posted: Jun 15 2016 at 5:04pm |
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Hi All,
I notice that this thread is kind of inactive. I did sign up for the FB group, but I was wondering if anyone is actively checking this thread. If so, I would love the chance to share experiences and challenges with other BRCA+ TNBC survivors. Thanks, Emily |
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AmyB
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Joined: Jun 01 2016 Status: Offline Points: 1 |
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Posted: Jun 21 2016 at 10:43am |
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I am BRCA+. Was diagnosed with stage 2a on May 17. Starting dose dense AC-T chemo on Thursday.
Trying to be positive. But afraid of what's to come. |
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romnessprite2
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Joined: May 24 2016 Location: Renton, WA Status: Offline Points: 152 |
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Posted: Jun 22 2016 at 2:35am |
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Hi. Im brca+ also and done with treatment. This thread isnt very active. Try tnbc talk. On this site that one is the most active
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Stage 3A. TNBC Diagnosed 9/15/15 2cm grade3. 4AC & 12taxl .double mastectomy3/8/16. 25 rads finished6/2. xeloda started 7/7/16 stopped xeloda because of side effects7/14/16. BRCA+
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newalex
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Joined: Jun 29 2009 Status: Offline Points: 41 |
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Posted: Oct 02 2018 at 4:05am |
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Hi, I went to the Facebook group and the group is closed.
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Meadow
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Joined: Apr 22 2017 Location: seattle, wa Status: Offline Points: 88 |
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Posted: Oct 02 2018 at 6:51pm |
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I am BRCA1+. I finished treatment for TNBC in May 2010. Have you looked at FORCE (www.facingourrisk.org)? A lot of folks on that site have not had cancer, but many have. The message boards there have become less active in the past few years, but there's a good search tool for searching past discussions. The site also has lots and lots of vetted medical information. You can also sign up to get one-on-one support from a volunteer (I'm a volunteer). And in some cities there are live FORCE support groups that meet regularly. Take care.
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hamaldonado
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Joined: Aug 25 2021 Location: California Status: Offline Points: 6 |
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Posted: Aug 25 2021 at 11:20pm |
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I am newly diagnosed with BRCA and TNBC (3 cm in left breast). Just at the very beginning of my journey. I requested to join the facebook group.
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Ternishab
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Joined: Feb 22 2023 Location: Orlando, Fl Status: Offline Points: 1 |
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Posted: Feb 22 2023 at 1:28pm |
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Hello, my name is Ternisha Burnett, and I was just watching Robin Roberts giving her testimony on her journey on YouTube . I am 36 years old, and I was diagnosed with triple-negative Brca gene breast cancer stage two
on April 16, 2022. In the beginning, everything started out fine, but then towards the end of my treatment, they started having complications. I don't know anyone here in Orlando, Florida, that I can talk to who has a similar cancer that I had. September 15, 2022, this was my last treatment, and I had my double mastectomy on September 8, 2022. I was recently in a car accident at the beginning of this year 2023 with a driver who did not see me. With that being said, I've been going through so much physical and mental pain. I have headaches that have been lasting for 10 days now that I can't get rid of. My oncologist just told me yesterday that I could possibly have a tumor in my brain, and I do not know what to do. I'm lost for words because they cannot do an MRI because of my expanders. I would have to remove them in order to get an answer. I feel so lost angry and upset because I don’t understand why I was not told this in the beginning that having triple negative that it can affect so much. I did not know this and I don’t know if any of you are going through this that can help and give me words of encouragement.
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Tiffany
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Joined: Feb 21 2023 Location: New Jersey Status: Offline Points: 21 |
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Posted: Mar 13 2023 at 2:26pm |
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Hi Ternisha,
I am so sorry for everything you are going through. You are so young. I just turned 50 and I was diagnosed TNBC, BRCA2+ last month. Treatment starts Thursday, March 16th. Did your headaches start after the car accident? Do you have a history of headaches? Did your imaging show any metastasis or was your cancer only in the breast? I am a research nurse and can share everything I know about TNBC and the BRCA mutation. Stay well and please keep in touch! Tiffany
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Dx: Feb 2023 TNBC, Grade 3, Stage IIB. BRCA 2+ TCx6 treatments started 16MAR23.
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