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123Donna View Drop Down
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< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">

A couple of questions for Komen when they pull $700k in funding to women who might not have access to it without the help of PP.

1.  Is it true you spend $1M+ each year "defending your brand" in order to "protect your market share?

2.  Is it true many of the SGK top executives make $200K+ (ans some as high as $500K)?


 
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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123Donna View Drop Down
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< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">

Hmm, will we be see more resignations at SGK?
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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SagePatientAdvocates View Drop Down
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http://www.nytimes.com/2012/02/03/us/komen-foundation-urged-to-restore-planned-parenthood-funds.html?_r=1&nl=todaysheadlines&emc=tha2

The outrage is genuine and continues...

I was particularly impressed by the 7 California affiliates who all called for a change.

These are folks who potentially are risking their jobs/careers at Komen doing so. True courage.

all the best,

Steve


Edited by steve - Feb 03 2012 at 3:36am
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Unfortunately, this going to politicize fund raising for women's health care broadly.

Interesting about salaries at Komen.  If true they are a real scandal.

David
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I agree, David.  Planned Parenthoo has seen an increase in fundraising during the past few days by those who want to make a statement and be sure that PP can continue to offer screenings for those who rely on them.  I bet it is likely that Komen has also seen a tremendous amount of support for their decision because it represents because it represents the agenda of many who are pro life.  

What I will do in protest is to never walk in Komen event.  Perhaps if there are fewer pink survivor shirts, in the walk they will get the message.  What I feel is sad is that women's health has become increasingly political.  You can be pro life and pro breast screening at the same time.  I heard yesterday that abortion services are actually only about 2 or 3% of what PP does.  Now, some will see that as 2 or 3% too much.  We each have personal feelings about this very hot button issue.  But, so much of what PP does has nothing to do with abortion and so much to do with providing health services to poor women.  Plus, the money given to PP by Komen went to cover exactly what Komen is all about, education, screening and early detection. I still can't imagine how Komen can feel good about pulling funding for services to very women who need it most.
< id="_npwlo" ="applicationpwlo" height="0">
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-
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In a nutshell, the hands down best summary I've seen was on Rachel Maddow last night. Here's the link,   http://www.msnbc.msn.com/id/26315908/#46246644    it is difficult to watch but certainly gives a good understanding of the history and how we got here.
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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123Donna View Drop Down
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< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">
Good link Mainy, very informative.

Andrea Mitchell interviews Ms. Brinker last night.  See how uncomfortable she is during the interview.  Can't buy the new SGK "metric spin".



Edited by 123Donna - Mar 29 2012 at 8:40am
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Thanks, Mainy..
warmly,
Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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We're back in business!!! Breaking news is that Komen is reversing their decision.Clap
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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123Donna View Drop Down
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ClapYeah!!!!Clap< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">

Let's see how this plays out and if they keep their word.

The official statement issued was that they will "honor existing grants" (which only means they won't demand the already granted money back) and that PP is free to apply again in the future - to which Handel already stated publicly yesterday that even if they apply again, they are unlikely to give them anymore grants due to much of PP's mammography services being referrals to off-site radiology labs and that they are, quote: "moving away from 'pass-through' services."  [this is from the De-Fund Komen FB page]
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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SagePatientAdvocates View Drop Down
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Komen just reversed their decision and will support Planned Parenthood.


Mainy, didn’t mean to step on your news..hadn’t seen your msg on board.

all the best,

Steve


Edited by steve - Feb 03 2012 at 11:50am
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Points: 613 		Post Options Post Options   Thanks (0) Thanks(0)   Quote Charlene Quote  Post ReplyReply Direct Link To This Post Posted: Feb 03 2012 at 12:09pm
So happy to see that Komen backed down.  But, I still think they continue to damage their reputation and should be watched carefully!
Charlene
DX 3/10 @59 ILC/TNBC
Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision
SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads
3/14:NED
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123Donna View Drop Down
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< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">

Let's be hopeful that SGK will follow through and that this is not a PR move.


Komen Statement on Planned Parenthood is a PR Move, Not A Policy Reversal

The Susan G. Komen Foundation released a statement moments ago that many are greeting as a reversal of their decision to cut funding to Planned Parenthood. On Twitter, the Breaking News feed called it a “pledge to continue funding Planned Parenthood,” while Glenn Greenwald called it “an amazing, Internet-driven victory.”

But it’s not.

The new statement does not pledge Komen to reverse its funding decision, and it does not promise Planned Parenthood any new funding. Let’s look at the relevant passage (emphasis mine):

“We will continue to fund existing grants, including those of Planned Parenthood, and preserve their eligibility to apply for future grants, while maintaining the ability of our affiliates to make funding decisions that meet the needs of their communities.”

Komen had never intended to renege on its existing grant commitments to Planned Parenthood, as PP themselves noted intheir press release announcing the break between the two organizations (again, emphasis mine):

“In the last few weeks, the Komen Foundation has begun notifying local Planned Parenthood programs that their breast cancer initiatives will not be eligible for new grants (beyond existing agreements or plans).“

Komen’s statement that Planned Parenthood will be “eligible” for new grants is a new development, but it commits Komen to nothing. There’s no reversal of the funding cutoff here, and no promise to reinstate Planned Parenthood funding.

This isn’t a victory. Not yet.
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Dear Donna,

I just received this from Komen and I think we need to take them at their word regarding funding and changing their policies. It is inconceivable to me that, after this announcement, they do not fund Planned Parenthood, now, or in the future.

warmly,

Steve

February 3, 2012

For Immediate Release

 

Statement from Susan G. Komen Board of Directors and Founder and CEO Nancy G. Brinker

 

We want to apologize to the American public for recent decisions that cast doubt upon our commitment to our mission of saving women’s lives.

 

The events of this week have been deeply unsettling for our supporters, partners and friends and all of us at Susan G. Komen.  We have been distressed at the presumption that the changes made to our funding criteria were done for political reasons or to specifically penalize Planned Parenthood.  They were not.

 

Our original desire was to fulfill our fiduciary duty to our donors by not funding grant applications made by organizations under investigation.  We will amend the criteria to make clear that disqualifying investigations must be criminal and conclusive in nature and not political. That is what is right and fair.

 

Our only goal for our granting process is to support women and families in the fight against breast cancer.  Amending our criteria will ensure that politics has no place in our grant process.  We will continue to fund existing grants, including those of Planned Parenthood, and preserve their eligibility to apply for future grants, while maintaining the ability of our affiliates to make funding decisions that meet the needs of their communities. 

 

It is our hope and we believe it is time for everyone involved to pause, slow down and reflect on how grants can most effectively and directly be administered without controversies that hurt the cause of women.  We urge everyone who has participated in this conversation across the country over the last few days to help us move past this issue.  We do not want our mission marred or affected by politics – anyone’s politics.

 

Starting this afternoon, we will have calls with our network and key supporters to refocus our attention on our mission and get back to doing our work.  We ask for the public’s understanding and patience as we gather our Komen affiliates from around the country to determine how to move forward in the best interests of the women and people we serve.

 

We extend our deepest thanks for the outpouring of support we have received from so many in the past few days and we sincerely hope that these changes will be welcomed by those who have expressed their concern.



Edited by steve - Feb 03 2012 at 12:56pm
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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cheeks View Drop Down
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Glad they have reconsidered Big smile

Blair
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
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A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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I am glad to hear they did the right thing.  I think a lot of voices from thousands of women made them take a look at this.  
< id="_npwlo" ="applicationpwlo" height="0">
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-
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< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">
Steve,

I sure hope they will do the right thing.  I hope so.  My new motto is from DeNiro's famous line in Meet the Parents, "I'm watching you [Komen]".

Donna


Edited by 123Donna - Feb 04 2012 at 4:59pm
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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For those of us just simply hoping that our fellow cancer families get the care we all need to have I'm greatly heartened to see that several organizations, vendors, celebrities and everyday caring people stepped up and gave to Planned Parenthood...among them Live Strong. May their kindness be matched by Komen. hint Komen, now would be a good time to UP your contributions to PP, just sayin.
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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I just read that Planned Parenthood has a pending grant application for 2013.  The grant still hasn't been approved.  I think for Komen to show that they really mean what they say, they need to approve that grant ASAP.  Like Donna said, we need to be watching to see if their actions match their apology.  
< id="_npwlo" ="applicationpwlo" height="0">
DX ILC TNBC 3/10 at 50, Stage IIb; Grade 3; 5.1 to 7 cm,SNB neg;TC-6 rnds, 30 rads, Avastin-18 rnds, BRAC 1&2-
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For Komen, the outrage did not cease after the decision. Many many calls are coming forth for the entire Board to resign over this and many similar groups decry that this now puts a pall on their reputations to stay clear of politial sway    http://vitals.msnbc.msn.com/_news/2012/02/03/10311538-might-be-too-little-too-late-for-komen-bioethicist-says
Trust is a precious thing.
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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