Taxol Rash!! |
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trip2 
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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 Posted: Jul 09 2010 at 5:44pm |
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Deborah,
Wonder why in the world they didn't give you a written report with the disks? You can always arrange to get a copy of the written report.
Sorry the ankle is taking a long time and yes chemo will do that. I' so glad you've got a good helper to assist in getting you around. Also sorry about the hair but remember it will grow back. Glad you like your wig.
You know I never one time had any problems with Neulasta. Many women complain so maybe I'm the oddball. Hope it doesn't bother you as well.
Good to hear from you,
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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mudpuppy
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Joined: Mar 15 2010 Location: Los Alamitos,Ca Status: Offline Points: 27 |
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Posted: Jul 11 2010 at 3:31am |
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Pam,
I, too, did not have a problem with Neulasta. I had A/C every 2 weeks followed by Neulasta the next day. I was very fortunate though that I did not to have all the side effects during chemo you hear about.
Yes, I lost my hair, and yes it does grow back, Deborah
 . When I was done with the A/C, I had 12 weeks of Taxotere and was not sure if I should shave my 5 o'clock shadow (which I had for about 2+ months ). I decided not to shave it again to see what would happen since there was a chance I would not lose it with the Taxotere. And I didn't. It grew back, curly, of course.Hopefully, Deborah, you won't have a problem with the Neulasta and it keeps your WBC up. It worked really good for me. That was one thing I worried about and having to delay chemo until they were up. I pray for you that it works great for you to keep everything on the path going forward.
I am getting ready to start more chemo in couple of weeks. I will be on Gemzar and Cisplatin. My doctor spoke to a special board and they recommended more chemo and radiation as a back up plan since I had TNBC. I just had bilateral mastectomy surgery May 18th with reconstruction. Unfortunately, I had gotten a skin infection and had one of my tissue expanders removed June 21st. But I will be able to get it back in December. I'm looking forward to it as a Christmas present
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DX 9/21/2009, age 37, Tumor 3 cm (4.3 with tentacles), Grade 3, DD Neoadj chemo,4X AC, 12X Taxotere,Stage 2A, BRCA 1/2 neg, Bilat mast/reconst 5/18/10, 0/10 nodes, Gemzar & Cisplatin 4 cycles
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jul 11 2010 at 12:31pm |
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Hi Mudpuppy,
Interesting you are getting more chemo as a back up plan because of the TNBC. In your signature I don't see that you have mets. Three years ago during my second diagnosis I would have definitely taken more chemo if given the chance, wish they had offered.
I'm happy to hear Neulasta didn't bother you, I'm not alone! Yet still an oddball I reckon since even though I got the shots after Taxotere I still landed in the hospital, usually the same night of the shot with Neutropenia atleast 4 out of 6 times. I was a sick dog that year!
I am so happy for you looking forward to such a wonderful Christmas present! Edited by trip2 - Jul 11 2010 at 12:33pm |
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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mudpuppy
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Joined: Mar 15 2010 Location: Los Alamitos,Ca Status: Offline Points: 27 |
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Posted: Jul 11 2010 at 3:13pm |
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Pam,
No, my BC was confined in my left breast. It had not spread. My family is tripping out that I am having more chemo but I am all for it. If this is what it takes to help prevent a recurrence, I'm game. I told them it was for the best.
When I looked up the chemo drugs I will be on I did read they are usually given to people who it has metastasized. My nodes were clear when I had my surgery. The path report had no description of them other than no cancer was found. Good no cancer but wanted to know if there was a sign any of them had cancer since I had neoadjuvant chemo. Oh, well, what can I do? I'm clear now and gonna have more chemo. LIke I mentioned I am all for it. People might think I weird for wanting more chemo but if it helps then you do what you need to do. I plan on kicking for many years
 Christine
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DX 9/21/2009, age 37, Tumor 3 cm (4.3 with tentacles), Grade 3, DD Neoadj chemo,4X AC, 12X Taxotere,Stage 2A, BRCA 1/2 neg, Bilat mast/reconst 5/18/10, 0/10 nodes, Gemzar & Cisplatin 4 cycles
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Jul 11 2010 at 7:06pm |
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Hello all,
Pam, how are you doing these days? We were all very worried for you. Thank you, BTW, for the links on working women - very helpful!
We had a couple, friends of ours, come around last evening - they brought the food, and all the crockery, cutlery, etc., and, a bag full of various hats and scarves from other friends who could not come by. It was so thoughtful, also somewhat bittersweet, but fun, too - as they had thought up little descriptions of when to wear which headcovering...
I've now given myself 3 of the Neupogen injections - and though I really don't like doing it, I must say I haven't felt anything other than some backache. (Which I'm not sure if it is from the injection, or from the wheechair.) So, I'm hopeful that I'll join Trip2 and Mudpuppy in the "oddball" club...
I agree with you, Mudpuppy - go for the chemo. In my case, unfortunately, because the pathology incorrectly labelled me as "postive" instead of "TN" the first time around in 2008, and because I had clear nodes, I was not given any chemo - just some radiation. Two years later, I've gone from Stage "0", to Stage IV, Grade 3, with extensive mets to nodes, too numerous for surgery or radiation. I'm sure if I had had a correct diagnosis back then, I would have been given chemo, and might not be in this position today. Nevertheless, if that was the case, I might not have found this site either - so there's some blessings there!
Take care, all.
Deborah.
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jul 12 2010 at 6:09pm |
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Christine, No one including our families are going to "understand" why we might choose more chemo. I love your attitude and there is no doubt in my mind you will kick some fanny! To understand is to be in our shoes, only members here who have been diagnosed get the drift. You are no weirdo whatsoever honey!
Loved ones who care for us have their ordeal they go thru at seeing you being diagnosed and hopefully there is much compassion and support. Thru both diagnoses of mine my hubby has been a huge help but for a very long time if I wanted to talk his eyes would glaze up, I knew to drop the subject. We are all affected but you have to wear our shoes.
Deborah what a fabulous and thoughtful idea of your friend's bringing the meal, dishes and a bag of hats and scarves for you. I can see lots of support coming from your friends which will be a huge help.
I wonder if your backache could be flaring because of chemo? You might call your Onc's office and speak to a nurse to see if she has any ideas of what may be causing it in regard to your treatments. They get alot of input from patients. Backaches are miserable. Does a pillow help?
You are welcome to join our "oddball" club.
I just don't think the Neulasta did a thing for me, sure didn't keep my counts up.
I'm doing ok, stressing over an upcoming PET but can't complain, thanks for asking!
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Jul 15 2010 at 3:55pm |
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Yesterday was a good day!
As a result of the Neupogen injections, my WBC was way up, so I could have the "full treatment" of chemo, and did not need the Neulasta shot, after all. Also, my CA marker #27.29 was down from a pre-treatment high of 866 to 394. ("Normal" is 0-39)
 Deborah.
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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123Donna
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Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
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Posted: Jul 15 2010 at 3:58pm |
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Deborah,
Wooohoooo!!!!! Donna |
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
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tnbcsucks
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Joined: Jun 02 2010 Location: Michigan Status: Offline Points: 76 |
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Posted: Jul 15 2010 at 4:10pm |
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That is great! are your cancer markers in your labs each time you get labs done???? I have to look into the cancer markers, I don't know mine.
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TNBC DX April, 2010,Lumpectomy May 3.5cm with clear nodes,Stage 2, Grade III Started Chemo on June 7: 4 A/C every other week and then 12 weeks of Taxol. followed by 6 weeks of radiation.
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Jul 16 2010 at 12:36pm |
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No, I specifically asked for the cancer marker test the last time they did labs (having read about them on this Forum). I wasn't really sure what I was asking for, so was pleased when they told me they were improving. This is not considered the be-all and end-all of signs, but it is one that does give some indication that the chemo is working, I believe.
(Usually I have the chemo on Thursdays, so that I can go to the office on Friday still riding the steroid "high", and then be pooped at home over the weekends. But this time, having the chemo on Wednesday, I find myself feeling pooped at the office! Good thing it's Friday... And yes, this is my lunchtime activity.)
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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tnbcsucks
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Joined: Jun 02 2010 Location: Michigan Status: Offline Points: 76 |
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Posted: Jul 16 2010 at 1:07pm |
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Hi, Debris Did you have a lumpectomy/masectomy before chemo?
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TNBC DX April, 2010,Lumpectomy May 3.5cm with clear nodes,Stage 2, Grade III Started Chemo on June 7: 4 A/C every other week and then 12 weeks of Taxol. followed by 6 weeks of radiation.
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Jul 16 2010 at 2:10pm |
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Hi TNBCSucks -
Actually, when I was erroneously dx as "ER+/HER2+" in 2008, I had a lumpectomy and radiation but no chemo. Now they've discovered that the lump in my neck was TN, they are only giving me chemo, as the mets to nodes is too extensive for either surgery or radiation.
So, I guess the answer is yes, but not for the same Dx...
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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dawnmarie
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Joined: Nov 07 2009 Location: S. California Status: Offline Points: 20 |
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Posted: Jul 21 2010 at 3:37pm |
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I started my chemo July 2nd - 4 rounds of AC every 3 weeks. Day 17 I shaved my head and felt so much better. First week I was extremely tired and had occas. aches pains but overall the 2nd and 3rd week I felt better then I have in a very long time. I didn't have any shots after my chemo treatment and hoping my blood work today is good for my 2nd round of chemo on Friday and everything goes as well this time around. They gave me Zofran to take for 3 days following chemo along with compazine as a back up for any nausea but only took that like 2 or 3 times. Can chemo actually make you feel better? who would of thought that???
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10/09 lumpectomy - L. breast. 12/04/09 Bilat. Mastectomy w/tissue expanders. Stage 1, Grade 3 - 26 lymph nodes neg. E/T/HER2 - All Neg. Jan. 10 refused chemo,5/10 Recur. Now 4XAC:(
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Debris
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Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
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Posted: Jul 22 2010 at 1:51pm |
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DawnMarie - that's great! And I agree -getting rid of the falling hair is a relief.
Good luck with the rest of your treatments - may they all go so well for you.
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4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Jul 22 2010 at 8:08pm |
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Hi Dawnmarie,
I hope you continue to do well with your treatments. Not everyone has a rough time, we are all different.
Good wishes your count is good to have your next infusion.
Keep us updated on how you are doing..
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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Guests
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Posted: Jun 28 2011 at 12:02am |
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i am a new here ,look forward to make more friends here ,thankyou
Office Professional Plus 2010 Microsoft Office Professional 2010 Microsoft Office Professional Plus 2007 outlook 2010 |
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mainsailset
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Joined: Jul 27 2008 Location: Washington State Status: Offline Points: 5004 |
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Posted: Jun 28 2011 at 12:24am |
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Honey, we have breast cancer in common here, so if you have breast cancer welcome, but if you're instead trying to peddle officeware, please move on and make friends somewhere else.
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
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Posted: Jul 05 2011 at 3:00am |
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This is a component of the problem. Asking a Favor. |
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Guests
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Posted: Aug 15 2011 at 9:40pm |
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Kerry experienced her 10th round of weekly Taxol today. She has
experienced a red-colored rash inside the knuckles of each arms for the
last two weeks. last day the onc mentioned it experienced been dried
out skin, so she utilized lotion. This day he gave her a rx of
Methylpred It is receiving even worse , wish the meds work. do
anybody have identical problems. beneficial information will possibly
be the reality that she is practically finished using the 1st half of
chemo.
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