Taxol Rash!! |
Post Reply 
|
Page <1234> |
| Author | |
Twin Sister 
Groupie 
Joined: Jun 21 2010 Location: Gulf Coast AL Status: Offline Points: 81 |
 Post Options
 Thanks(0)
 Quote Reply
 Posted: Jul 01 2010 at 9:00pm |
|
You and I have the same dx. I have had one chemo. Then too low wbc for the next chemo. Adria/Cytoxin. How are you doing with it? After 4 of A/C, I go for Taxol then radiation.
|
|
 |
|
|
123Donna
Senior Member 
Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 01 2010 at 9:13pm |
|
Twin Sister,
Are they giving you the Neulasta shot the day after chemo? It's supposed to help with keeping your wbc levels up. I hope your other treatments go well and you have no further complications. Donna |
|
|
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
|
|
|
|
Kerry OK
Groupie
Joined: Jan 17 2010 Location: Oklahoma Status: Offline Points: 44 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 01 2010 at 11:03pm |
|
tnbcsucks
What a great handle to use. Kerry wanted to use it but decided not to. Kerry's treatment plan came from M D Anderson. Kerry did take 12 weekly taxol treatments first. She was going to take 4 treatments of FEC, 1 every 3 weeks, following the taxol but our onc in Tulsa said she could shorten her treatments 1 month by taking the A C 4 times every 2 weeks. We talked to her Dr. in Houston and she said the change would be fine. No brainer for her. She has finished the A C and spending the week with our first grandchild. Keelyn was born on 6/26/10, 3 weeks early, with the cord wraped around her neck twice. Mother,Baby and Grandmother all doing fine.
Brad
|
|
|
DX 11/11/09, IDC, <.5cm, 0-2 Nodes, Stage I, Grade 3 TNBC, Lumpectomy 11/27/09, Age 53 Treatment begins 2/5/10, 12 wkly doses Taxol, 4 doses every 2 wks of A C Then 6 wks Rads
|
|
|
|
|
tnbcsucks
Groupie
Joined: Jun 02 2010 Location: Michigan Status: Offline Points: 76 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2010 at 10:23am |
|
Brad, that is great on the delivery of the new grandbaby (not that she had the cord wrapped around her head)...that she made it into this world and doing great! Have a great time with her and best of luck to your wife and family. I"ll be going for my 3rd A/C treatment after the 4th and then continuing with the Taxol treatments after that! You wonder why some do the A/C first and others do it after? Enjoy the 4th!
|
|
|
TNBC DX April, 2010,Lumpectomy May 3.5cm with clear nodes,Stage 2, Grade III Started Chemo on June 7: 4 A/C every other week and then 12 weeks of Taxol. followed by 6 weeks of radiation.
|
|
|
|
|
Twin Sister
Groupie
Joined: Jun 21 2010 Location: Gulf Coast AL Status: Offline Points: 81 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2010 at 2:16pm |
|
Donna,
They told me there was nothing to do. Just stay away from people and don't get sick. I will ask about that shot. Thanks. How are you doing?
|
|
|
|
|
Twin Sister
Groupie
Joined: Jun 21 2010 Location: Gulf Coast AL Status: Offline Points: 81 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2010 at 2:21pm |
|
Donna, what made you decide for mastectomy? I had lumpectomy (2.8ct). Was it the Triple Neg? I keep second guessing myself. May I ask another question? My hair is beginning to fall out. I can reach up and pull chunks out. Should I go ahead and get it shaved or let it do its thing? My scalp aches. It is very odd.
Thanks.
|
|
|
|
|
123Donna
Senior Member
Joined: Aug 24 2009 Location: St. Louis, MO Status: Offline Points: 13510 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2010 at 2:32pm |
|
Twin Sister,
I'm doing well. It was a personal decision on the mastectomy. I had a greater fear of recurrence and worried because I had dense breasts. Actually there was more into my decision but I felt good with my choice. It was just the right decision for me. Definitely ask about the Neulasta shot. It kept my wbc in the normal range during treatment. If your hair is starting to fall out, I'd shave it. That's what I did and I felt empowered by it. Instead of waiting for it to fall out in clumps, I had my husband shave it. It made me feel like I was in control. Good luck and let us know what you decide with your hair. Donna |
|
|
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
|
|
|
|
zoomommy2
Senior Member
Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 02 2010 at 3:50pm |
|
Twin Sister, I had Neupogen shots after each chemo of AC. It will definitely lower your counts. It was for 10 days out of every 14 between rounds of AC. Some people get Neulasta, which does teh same thing. Without one of those your counts will take a very long time to come back up and delay your next treatment. This is supposed to be standard with AC.
Lee in Denver
|
|
|
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
|
|
|
|
|
Debris
Senior Member
Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2010 at 12:16pm |
|
I was sent home last Thursday, without my 3rd Taxol (out of 18), due to low WBC. Interestingly, I had just asked about the Claritin/Neulasta connection before I went into the chemo lounge, and was told that I would not have to worry about it, because the regimen I am having wouldn't do that to my WBC. And 15 minutes later, I was sent home!
I also asked about my hair - which is coming out fast and furiously. Again, they said that it was "just thinning", and that I shouldn't do anythng drastic like shave my head just yet.... But it seems too much coming out to be just thinning. I've ordered a wig, and will see my hairdresser next week upon her return from vacation. We'll decide then how to proceed. I'm OK either way! (The "they" was actually the physician's assistant, BTW.)
What a journey! But how wonderful to make it with all of the great folks who are on this site.
Peace,
Deborah.
|
|
|
4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
|
|
|
|
zoomommy2
Senior Member
Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2010 at 1:11pm |
|
Deborah,
Taxol will make your hair fall out. By the time I got to Taxol after AC, there was no hair left to think about. I did shave my hair and felt much better for being in control. I was lucky that the Taxol never got my counts down too low for chemo. They were low, but not too low. So, there was no plan to take Neupogen. That's what my doctor uses instead of Neulasta. My oncology PA is a wonder and I love her to death. I was on an Avastin study and had no problems with it. I didn't even know I was on it for sure til they told me at the end. It's not quite a year since my diagnosis, mastectomy and chemo. I have a journey in front of me, too. Praying that you get back on the Taxol next week and get some Neulast/Neupogen to keep your counts up.
Lee in Denver
|
|
|
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
|
|
|
|
|
Twin Sister
Groupie
Joined: Jun 21 2010 Location: Gulf Coast AL Status: Offline Points: 81 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2010 at 4:54pm |
|
Dear Zoomommy and Donna,
Why would my onc not offer the shot routinely? I feel like I am wasting time. What is the cancer is secretly growing back? And, I am trapped at home, in my own office, trapped.
I took the plunge and had my head shaved this morning. Tears again. Every new thing is a stab in the heart. I have cancer. Can I have a glass of Cabernet? Does it bolster blood or dilute it? I have nmot had wine in months. I feel fairly decent except for low wbc and a bald head... Someone wrote about the shots and vicodin. I read somewhere that the shots are painful. Anything on that? How do you make your dx appear on the bottom of the page?
|
|
|
|
|
Twin Sister
Groupie
Joined: Jun 21 2010 Location: Gulf Coast AL Status: Offline Points: 81 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2010 at 5:03pm |
|
TNBC SUCKS You and I share the same dx and treatment. I have had one A/T treatment. Then, too low wbs. How are doing with it? Has your hair fallen out?
|
|
|
|
|
zoomommy2
Senior Member
Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2010 at 10:16pm |
|
Twin sister, go to the top left hand of the page and go to Member Control Panel. You should be able to find out there. When I was on Neupogen shots, I was on Adriamycin and Cytoxan every two weeks. I would become neutropenic in between treatments. So I had to take the Neupogen 10 days out of the 14 between treatments. Without Neupogen I would have been in bad shape and wouldn't have been getting anywhere with chemo. Some doctors use Neulasta. It's one shot. My Neupogen was given in my thigh and it wasn't bad. Once I got to weekly Taxol, I didn't need anything to boost my WBC's. My onc said you usually don't. But if my counts had dropped too low he'd have had me use it. Why your doctor isn't giving it to you is a mystery. You need to keep your counts up to get the chemo. If you can't do it on your own, then you are going to have to have something to boost those counts. Don't let anybody push you around. Nobody cares more about ourselves than we do! Good luck!
Lee in Denver
|
|
|
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
|
|
|
|
|
zoomommy2
Senior Member
Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2010 at 10:19pm |
|
Twin Sister, go to the Member Control Panel and scroll down to Forum Help. It will answer how to add a signature and then it will show up each time. Much easier!
Lee in Denver
|
|
|
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
|
|
|
|
|
Twin Sister
Groupie
Joined: Jun 21 2010 Location: Gulf Coast AL Status: Offline Points: 81 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2010 at 10:24pm |
|
Zoomommy - I found it and figured it out. Thanks. I was really sick ten days out the 14. I am definately going to ask about the shot. Wonder why it was an automatic resource? How did it affect you? I heard that it hurt.
|
|
|
DX4/10IDCSt2Gr3BRCA-Lump4/30/10, port,A/Cx46/14/10;wklyTaxol8/10ended 11/10/10.Rads35xbegin 11/10. LumpRBreastB9
2/2011,MammoOK 8/11 PET-metsIntlMamryChain12/11Xeloda,IMRT8wks;5/12 Mets,Stage4 |
|
|
|
|
Twin Sister
Groupie
Joined: Jun 21 2010 Location: Gulf Coast AL Status: Offline Points: 81 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 03 2010 at 10:32pm |
|
Donna,
Got my head shaved today. Very wierd. Time to learn about the art of tying scarfs. Got a sheet from American Cancer Society with examples. Not sure about going to church tomorrow. Bald + low wbc...
Thanks for writing me back. This TNBC has been so scary to me.
Michele in southern ALabama
|
|
|
DX4/10IDCSt2Gr3BRCA-Lump4/30/10, port,A/Cx46/14/10;wklyTaxol8/10ended 11/10/10.Rads35xbegin 11/10. LumpRBreastB9
2/2011,MammoOK 8/11 PET-metsIntlMamryChain12/11Xeloda,IMRT8wks;5/12 Mets,Stage4 |
|
|
|
|
Debris
Senior Member
Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 04 2010 at 11:03am |
|
Lee,
Thank you for the information - I agree, my hair is too far gone to be just thinning! Hopefully Thursday I'll get chemo - or want to know the resason why! (I also secretly fear the cancer is being given the chance to "regroup"...)
God Bless, everyone!
|
|
|
4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
|
|
|
|
zoomommy2
Senior Member
Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 04 2010 at 2:32pm |
|
Twin Sister and Debris,
I got some pre-tied scarves from HeadCovers.com. I wasn't brave enough to go outside bald, plus it was winter! I didn't care about being bald at home. I was delayed one week once on AC and that was due to being really anemic. I got 2 units of blood and back on schedule. The Neupogen shots weren't bad. I don't know about Neulasta. I gave myself the shots in my thigh. If you let the syringe warm up a bit -20 to 30 minutes - it wasn't so cold and hurt less. I would get neutropenic (low WBC) even the first few days on Neupogen. It took the 10 shots daily to bring things back up. I don't know why my onc preferred Neupogen to Neulasta. I would have only gotten it if I had failed on Neupogen. I was devastated to find out I wasn't going to be allowed to finish my Taxol treatments. I had emergency 4 1/2 hr gall bladder surgery when I had 5 treatments left. They said I'd lost the snowball effect of the chemo and wouldn't gain anything by finishing. That's when the real fear of the cancer regrouping came. It took several months for that to lessen. The onc and the wonderful PA convinced me that with all I'd already done to kill off the cancer, I'd be ok. Some days I believe and some days I don't. It doesn't consume me anymore, however. Good luck in your treatments.
Lee in Denver
|
|
|
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
|
|
|
|
|
Debris
Senior Member
Joined: Jun 07 2010 Location: Forsyth,Georgia Status: Offline Points: 756 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 04 2010 at 6:33pm |
|
Lee, Thanks for the Headcovers website. (I'm not brave enough to "go bare" either - and besides, I'd get sunburned on my head, here in Georgia.) Here's hoping Thursday works out re low WBC.
Hope you are doing OK now?
Peace,
Deborah.
|
|
|
4/12 Xeloda/Tykerb
2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
|
|
|
|
zoomommy2
Senior Member
Joined: Sep 26 2009 Location: Denver, CO Status: Offline Points: 1356 |
Post Options
Thanks(0)
Quote Reply
Posted: Jul 04 2010 at 7:54pm |
|
Deborah,
I just know your counts will be good this week! Get an answer about why you aren't being given Neupogen or Neulasta to get those counts up! You don't want to be behind schedule on your chemo if those shots will make sure to have your counts where they belong. Extra prayers for you on Thursday.
Lee in Denver
|
|
|
dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda
|
|
|
|
Topic Options|
Post Reply
|
Page <1234> |
Tweet
|
| Forum Jump | Forum Permissions You cannot post new topics in this forum You cannot reply to topics in this forum You cannot delete your posts in this forum You cannot edit your posts in this forum You cannot create polls in this forum You cannot vote in polls in this forum |