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Survivors Needed

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1maJ View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 1maJ Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 3:14pm
Hi everyone, I posted to this thread in 2017, and here I am in 2020 and still free of cancer.  I am more than 5 years from diagnosis, and will be 5 years from end of treatment in spring of 2021.  I think that is going to be my official celebration :) 

This group was SUCH great support to me, especially in the beginning when I was so scared.  Thank you all!

xxxx
Ima 
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 3:37pm
Hi Ima,

So wonderful to hear from you, again. Please put us on your calendar for Spring 2021 so we can rejoice with you.

I hope more survivors post. It will greatly help us a community to hear the positive stories and I know there are a lot out there.

with my love to all here,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rigatonismom Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 3:44pm
Hi All, 
It was 10 years today when I was diagnosed with stage 3c tnbc. I was in treatment for quite a while. I stuck with the treatment and told my oncologist to throw everything they had at it. I think they did that but I am here to tell about it today. I was a part of several clinical trials and that I am proud of and think that one of them might be the reason I am here writing this. I plan on having a celebratory toast tonight to mark this day.
DX 09/10 TNBC Stage3c, grade3, Tumor 2.7cm, chemo started 9/29/10, AC x4, Taxol x12, lumpectomy 4/11/11-tumor .6cm, 3+/22 nodes, radiation x 30 finished 6/30/11.Clinical Trial Cisplatin,PARP 8/23/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 4:22pm
Hello!

Hope I can give some encouragement.  I was diagnosed 11 years ago, Stage 1.  Second diagnosis was a recurrence 10 years ago, Stage 3.  With the help of a clinical trial and extensive radiation, I'm still in remission and no evidence of disease.  I finished treatment for the recurrence a little over 9 years ago, but still see the oncologist yearly, more for my peace of mind.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 10:23pm
Hi Rigatonismom,

Thanks for posting and thanks for your participation in clinical trials. 

So uplifting to read the stories.

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Sep 16 2020 at 11:14pm
Dear Donna,

The years go by so quickly. I remember when we first met on the board (2009?) and then a few years later, I think in Houston, in person? Congratulations!!!!!!

What is most remarkable to me is your continued support for all here including some very tough days for you, personally, but somehow, someway you managed to be such a wonderfully important, informative, supportive part of our TNBC family. 

We are all so fortunate that you have given so generously of your time. Thank you!!!
You truly have blessed us with your presence. 

Be well/safe dear Donna.

with my love to all here,

Steve




I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Annie Quote  Post ReplyReply Direct Link To This Post Posted: Sep 17 2020 at 10:36am
Hello All!   It has been some time since I posted.
             Be encouraged everyone!! I remember when I was first diagnosed in the Fall of 2008 looking at archives of survivors 10 years and more and wondering...It hasn't been easy due to a marriage separation however the Good Lord got me through. One step at a time, one day at a time! I am very thankful. No matter what you are going through there is always HOPE!! God Bless everyone and be encouraged. You are not alone!

        Love, Annie
Annie TNBC Stage IIA Gr 3 1cm lesion 2/5 lymph nodes+ lumpectomy,FEC & D 30Rads finished(08/2009) BRCA- Chronic Cellulitis due to Radiation-- L.Mastectomy Jan 2012
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