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wcnewyearbaby View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote wcnewyearbaby Quote  Post ReplyReply Direct Link To This Post Posted: Nov 29 2017 at 8:00pm
I am now 5 years since dx with stage 2A. 2.5 cm multifocal tumor in my right breast. I was dx November 2012, mastectomy and immediate implant January 21, 2013. 4 doses of adrymyicin and cytoxin, then 12 weekly taxol. Iím doing great no setbacks other then still trying to lose 20 pounds! I had my checkup yesterday at Duke Cancer Center in Durham NC. I moved from Ohio to Durham after I finished treatment to pursue my career as a licensed nursing home administrator. I didnít want to wait. Iím still nervous about cancer but each day and month then year it gets better! Duke also told me to come back in a year! First time Iíve heard that since the journey began!! God Bless you all.
DX age 41 on 11/14/12, multi focal medullary carcinoma features 2.5 cm, simple mastectomy right breast 1/21/13, Grade 2, 0/3 lymph node, 4 AC DD and 12 wkly taxol.Finished 6/26/13.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rosewater Quote  Post ReplyReply Direct Link To This Post Posted: Nov 28 2017 at 1:19am
Thank you, Steve!!! :)
DX IDC TNBC 03/14 age 40, Stage 1, Grade 3, 2cm, 0/4Nodes, lumpectomy 04/14, DD A/C x4, Taxol x12, Carboplatin x2, BMX 10/14, rads x28 Finished Jan 14/15, Oopherectomy Jan 29/15 BRCA 2+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Nov 28 2017 at 12:31am
Thanks for posting rosewater..

delighted you are doing well!!!!

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote rosewater Quote  Post ReplyReply Direct Link To This Post Posted: Nov 27 2017 at 11:07pm
Hi Everyone,

I don't come on this forum very often anymore, but when I was diagnosed, and all through my first two years following diagnosis, this site was a lifeline for me.

I am currently 3 years and 9 months since my diagnosis!

XO
DX IDC TNBC 03/14 age 40, Stage 1, Grade 3, 2cm, 0/4Nodes, lumpectomy 04/14, DD A/C x4, Taxol x12, Carboplatin x2, BMX 10/14, rads x28 Finished Jan 14/15, Oopherectomy Jan 29/15 BRCA 2+
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Roxy1964 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 25 2017 at 11:38pm
Wonderful news!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Nov 25 2017 at 4:04pm
Dear TNBC Foundation family,

Happy to report that my daughter, diagnosed at age 36 with TNBC, will turn 50 in May, and is NED. 

Can others please post. Your stories offer much needed hope/encouragement!

with my love to all here,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Roxy1964 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 25 2017 at 12:16pm
🤚 I'm here 🤚🤛💪🏼💕 I was dx'd with triple negative cancer April 2008. I had lumpectomy, chemo & radiation. I'm still cancer free. Not a day goes by that I don't fear recurrence, but I do try not to get depressed & scared like I used to. I was diagnosed on my 44th birthday 🎉 woohoo what a birthday present, right? Don't get too down, I think there are way more triple negative survivors out there than we ever hear about.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Tamara Quote  Post ReplyReply Direct Link To This Post Posted: Nov 25 2017 at 7:21am
October 15, 2014 I received my last chemo treatment - I am a 3 year survivor. Praise God!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Oct 22 2017 at 11:00pm
Shirl4414,

It's so hard to transition to the new normal after treatment ends.  We have no adjuvant therapy and the worry is always there.  It does get easier as the years go by, but almost impossible those first few years.  Try to do the things that make you happy and stay busy.  I think your surgeon meant that recurrence peaks around year two.  Here's a link discussing the subject 

Analysis of pattern, time and risk factors influencing recurrence in triple-negative breast cancer patients.


Chart of Time from Diagnosis:



DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 22 2017 at 8:54pm
Shirl4414: My wife had much the same statistics, at 65yrs old when she got TNBC (she got IDC/lobular in 2008 in her other breast but was not Triple Neg)

Her TNBC was about 5 cm, Stage IIIA, she had (4) lymph nodes cancerous but the carboplatin-gemzar chemo killed it (so the pathologist downgraded her stage from IIIC to IIIA) single mascetomy, Taxol chemo and radiation... she is fine now, and it's been about one year....

Fyi the radiation often includes the clavicle area, because there are lymph nodes under there, there, was a warning from my wife's medical radiologist, radio-oncologist, I don't know exactly what he is, but he's more an expert, he said the radiation "could affect the upper lobe outer portion of the lung" which it did, the trauma did occur to the top/outer portion of the lung, it shows up plainly on a PET scan, but it did heal itself, in 6 months, I think my wife had a very slight shortness of breath for about 3 months.

I don't know if TNBC comes back within 2 years. We try not to focus on that, because if it doesn't come back within 3 years, the probabilities start to go down

Yea, it's scary, but we try and block it out...

wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Kellyless Quote  Post ReplyReply Direct Link To This Post Posted: Oct 20 2017 at 12:41am
Congratulations on completing chemo! I and many others found radiation much easier than chemo, I hope that's the case for you. May I ask when they add the Carboplatin to your chemo schedule when you did the A,C and Taxol plus Carb? I originally did A.C. Every 2 wks 4x, then Taxol the same. This second time I did Taxol 1x a week for 12, with Carb added every 3 weeks 4 times. I've a friend recently diagnosed with 1 TNBC tumor and 2 Er/PR + tumors in one breast and she'll be doing all 4 like you have. Did they do the Carboplatin/Taxol like I did, together? I'm worried for her, all 4 altogether scares me :-( It's because Carboplatin was a really tough ride for me I'm sure, but ooof all four seems a lot.
I'm regards to "go enjoy yourself!" , yes, it's tough to do. I'm finding it much much easier to do this time, much more than the first time. It may be that now the worst DID happen. And I just.... Got thru it. I'm now finally truly letting it go. I'm still working to get back as much physical normalcy as I can, but now it's just a "thing" I do - see Drs, have tests, go to PT - outside of that I'm living life, not dwelling on the what ifs anymore. I think I'd been waiting to exhale all those years between occurrences. If there's anyway you can work on letting it go (therapy and antidepressants help many) do it. My husband and I are happy, enjoying ourselves more now than before my first cancer. I guess I wanted to say out loud that your new normal can be great, you can enjoy yourself. It's a worth, achievable goal
IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Shirl4414 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 19 2017 at 8:00pm
I am a newly (7 mts) diagnosed TNBC patient.  69 years old.  Diagnosed 3/17/17 with TNBC in right breast, 5.6 cm tumor, stage IIB;  bilateral mastectomy 9/25/17. 
4 A/C
12 Taxol
4 Carboplatin 

Chemo completed 8/31/17.  Starting radiation next week. 

Surgeon said cancer almost always comes back within 2 years.  Go enjoy myself!!

Hard to do; scary.  I would like to hear about more survivors!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gordon15 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2017 at 9:22pm
We're sorry to hear about your recurrance and am not familiar with the chemo TCHP but trust that your doctors will alleviate the side affects and you will get better soon.
wife: IDC/Lobular Stage2B 2008 lumpectomy/TAC+rads
TNBC Stage 3A/w/metaplastic/squamous Nov2015 Carboplatin-Gemzar chemo/masectomy Taxolchemo+rads 4-16
PET scan stable 9-2016/ 1-2017
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mswow Quote  Post ReplyReply Direct Link To This Post Posted: Oct 18 2017 at 8:42pm
Hi Cbardar, 

So sorry to hear about your recurrence. I am just reaching the 1 year mark from my diagnosis. Have had chemo, surgery and rads. 

I am curious, how did you realize you had a recurrence?

Wishing you all the best. 

S
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cbardar Quote  Post ReplyReply Direct Link To This Post Posted: Oct 06 2017 at 9:54pm
I was diagnosed in July 2017 with recurrence had lumpectomy in August. Pathology report came back 1.1 cm idc no lymph nodes now I am Er-Pr-/Her 2 postive. No one every told me this could happen so I am in shock. Went to get 2 options this time. I live in Columbus Ohio going to the James for treatment ranked 5 for top cancer hospitals in the Us. I am doing 6 rounds of chemo called
TCHP it is rough. Had my 2nd one today first one I ended in the hospital with fever and Uti. Hoping this one is better. Then I will do 30 days if radiation and then a year of Herceptin and Perjeta. Then pray that this will not come back. Thank you for asking about me.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote English Jan Quote  Post ReplyReply Direct Link To This Post Posted: Oct 06 2017 at 5:21pm
hi Cbardar,
How are you doing? Whats happened since your last post?
Jan
FL. 58yrs DX LIDC 8/18/07. 08/23/07 Lump+SNB Node -ve. T2.5cms clear margins, TNBC, Stage 2A Grade 3. 9/18/07 TX Cytoxan+Taxotere.Neulasta.4x3 wks.Rads 30+5 FINISHED 28th Jan 2008.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote bearsilu2 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 06 2017 at 12:15pm
My twin Nancy is 7 years cancer free! She has her appointment this week and has made big changes in her life. We moved from New York to North Carolina and the assortment of BC doctors down here is a joke. We have been proactive, I have not yet been diagnosed (go Barb go Barb) and Nancy is feeling way more positive. Being an identical twin is hard enough seeing your sister get TNBC but we are positive now. We go on vacations, we go to the beach at night to see full moons, and we love our kids even more. Nan spends money like it is nothing lately but we are so so happy the preventive chemo and radiontion has done its work! 
Barbara A. Wild
Identical Twin Sister of TNBC diagnosed 12/2010 stage 2 Grade 3 Lump. 1/2011, Chemo 2/2011, Radiation completed July 2011. 33X
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Post Options Post Options   Thanks (0) Thanks(0)   Quote gwendolen Quote  Post ReplyReply Direct Link To This Post Posted: Aug 14 2017 at 11:02pm
Love seeing all the long term survivor testimonies. Really gives me hope!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cbardar Quote  Post ReplyReply Direct Link To This Post Posted: Jul 22 2017 at 8:19pm
Originally posted by 123Donna 123Donna wrote:

Hope this post will give others hope. †I'm 8 years from my first diagnosis - stage 1. †And 6 years from completing treatment for a recurrence - stage 3.

Donna


Mine has returned and I meet with the doctors on Monday would love to reach out to you. I am really scared
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Cbardar Quote  Post ReplyReply Direct Link To This Post Posted: Jul 22 2017 at 8:17pm
Mine has come back it's been a year any advise for me. Since yours came back twice.
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