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SURVIVAL ODDS IMPROVED AFTER 2 TO 3 YEARS MARK???

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trip2 View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 14 2009 at 12:24pm
Hi Cathy,
 
Mine came back in the other breast and was considered a new primary they call it having nothing to do with the first one.
 
How are you doing?  I see you have NED in your signature, that is good to hear.Smile


Edited by trip2 - Mar 14 2009 at 12:25pm
Stage 2 2003
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Suzanne View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Suzanne Quote  Post ReplyReply Direct Link To This Post Posted: Mar 14 2009 at 3:08pm
I just want to point out that the topic for this thread is a little off.  The title should read "Survival Odds IMPROVED After 2 to 3 Years".  I'd change the topic line if I could, but I think we're stuck with it.
Suzanne
1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Mar 14 2009 at 5:45pm
Suzanne,
 
I just sent a pm to buckeye and suggested what you said.You are right.
Hugs,
Nancy
 
ps...only the person or administration can edit a post.


Edited by Nancy - Mar 14 2009 at 5:46pm
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Suzanne Quote  Post ReplyReply Direct Link To This Post Posted: Mar 14 2009 at 6:02pm
Now why didn't I think of that!  Thanks, Nancy.
Suzanne
1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Mar 14 2009 at 6:06pm
Suzanne,
 
You are not as old as me?Ermm With age comes wisdom? Big%20smile
Hugs,
Nancy
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DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
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Post Options Post Options   Thanks (0) Thanks(0)   Quote cweed Quote  Post ReplyReply Direct Link To This Post Posted: Mar 15 2009 at 2:52am
Thanks Pam ... yes, nearing 3 years NED (counting from the end of chemo) and am very blessed.
 
Sorry to hear you had a second primary.  I think (and I'm no doctor) that it is very different than the three year mark the researchers are talking about in the research Joan posted.  In that, they are talking about a distant recurrence of the first cancer.
 
My doctor has been cheering for me all along, but has felt for about a year now that I was past the high risk recurrence window.  I  was also blessed to be BRCA negative.  That said, I did (and continue) to do everything I can to improve my body's chance of fighting this off (very little alcohol, lots of exercise, good diet and brassica tea -- www.brassica.com and www.brassicatea.com. -- I promise I have no "tie" to them, but the research is compelling ... I order online).  I'm not sure how much this all has helped, but it has given me the feeling that I continue to be active in my treatment so it has definitely given me a mental edge.  Who knows why some people recur and some don't ... the mystery of cancer and one of the many things we still have to learn.  In the meantime, just do all you can to enjoy life and take care of your body. -- [One note:  Not assuming everyone is going to run off and order tea, but anyone in active treatment should check with your doc before you do... I know mine wanted me to stay away from antioxidants until I finished radiation.]
 
And I agree that the title of this string is opposite of what it should be.  Our survival odds increase at the three year mark.
 
Best,
Cathy 


Edited by cweed - Mar 15 2009 at 3:09am
Cathy, Winter Park FL
Dx 12/05
3 tumors, triple negative, 6+CM, 0/13 nodes, stage 2b
Double mast
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radiation
NED!!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sharon C Herber Quote  Post ReplyReply Direct Link To This Post Posted: Mar 15 2009 at 9:26am
Dear all--Just to add another positive note to this thread. My own onc,, who has been in the business a long time, says that in her experience TN recurrence peaks at 18 mos post dx, and that she has never seen a recurrence after 4 yrs post dx in women who have had aggressive chemo and bil mastectomy. She has never been one for false optimism. In fact I sobbed hysterically after my first meeting her and her no holds barred outline of the grim prognosis for a multifocal TN with node involvement like mine. She only scheduled me for 2 chemo sessions in the beginning, because she said I should go straight to surgery if it didn't respond in that time. It did respond with a total clinical and pathological remission.   I am now 2 weeks from the magic 4 yrs number and am planning to celebrate.

I wish the same for all of you newbies and beyond.

Sharon
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Mar 15 2009 at 12:12pm
Sharon,
 
I think you just wrote the "magic sentence"...
 
"My own onc,, who has been in the business a long time, says that in her experience TN recurrence peaks at 18 mos post dx, and that she has never seen a recurrence after 4 yrs post dx in women who have had aggressive chemo and bil mastectomy.
 
I give her much creidit for saying that if she did not see a response to the chemo in that time that she would recommend going for surgery. Give us her name!! Big%20smile
 
We have a member who has completed chemo and almost finished with rads, and has a lump behind the nipple on the other breast. "They" are telling her that it is just a cyst. She will have a bilateral after rads. But...what if this is not a cyst? If it is a new primary, then she will begin chemo all over again? I am somewhat confused by what they will recommend.
 
Two weeks from the 4 year number...sweetie...you should be having the biggest celebration ever!! ClapClapClapClap
Many hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote NINASUZIE Quote  Post ReplyReply Direct Link To This Post Posted: Mar 15 2009 at 1:55pm
Hey Joan,
 
How effective did you find your chemo regiment?  And how were the side effects?  I keep seeing Taxanes/arthomycin/cyctoxin (TAC) as dense dose (every 2 weeks AC then T)...and it's good to see some other chemo.
Goood work, girl!
Hugs,
Suzie
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Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Eileen Quote  Post ReplyReply Direct Link To This Post Posted: Mar 16 2009 at 2:52pm
Nancy:
 Does it reoccurance peak 18 months post dx or post end of treatment? Also the 4 years post dx or post end of treatment? A little confused I thought the count was once all treatment was completed. Thanks  for any info. I am post dx 12 months now.
Eileen
DX:2/08,3/08 lumpectomy with SNB, clear margins, no lymph node involvement, 4 cycles A/C (dose dense) every 2 weeks, 4 cycles Taxol (dose dense) every 2 weeks, 33 rads finished 9/08, BRCA 1 and 2 neg
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Mar 16 2009 at 3:39pm
Eileen,
 
Many count the date of dx as the date, while others count from end of treatment This article says from date of dx. Take your arrow key and go down 17 times. I cannot find a date on this but the TNBC foundation is at the very end. It also has a graph I think near the end as to the years.
 
This recurrence issue comes up quite often. I had read 19 1/2 months for another primary or another recurrence. What I find interesting is that it says...much lower of proportion of breast cancers detected by mammography/ultrasound. Sure sounds like my Lori.
Hugs,
Nancy
 
found a date...2007
 


Edited by Nancy - Mar 16 2009 at 4:18pm
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Linda S Quote  Post ReplyReply Direct Link To This Post Posted: Mar 16 2009 at 5:52pm
Just got home from a visit with my onc. CT scan showed a spot on the left lung and the PET showed two hot lymph nodes in my chest. (I didn't even know I had lymph nodes there)! Anyway, they aren't where he can do a needle biopsy so he's staffing with a thoracic surgeon. If the surgery is too hard for me to handle, he is going to wait 6 weeks for another CT. He's opting for what's behind door #1 since he wants to treat aggressively and thinks 6 weeks is wasting time. In any case, I asked when the clock starts ticking as he told me in January that if the cancer showed up again, the most he could give me is a year. He says the clock starts ticking when he starts tx. I think I will just avoid any more treatment in that case! Looks like more chemo in my future. I am not sure I can deal with that again.
 
Linda
Linda S
DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast
11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Suzanne Quote  Post ReplyReply Direct Link To This Post Posted: Mar 16 2009 at 6:49pm
Nancy, thanks for the link.  I was particularly interested in the graph "Rates of Distant Recurrence Following Surgery".  It showed the highest rate of recurrence at one year after surgery, with a rapid drop at three years.  Yippee!
 
Suzanne
1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Mar 16 2009 at 7:59pm
Linda,
 
Sweetie, I would bet that your mind is just racing right now. I cannot begin to imagine what you are thinking, and....Lori feels the same way you do Linda. She has said that she will never go through the chemo again, as there are no guarantees. She does not want to live that way.
 
Linda, when she had the scare about 6 weeks ago, she said and I quote "Mom, I will just throw myself under a train, as I will be paralyzed if the cancer is in the neck, and I will not live that way".
 
Will you  not go for another opinion? Most docs expect you to do that, and if they are really good docs....which you said yours is...then they are never offended. Did you have a CT scan when you were first dx? They would have that as a baseline and could compare it with this one. There are many lymph nodes in the body, but I think the majority are under the arms...around the breast.
 
Once the thoracic surgeon takes a look, then you will have a better idea of what to expect. Please get a second opinion...it cannot hurt, and we will all be pulling for you. Please let us know what the thoracic surgeon finds.
 
Much love and light your way Linda...and I will have you wrapped in a blanket of love,Red%20Heart
Nancy
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DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sharon C Herber Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2009 at 4:22am
Thanks Nancy--my onc is Elaine Chottiner who works with a Clinic called Ann Arbor Hematology and Oncology out of St. Jo's hospital in Ypislianti. She is one of the most caring physicians I have ever encountered. She gave me office samples of neulasta so that a nurse friend could inject me at home after the 24 post chemo and I didn't have to come back to the hospital for that. When she sees a line up of folk waiting to check out at the clinic, she actually looks at everyone's paperwork and sends us home if all we have to do is the co-pay rather than get an appointment.

Sharon
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2009 at 6:39am
Sharon,
 
I know that the Neulasta is anywhere from $2000 to $7000 a shot, and the oncs can giv out samples, so you definitetly have winner with Dr. Chottiner. Not just for the Neulasta...but for being a caring human being. Many are caring, it is just the ones who allow people to endure suffering who need to get another carreer.
 
The oncologists have you life in their hands, and when they go that extra mile, they make the journey of chemo so much more bearable. Give her a hug for meWink
Hugs,
Nancy
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2009 at 9:38am
Hi Linda,
 
That so stinks your scans were not what we would prefer, I am so sorry.  Has to be a real smack to the tummy, well I know it is, I have heard it a second time. 
 
 "there are about 100 nodes scattered throughout the body".  This is a quote from http://health.howstuffworks.com/question138.htm
 
 
Is there any way you can try to calm a bit and not look down the long road and wait and see what this thoracic surgeon has to say?  Maybe taking this in bits and pieces might be easier than all in one gulp?
Of course this cannot be done easily but if you can it might help take the edge off the anxiety until you learn more.
 
Have you discussed with him your concerns over what he said in January and if he has now possibly altered his opinion?  I am hoping for your sake that after you speak with him again and things become a bit more clear than you can go from there.  You have certainly had your rough times.
 
I agree a second opinion sounds terrific!
 
I have gone thru the chemo route two different times.  After the first time I really didn't think about whether I would or wouldn't if it came back.  I didn't think it would come back so that was that.  But of course it did and I did go with the chemo.  I am now very aware I could be looking at it again and soon but would I do chemo or not?  For me personally I would have to wait and see what the whole picture is, probably yes because that is me.
We all make our own choices as is our right.
 
Best of luck and hope you will keep us updated on what you find out.
Hug
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Linda S Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2009 at 11:37am
Pam, I am doing okay with the info I guess. My biggest problem is my husband. He is not very strong and gets upset with every bit of news. I still haven't heard from my dr yet. I'll be patient thru today, but will call him tomorrow. He is great about moving fast. I also have several questions that I spaced asking about yesterday. Funny how that happens. I am just so glad I finally found a place where I can talk openly without upsetting someone. I am also grateful for my girlfriends. They are always there. One has already volunteered her in-house services if I end up with the surgery biopsy. She stayed with me after the bi-lateral and I was treated to the best care ever!
Linda S
DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast
11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote NINASUZIE Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2009 at 11:39am
Linda,
 
Turn on OPRAH right now....it's about US!  Getting and coping with dx and what to do.....from some very powerful stars, Magic Johnson, Fran Drescher, Montel Williams, etc....and Dr. Oz as moderator
Love,
Suzie
Suzie
**************
Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Nancy Quote  Post ReplyReply Direct Link To This Post Posted: Mar 17 2009 at 11:57am
Linda,
 
Now that is a true "girfriend" sweetie...and it's not that your hubby is not strong, he is just concerned about you and is worried. These are matters over which you or he have no control. My husband does not like situations like that either.
Love,
Nancy 
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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