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Stopping radiation before complete

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Monarch View Drop Down

Joined: Jun 21 2019
Location: Dallas
Status: Offline
Points: 39
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    Posted: Mar 15 2020 at 12:21pm

As with many of you, radiation has not been my friend.  I have completed 4 weeks of 6 scheduled.  I have missed five days due to complications. 
I made the mistake of taking Xeloda, prior to radiation.  It produced an increased sensitivity to the radiation, along with my MCTD (mixed connective tissue disorder).  I burned from day one, when most do not even feel anything until week three or four.  I was getting 210 cGy dose a day.  

I negatively reacted to all the common treatments such as hydrocortisone, Benadryl cream, Aquaphor, lidocaine, Cerave.  I have only been able to use Euricin lotion, Aleo, and A&D, and it doesn't provide much in the way of relief to the burns. 

They switched me to the boost therapy last week to give the sternum area and supraclavicular area a break due to the rash and burns, but I was only able to do two days, before I began throwing up from the pain in the supraclavicular area. Apparently, the radiation continues to burn your tissue a week after receiving it. 

I have taken the last three days off due to a possible pericarditis and an infection in the supraclavicular area.  The thought of going back this week for 10 more sessions of burns on top of burns, is daunting, especially with the heart pain and palpitations.  My RO has been out of town, and his replacement didn't want to do anything.

Question....Have any of you stopped the therapy in Week Five, and remained cancer free?

Thank you in advance,

DX IDC, Metastatic Stage III, 6/6/2019, Nodes pos, 5.6 x 3.3 x 3.5 left breast. Ki-67 90%. AC x 4, T x 12, Partial Mastectomy and Targeted Axillary Dissection, Thyroidectomy,
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Plume View Drop Down

Joined: Jul 15 2018
Location: France
Status: Offline
Points: 54
Post Options Post Options   Thanks (0) Thanks(0)   Quote Plume Quote  Post ReplyReply Direct Link To This Post Posted: Apr 03 2020 at 9:35am
My sympathy, Monarch.  I get how difficult things are with you. 

I had burns too but, like you said, only towards the end when they increased the dose to treat the tumour bed.

What I found very helpful was 100% pure aloe vera gel.

I did have lung complications but I won't tell you about those because you have plenty enough on your plate.  Also, I have been asthmatic for decades and I somehow suspected that I might have nasty effects on my lungs from the radio.  But my problems probably would not apply to you so just keep your spirits up and expect the best for yourself.  Good Luck!
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