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Stage IV - Lung Mets

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Barbi View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: Nov 15 2011 at 9:33am
Caryn and Kim,
Lots of love and good wishes to you both!  Prayers are constant.
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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Lillie View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Nov 15 2011 at 3:38pm
Dear Kim,

I am so happy to hear that you are 'out' and 'about'. What a wonderful way God has answered all our prayers for you. I cannot express my joy for you in words.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Nov 15 2011 at 3:41pm
Dear Caryn,

I am praying that the strength and confidence that has returned to Kim will be returned to you also.

Would it help if some of us girls came by and boosted your spirits? I will ask in prayer. I wish we could do it, for real.

God Bless Sweetie,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Nov 16 2011 at 4:13pm
Caryn and Kim, love to you both~
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Pink Warrior Quote  Post ReplyReply Direct Link To This Post Posted: Dec 03 2011 at 3:49pm
Post CT Update:

I had such a busy day yesterday and got home completely exhausted around 9PM.  My day started at 6AM.  Whew.

CT scan at 9:20 but ended up having to wait an extra 2 hours because they were so far behind.
Lab tests at 11
Onc at noon
Chemo Cycle 3, round 1 at 1:30

CT showed 

"There has been interval improvement in pulmonary metastatic disease.  The disease is predominantly peribroncovascualar with nodules along the brochovascular bundles consistent with lymphangitic carcinomatosis.  Some of the previously seen masses have nearly resolved.  For reference, a previously seen mass in the right lower lobe measures 2.3 x 3.0 cm compared to 3.7 x 5.1 cm when measuring at similar position on the prior study.  The right middle lobe is re-expanded. There is a trace residual left pleural effusion.  No pneumothorax.  

The pericardium, heart and great vessels are normal.  No pulmonary embolus.   

There is persistent extensive supraclavicular, mediastinal, hilar and subcarinal adenopathy, which is overall slightly decreased since the prior study.  For reference, a pretracheal lymph node measures 3.0 x 2.6 cm compared to 3.1 x 2.9 cm on the prior study.

The liver, gall bladder, spleen and pancreas are normal.  The adrenal glands, kidneys, ureters and bladder are normal.  The uterus, ovaries and adnexa are unremarkable.  No bowel wall thickening or obstruction.  The appendix is normal.  No abdominal or pelvic lymphadenopathy or free fluid.  No vascular abnormalities.  No suspicious lytic or blastic osseous abnormalities."

Impression:  Interval improvement in pulmonary metastatic disease and lymphadenopathy in the chest. 

I was never told I had a partially collapsed lung or a pleural effusion.  I knew I had pneumonia and I knew I couldn't breathe.  I guess he figured that was enough and didn't want to frighten me further.  

Either way.  Good news!  

I also have pictures of the CT where you can see all of the "c word".  My oncologist was so excited, he printed before and after pics for me.  Such good news after 2 cycles.  I pray this continues.

Thank you all for your support and prayers.  

xo


Kim 




Edited by Pink Warrior - Dec 03 2011 at 3:50pm
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
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SagePatientAdvocates View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Dec 03 2011 at 4:13pm
thanks for sharing Kim...some wonderful news and praying the good news continues!!!!

hugs,

Steve


Edited by steve - Dec 03 2011 at 4:14pm
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: Dec 03 2011 at 5:23pm
Dear Kim,
It is wonderful to hear such encouraging news. I know you were 'worn out' last night, but overall it sounds as though you are getting stronger. Maybe more trips in your 'little blue car' are in the near future. I am praising God for your news and asking for continued improvement.

God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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sue View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Dec 03 2011 at 7:15pm
Kim,
So happy to hear the positive news from your treatments, thanks be to God, and I will continue praying and hoping for more good results.  

Love and Peace, 
Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Barbi View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: Dec 03 2011 at 8:02pm
Kim, Wonderful news! Prayers that this drug keeps demolishing those cancer cells away!!
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 03 2011 at 10:42pm
And let's let this music play on, and on, and on.  Such great news - am so glad and optimistic for you, Kim.
 
Hugs,
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Dec 03 2011 at 11:38pm
Kim,

Such wonderful news!  I can see you driving in your little blue sports car with the music blaring and you smiling the entire time:)

Hugs,
Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote suec Quote  Post ReplyReply Direct Link To This Post Posted: Dec 04 2011 at 8:14pm
high fives!!
tnbc 3b: partial mas 5/06; 6 rounds FEC; 36 rad; 05/09-mets to bone; xeloda, avastin, zometa; gemzar & avastin; rads to hips; 8 mo on methotrexate+5fu; 5/11 mets to liver/lung; halevan fails;carb&Abrx
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Katastrophe Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2011 at 10:48am
Hi Kim so happy things are improving. Its also wonderful to see that you are up and about more. You make me want to bitch less about me!

Note to onself: When you think you are doing it tough, re-read Kims posts and stop whinging!!!!

Love and Kisses Kat xxxx
Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BAFIGHTER Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2011 at 12:54pm
I'm so happy that miracles do happen.   When my cancer met it was in the pleura and I had such a hard time breathing,  I was ready to end it all.   
beafighter
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Post Options Post Options   Thanks (0) Thanks(0)   Quote denise07 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2011 at 3:15pm
Kim,
So happy your treatment is working so glad it is killing those darn cancer cells,keep up the good work.
Hugs,
Denise
DX Idc 10/07,st2,gr3,2/6 lymphnodes
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Post Options Post Options   Thanks (0) Thanks(0)   Quote abcmom Quote  Post ReplyReply Direct Link To This Post Posted: Dec 05 2011 at 7:27pm
Kim, that is such wonderful news!  You are in my prayers daily.  I can picture you for a long time in that car!  Ride Sally Ride!  LOL
 
Hugs, Keri
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Dec 07 2011 at 6:06pm
Great news Kim!
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sattarsara Quote  Post ReplyReply Direct Link To This Post Posted: Jan 22 2012 at 2:47pm
Hi,
Im a new member on this forum.
My mother has been diagnosed with triple negative metastatic breast cancer a few months ago. Ive been reading lot of posts on this forum and Im amazed by the level of support that you all provided. Ive especially read everything Kim posted as my moms mets are also in the lungs and we are all desperate to find something that will work for her. My heart went out to Kim and how resilient she has been but I noticed she hasnt posted for a few weeks, if anyone is in touch with her and knows how she is doing please let me know. Thanks! 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Jan 23 2012 at 7:50am
Kim found out early in January that the Abraxane/Avastin was no longer working and she had progression again.  They switched her to Ixempra/Xeloda, but she's been having a tough time with the side effects.
< ="text/" ="" ="/B1D671CF-E532-4481-99AA-19F420D90332etdefender/huidhui.js?0=0&0=0&0=0">

Here's a post from a friend of Kim's on FB:

Update on Kim: I just spoke with her husband and he said the Doctor is optimistic that the new chemo that Kim is working because her lungs have never sounded better. There is also improvement on her skin. The problem is the side effects are very difficult to manage! They did not give her a treatment yesterday and will go back to the drawing board on Friday to decide to keep her on this or make modifications to try and manage side effects. She sleeps a lot which rest is good but the side effects are right now difficult. She sends her love and thanks to all for your thoughts and prayers! Hope that this helps everyone to know that she's okay and still being the fighter that she is!!!


Edited by 123Donna - Jan 23 2012 at 8:14am
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Jan 23 2012 at 9:29am
Thanks so much for the shared update, Donna.  I was wondering how she was doing as well.  I have read on other forums that a lot of people have trouble with the side effects of those drugs - really bad.  I pray I never have to find out.  I had tremendous horrid side effects from my AC - the one taxol - and then the 3 taxoteres.  I remember crying to my onc that I just could not finish  this crap - it was demolishing me totally, yet still had to work everyday - but - I made it through.  I pray Kim can too, especially since it appears to be helping her.  My heart goes out to her and all others suffering through the treatments in order to stay alive.  God, I detest this disease and what it does to so many of us - and the thought that it could be all of us at some point.  Why, why, why???????
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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