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Stage IV - Lung Mets

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dmwolf View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Oct 26 2011 at 5:11pm
Kim, I'm so glad Tammy is ok and that your energy and breathing are still much improved.  Enjoy the week 'off', and hopefully SE's will be better once you start the rigamarole again.
love,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 26 2011 at 7:34pm
Hey Kim, good to hear Tammy is doing well.
 
Disgusted to see you are dealing with bad pain, hope you have something to help?
 
I had alot of pain with Taxol.  Found soaking in a warm to hot bath helped and also
pillows with the heat pad.
 
 
Karen so nice to see you too  :)
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Post Options Post Options   Thanks (0) Thanks(0)   Quote abcmom Quote  Post ReplyReply Direct Link To This Post Posted: Oct 26 2011 at 9:52pm
Kim, that is such wonderful news!!
 
You are in my prayers!  GO PINK WARRIOR!!
 
Hugs, Keri
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Pink Warrior Quote  Post ReplyReply Direct Link To This Post Posted: Oct 30 2011 at 9:36pm
Hi all.

I'm still in recovery mode I guess.  I surely thought I'd be better by now but I've had fever of 101 for 2 days now.  I think it broke around 4 this morning because I woke up soaking wet and I think it's broken again since dinner.  I feel more normal now than I have since just before my infusion last Friday.  I've felt just plain YUCKY!  I haven't left the bedroom much in the last couple of days.  I went out with Karen the other day to see the trees out at the lake and just get out of the house.  I stayed in the van the whole time just riding around but by the time I got back home, I was ready for bed.  I am SO not used to feeling like this for such an extended period of time.  

Maybe I need to expect less of myself and just be patient.  *sigh*

I had some unexpected family stress that came up last week that might have something to do with it also.  I can't really mention it here, but it's ripped my beautiful family apart- that said, we WILL recover and we WILL move on.  Together, there's nothing Matt and I can't pull through.

Peace and love to all.

Kim



Edited by Pink Warrior - Oct 30 2011 at 9:37pm
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: Oct 30 2011 at 9:40pm
Dear Kim,

my thoughts and prayers are with you...

sorry you have so much stress in your life..

sending you some cyber hugs,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: Oct 30 2011 at 9:44pm
Kim, Just be nice to yourself. Sorry you are feeling anything less than perfect and that life seems to be adding to your troubles. All good thoughts, Barbi
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Oct 30 2011 at 9:47pm
Kim,

Please be gentle with yourself.  You are dealing with a lot right now.  You have a beautiful family and you'll pull through this.

Hugs,

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNinTN Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 5:54am
Dear Kim,
 
Sorry you're having family issues on top of everything else. I am so impressed and inspired by your determination and optimistic attitude. Hope you continue to feel better.
 
Martin
Wife age 53@dx TN IDC Stage IIA 7/10; BRCA1&2 Neg; BROCA Neg; LN Neg; taxol+cisplatin+/-RAD001x12(clinical trial); lumpectomy 12/10;ACx4; 33 Rads complete 4/11; NED 5/5/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 9:48am
Kim,

Ditto what Donna said. You are an amazing person who I always look up to for the kindness, caring, sharing gifts you have brought and continue to bring to others no matter what life brings your way.  You are in my prayers for healing and many sunny days to come soon. 

Love and Peace,
Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Pink Warrior Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 6:27pm
What a difference a day can make.  Hold onto that!!

I got up this mid day (haha) around 11:45 and came upstairs.  I took my shower, got dressed, ate lunch and played around on Facebook a while.  I bounced my baby girl on my lap, snuggled and hugged her, laughed with her, rubbed noses with her.  Josh had the day off from school for teacher conferences so he watched Beth for me while I LEFT THE HOUSE ALONE.  I drove my little blue Mustang all over town with my stereo blaring in my ears.  I even flat ironed my hair and put on make up before I left.  

Tonight, I'm making chicken and spinach bruschetta for dinner.

LOVING today.

xo

Kim
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
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dmwolf View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 6:28pm
Kim, I hope whatever family sh*t has hit the fan will settle down soon.  You certainly don't need any more drama.   We love you, Kim, and admire your strength and humor and integrity, not to mention enormous kindness. 
love you,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote BamaRachel Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 6:35pm
Glad to hear you're feeling better today, Kim!!  Yay for rides in Mustang convertibles!
DX 7/5/11, TN Invas; Lump w/clear marg., 7/21/11; Stage 2A. Grade 3, 2.6 c; 0/6 nodes; TX 8/22/11 4DD E/C; 4Taxotere; Chemo ended 1/3/12; 33 Radiation Treatments, ended 3/15/12.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 6:39pm
Kim,

When's dinner?  
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Barbi Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 8:55pm
Happy you enjoyed today, Kim!
10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Oct 31 2011 at 9:19pm
May you have a gazillion more days like today.
 
Hugs,
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote janet c. Quote  Post ReplyReply Direct Link To This Post Posted: Nov 01 2011 at 5:37am
Kim,
Glad to hear that you are feeling better. It is amazing what a little sleep can do to make you feel better. I hope you continue to take care of yourself.
Janet
dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds
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Post Options Post Options   Thanks (0) Thanks(0)   Quote nmunoz Quote  Post ReplyReply Direct Link To This Post Posted: Nov 01 2011 at 8:47am
I'm happy to read that you had a better day. I will be praying for more like that to come.

Best,

Natalia
Natalia, 38 years

Dx TNBC 10/22/08, BRCA1+

Double Mx 11/20/08 with Recon.

3/37 nodes

Rads 7 weeks done 8/09

ACx4 every 2 weeks and Tx12 weeks. Avastin e/3 weeksx10 (Clinical Trial) Done Dec/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote abcmom Quote  Post ReplyReply Direct Link To This Post Posted: Nov 01 2011 at 9:21am
Kim, glad you are feeling better!  You are such an inspiration!!  Ride Kim Ride!

Hugs, Keri
Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice)
Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Pink Warrior Quote  Post ReplyReply Direct Link To This Post Posted: Nov 07 2011 at 6:54pm
Hi all.

Fighting back after treatment 1 of cycle #2.  I feel pretty good for the most part.  We'll see what the next two treatments do though as I believe the side effects are cumulative.  I feel better today than I have in quite a while.

My oncologist did a chest xray the other day before my treatment to rule out pneumonia because of the fevers I keep having.  There was no sign of the nasty bugger, so he figures the fevers are from the tumors in my lungs.  I guess my body is trying to fight it as well.  I still struggle with shortness of breath at times but not as much as I did 2 months ago when this all started.  I find myself doing more a little bit at a time.  I cook a few days a week now, which is something I wasn't able to do before.  I still cough quite a bit, but I go longer periods of time between coughing and the duration of the coughing fits seem to be getting shorter.  I'm hoping this isn't just my imagination!  I do sleep better and the Tussionex is much more effective now than it used to be.

I had decreased wheezing in all lung fields and my skin mets are continuing to improve.  Doc says he believes "we're moving in the right direction".  I won't see him again until December 2nd which is when I'll have my contrast CT to check on my lung mets and see how well/if the chemo is working.

I don't know what my previous CA 15-3 marker was, but, on Friday it was 19.  :)

xoxo, 

Kim
Dx:10/09,IDC Stg 2,Gr 3,TN
BRCA 1&2 -
Partial DD EC/AC
Local recur 11/10
BMX 12/10 Right proph
TC x 4 Rads x 33
9/11 Skin mets, mediastinal & hilar nodes
Abraxane/Avastin
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Post Options Post Options   Thanks (0) Thanks(0)   Quote suec Quote  Post ReplyReply Direct Link To This Post Posted: Nov 07 2011 at 8:38pm
kim, thanks for sharing your encouraging update.  your improvement gives hope to others.  i'm so happy you are more comfortable. suec
tnbc 3b: partial mas 5/06; 6 rounds FEC; 36 rad; 05/09-mets to bone; xeloda, avastin, zometa; gemzar & avastin; rads to hips; 8 mo on methotrexate+5fu; 5/11 mets to liver/lung; halevan fails;carb&Abrx
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