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Singles Battling TNBC

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vaboricua67 View Drop Down
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    Posted: Feb 07 2010 at 7:12pm
Hello Everyone,
 
Battling this cancer is hard enough, but you have the love and support of a partner or significant other it can make it more tolerable.  At least you have someone to vent the emotions to.  My question is who is battling this alone?  How are you feeling?  What are you thinking?  I'm 42, divorced with two teenage daughters and battling this alone.  I'm finding that night time is the worst for me.  I'm finding that throughout the day I'm ok emotionally.  I'm a middle school teacher and can somehow get up enough energy to stay positive for my students and my two daughters.  Its once everyone has gone to bed that I'm finding myself sad, anxious and feeling so alone.  I'm a strong Christian and that is when I turn to prayer but its still not easy.  Am I alone?  What are you all doing to stay positive and hopeful?
 
Cheri
dx:8/09, age:42, Stage 1, Gr.3, 1.5 cm, lumpectomy, clear margins, neg nodes, chemo a/c finished 11/09, Taxol thru 3/10
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Post Options Post Options   Thanks (0) Thanks(0)   Quote kirby Quote  Post ReplyReply Direct Link To This Post Posted: Feb 08 2010 at 1:47am
Cheri,

I was dx 9 years ago, age 44. Single parent of 2 daughters, then age 9 & 13. My mother had just passed away 2 weeks prior to my dx from ovarian cancer. It was a very isolating time. I didn't want to sound so down but how do you say " my mother died and I have cancer." I would read my cancer stuff after I got my kids in bed. I remember the night I read about having the drains hanging out after surgery. That was the first I knew about them. More than I could handle. Someone's great advice to me was to allow myself 15 minutes every day to feel sorry for myself. Giving myself permission made it so much easier. I worked thru tx, first because I am self employed but also to keep myself engaged. I could decide whether to talk about cancer or ignore. Working would keep me feeling better and not home freaking out and feeling sorry for myself over every little thing. I was fortunate to have many good friends although I was still the stoic and tried to handle as much as I could. Having cancer does let you know who your true friends are. There were people that offered but when asked didn't/couldn't whatever. Life is too short to deal on the miseries. I like others that are positive and feel better myself with a positive attitude. Trust me, I do have to whine and work it all out just like everyone else. Good luck to you.

ps. You will be surprised when this is over all those that admire what you can accomplish by yourself. It is surprising to find as well, some that wish they were in your shoes not having to deal with unsupportive family or pretending they are dealing with supportive family.
kirby

dx Feb. 2001. Age 44
Lumpectomy

2cm. no nodes stage 1 grade 3

4 rnds AC, 35 rads
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scared View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote scared Quote  Post ReplyReply Direct Link To This Post Posted: Feb 08 2010 at 10:55am
Hello Cheri,

It sounds like from your post that you would appreciate somebody to talk to about what you are going through.  As a caregiver to my wife that had breast cancer I could only do so much but one thing I did do that really made a difference and is still helping my wife through this cancer journey is get her professional help.  I found her a psychologist that happened to be a cancer survivor herself.  

There were dark moments when she was going through treatment, I cannot recall exactly what I said, but her response I will never forget, "I am the one with cancer, not you!".  So, you do not have a partner or special somebody yet to help you in those darkest hours, then I would chose the second best alternative for you a great support team.  You found this site and there are great people here that understands what you are going through, then there are others that you can actually talk to in person.

I would seek out a cancer support group in your area, postings could be around your cancer clinic, or there could be a Gilda's House in your city that you can attend.   It is important to get a support team together made up of friends and family because those feel emotionally better than those that do not.  

My wife has told me that Irene (the psychologist) was one of the best things that I did for her.  Finding angels in your life to lift you up is important, I hope you will stay in touch here, I hope this forum could be a light in your dark moments.

Dave


Edited by scared - Feb 08 2010 at 10:57am
Wife diagnosed 7/08 stage 2B 4.78cm with 3 nodes. 15 weeks of Adriamycin and Cytoxin, Mastectomy, 12 weeks of Taxol, and 6.5 weeks of radiation.
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Hi Cheri and Welcome!
I just finished all my rounds of radiation, etc. and had the support of my daughter to drive me to and from,  get groceries or anything that I needed that she could drop off and run again. 
 
Sometimes we expect too much from our families and as Steve said that is when we need the outside help.  I have been seeing a social worker from the hospital and she has been great! My daughter has been my hero through all this but she thought discussing issues of this disease was being negative, even though it wasn't!  She was not emotionally available to hear that her mother may not make it, bottom line.  This was something that she could not discuss, so I had to find another outlook and that was my social worker.  She listens, coaches me and helps me to clarify what my issues are and what I can do about it, if anything.  She didn't know too much about TNBC but today she is well versed in what can be done to fight it, so I guess I helped her out as much as she helped me. 
 
Everything that I needed was supplied, and yes the nights are the worst, but read, chat on line, watch old movies, do something!  Sleep when it becomes too much because tomorrow is another new day and it comes up no matter how we feel, so we must do what we can when we can do it. 
 
I found praying was too much for me to do during the chemo, so I asked my friends and this spiritual forum to pray for me and it worked.  Prayer is the only thing that held me up during my 4 rounds of CT.  So we are here for you and yes, you will survive this very well! Talk, vent do whatever you need to to do right here on line, we are here for you.  Not a husband or life-partner, but sisters and brothers who have been there and are on the journey to health!
God Bless, Helen in NS
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Feb 08 2010 at 7:49pm
Cheri, I don't know whether this will help, but here goes:  it is easy to romanticize the idea of a perfect partner during a health crisis.   Real life partners sometimes rise to the occasion of comforting their ailing partners, and sometimes don't.    As we've seen from some of our sister's stories on other threads, having a partner who seems annoyed or indifferent can be far lonelier than an empty bed.   And even for those of us with mostly very loving partners, twin shadows of fear and death still visit in the dark of night.   We all go there, no matter our circumstances (though those with strong faith in some sort of afterlife  seem to have a little more emotional padding than the rest of us heathens).
Love,
Denise 
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 08 2010 at 7:50pm
Cheri,

I find that staying busy during the day helps with the anxiety.  Even though I'm married, I too find the night time the worse.  When you're laying in bed, its so easy for your mind to wander and go to those dark places.  Even though it's been over 8 months since dx, I still have trouble sleeping.  If I lay in bed too long, I'll just get up and make some hot cocoa and watch some tv until I'm tired.  Wishing you the best.

Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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You all earn my up most respect. I often wonder how you do it, but after reading this I can tell it is because your are extra extraordinary women. 
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Feb 24 2010 at 8:15am
Welcome Paulding Mom,  Hug
You are certainly right about the people on this this site. They are extraordinary!!
Have you been dx with tnbc? If so, tell us about your situation. We would love to help in any way we can. If it's spiritual help you need we have a thread for that also. Bring us up to date.
Love and Prayers,
 
Carol
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Feb 24 2010 at 8:25am
Carol,

Love your picture!
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote luvlife61 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 23 2010 at 7:07am
I am single and fighting this disease with the help of my family.  I just had surgery on 2/4 and started radiation on 3/10.  Just found out yesterday that the cancer was back.  That was a bomber, but I refused to believe that this terrible disease is back. My God has brought me too far for this to come back into my life.  They want to do more chemo, but I am refusing.  Can someone please give me some insight on this.  Angry

Edited by luvlife61 - Mar 23 2010 at 7:11am
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: Mar 23 2010 at 7:18am
Luvlife61,

I'm so sorry you're dealing with more complications.  You mentioned that it is back.  Can you give us some more information about your diagnosis and journey?  What was the size of your tumor and did you have positive nodes?  Did you have chemo prior to surgery or post surgery or just radiation.  If so, what type of chemo?  Where did it come back?  Was it local or distal?  We want to help you any way we can.  Please give us a little more information.

Thanks,
Donna

PS:  You might want to post your information under a new thread in TNBC Talk.  More people will see it and help you get answers to your questions.


Edited by 123Donna - Mar 23 2010 at 7:19am
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Mar 23 2010 at 7:29am
Dear Luvlife61, Hug
Welcome and glad you found us. Please do what Donna suggested and post out in an open forum and give us your details. I, too, had a recurrence shortly after treatment. We are here with you...you are not alone...and please use our Spiritual Support thread...
Love Heartand Prayers,
Carol
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote luvlife61 Quote  Post ReplyReply Direct Link To This Post Posted: Mar 23 2010 at 8:49am
I was diagnosis on 10/09.  My tumor was 14 cm and I had to have taxol to shrink it.  I had 4 taxol and 1 AC.  My radiologist notice some knots and had one tested and it came back as being positive.  The doctor took 37 lymph nodes and out of those 14 came back positive.  I noticed it came about a week ago. 
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I am also single. I'm living with my father right now and he really is the best Dad in the world! He's taking care of me during treatment because I can't work and I had to move back in with him. It's scary tho because he's 73 and who knows how much longer he has, you know?

I don't drive, so I stay with my Aunt while getting chemo. Sometimes I wish there was a boyfriend I could run to after experiencing arguments or "rough" patches with my family. I feel trapped, in a way.


My Aunt is going thru her own issues and she tends to get nasty with me for no reason. Doesn't she realize that I'm supposed to be healing right now? I don't need this crap!

Sorry, I just had to get it out somewhere.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote naynay Quote  Post ReplyReply Direct Link To This Post Posted: May 09 2010 at 4:18pm
I was dating a guy for a year when I got dx 1/09....my treatment ended 11/09...I broke up with him 1/10...I felt sooo alone with him.  But lately, I've been feeling lonley and fearful.  Dont want to scare my sister with my thoughts, so I though I'd share with others in my shoes.
DX 1/09 TNBC, Stg 2,Grade 3, 1 nod+,Lump 2/09, 3/09-11/09=AC+Avastin x4,Taxol X12, rad X35, 7/10 local recur 8/10 bilat mast, 10/10 another local recur, 25 rad, 1/11 - 5/11 cmf, 7/11 lung mets
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: May 09 2010 at 6:20pm
Dear Naynay,
I'm afraid your post might get lost in this thread. Why not start a new topic in TNBC Talk? I am not single so I can't help you except to say...hang in there you are not alone. And please move this topic to another thread...It's too important to be missed.
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Dancerina Quote  Post ReplyReply Direct Link To This Post Posted: Nov 08 2010 at 12:59am
Hi Cheri and other singles,

It is VERY tough to go through this alone.  My daughters are both in college locally but they live on campus.  On June 14, 2010 I was diagnosed with stage 1 bc.  I wanted so badly to be hugged very tightly and feel like I was still part of this world.  My family barely put their arms around me.  I could see everyone was scared but what about me???  For a while my daughters avoided me.  Don't get the idea that we are a family devoid of emotions.  We're very fun and very emotional.  I've always been very affectionate with my daughters.  Nobody then or now wants to hear about my treatment, etc.  They've never seen me in person without a wig on.  One of my sisters, in her attempt to be positive(?), downplays anything I say, even when I have a fever of 102+. 

Chemo started when my daughters returned to college.  I didn't want to burden them but I don't think I've ever felt so alone in my life.  It was very difficult.  Yes, I even made a trip to the pet store but finally decided not to make a hasty decision.  (Mycobacterium? Salmonella? Vet bills?  Just what I need at this time!)  Anyway, my point is, my family didn't meet my needs nor did my therapist.  My guardian angel was sipping a latte.

On to the part about needing to feel like a desirable woman?  A diagnosis of breast cancer and baldness due to chemo definitely did that to me.   A male, pseudo-friend, a health care professional, jumped right in and reassured me.  He gave me all the hugs I needed and then some.  I trusted him.  I'll spare you the painful details, but it was only because I was a vulnerable, desirable  female that he came to my rescue.  I paid a high price emotionally for that reassurance and comfort I craved.  I won't do that again and would caution others.

I just finished chemo this week and I'm past the overwhelming loneliness but it's still not easy.  I've been unemployed for over a year so I decided to go back to school part-time for another degree.  I have lots of married female friends to help keep me occupied and give me support.  It's not the same as having a GOOD partner, but I'm getting through it. 

My friends take me out dancing, my favorite activity. We laugh and have fun. Men occasionally approach me because I look healthy, etc., but I can't respond.  And then I think, what would they do if they knew that this fun-loving, vivacious dancer was bald under this beautiful wig?  What would they say if they knew there were a chance of recurrence?  My self esteem--even to do a presentation--is now shattered.  I know I'm a good person.  Anybody, will my self confidence ever return?  How? 

By now, everyone is probably screaming "Therapist!"  Well, this past week I found out that my therapist's breast cancer recurred.  She's been a wonderful resource but now I'm wondering if we might be unhealthy for each other (no pun intended).  I guess we'll have to discuss this.

Thanks for giving me a place to be heard.

(How do I add a tagline with dx, tx?)

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Post Options Post Options   Thanks (0) Thanks(0)   Quote Carol (Tenn) Quote  Post ReplyReply Direct Link To This Post Posted: Nov 08 2010 at 5:42am
Dear Dancerina,
I cannot relate to your problem because I am not single. I just want to answer your post to let you know that you've been heard.
I am sure there are others that do share your experience and they will post soon. May I suggest that you start a new thread in the Welcome New Members forum. I'm afraid you might get lost here.
As for you signature..
Go to top of this page and clk on Member Control Panel
Then clk on Edit Profile
Scroll down to the bottom of the page
On the right is a box to put in your stats.
Clk the place that says something like Add signature to each post or words to that effect.
Hopefully this has helped some.
Just copy and paste your first post to the other forum and I am sure you will hear from others soon.
Welcome to this site. I am sorry for the need to be here but we all know about TNBC and can relate to most of what you're feeling. This is wonderful community of caring, loving, supporting women and men.
Also, allow me to invite you to visit the Spiritual Support thread as well. You can find us by going to the bottom of this page where it says Forum Jump. Clk on arrow and then clk on Support Groups, then Spiritual Support.
Love and Prayers,
Carol
St 2 Gr 3, A/C/T, DD
Radiation x35
Rec chest wall 07/09
Radiation x28
NED 10/24/11
NED 10/5/12
NED 03/15/13
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Susie Quote  Post ReplyReply Direct Link To This Post Posted: Nov 08 2010 at 6:07am
Hi Cheri, Dancerina, and other singles,
I have been through TNBC treatment and single. Also during that time, I moved to a new house, my daughter got engaged and married. It all seems a blur. Being dx with BC is tough andd being single stinks.I have and had wonderful friends and 3 kids. My kids just didn't handle it very well, which I understood. My faith and friends got me through it.
 
I think just being able to validate your feelings and say I AM ALONE AND THIS DOESN'T FEEL GOOD!! In a weird way, it helps. It is sad, but doable for sure. Use this forum to vent , and don't be afraid to say what you really feel.
 
Please PM me if you ever need to. You can get through this, you can get through this!!! There is always light at the end of the treatment tunnel!
 
Much love and sending hugs to you all, Susie


Edited by Susie - Nov 08 2010 at 6:08am
dx 10/08,age 56,.75 cm. Stage1 Grade3,lumpectomy,SN neg..,AC 12/08-02/09,35rads,03/09-05/09,BRCA2+(E1415X),06/09,oophorectomy 10/09,
Zometa - IV/mo.,07/09-08/10, lumpectomy #2 10/20/10 NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Nov 08 2010 at 8:51am
Hi Dancerina!
 
Welcome to our wonderful site! I am so sorry you have to be here though, it is a tough journey, but with the help of our sisters and brothers here on this site we do make it!
 
Do as the others have said and repost on the New to TNBC and I am sure you will get more responses...
 
I am here if you want to chat!
Hugs, Helen in NS
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
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