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Sdcali
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Topic: Scared as heck Posted: Nov 21 2015 at 9:19pm |
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I just got my pathology results yesterday and was told that they took 5 nodes and I had micro metastases of 1 node consisting of a 0.5 mm cell. Not sure if I worded it right. I haven't met with my oncologist yet so don't know my exact plan but I will have to do chemo and radiation since I had a lumpectomy. I have read about the toenail thing and neuropathy and I am so scared. How do I avoid all this as well as the nausea????
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gordon15
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Location: San Diego CA
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Posted: Nov 22 2015 at 2:41pm |
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Hi. I can tell you you should have a good prognosis with only .5mm cancer in one node. My wife had 5 nodes removed and we know based on the images 3-4 had cancer but it was killed by the Carboplatin-Gemzar chemo before surgery.
toenails- my wife lost big toenail during TAC chemo and oncol nurse said to put Vicks VaboRub on it and as the new nail grows in it will kill the fungus, which worked. You can research that. That was in 2008 so maybe something better now.
neuropathy- my wife had none, a tingling or numbness in the toes or elsewhere, the chemo- nurses will stop/reduce dosage/switch in our experience at symptoms, they should deal with this.
nausea- my wife had none once she switched to Zofram after one didn't work for her, she has chemo now and still works great, they infuse with chemo but they have pills too.
Hope this helps, many ladies here know more.
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Lillie
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Location: Eastern NC
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Posted: Nov 22 2015 at 5:58pm |
Dear Scdali, Welcome to the site. I want to let you know that "scared as heck" describes how all of us here on this site have been at one time or another. What stage is your cancer? I was Stage IIb and had micromets in one lymph node. That was nine years ago and if you read my signature you will see that I had a mastectomy, and chemo. If you get the 'standard of care' your prognosis should be good. I haven't seen anyone yet who got around having some of the side effects from chemo. Lose hair, fingernail and toenail problems, mouth problems, heartburn, constipation. There are more, but for most side effects there are ways to minimize them. Good luck and keep posting as you learn your chemo regimen and such. Just know that you are in good company here and We Understand. God Bless, Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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KristyLee
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Posted: Nov 23 2015 at 9:46am |
Hi Sdcali!
It's so scary, but you can handle it. Chemo is like pregnancy, there are lots of possible side effects, but each person is different. Some have a really hard time, while others seem to breeze through fairly easily. Nausea, for the most part, can be well controlled with medication. I never lost toenails or had mouth sores, but I have a bit of neuropathy in my toes. It doesn't interfere with anything I want to do, though. My biggest issue was just overwhelming fatigue and weakness during chemo.
Big hugs to you!
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Dx 09/14 Stage 2 TNBC, Grade 3, 3cm, no nodes. BRCA1+ Neoadjuvant treatment: 4 AC/T, 12 Taxol, 4 Carboplatin. BMX Diep Flap Hyster 3/5/15. Path report PCR, no radiation advised.
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Katdoll
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Posted: Nov 25 2015 at 3:56am |
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Most people I talk to say chemo wasn't nearly as bad as they'd feared. That was definitely the case for me. I felt crappy on and off for five days after each AC infusion, but the nausea wasn't bad and I never threw up or even came close to throwing up. I had mild mouth sores after the third and fourth AC infusions, but they really didn't feel like a big deal. On taxol I had neuropathy, but it wasn't awful, just some numbness in toes and fingertips and achy feet sometimes. Nothing that impacted work or life. Neuropathy went away within a couple months of chemo ending. My fingernails changed color but never fell out. I had a fair amount of fatigue throughout chemo. I still had enough energy enough stamina to work full time and continue with my normal exercise routine, though I had to push myself harder. I recommend talking to your chemo nurse about your fears. He or she will be spending a lot of time with you and part of his or her job is to answer questions and allay fears about chemo and potential side affects. My chemo nurses were amazing - incredibly smart and knowledgeable, kind, compassionate, and comforting. They really helped ease my fears about chemo.
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Tested positive for BRCA1 mutation (187delAG) in 4/09 @ age 44; BSO 9/09; diagnosed w/TNBC in 10/09; 1 cm Stage 1 TNBC IDC, grade 3 + 1.5 cm DCIS; BMX 11/09, nodes clear; chemo (AC/T).
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123Donna
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Posted: Nov 25 2015 at 10:53am |
Sdcali,
Like you I was so scared at the thought of chemo, but found my fears and anticipation to be much worse than the actual treatment. Because of the good anti-nausea meds, I never had any nausea. The toenail thing happens. I didn't lose my nails, but the big toe nails lifted off their bed and ended up with a fungus. I tried all the natural treatments afterwards (Vick's, Tea Tree Oil, Cider Vinegar) and nothing worked. Last year (5 years after chemo) my dermatologist prescribed Jublia that I've been applying topically for the last 11 months. I can say it's 95% better and almost back to normal. Your onc can help with the neuropathy. They can reduce the dose if it gets too bad. I tried the Vitamin B-6 100 mg twice a day and it seemed to help. I can still feel a little bit of tingling at times in my fingers but hardly notice it anymore. Wishing you the best. Keep us posted on how you are doing.
Donna
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DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Sdcali
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Posted: Nov 30 2015 at 1:06pm |
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Thank you all for your kind words aND helpful information. I find out my plan tomorrow when I meet with the oncologist and will let you all k kw what I find out.
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Sdcali
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Posted: Dec 19 2015 at 10:53pm |
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Hello everyone. I have had my port put I'min and am due to start treatment on 12/22. I am going to have 4 rounds of AC and then 12 rounds of Taxol. I am also in a trial to have Carbo Penton with the Taxol. I also found out I am Stage IIB. I'm scared but have been reading all your posts over and over which have really helped. I'm hoping to feel good on Christmas. When do the side effects kick in?
Edited by Sdcali - Dec 19 2015 at 10:54pm
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KristyLee
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Posted: Dec 19 2015 at 11:46pm |
Wishing you well as you begin treatment! I had the exact same chemos as you, 4 AC, 12 Taxol with Carboplatin. I had great results and I'll hope the same for you! Side effects usually are worst a couple of days after chemo, but it varies person to person. You'll probably lose your hair after the second AC.
I'll be thinking of you on the 22nd! Please let us know how it goes!
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Dx 09/14 Stage 2 TNBC, Grade 3, 3cm, no nodes. BRCA1+ Neoadjuvant treatment: 4 AC/T, 12 Taxol, 4 Carboplatin. BMX Diep Flap Hyster 3/5/15. Path report PCR, no radiation advised.
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Lillie
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Posted: Dec 20 2015 at 2:38pm |
Dear Scdali, I was a IIb, with 1 micromet lymph node. I had AC x 4 followed by taxol/gemzar x 4. I had a mastectomy, so no radiation....That was 9 years ago. I will be praying for you as you go forth with treatments. You can do this. Be scared, but just know that we understand and care. God Bless, Lillie
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Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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Tamara
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Posted: Dec 21 2015 at 3:06pm |
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Dear Sdcali, Prayers for you as you begin your chemo tomorrow. I finished chemo one year ago in October. Side effects not bad. I had a lumpectomy, partial radiation, 4 AC, the Neulasta shot the day after AC and 12 Taxol treatments. I had my port put in the same day as the first chemo treatment - that was a rough day but otherwise side effects were minor. Some nausea, very minor neuropathy, a few toenails and a fingernail that changed but I did not lose them. Instant menopause - it was just days after chemo that I had a very heavy last period. Also had very runny eyes, runny nose, bad headaches & with the Taxol a reaction to the steroids where I could not sleep for over 24 hours. All of the side effects were monitored & managed by my Oncologist (steroids were cut back, chemo dose was changed when I had severe runny nose, eyes & headaches). Prayers are with you. Scared of the unknown was exactly how I would describe myself prior to the treatments but looking back - chemo saved my life so I consider the side effects minor annoyances. Keep us posted on your progress. God Bless, Tamara
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myleftboob
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Posted: Jan 03 2016 at 2:03am |
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Sdcali,
I did not have metaplastic breast cancer but I was Stage IIB when I began treatment. I participated in a clinical trial for early stage TNBC where I received neoadjuvant chemotherapy. I had 11/12 weeks of Taxol (had to skip one week due to neuropathy) and 4 rounds of A/C every 3 weeks. During the Taxol, I also received either Carboplatin or a placebo every three weeks and took a pill orally that was either Veliparib or a placebo. When I had my lumpectomy and SLN biopsy after chemo, there was no cancer left at all. I had radiation after surgery and finished on 12/4/15. I hope your treatment works as well for you! Things have really improved in this field, and they have ways of managing most side effects. Those that they can't manage are tolerable. I am so happy to be cancer-free and don't regret doing everything recommended to fight it.
Karen
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Dx 2-13-15, IDC 2-B, Gr 3, TNBC; Port 3-12-15; MRI 3-19-15 T 3.8 x 3.5 x 3.7 cm ALN 2.5 cm; MRI 6-17-15 T 1.2 x 1.2 x 1.4 cm ALN 1.2 cm; Chemo: 11 Taxol, 4 A/C; Lumpectomy/SLNB: 9-22-15 pCR; 19 Rads
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Cynanne
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Posted: Feb 15 2016 at 9:09pm |
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Sounds like you may be in the same trial that I will be in
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