New Posts New Posts RSS Feed - Remembering Lori Baur
  FAQ FAQ  Forum Search   Events   Register Register  Login Login

Remembering Lori Baur

 Post Reply Post Reply
Author
SagePatientAdvocates View Drop Down
Senior Member
Senior Member
Avatar

Joined: Apr 15 2009
Status: Offline
Points: 4480
Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Topic: Remembering Lori Baur
    Posted: Feb 21 2011 at 10:13pm
Dear all,

I had a pen-pal/phone relationship with Lori for several years. She was a lovely person and passed away this past Saturday.

I donít know if, at this point, you can access Loriís CaringBridge pages but if you can I think you will get a sense of this courageous woman. We almost had a meeting in Chicago at a family BBQ. She had wanted me to speak to them about the BRCA mutation we shared but at the last minute Lori wanted to just be alone with her family. I am truly sorry I never met her.


rest in peace, my friend,

Steve 


Edited by steve - Feb 21 2011 at 10:23pm
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
Back to Top
dmwolf View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Feb 21 2011 at 10:32pm
Steve, I tried to access her site but it was restricted. So sorry to hear of her passing. Still, I remember seeing her post on other sites.  She was warm and thoughtful, right?  She had a devoted following, I think. 
Thanks for letting us know, and please take care.  Your avocation brings you close to the shadows so very often.   I know it's hard on you.
love,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
Back to Top
NINASUZIE View Drop Down
Senior Member
Senior Member
Avatar

Joined: Mar 01 2009
Location: United States
Status: Offline
Points: 323
Post Options Post Options   Thanks (0) Thanks(0)   Quote NINASUZIE Quote  Post ReplyReply Direct Link To This Post Posted: Feb 21 2011 at 10:41pm
my dear....
my heart and hands reach out to you and all of us who know this shattering pain that joins us in strength and love.  love you, love all of us, I STILL HAVE HOPE!!!!!!!!!!!!   Hug
Suzie
**************
Dx: 1/09 Metaplastic TN IDC/3.5CM/DCIS/1.0;4/09 L mastectomy;6-11/09 Cytoxan/Taxotere X6;BRACA-; Recurrance 11/10 bone mets broke arm;Lung mets;rads X15; chemo/parp tbd 1/11
Back to Top
dmwolf View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 22 2009
Location: Berkeley, CA
Status: Offline
Points: 3619
Post Options Post Options   Thanks (0) Thanks(0)   Quote dmwolf Quote  Post ReplyReply Direct Link To This Post Posted: Feb 21 2011 at 11:42pm
Steve, your mailbox is full.  I posted a response to you which has now been gobbled by the ether.
Lori - what a marvelous spirit, with a lion's heart.  I can see why you loved her so much. 
sleep well,
d
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
Back to Top
NinaE View Drop Down
Senior Member
Senior Member
Avatar

Joined: Dec 11 2009
Status: Offline
Points: 181
Post Options Post Options   Thanks (0) Thanks(0)   Quote NinaE Quote  Post ReplyReply Direct Link To This Post Posted: Feb 22 2011 at 2:41am
Thank you for letting us know. 
Stage IV at dx in Dec 09, at age 38. Mets to lung, axillary, IM and mediastinal nodes.

4xAC-->dd Taxol. Dbl mast, 6/10. Radiation, 8/10. NED since June 2010.
Back to Top
trip2 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jun 03 2007
Location: Under Palm Tree
Status: Offline
Points: 8549
Post Options Post Options   Thanks (0) Thanks(0)   Quote trip2 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 22 2011 at 1:14pm
Steve I am so sorry..
Stage 2 2003
Stage 1 2007
BRCA 1+
Back to Top
TNBC_in_NS View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jul 26 2009
Location: NS Canada
Status: Offline
Points: 2028
Post Options Post Options   Thanks (0) Thanks(0)   Quote TNBC_in_NS Quote  Post ReplyReply Direct Link To This Post Posted: Feb 22 2011 at 6:12pm
Steve:
Another angel is among us! Be gentle with yourself Steve adn may Lori rest in peace, Amen.
Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear
Back to Top
EileenF View Drop Down
Senior Member
Senior Member
Avatar

Joined: Jan 20 2010
Location: New York
Status: Offline
Points: 197
Post Options Post Options   Thanks (0) Thanks(0)   Quote EileenF Quote  Post ReplyReply Direct Link To This Post Posted: Feb 22 2011 at 7:39pm
I am truly sorry to hear this news,
7/09:IDC,stg 3,Grade3, pos lymph;chemo ACT;12/09 lumpect n lymp disect;1/10 bilat masect/tis exp; rad cmpltd 4/10; 11/10 stg 4 lungs chest axil mets & parp trial;3/11 IBC diag;
Back to Top
LRM216 View Drop Down
Senior Member
Senior Member
Avatar

Joined: Mar 18 2009
Location: Marietta, GA
Status: Offline
Points: 1196
Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: Feb 23 2011 at 8:25am
May she soar with the angels.  I always read her posts on Inspire.com.  Another sad tragic loss of a young and beautiful woman, taken away from her loved ones and friends much too soon.
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
Back to Top
Shelly Rae View Drop Down
Senior Member
Senior Member


Joined: Apr 25 2009
Location: US
Status: Offline
Points: 318
Post Options Post Options   Thanks (0) Thanks(0)   Quote Shelly Rae Quote  Post ReplyReply Direct Link To This Post Posted: Feb 24 2011 at 3:36pm
May Lori rest in peace, Amen.
Shelly Rae
4/09 age 47 Stage 3a, Gr 3,1 node micro ACx4 Tx4 Rads x 33, done Dec.1,2009 NED
Back to Top
 Post Reply Post Reply
  Share Topic   

Forum Jump Forum Permissions View Drop Down

Forum Software by Web Wiz Forums® version 12.01
Copyright ©2001-2018 Web Wiz Ltd.