Recurrence rate with triple negs

I just read about you being involved in a study. Sound interesting.

I was dx Jan of 07, did surgery, lump. then chemo, got really sick and the onc had to adjust the meds, then did radiation.  THEN Nothing.  in your study, did they recomend another form of treatment.  I also delelvoped an enlarged heart and have arrythemias.  Of course the dr.s don't hear it or they said if it gets to bothering me they could put me on medication.  Do you know if it is normal to have a heart condition after all this.  Just trying to find answeres.  Thanks and Hugs

LInda

May I ask what kind of Chemo did you have? I had Cytoxin and Taxol. Then radiation and then nothing. I still get short of breath and don't have much energy. legs hurt and lower back, my last chemo was March 25 of 07 and my last rad was May 25th of  07.

dee

triple -

stage1, grade3

 

I had 2 doses of Adriamycin and kept getting deathly ill, so they change it to Taxotere(Docetaxel) I got along fairly well after that. Started in May and finished end of June, started Radiation end of July and finished end of august of 07.  I have had a cold or allergies for the past 2 months, cant seem to get over it.  Joints hurt if I stand on my feet too long. I have pain points all over, but they do not last long. I still want to sleep a lot but make my self go to work.  I also have feelings of being overwhelmed at times, makes me think I am having hormonal issues again, but All that went away after  last treatment.  I cater smoked meats and also drive a school bus so I can rest a little during the day, I also sub janitor and have been working 3 nights a week, It is hard on my body the aches and all so I might have to give that job up.  I know people tell me to slow down but I have bills I am responsible for.  hoped this helped.  Linda

I'm new here just discovered this site tonight.  Spent the last 2 hours reading this thread.

I was originally diagnosed in April 07 had left masectomy, started adriamyacin/cytoxin but had allergic reaction to the A so did cytoxin taxotere from May till August  was initially ER+, PR and HER2-  thought I was finished.  Middle of October I found a lump on the left side.  Was always told if you have a mas you dont get lumps on the same side.  This one was in the muscle tissue in the same location as the original lump.  I'd had clean margins but 1 of 9 nodes was positive. 

I immediately changed Oncs.  Had a PET scan and it showed the lump along with metz to my liver and lungs.   They looked at my original reports and the cancer board at the center I am now going to decided that my ER+ was so low they would consider me Negative. 

I started Epirubicin, cytoxin, and 5 FU  had a CT scan after 2 treatments and everything looked good.  Did 2 more treatments and had another CT scan.  The liver mets were growing again.

I've switched to carbopaltin, Gemzar, Avastin.  Have only had one treatment and not sure how many I will have or when my next CT scan will be.

Through this whole ordeal I've had a wonderful support system and have kept my spirits up.  I work when I can but the flu is going around so I have not been subbing like I want to and my other job is in a group home with 8 ladies.  I haven't worked there because the flu is running rampant with all the clients.

I do what I can when I can and if I dont feel like doing something or if I'm in the middle of something and need to take a break I do it.  Nobody says anything.

Thanks for all your stories and letting me share mine.  Being triple negative with metz so soon after finishing my first round  is really scary and I'm really lucky I have people around me to support me. 

Thanks for listening,

Cindy

P.S.   I'm 38 with 3 kids.  Have not had the genetic testing.  My insurance wont pay for it and out of pocket is not an option right now.  My kids are 19, 18 and 15.  I want the testing because my daughter is 15 and there is some history on my fathers side of the family.  OK I'm outta here now.