Question re AC vs Taxol |
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LizBC 
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Joined: Feb 09 2014 Location: Victoria Canada Status: Offline Points: 32 |
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 Topic: Question re AC vs TaxolPosted: Mar 23 2014 at 8:28pm |
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I have just had my 3rd round of dose-dense AC with Neupogen. Luckily no bone pain, but I have the most horrible sweet/metallic taste in my mouth that makes me feel like death warmed up. Granny Smith apple takes it away for a while, but then I don't like the feeling of the acidic apple in my stomach.. And everything smells so bad. It's worse than when I had morning sickness! Luckily no actual nausea/vomiting. Just gross feeling stomach.
So my question is... does this disgusting feeling in my mouth/stomach get any better on the weekly Paclitaxel, in comparison? AC biweekly is bad enough, I don't know if I can face this side effect weekly, without any let-up. I've read that most people find the taxol easier than the AC, I'm just wondering if that is based mainly on the bone pain that is common, or if it is the taste/appetite/smell side effects too? Thanks Liz |
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DX IDC TNBC Dec 2013 age 45, Stage 1, Grade 3, 1.7cm, 0/4Nodes, lumpectomy Jan 2013, DD AC x 4 and Paclitaxel x 4 Feb 2014, rads, BRCA neg
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Ralu
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Joined: Nov 12 2013 Location: Israel Status: Offline Points: 8 |
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Posted: Mar 24 2014 at 4:13am |
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Hi Liz,
For me the AC was harder than the Taxol mostly because of the fatigue and lost of appetite. (I am doing the Taxol+Carbo now combo) . I did have a severe bone pain in the first treatment but much much better the following treatments. The first day after chemo I am a little nauseous but using lemon and sometimes some meds it is bearable and I am even going to work in this day. Unfortunately, for me the the taste is not better with the Taxol, with the AC at least I had a week off. I usually eat food with lots of fluids like soup, I find this more tasty than drier food. For the acidic taste in my mouth I drink sprinkled water and it helps for a while. The smells that I hated before chemo I find them even more repealing but I didn't experience any difference between the AC and the Taxol. For me the challenge in this treatment is to keep my blood counts up, so eat lots of iron!! Hope it helps, Raluca
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BRCA1 +;
DX 9/13 wt 1.5cm IDC grade 3 stage 1 @ age 25; 10/13 bilateral mastectomy wt reconstruction no nodes; chemo: 12/13 DD AD 2/13 taxol+carboplatin |
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LizBC
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Joined: Feb 09 2014 Location: Victoria Canada Status: Offline Points: 32 |
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Posted: Mar 24 2014 at 11:48am |
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Thanks Raluca. I was hoping that the taste got better :-(
I'm not really hungry but I find myself eating just to get the taste out of my mouth, and then my stomach gets upset. I think I'll take your suggestion of more soups. Water is so gross-tasting that I don't drink enough. What do you add to your water for taste? It seems each cycle my taste is very slightly different from the last cycle. For example, in cycle 2, I couldn't get enough soda water. It was wonderful. It completely cleansed my palate and gave me my "normal" mouth for a while. This time, it's not quite as clean tasting and I still get the bad taste creeping through. I wish there was a big "snooze" button I could press, then wake up in a few months when this is all over... Liz |
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DX IDC TNBC Dec 2013 age 45, Stage 1, Grade 3, 1.7cm, 0/4Nodes, lumpectomy Jan 2013, DD AC x 4 and Paclitaxel x 4 Feb 2014, rads, BRCA neg
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Natalie
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Joined: Nov 11 2011 Location: Bay Shore NY Status: Offline Points: 473 |
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Posted: Mar 24 2014 at 3:21pm |
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Just a suggestion here, I had a hard time after a while with plain water then I went to coconut water which really help with the thirst . You ladies just reminded me of the metallic taste uggg.
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TNBC stage1 size 1.8, grade3 no nodes 4/11 Lumpectomy 5/11 4cycles DD A/C 4cycles DD Taxol. Double Mastectomy 12/11 BRCA all neg
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JulieKCA2013
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Joined: Mar 12 2013 Location: United States Status: Offline Points: 217 |
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Posted: Mar 24 2014 at 9:40pm |
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Liz the taste is much better on Taxol. But I will tell you there is some, its more like a numbing of the taste buds compared to a chemical feel on AC. I didn't actually realize there was some until I started to get my taste buds back after chemo was over. You have one more to go, you can do it girl!
<3 Julie
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Dx 3-7-13 TNBC, 5cm pT2N1M0
3-19-13 ACx4, 5-14-13 Taxolx4 7-17-13 BMX ypT1N2M0(.9mm) 4/24 nodes. 10-8-13 completed Rads x 30 12-3-13 completed Eribulin Trial 10-18-13, 3-19-14 Bone/Ct Scan Clear |
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LizBC
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Joined: Feb 09 2014 Location: Victoria Canada Status: Offline Points: 32 |
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Posted: Mar 24 2014 at 9:50pm |
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Oh thanks Julie... I was hoping somebody would tell me that!!!
 My naturopathic oncologist has prescribed me daily B12 under my tongue to help with the taxol side of the chemo. He says that the nerve damage is caused/exacerbated by the chemo wiping out your body's B12 stores. So hopefully that will help with the tingly extremities as well as sparing my tastebuds. Natalie - thanks for the coconut water tip. I tried it in the past and hated it, yet, low-and-behold.... today it tasted fine! I'll stock up at Costco in time for my next round! Liz |
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DX IDC TNBC Dec 2013 age 45, Stage 1, Grade 3, 1.7cm, 0/4Nodes, lumpectomy Jan 2013, DD AC x 4 and Paclitaxel x 4 Feb 2014, rads, BRCA neg
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