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Members from the UK

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: TNBC Talk
Forum Description: A place to chat
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=9968
Printed Date: Mar 26 2026 at 11:37pm
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Topic: Members from the UK
Posted By: Grateful for today
Subject: Members from the UK
Date Posted: May 29 2012 at 2:41am
Hi Members from the UK,

Recently, Amore joined the forum.
When I saw she was from the UK, I remembered there are other members from the UK.
Thought if there was a thread   "Members from the UK", the UK members could share
resources specific to the UK............and of course, continue to share non-UK TNBC/breast
cancer resources and information on the other forums.

There might be things one has learned about having breast cancer and the insurance/health
system in the UK.   There might be organizations and groups specific to the UK that assist
with financial/social/transportation etc issues.

With positive and caring thoughts,
Grateful for today.............Judy



Replies:
Posted By: Allmandy
Date Posted: May 29 2012 at 5:21pm
SmileHi Amore (and any other Brit),
Yesterday I had my post treatment meeting with my oncologist. He said he was pleased that despite having no spleen ( I had it removed when I was 16) I had managed to fight off any chance of infection surprisingly well. He asked me how the radiotherapy went. (I had to go to Glasgow Beatson's cancer centre for that) and I told him physically it wasno problem but psychologically I foundit hard as it seemed like I had become an animal being treated by well meaning vets rather than a patient involved in my own treatment. I realised this was due to the NHS having to treat a myriad of different cancers as cost effectively as possible but it is the least pateient friendly bit.
 
He told me that after the 6 FEC chemo and the 15 rads that was my treatment finished and I should never have to see him again! I already have an apointment to see the breast surgeon in September a year after my mastectomy and will have mamograms every 2 years after that.
 
He had a look at my scar and said it looked a little red but seemed good. He then said any more tests were pointless as they rarely proved anything so as long as I stayed healthy it was goodbye from him!
 
I asked him about vitamin D and he agreed it would be good and suggested cod liver oil. Then he finished off by suggesting the most important action I can take is to lose weight. So that's my experience of TNBC in Central Scotland.Smile
 Diagnosed with cancer in August Right MX & A/c in Sept. Diag TNBC 0+nodes  Chemo Oct-Feb Rads March


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diagnosed neuro-endocrine tumour sept2011. M/C and a/c 19th Sept. rediag TNBC Stage 3 6.5cm no +ve nodes. 6FEC 80 then 4 weeks radio planned



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