My friend Deanna
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Category: TNBC Forums
Forum Name: TNBC Tributes
Forum Description: This is a tribute section on our website to honor members
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=9060
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Topic: My friend Deanna
Posted By: SagePatientAdvocates
Subject: My friend Deanna
Date Posted: Sep 24 2011 at 1:34pm
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Dear TNBC Foundation family,
My friend Deanna was born October 29, 1972 and passed yesterday from Metastatic Triple Negative Breast Cancer. Most of you probably did not know her, because she was a very private person(therefore I have not included her personal information) and only posted about a dozen times, I believe. She reached out to me in a PM in March of 2010 and I was closely involved with her care since that time. We became good friends and I would like to share some remembrances of her. We spoke on the phone many, many times before we met and exchanged scores of emails. I found out that she loved music, loved animals (especially Dobermans), loved to read, loved to laugh and especially loved her work. She was a brilliant forensic psychologist. She had some fascinating stories.
I accompanied her to a visit to an oncologist in the Midwest and he gave us sobering news. At dinner that night I told her what I always tell folks “please try to find the beauty in each day.” She nodded, seemingly deep in thought/pre-occupied and did not respond. At that point, she was very upset over the loss of her hair, due to chemo, and also was having weight problems. But, she ordered dessert and said “what the heck.” It was flourless chocolate cake with ice cream and I think some sort of chocolate sauce...She bit into it and closed her eyes, happily, and said “Steve, I have just found the beauty in today” and then we both cracked up. I can still see her delight and I also can hear her laugh. One of the most memorable incidents was when I was trying to help the elderly mother (93) of a friend. She was suffering from paranoid schizophrenia and my friend was overwhelmed. I reached out to Deanna, hoping she might have a thought and she did and as she started to tell me her suggestion she was hit with a monster, painful, coughing jag caused by her lung mets. I asked her to call me back and she said “no, I am very tired and I want to get my thoughts out to you.” She coughed for another minute (but if felt like an hour) and then she told us to make sure the patient saw a geriatric psychiatrist. That professional absolutely turned things around with some meds he prescribed. That was Deanna, smart and compassionate. I shall always remember that incident and her insight and kindness. Several weeks later I was visiting the elderly patient and her daughter and I asked Deanna if it would be o.k. if she spoke to my friend who wanted to thank her. I put her on the phone and they had a wonderful conversation.
Another highlight for me was Deanna coming to California, with her best friend, to, among other things, meet my wife. During the day, I drove them to Malibu and we soaked in the view from Pepperdine in the hills above the ocean. It was a gorgeous day and I know Deanna had the experience engraved in her hard drive. I had spoken, many times, to Deanna about my wife and I am so glad we shared a meal. They liked each other and my wife knitted her a cap, that Deanna loved.
Recently, I met her at another clinical trial site and got a tour of the cancer center and met many of the nurses who were involved in her care/treatment. I wrote to them yesterday about Deanna and uniformly I received such lovely responses from them. They had all been deeply affected by her and her attitude, even in the face of therapy that failed her.
Last year we celebrated her birthday, pretty sure she would not see her 40th but the dinner was filled with love and laughter. It was beautiful and I was honored to attend. The support and love Deanna received from her friends over the last 18 months was truly inspirational. There will be no services; instead there will be a 40th birthday celebration in her memory.
Another lovely light extinguished way, way too early. Every night I pray for all here and for a cure. Someday....In the meantime, there is this ache in my heart.
I shall miss you, dear Deanna, and I shall always carry you in my heart.
with my love,
Steve
p.s. when someone so young passes, often, rightly so, thoughts go to the children. In this case, there are no children but even if there were my thoughts always, also, go to the parents. As a father of six and grandfather of three, I can’t ‘go’ there. I was ‘there’ when my daughter was first dx with TNBC at the age of 36. But I have sublimated those thoughts, most of the time successfully.
For Deanna’s parents, my heartfelt condolences. She was a lovely person and loved you both, dearly. My heart is with you.
------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Replies:
Posted By: Charlene
Date Posted: Sep 24 2011 at 2:11pm
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Steve,
I am so sorry to hear that you have lost another friend. I am sure, though, that Deanna was so blessed by your friendship before she died. I hope that you won't mind if I include a passage here that I have found strength from. I think it speaks to what you always say, "please try to find the beauty in each day." The following is from What I Learned When I Almost Died by Chris Licht. He had recently recovered from a brain aneurism.
"What happened to me was an unsolicited, but invaluable, reminder that none of us gets to choose how many days we have. Everybody's supply is limited, some far more than others. There are no hours to be wasted on anger at an illness that is not your fault. There are none to be wasted on anxiety about who says what about you or whether they like you. These things are beyond your power to influence. What you can control, though, is how you use the unknowable amount of time you have. And if you choose not to invest in the uncontrollable and the trivial, something wonderful happens. You actually wind up with more time: more to enjoy family and friends and colleagues, more to keep yourself sane, more to appreciate simply being here."
Thank you again for all you do at this forum that brings so much comfort to others.
Charlene
------------- DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED
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Posted By: HappyGoLucky
Date Posted: Sep 24 2011 at 3:54pm
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Steve
that was very sad and I take away from this that you are a warrior for our cause and yours. You're the best friend a cancer fighter can have.
Charlene
Thank you for that, we can't know the unknowable. Thats how I stay sane.
Love,
Karen
------------- 2/2009 7cm tumor, sent nod. pos. Lumpectomy 3/19/09,a/c dose dense+avastin clinical trial, taxol avastin stopped with pneumonia. 33 Rads 01/2010 ~ reccur 2011 supraclav.and internal mammary nodes. rad
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Posted By: SagePatientAdvocates
Date Posted: Sep 24 2011 at 6:14pm
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Dear Charlene,
marvelous thoughts...thanks for sharing...
That’s why I love a book called Turning Heads. It was written by a friend of mine by the name of Jackson Hunsicker and it features photos of 50+ women and short vignettes. The message is profoundly simple to me-“yes, my hair is gone...but I am still here and I am beautiful...and my spirit, grace, intelligence and courage are still intact.”
Dear Karen....yes sometimes we have to “go to the mattresses” ...I just never realized it would be this often.
all the best,
Steve
------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Posted By: 123Donna
Date Posted: Sep 25 2011 at 12:18pm
Steve,
Too many women lost too soon. Another sad for us. I wish we could have known Deanna better, but I'm glad you and her connected and shared the journey. I'm sure your support meant the world to her and helped her in her fight. These losses must weigh heavily on your heart dear friend. May Deanna be in a better place and her family and friends rejoice in her wonderful life.
Donna
------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15
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Posted By: harbin
Date Posted: Sep 25 2011 at 3:16pm
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Dear Steve, Thank you for sharing and let us know a bit more about Deanna. I am so sad that TNBC has taken away so many lifes of beautiful women.
------------- 4/08 dx IDC,stg2,neg. nodes,4xAC,8xTexol& Avastin,BRCA-
3/10 Recurr Chestwall,surgery
6/10 Lung mets
10/10 Parp
05/11 Surgery on 2 lung nodules
08/11 Parp failed
10/11 Cyberknife 1 lung nodule
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Posted By: Lillie
Date Posted: Sep 25 2011 at 4:57pm
I am so sorry to hear of Deanna's death. My condolances to her family. And Steve, my condolances to you. You really put yourself on the line for a lot of ladies. I feel like your friend already, but if I ever need an advocate I know where to find the best. Take care and enjoy Ethan.....
God Bless,
Lillie
------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED
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Posted By: denise07
Date Posted: Sep 25 2011 at 6:27pm
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Steve,
I am so sorry to hear of Deanna's death that is so sad. I am sure she was so greatful to have a wonderful friend like you.
------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes
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Posted By: Debris
Date Posted: Sep 25 2011 at 6:58pm
Steve,
So sorry to read of yet another brave woman losing this fight. Your heart must be very sore, and yet you still find time and strength to help others.
Thank you, Bless you, and may Deanna's family find comfort and healing in His Grace, even as she find Peace.
Deborah.
------------- 4/12 Xeloda/Tykerb
2 Carboplatin
12/11 Dx IA
9 Gemzar/Taxotere Dx IBC:FEC
5 Ixempra/Sprycel
2 25 Rad
10/10 BRCA1-/2suv
9 NED
6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin
06/08 Dx DCIS 0/SN Rads/AIs
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