Members in California
Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Support Groups
Forum Description: Support Groups
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=8974
Printed Date: Mar 26 2026 at 6:17pm
Software Version: Web Wiz Forums 12.01 - http://www.webwizforums.com
Topic: Members in California
Posted By: sabinecalifornia
Subject: Members in California
Date Posted: Sep 07 2011 at 2:27pm
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Hello I live in Corona, CA. I was just diagnosed with TNBC in July 2011. Had a lumpectomy and axillary dissection right. 1 lymphnode positiv out of 19. I will get a port next Tuesday. Today they'll do the BRCA Test. Monday I'll have a appointment with the oncologist to discuss the chemo.
Sabine
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Replies:
Posted By: CalicoPrairie
Date Posted: Sep 10 2011 at 2:06pm
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Hey Sabine, I'm in Riverside County also. I'm sorry to hear you've been diagnosed. I wish you the very best.
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Posted By: sabinecalifornia
Date Posted: Sep 10 2011 at 5:07pm
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How long ago have you been diagnosed? They did my lumpectomy and axillary dissection an Riverside Regional Medical Center in Moreno Valley. They did they BRCA Test over there on Wednesday. They are not sure if Medi-Cal pays for it. I will get my port in on Tuesday in Montclair. Monday I have my appointment with my Oncologist in Corona. Chemo will start Thursday. We also have to talk about the MRI my Oncologist wants to do. They found something on the MRI in Moreno Valley, the thought it is a trauma, but he wants to check it out.
How are you doing? Good luck to you
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Posted By: CalicoPrairie
Date Posted: Sep 10 2011 at 5:13pm
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Hi Sabine. Sounds like all of your treatments are within about 10 miles of where I live. I'm sorry to hear that you've got so much going on, but glad that your doctors seem to be getting you all you need for treatment.
Actually I haven't been diagnosed, but rather I came here for support on learning preventive measures. I just lost my mom two and a half weeks ago.
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Posted By: sabinecalifornia
Date Posted: Sep 10 2011 at 5:35pm
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So sorry for your loss.
I'm from Germany, I moved to California 10 years ago. I found the lump a little bit after my 50. birthday. I have a daughter, she will be 25 years old in October, she lives in Germany. I'm really worried about her, because Medi-Cal might not pay for the BRCA Test. I also have a sister, she will be 49 in October. For me it is so hard to deal with that, I don't know if I have a future ahead of me. I don't think I'm overweight, always ate healthy, never used any chemicals. I try to buy everything organic,. My only problem is the lack of exercise. I hope that I get the best treatment, I am not sure because I am on Medi-Cal. Stupid TNBC. Maybe you can get tested for the BRCA Gen.
Sabine
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Posted By: SagePatientAdvocates
Date Posted: Sep 10 2011 at 9:43pm
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Dear Sabine,
the standard of care, surgery-wise, it is my understanding, in most cases, for BRCA positive women, with breast cancer, is a bi-lateral mastectomy not a lumpectomy.
It sounds like you may not have seen a Certified Genetic Counselor? You should, if you haven’t.
I hope you test BRCA negative.
I live in Los Angeles but am in Pennsylvania for awhile...
I am sending you my contact info..Please call me if your BRCA test comes back positive.
all the best,
Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Posted By: Carolyn27
Date Posted: May 29 2013 at 11:34am
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Hi, I am in South Orange County, California. I do my treatment in both Orange and Los Angeles county
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Posted By: chicaroo44
Date Posted: Aug 01 2013 at 7:43pm
im from long beach, ca
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STAGE 2, GRADE 9, O LYMPH NODES TRI POS IDC OF THE L BRST, STAGE 1, GRADE 9, 0 LYMPH NODES TN (QUAD NEGATIVE (AR-) IDC OF THE R BRST, DOUBLE MAST. /CHEMO CARBO/DEXETOL HERCEPTIN
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Posted By: mainsailset
Date Posted: Aug 02 2013 at 11:47am
Hi Carolyn, I was raised in Laguna, it's a terrific town and I miss being able to go to the Sawdust Festival.
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dx 7/08 TN 14x6.5x5.5 cm tumor
3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Posted By: JackiWalkr
Date Posted: Jul 16 2014 at 4:53pm
Anyone near/in San Luis Obispo County?
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DX IDC TNBC 3/31/14 Age 46 Stage 2a, Grade 3, 2.1cm, 0 nodes, (4)Carbo(5)Taxol. AC DD 4 of 4. Lumpectomy 10/30/2014 NED. 33 Rads 2/12/15. BRCA 1/2 normal=negative
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Posted By: MommaWise
Date Posted: Apr 20 2016 at 7:46pm
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Any one near Redding, CA.
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Posted By: luzmia
Date Posted: Apr 20 2016 at 8:06pm
Hi MommaWise,
I live in the bay area. I have driven many times through Redding on our way to Mt. Shasta- we love going camping there, we have not been there since 2 years ago- but are planning a trip this year - By July or August. Redding is a beautiful small town.
Best to all.
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