Zacar (Caryn)
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Topic: Zacar (Caryn)
Posted By: Debris
Subject: Zacar (Caryn)
Date Posted: Jul 29 2011 at 10:44pm
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Anyone been in touch with Caryn? She hasn't posted in quite a while, and was having such a hard time when last she posted.
Caryn, we miss you and keep you in our prayers. Deborah. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Replies:
Posted By: 123Donna
Date Posted: Jul 29 2011 at 11:12pm
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Deborah, I saw Caryn post on FB that she's not doing too well. She's on a lot of morphine right now. I couldn't figure out from her post if she's doing chemo or not. I haven't seen her post in over a week. Please keep her in your prayers. ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Debris
Date Posted: Jul 30 2011 at 8:16am
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Donna, thank you for the update.
I so wish Caryn wasn't having such a tough time. She is in my prayers. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: LRM216
Date Posted: Jul 30 2011 at 9:13am
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And I hold Caryn in my thoughts and prayers as well. I pray this turns around for her, she has fought so hard and been through so very much and is such a loving, caring friend to all of us.
Linda
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: MsBliss
Date Posted: Jul 31 2011 at 3:51pm
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I think I can get her phone number. Do any of you wish to try calling her? |
Posted By: MsBliss
Date Posted: Jul 31 2011 at 3:53pm
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Donna, Does Caryn have a fb page? I have been so worried about her....she is all heart. |
Posted By: 123Donna
Date Posted: Jul 31 2011 at 4:12pm
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Yes Caryn has a FB page. I'll pm you the info if you want to connect to her there. I saw that she posted about 2 hours ago. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: 123Donna
Date Posted: Jul 31 2011 at 4:13pm
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Ms Bliss, I tried PMing you but your mailbox is full. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: MsBliss
Date Posted: Jul 31 2011 at 4:44pm
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Donna, I'll make space right away.... |
Posted By: MsBliss
Date Posted: Jul 31 2011 at 4:56pm
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Dear Donna, I just found Caryn's facebook page....but I don't have access since I am not on facebook anymore....  |
Posted By: Debris
Date Posted: Jul 31 2011 at 6:27pm
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I'm not on fb either. Please do let Caryn know we care for her. And thank you for any updates you can share. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: janet c.
Date Posted: Jul 31 2011 at 6:59pm
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Caryn,
We love you and you are always in our prayers. 
Janet ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: LRM216
Date Posted: Jul 31 2011 at 8:22pm
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The fact that she posted on FB or anywhere for that matter relieves me a bit. I hope she checks in here soon. Caryn - we miss you and care very much how you are doing. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Debris
Date Posted: Aug 03 2011 at 11:37am
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Caryn, still praying for your recovery.
Deborah. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: sue
Date Posted: Aug 03 2011 at 2:13pm
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Caryn, Still praying that you will be blessed and know peaceful times during this long journey. Love, Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: 123Donna
Date Posted: Aug 03 2011 at 4:46pm
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I got this message from Caryn: I've been in and out of the hospital. My port closed and I had a blood borne infection. Things are not looking good. I'm told that there is no saving me. I't's crazy but that "parp" really messed me up. I'm going to try some light abraxane starting next week and I need to check the brain again. Please thank everyone for caring. Somehow I thought I'd be one of the lucky ones and be around for awhile. Doc says I'm not ready for hospice at all but I just hang out in my my bed most of the time. ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Autumn10182001
Date Posted: Aug 03 2011 at 5:41pm
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I don't know what to say.. I can't handle losing anyone else.. enough already... somebody find a cure..... ------------- DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09 |
Posted By: TNinTN
Date Posted: Aug 03 2011 at 5:54pm
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Thank you, Donna. This is difficult news to hear. We will continue our prayers for Caryn's healing, peace, and comfort.Martin & Susan ------------- Wife age 53@dx TN IDC Stage IIA 7/10; BRCA1&2 Neg; BROCA Neg; LN Neg; taxol+cisplatin+/-RAD001x12(clinical trial); lumpectomy 12/10;ACx4; 33 Rads complete 4/11; NED 5/5/11 |
Posted By: CindyKS
Date Posted: Aug 03 2011 at 6:16pm
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Thanks Donna for the update. I have been thinking of Caryn and pray for her. Cindy ------------- Age 42; Dx 4/10; IDC; 2.1cm; lumpectomy; ACx4-taxolx4 every 2 wks; Radx37, BRCA 1/2 neg |
Posted By: 123Donna
Date Posted: Aug 03 2011 at 6:32pm
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I believe Caryn is comforted by all of our prayers and well wishes. Just knowing that others care about her will help lift her spirits and keep her fighting this terrible disease. I was lucky enough to meet her in Houston at MDA. Like others I've met, I wish the meeting lasted longer. Caryn is truly a wonderful person and the love she has for her son is so apparent. They have a very close bond. Caryn, if you read these posts I hope you know how much we all care and love you. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Craig76
Date Posted: Aug 03 2011 at 6:34pm
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Sad news...I hope she pulls through she is such a strong person. I agree Autumn...this makes me so angry that a cure has not been found. Cells are killing friends and loved ones at record pace and the top minds in the scientific and medical fields can not figure out how to stop them. I am just so angry...this is not fair.
Craig
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Posted By: dmwolf
Date Posted: Aug 03 2011 at 6:57pm
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Thanks for updating us, Donna. I've been thinking about Caryn a lot, worrying about her and wishing her well. I keep checking her FB account hoping for a post, and have been meaning to call her. If I do reach her I'll be sure to join Donna in letting her know how many people out there are sending love and healing energy her way. d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: zacar
Date Posted: Aug 08 2011 at 7:47pm
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Thank you everyone. It's been hard to write. Between the hospitalizations and the decisions .... I start Abraxane tomorrow. Truly I don't know why. I've been told by 2 of the best IBC docs that I am going to die no matter what. Not what one wants to hear. Anyone been on Abraxane? I've heard it can be mild. I want mild. Donna thank you for starting this thread an thank you everyone who has cared to post. You are all lovely and I am grateful for you. Love, Caryn ------------- DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC |
Posted By: kirby
Date Posted: Aug 08 2011 at 7:53pm
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welcome back. you were missed by more than you will ever know. I am glad you'll be starting Abraxane. I hope it works well and is mild for you. ------------- kirby dx Feb. 2001. Age 44 Lumpectomy 2cm. no nodes stage 1 grade 3 4 rnds AC, 35 rads |
Posted By: TNinTN
Date Posted: Aug 08 2011 at 8:00pm
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We are so happy to hear from you, Caryn! Please post when you are able. We will continue our prayers for you and your family. Martin & Susan ------------- Wife age 53@dx TN IDC Stage IIA 7/10; BRCA1&2 Neg; BROCA Neg; LN Neg; taxol+cisplatin+/-RAD001x12(clinical trial); lumpectomy 12/10;ACx4; 33 Rads complete 4/11; NED 5/5/11 |
Posted By: 123Donna
Date Posted: Aug 08 2011 at 8:05pm
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Caryn, We love you and want you to feel better. I hope the Abraxane does the trick and gives you a better quality of life. So good to hear from you. Post when you're able. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: Autumn10182001
Date Posted: Aug 08 2011 at 8:22pm
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Caryn, my prayers are with you, please know that you are so loved... and miracles still happen... I am praying for one for you.. please post when you can.
Autumn ------------- DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09 |
Posted By: Katastrophe
Date Posted: Aug 08 2011 at 8:46pm
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Hi Caryn, I am so happy to hear from you. You are constantly in my thoughts.
I know there is nothing any of us can say or do to change what is happening to you. You need to know that your strength of mind, and beautiful nature has been a comfort to so many of us on here. We have watched you fight and struggle your way through this horrible disease, and yet you still keep pushing forward.
I admire the woman that you are, it strenghtens me in times of doubt. Please don't stop fighting Caryn.
We all love you so much and are sending hugs and kisses and positive vibes your way. Luv Kat xxx ------------- Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10. |
Posted By: Charlene
Date Posted: Aug 08 2011 at 9:28pm
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Caryn, I am happy to see your post and my prayers for you continue. I hope the Abraxane makes you feel much better for much longer!
Charlene ------------- DX 3/10 @59 ILC/TNBC Stage 1, Grade 2, Multifocal; Lumpectomy/re-excision SNB 0/4 nodes, BRCA-; Taxotere/Cytoxan X4, 30 rads 3/14:NED |
Posted By: LRM216
Date Posted: Aug 08 2011 at 9:29pm
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Caryn - With all of the arms you have holding you up, and with all of the prayers, and strength we are sending you - I just refuse, simply refuse, to believe it will not have a positive effect for you. I too have heard the abraxane can be "gentle." I am praying it treats you gently and that it works miracles. We are with you every step of the way and you are never out of our thoughts or our hearts.
Sending you love,
Linda
------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: CindyKS
Date Posted: Aug 08 2011 at 9:52pm
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Caryn It is so good to hear from you. You are in my prayers. ------------- Age 42; Dx 4/10; IDC; 2.1cm; lumpectomy; ACx4-taxolx4 every 2 wks; Radx37, BRCA 1/2 neg |
Posted By: MsBliss
Date Posted: Aug 09 2011 at 4:04pm
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Caryn, you always in my thoughts and I send you much love.... Remember, vitamin D and curcumin make taxanes (taxol, taxotere, abraxane) work even better; but No resveratrol while being treated with any taxanes. If you get a chance, please check the Edge CAM and Edges' Evidence Watch for guidance. For example, I have copied his treatise on Reishi, which is specific to IBC, but the whole CAM regimen is very researched and has additional info which you might want to avail yourself. Reishi (Ganoderma lucidum) Mushroom Extract [for IBC only]
This next link is for reading up on optimized studies regarding chemo state of the art dosing and other info, but I am pretty sure your doctor is on top of this: http://breastcancer.evidencewatch.com/ Hugs, Bliss |
Posted By: sue
Date Posted: Aug 09 2011 at 7:53pm
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Caryn, So good to hear from you. You are always in my thoughts and every day I wish you will know many blessings, even if they may be disguised sometimes. With much love and peace being sent your way, Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: EileenF
Date Posted: Aug 14 2011 at 12:25pm
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Caryn. It is great to hear from you. I hope your new treatment is successfull and you feel stronger soon. I have just started havalan and while I have been told it is a very powerful drug I find it much easier to tolerate than previous chemotherapy Good luck with your treatment I am praying for you ------------- 7/09:IDC,stg 3,Grade3, pos lymph;chemo ACT;12/09 lumpect n lymp disect;1/10 bilat masect/tis exp; rad cmpltd 4/10; 11/10 stg 4 lungs chest axil mets & parp trial;3/11 IBC diag; |
Posted By: Jenny
Date Posted: Aug 15 2011 at 8:15am
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Hi Caryn, Great warmth and gentle vibes headed your way. I had 4 Abaxane treatments and found them to be much easier to tolerate than the AC. I even went as far as to call me chemo nurse after the second treatment to make sure they'd actually given me the drug; I felt that good. I hope your experience is the same. You and your wonderful son are in my thoughts and prayers. Love, Jenny ------------- Jenny dx 2007,age 37, Lumpectomy, Stage 1, grade 3, BRCA1+ 4x AC, 4x Abraxane 6 weeks rads, 2008 bilateral oopherectomy, 2012 bilateral nipple sparing PBM w/ reconstruction. |
Posted By: Debris
Date Posted: Aug 16 2011 at 1:55pm
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Caryn,
Hope you are doing better, and that the Abraxane works for you, while being as mild in SEs as you need. God Bless. Deborah. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: tninalabama
Date Posted: Aug 16 2011 at 3:41pm
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Abraxane is easier than some of the others. I have been on it since March. I am on a half dose and this last time no Neulasta. I am tired and have a little neuropathy in my feet. The nodes I had in February are gone, but I have one new one in my neck. ------------- Dx 11/07,stII bgr3,1/8+, metaplastic, recurrence 11/09, lymph dis 12/13+ 07/10, rad,x28 9/10,02/11 mets BRCA neg 5-FMC since 03/12 PET 04/12,no progression Bone scan clear 06/12 |
Posted By: Craig76
Date Posted: Aug 16 2011 at 5:56pm
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Caryn~ I don't think we have talked much on this site but I wanted to let you know that you are truly an insperation to me and I am sure many others who frequent this site. Your drive, determination, positive attitude, and strength...I mean all I can say is wow. I am at a loss for words and that does not happen to me often. You are an amazing person and I am sure this abraxane will do good for you. I hope you are doing better
Craig
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Posted By: LRM216
Date Posted: Aug 16 2011 at 8:34pm
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Nice post to Caryn, Craig. I'm sure it will bolster her through this trying period, and I too, hope the abraxane is gentle on her and will work wonders. She is indeed very special.
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: mudpuppy
Date Posted: Aug 17 2011 at 12:39am
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Caryn,
I think of you often and wish only the best for you and your son!!! You are a inspiration to many!!! You are in my prayers always!! Sending positive vibes your way!!
Christine ------------- DX 9/21/2009, age 37, Tumor 3 cm (4.3 with tentacles), Grade 3, DD Neoadj chemo,4X AC, 12X Taxotere,Stage 2A, BRCA 1/2 neg, Bilat mast/reconst 5/18/10, 0/10 nodes, Gemzar & Cisplatin 4 cycles |
Posted By: Debris
Date Posted: Aug 20 2011 at 3:19pm
Caryn, sending good thoughts and healing prayers your way. Are you on the Abraxane now? If so, how are you doing on it?
Deborah. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: Momof2NJ
Date Posted: Aug 21 2011 at 8:57am
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Caryn,
Many hugs and prayers for you my friend. I did 9 rounds of Abraxane (did 3 taxol first and it caused severe neuropathy). I sailed thru Abraxane with almost no problems. The first dose caused a pretty bad headache and stomach pains, but it only lasted 2 days and it never happened again. Abraxane actually takes longer to prepare by the pharmacist then it does to infuse. Infusion is about 30 mins...it looks like soapy, dish water...strange. I would have my labs drawn, wait an hour while they mixed it and infusion took 30 mins. I found it to be very "doable" and no where as harsh as adriamycin, cytoxan, taxol or taxotere. My hair even began to grow back during it (I had adriamycin/ctoxan before the abraxane). My oncologist sings the praises of Abraxane and it has put me into NED...I pray the same for you.
much love,
mary ellen ------------- 2008 BRCA 1+ dx stg 1,gr 3 IDC triple neg. BM w/ recon. CT x 4. Prophy TAH 2007. Recurrence 9/13/10. 10/5/10 tumor excised. ACx4, Taxol x3, abraxane x 9. 38 rads. 7/11 NED!!! |
Posted By: zacar
Date Posted: Aug 26 2011 at 7:26pm
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Hi Everyone, Had a brain scan yesterday and seems I have a new lesions in my frontal lobe.. Dr. doesn't want to stop chemo yet Mary Ellen I am hoping like you I have a good reaction to the abraxane. It's the first chemo that doesn't bother me at at all. I hope it does something good and then I wil deal with the brain. possibly gamma knife .....??? love, Caryn ------------- DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC |
Posted By: 123Donna
Date Posted: Aug 26 2011 at 7:33pm
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Caryn, This stupid cancer is really cr*p. I can't believe all you've gone through and to have more brain lesions. I'm so glad you are able to tolerate the Abraxane. I hope it kicks it quickly and you see some improvement. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: CindyKS
Date Posted: Aug 26 2011 at 8:04pm
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Caryn, So glad to hear from you. As always in my thoughts and prayers. Cindy
------------- Age 42; Dx 4/10; IDC; 2.1cm; lumpectomy; ACx4-taxolx4 every 2 wks; Radx37, BRCA 1/2 neg |
Posted By: janet c.
Date Posted: Aug 26 2011 at 8:38pm
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Caryn,
I am glad that you are tolerating the abraxane. I wish you had a better scan. Hopefully the abraxane will do better. Still praying for you. Always thinking about you. It is good hearing from you. Janet  ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: dmwolf
Date Posted: Aug 26 2011 at 11:18pm
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Caryn, I'm so glad the Abraxane is no problem for you. That's fantastic. As for the brain, oh man, what disappointing news. But the good news is that the mets you already zapped are gone, right? So you can do the same thing, gamma knife, on the new ones and they should disappear too. We love you. d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: LRM216
Date Posted: Aug 27 2011 at 12:03am
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Caryn:
I want to echo Denise's post and to wish you nothing short of complete success. I so want this sojourn to get easier for you, you certainly deserve it. Know that you are in my thoughts and prayers always.
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: abcmom
Date Posted: Aug 27 2011 at 12:29am
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Cryn, I am so glad to hear for you. Maybe we can hae a whole lis of things to pray for and on momnday mormngs get everyone together to pray for one another. More power in number. What do yu think? ------------- Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice) Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11 |
Posted By: HappyGoLucky
Date Posted: Aug 27 2011 at 12:51am
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Caryn
God be with you, you are loved by everyone here . Be well. POwer of prayer is astounding! I have seen it.
Karen
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Posted By: Barbi
Date Posted: Aug 27 2011 at 9:35am
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Caryn, So glad the abraxane is being gentle to you and hoping it will knock the sh** out of any and all cancer floating around in your body! Prayers for both. ------------- 10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11. |
Posted By: sue
Date Posted: Aug 27 2011 at 11:24am
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Caryn, So happy to hear from you, but sorry about the new lesions. Crappy cancer! Hoping the Abraxane will be effective. Continuously in my thoughts and prayers. Love and Peace, Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: SagePatientAdvocates
Date Posted: Aug 27 2011 at 5:17pm
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Just had a very warm talk with Caryn.. She is very happy about my grandson and, at her request, I am sending her some more pictures.. Caryn, my prayers have been, are and will be with you.. hugs, Steve ------------- I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates |
Posted By: mjhoover@gmail.com
Date Posted: Aug 27 2011 at 8:56pm
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caryn, supp you frowp m san antonio. just got doth whole brain rads. have 15 x. best wishes mj ------------- 7/08 IDC L Br, mast 1/16 node +,St 2 gr 3, 6 rounds TAC 7/10 Mets to lungs, nodes abdomen BRCA- 8/10-1-11Abraxane/Avastin 7 11 3.3 cm tobrain sstem/rt cerribellium WBR 15 rds Poss trial at MDA after |
Posted By: tninalabama
Date Posted: Aug 28 2011 at 10:14pm
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I hope that you have good luck with Abraxane, Caryn. My worst side effect is exhaustion. Take care. Pam ------------- Dx 11/07,stII bgr3,1/8+, metaplastic, recurrence 11/09, lymph dis 12/13+ 07/10, rad,x28 9/10,02/11 mets BRCA neg 5-FMC since 03/12 PET 04/12,no progression Bone scan clear 06/12 |
Posted By: EileenF
Date Posted: Aug 28 2011 at 10:42pm
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Caryn, I am glad to hear this chemo is easier for you. I hope you find it works well for you too. You as well as the rest of the TNBC family are in my prayers. Hug, Eileen ------------- 7/09:IDC,stg 3,Grade3, pos lymph;chemo ACT;12/09 lumpect n lymp disect;1/10 bilat masect/tis exp; rad cmpltd 4/10; 11/10 stg 4 lungs chest axil mets & parp trial;3/11 IBC diag; |
Posted By: LauraT
Date Posted: Aug 29 2011 at 8:25am
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Caryn - you are always in my prayers. Hoping that this chemo does a number on your cancer. Much love, Laura ------------- DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva |
Posted By: abcmom
Date Posted: Aug 29 2011 at 11:19am
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Caryn- Glad it is working. Praying for you! Hugs, Keri ------------- Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice) Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11 |
Posted By: NinaE
Date Posted: Sep 01 2011 at 2:35am
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Caryn, I'm glad to hear that you're rallying with this new treatment. You and your son are in my thoughts every day, and I'm sending you both strength and good wishes. (OT -- dmwolf, I'm trying to PM you, but your inbox is full.) ------------- Stage IV at dx in Dec 09, at age 38. Mets to lung, axillary, IM and mediastinal nodes. 4xAC-->dd Taxol. Dbl mast, 6/10. Radiation, 8/10. NED since June 2010. |
Posted By: dmwolf
Date Posted: Sep 01 2011 at 1:35pm
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Thanks for letting me know, Nina. I'll clear out some space. Denise ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: Katastrophe
Date Posted: Sep 07 2011 at 5:28am
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Hi Caryn,
Sorry to hear things are still not going so well for you. I too hope the new treatment works for you. You are always in my thoughts.
Gamma Knife the crap out of it I say!
Chin up Darl , Luv Kat xxx ------------- Age 49. Stg2 gr3 19mm lump in L/br 1 lymph node in L/br 3/14 lymph nod under left arm full clear bil/mast 6rds Chemo 3wkly 25rds Rad 18rds of Avastin finished treatment on 19th August 10. |
Posted By: 123Donna
Date Posted: Sep 14 2011 at 8:43am
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Caryn, Please check in and tell us how you're doing. We miss you sweetie. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: zacar
Date Posted: Sep 14 2011 at 11:40pm
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Oh man, I just posted 3 paragraphs and hit something and they disappeared. I don't have the energy today to re-do so let me say that I am so deeply touched by all these posts and tomorrow if I'm feeling ok I will tell you all what's been going on with me. Had my chemo today and am feeling ok. This Abraxane is so much better than anything I have had to far with side effects. I am also doing celebrex, VitD, Tumeric, krill oil and milk thistle. I am so tired. Damn I am not happy I lost that post!! My wonderful friends you will hear from me soon. I hope everyone is doing the best they can and not feeling too badly. I love you all, Caryn P.S. Steve's grandchild is so beautiful. You know he's loving every minute of it! He deserves a nice diversion after donating his time and efforts for free for us all. ------------- DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC |
Posted By: Debris
Date Posted: Sep 15 2011 at 2:01am
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Caryn!!! So good to see you posting again. Glad to hear that the chemo is being kinder to you than the others have been. Wishing you strength and healing.
God Bless Deborah. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: sue
Date Posted: Sep 15 2011 at 3:10pm
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Caryn, Thanks for posting. So glad to hear from you. Happy that this chemo is better and gentler. Sending healing thoughts your way. Love and Peace, Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: abcmom
Date Posted: Sep 15 2011 at 6:09pm
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Caryn, great to see your post. Happy you are doing a little better. Hugs, Keri ------------- Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice) Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11 |
Posted By: 123Donna
Date Posted: Sep 16 2011 at 8:04am
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Caryn, So good to hear from you. I know what you mean about losing a post you've typed. My laptop has the cursor pad at the bottom by where my palms rest. I can't tell you how many times I've typed a long message to have me somehow touch it and lose everything. Hugs, Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: LauraT
Date Posted: Sep 16 2011 at 8:11am
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Caryn, Thanks for posting and letting us know that you are doing better. You are amazing! You continue to be in my prayers for strength, peace and healing. Love, Laura ------------- DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva |
Posted By: MsBliss
Date Posted: Sep 16 2011 at 2:23pm
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Just a lap top computer tip for those of us with demon mouse pads that cause us to lose our hard worked posts: you can disable your mouse pad by pressing the FN key at the same time as you press the F8 key. It is temporary and to re-enable, just press the same keys again. I have lost so much work because of this mouse pad issue. ------------- Dx 3/09 stg1 BRCA neg, 1.4cm IDC + 7mm DCIS, ki67 70 -90%, lump w/re-ex for margin, no chemo/no rads due to delays from secondary health issues; SonoCine every 6 months plus CAM interventions |
Posted By: 123Donna
Date Posted: Sep 16 2011 at 2:32pm
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Bliss, Thanks for the tip! I can't tell you how many times the darn mousepad has erased what I wrote after a lengthy reply. Now can you tell me where the FN key is located? Is it the same as the "Ctrl or Control" key? I can't find it on my keyboard, lol. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: MsBliss
Date Posted: Sep 16 2011 at 2:55pm
Hi Donna--the FN key is usually below the shift key....it might be nested on some models of lap tops. Basically it is a function addition key for the F1 through F10 keys at the top of the keyboard. Type in your help menu for mouse pad control and it might tell you where it is nested.....let me know whether this works for you. If I don't disable my touch pad, every time I type the letter Y, my cursor goes on it's own little journey--absolutely maddening  ! I use a regular mouse instead of the touch pad too. Hugs, Bliss ------------- Dx 3/09 stg1 BRCA neg, 1.4cm IDC + 7mm DCIS, ki67 70 -90%, lump w/re-ex for margin, no chemo/no rads due to delays from secondary health issues; SonoCine every 6 months plus CAM interventions |
Posted By: EileenF
Date Posted: Sep 28 2011 at 5:54am
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Shenglu. Stay strong and know that you are in our prayers ------------- 7/09:IDC,stg 3,Grade3, pos lymph;chemo ACT;12/09 lumpect n lymp disect;1/10 bilat masect/tis exp; rad cmpltd 4/10; 11/10 stg 4 lungs chest axil mets & parp trial;3/11 IBC diag; |
Posted By: dmwolf
Date Posted: Sep 28 2011 at 1:10pm
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Shenglu, are you Caryn/Zacar? (I'm assuming so.) We love you! d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: 123Donna
Date Posted: Sep 28 2011 at 3:20pm
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I could be wrong but I don't think Shenglu is Zacar/Caryn. I saw Shenglu on another thread repeat words in a previous post. A bot?
------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: LRM216
Date Posted: Sep 28 2011 at 3:31pm
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Nope, I do not think Shenglu is Caryn - at all. ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: Craig76
Date Posted: Sep 28 2011 at 4:01pm
| We are getting more and more of those lately...sad they would have to do that on this sort of site |
Posted By: Craig76
Date Posted: Sep 28 2011 at 4:01pm
| I think you can tell because of the links at the bottom of his/her post |
Posted By: TNBC_in_NS
Date Posted: Sep 28 2011 at 9:33pm
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Caryn:
Keeping you uplifted to our Lord and knowing He is with you always. You can weather this storm too! Hugs, Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: zacar
Date Posted: Oct 01 2011 at 2:43pm
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No I'm not Shenglue . . . I don't know who this person is but I'm still zacar/caryn Love to you all. ------------- DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC |
Posted By: Debris
Date Posted: Oct 02 2011 at 3:39am
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Hello, Caryn. How are you doing? I hope your treatment is having a positive impact for you?
God Bless Deborah. ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: zacar
Date Posted: Oct 02 2011 at 5:26pm
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Deborah, I replied to your thread and sent you a PM. I am so sorry you are going through this but you are in good hands at Chase. Love, Cayn ------------- DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC |
Posted By: abcmom
Date Posted: Oct 03 2011 at 7:13pm
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Praying for you Karen, and thinking about you. Hugs, Keri ------------- Diag 11/06/09 @ 40; Diag w/ TNBC Stage IIA, Grade 3 12/01/09 Node Neg. Dble MX with Recon 12/09 (twice) Chemo 1/13/10 Chemo done 4/22/10 More recon surg 07/10, PET/CT Scan clear 07/10 NED 07/11 |
Posted By: zacar
Date Posted: Oct 03 2011 at 8:32pm
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Thank you Keri! So much appreciated. It's been a bad day. I am also worried for Deborah. Love, Caryn ------------- DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC |
Posted By: MsBliss
Date Posted: Oct 04 2011 at 3:30am
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Dear Caryn, Are you taking any supplements while on Abraxane? Depending on the chemo regimen, certain supplements can make chemo work more efficiently. For example, combining curcumin and pathenolide (feverfew) has been shown to prevent brain mets, both micro and macro. Combining ECGC (green tea) and curcumin had a synergistic effect on tumor suppression; it was anti angiogenic on multiple pathways. There are many helpful suggestions on the Edge CAM...his suggestions are predicated on a very high standard of proof. Of course, no resveratrol while on taxol. Most importantly, I have copied a paragraph from the Edge CAM regarding IBC. I think he has several targeted suggestions for IBC, and they are worth considering. Here is one of them: Reishi (Ganoderma lucidum) Mushroom Extract [for IBC only]
Always thinking of you. Hugs, Bliss ------------- Dx 3/09 stg1 BRCA neg, 1.4cm IDC + 7mm DCIS, ki67 70 -90%, lump w/re-ex for margin, no chemo/no rads due to delays from secondary health issues; SonoCine every 6 months plus CAM interventions |
Posted By: Debris
Date Posted: Oct 04 2011 at 8:47am
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Caryn, I've sent you a PM.
MsBliss, thank you for posting this information! Most enlightening. Take care, Deborah ------------- 4/12 Xeloda/Tykerb 2 Carboplatin 12/11 Dx IA 9 Gemzar/Taxotere Dx IBC:FEC 5 Ixempra/Sprycel 2 25 Rad 10/10 BRCA1-/2suv 9 NED 6 Stg4 Grd3 many nodes no Sx/Rad. Taxol/Avastin 06/08 Dx DCIS 0/SN Rads/AIs |
Posted By: Grateful for today
Date Posted: Jan 08 2012 at 12:17pm
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Caryn,
Just saw your post on: forum topic " I B C ". Am so sorry to hear the hospice news. Much love and prayers for you for peaceful and loving time. Grateful for today..............Judy Copy of Caryn's post from "I B C" from today:
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zacar wrote:Posted By: HappyGoLucky
Date Posted: Jan 08 2012 at 12:35pm
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Caryn I just read the post, its crazy. Please know that we are all praying that you come out of this better and healthier. I had never heard of that before. Peace and Love to you Karen ------------- 2/2009 7cm tumor, sent nod. pos. Lumpectomy 3/19/09,a/c dose dense+avastin clinical trial, taxol avastin stopped with pneumonia. 33 Rads 01/2010 ~ reccur 2011 supraclav.and internal mammary nodes. rad |
Posted By: sue
Date Posted: Jan 09 2012 at 10:09am
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Caryn, So sorry to hear about the radiation poisoning. Sending hopeful wishes your way for days of serenity, love and peace. Always keeping you in my prayers. Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: dmwolf
Date Posted: Jan 09 2012 at 5:32pm
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Caryn, I didn't realize you had decided to enter hospice. This makes me sad, but I can't help but feel hopeful as well. Based on how upbeat you sound in your FB posts, I'm thinking this might be a great way to have a lot of quality time. I'm hoping the brain mets will stabilize on their own and you will have years. People do get kicked off of hospice, and I won't be surprised if it happens to you. I love you, and so treasure getting to meet face to face and spend some time together over the winter break. -Denise ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: Grateful for today
Date Posted: Jan 10 2012 at 8:10pm
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Caryn,
Sending love and caring thoughts to you today. Grateful for today...........Judy (Caryn, hopefully you are seeing/someone reading the posts to you on both this forum topic and I B C.) |
Posted By: LRM216
Date Posted: Jan 14 2012 at 12:15pm
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Caryn,
Sending you love and strength, you are in my thoughts, always.
Love and peace,
Linda ------------- Linda - diagnosed at age 62 Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg 4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33 |
Posted By: zacar
Date Posted: Jan 16 2012 at 6:44pm
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hi everyone, thank you all for the kind words. i am feeling much more lucid, etc. i decided to go off hospice and try a low dose of zeloda. i was on a very powerful steroid that was in my hydration and i went off it cold turkey. little did i know . . .i was supposed to take 2 weeks and come off slowly. that mixed with radiation was not good. so i'll be back in game so wish me luck! xoxo C. ------------- DX 11/07 age 49, Stg 1, Gr 3, 1.1 cm, lump, 0/1 nodes, BRCA-,TC x 4, 37 rads, 2/08, 1/09,recur to axilla nodes 5/10 recur in mediastinal node,stage iv, 09/10 carbo/gem/parp, 2/11 NED, 3/11 stg iv IBC |
Posted By: 123Donna
Date Posted: Jan 16 2012 at 6:51pm
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Caryn, We are in your corner rooting you on. I hope you know all the love and support you have here. We love you! Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: suec
Date Posted: Jan 17 2012 at 9:50pm
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so glad to read you are back in the game! ------------- tnbc 3b: partial mas 5/06; 6 rounds FEC; 36 rad; 05/09-mets to bone; xeloda, avastin, zometa; gemzar & avastin; rads to hips; 8 mo on methotrexate+5fu; 5/11 mets to liver/lung; halevan fails;carb&Abrx |
Posted By: janet c.
Date Posted: Jan 17 2012 at 10:13pm
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Caryn,
I wish you luck with the new treatment. I just want you to know that I continue to pray for you even if you are not up to posting. Take care of yourself. All the best, Janet ------------- dx 12/08 @47yrs.old TNBC stage 2a grade 3, 2.1cm. partial mastectomy sentinal node negative BRACA negative Cytocan/Taxatere x4 radiation 36 or 38rounds |
Posted By: denise07
Date Posted: Jan 17 2012 at 10:23pm
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Caryn,
So glad to hear from you wishing you the best of luck with your treatment. I will continue praying for you. ------------- DX Idc 10/07,st2,gr3,2/6 lymphnodes |
Posted By: kirby
Date Posted: Jan 18 2012 at 1:16am
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Caryn, glad you got your game back. ------------- kirby dx Feb. 2001. Age 44 Lumpectomy 2cm. no nodes stage 1 grade 3 4 rnds AC, 35 rads |
Posted By: tninalabama
Date Posted: Jan 18 2012 at 10:39am
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Good luck to you, Caryn. Pam ------------- Dx 11/07,stII bgr3,1/8+, metaplastic, recurrence 11/09, lymph dis 12/13+ 07/10, rad,x28 9/10,02/11 mets BRCA neg 5-FMC since 03/12 PET 04/12,no progression Bone scan clear 06/12 |
Posted By: Barbi
Date Posted: Jan 19 2012 at 7:45am
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Good luck on the new drug, Caryn. Hope it keeps your fighting spirit going and feeling better soon! ------------- 10/10,age49,St3,gr3,5+cm,1 node,BRCA-,T+Cisplatin+Rad0001(or placebo),Lump 1+cm,AND 0/15,AC,rads finished 7/6/11.Mets bone, liver,mamm node 8/11,abrax/tigatuzamab failed.Started bicalutamide 11/16/11. |
Posted By: btstark2003
Date Posted: Jan 24 2012 at 7:18am
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Caryn, Hope you are feeling better and that the zeloda is killing the monster. You are an inspiration and I know your positive spirit will triumph! You are in my prayers. Beth ------------- 2008 Stg1 TNBC, LX, FEC+T, rads 2010 2.5cm tumor BRCA-, BMX,CMF 2011 LN mets, Gem/Carbo, surgery, rads 2012 lung mets, PI3Ki/taxo 2013 anti-PD-1 2014/15 Xeloda, IMMU-132, eribulin Aug 2015 Keytruda |