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Gemzar Carbo treatment

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Topic: Gemzar Carbo treatment
Posted By: Craig76
Subject: Gemzar Carbo treatment
Date Posted: Mar 12 2011 at 4:40pm
Quick question.   Has anybody had the Gemzar/Carbo chemo along with radiation as a treatment?  Oncologist said this was not an option because the radiation does not work well with one or both of the chemo products.  But she said it in a manner that is making me second guess her.
Thanks again for your help



Replies:
Posted By: 123Donna
Date Posted: Mar 12 2011 at 5:00pm
Craig,

I'm currently getting the Gemzar/Carbo/Iniparib treatment.  Yesterday I met with the RO to discuss radiation treatment and when it would begin.  She said I'll need to wait 3 weeks after chemo is done before we can begin radiation.  She mentioned I needed to get the Gemzar out of my system as it didn't work well with radiation.  I didn't question her comment because I always knew I'd do chemo first then radiation as tx.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Craig76
Date Posted: Mar 12 2011 at 5:11pm
Okay that is what I needed.  Thanks Donna


Posted By: Craig76
Date Posted: Mar 13 2011 at 12:37am
Hi Donna

Have you had a lot of side effects from the Gemzar/Carbo treatment?


Posted By: 123Donna
Date Posted: Mar 13 2011 at 11:29am
Craig,

My biggest complaint is fatigue.  My worst are days 3 and 4 following treatment where I'm really tired.  Today is my day 5 and I'm feeling better.  I'm coming up to my off week and I know I'll feel better each day.  My treatment has been 2 weeks on, 1 week off of chemo.  I've been able to work while getting treatment, but work from home the day following chemo.  Other members have had other side effects that I didn't experience.  They'll watch the WBC, RBC and Platelets closely.  While my wbc slide, I've been able to get treatment and so far they bounce back close to normal before the next treatment.

Donna




-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: dmwolf
Date Posted: Mar 13 2011 at 1:30pm
Donna, how did the appointment with the radiation oncologist go?  Have you decided what fields to irradiate?

Have a great day, hon.

d


-------------
DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: Kathy-TNBC-SLO
Date Posted: Mar 17 2011 at 12:38am
I just finished with gem/carb with the Parp BSI 201 I was on gem/carb to reduce my liver enzymes so I could get the trial drug. From Sept to Dec I had a decrease of 20-25% area in my liver. But my recent CT Scan reflected new lesions on the left lobe of my liver. So I am off the Gem/Carb for now. The drugs did a real number on my platelets, I must of had 6 platelet transfusions over 5 months. Other side effects minimal , I had radiation previously, this treatment for reoccurrence. Good Luck

-------------
TNBC 08/2009 Chemo TAC, Mod Rad Mast,3 lymph nodes macro cells, radiation, 06/2010 clear, 08/2010 recurrence to liver. Chemo Gem-Carb, Parp trial 11/2010 stopped 2/25/2011 Mets spread liver


Posted By: 123Donna
Date Posted: Mar 17 2011 at 6:42am
Kathy,

So sorry to hear about the latest scan.  What chemo are they recommending now for you?

Hugs,

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: trip2
Date Posted: Mar 17 2011 at 11:06am
Kathy I too am sorry to read you had to go off the Gem/Carb for now.  I would be interested in hearing what they plan to do next.  All my best..

-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: dd
Date Posted: Mar 17 2011 at 5:36pm
craig:  I did radiation first because the 1st time I had caner and chemotherapy I had alot of trouble with the chemo.  So I decided to have the radiation 1st and then waited about 4 wks and started the gem/carbo.  I finished this chemo on 2-22.  Feel fine for the most part.  I had trouble with my shoulder and arm lymphedema more than anything.  I didn't work during the chemo because of the low counts and I work with children (Germs everywhere + flu season) .... Good luck with your treatment and stay positive.

-------------
Tnbc R Mast 2/21 nodes 3-08, act with avaston 4-08, ax node dx 5-10 radiation 7-10 gemzar/carboplatin 10-10


Posted By: Craig76
Date Posted: Mar 19 2011 at 10:07am
Well thanks everyone for your information.  She had her first dose of Gem/Carbo this past Tuesday.  Her biggest complaint was a stomach ache the third and fourth day.  She has also complained about needing to throw up but can't so there are some side effects to this stuff.  She does not have the metal taste in her mouth as she with the first round of chemo that she had.  She is on the same schedule as you Donna.  Gem/Carbo one week, Gem the following week, and nothing the third week.  She is repeating it for three cycles and hopefully this will put her cancer into some form of remission.  If it does she might be able to get radiation for that side of her body and for her lung and bone spots.  Radiation worked extremelly well last time so that is what we are hoping for.  Oh and also went for a second opinion.  It was like night and day so I would suggest that to anybody.  The first onc was so negative, did not even want to listen to any treatment options, and was not sure if she would even make it a year.  The second onc told her that her cancer was concerning but was not quite dangerous yet.  She was so nice, offered a ton of treatment possibilities, and gave us so much hope.  So anybody that is thinking about a second opinion because of how your onc treated, do it.  It is so worth it.  


Posted By: 123Donna
Date Posted: Mar 19 2011 at 10:20am
Craig,

Thanks for sharing.  I agree with you about second (and even third) opinions.  I love my onc and think she's the best.  However, I think getting second opinions never hurt and will only help us feel better about our treatment decisions.  I also don't hold highly any doctor that treats us poorly.  A good bedside manner should be part of what we expect in a good doctor.  If one treats us poorly, then it's time to move on and find another one. 

What type of pre-chemo meds is your friend getting?  Prior to Gemzar/Carbo, I get Aloxi, Decadron and Emend.  I've never had stomach or nausea issues from the treatment.  I know everyone is different and some of us experience different side effects.  I hope your friend does well with this tx and not too many side effects.  My onc also has me taking Pepcid AC in the morning and evening. 

Is your friend experiencing any fatigue yet? 

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Craig76
Date Posted: Mar 19 2011 at 2:54pm

Donna~

Honestly I do not remember her getting any pre meds specific to this chemo treatment.  I could be wrong though.  She had some drugs left from her first chemo treatment and I remember the doctor telling her some of those would work for this treatment but I can not remember what they were called.  I will ask though.  I think one of the medications had steroids in it but again I could be wrong.  She did have a medication pumped into her that will add strength to her bones.  She has a spot on her T-12 bone. Can't remember the name of the drug though. She has experienced some fatigue but not a whole lot...not near as much as last time she was on chemo.  The stomach pains are gone today as I expected they would be.  From what I have read the third and forth days can be the rough period for this treatment in most cases.  So next Tuesday she goes in for just Gemzar and she will be off for a week.  Hoping this chemo works for her.  I would love to report that she is NED someday soon.


Posted By: 123Donna
Date Posted: Mar 19 2011 at 3:10pm
Craig,

Hoping for NED too!  I get the premeds in an IV prior to the chemo.  The Emend they now give in IV only and it's supposed to be strong enough to last 5 days in your system.  They used to give it in the IV (smaller dose) then I'd take an Emend pill on days 2 and 3 post chemo.  Since so many women had problems with their insurance covering this expensive pill, they are now giving a bigger IV dose.  The only thing I take on days 2 and 3 are the Decadron pills, 4 mg.

So glad the fatigue isn't too bad.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Kathy-TNBC-SLO
Date Posted: Mar 28 2011 at 1:41am
SIZE=2]My new treatment is Cytoxan, Methotrexate & 5 FU Onc is holding off on the Havalen-last resort. The cytoxan was to be 3 pills a day for two weeks orally. My esophagus did not cooperate so I will get the cytoxan by IV next treatment. I have had unbearable back pain before I started this new treatment, recent CT scan did not reflect anything other than the cancer lesions on the left lobe of my liver. I am having a MRI on my spine this week. I currently use two low dose fentanyl patches which alleviates the pain. Anyone have experience with back pain?

-------------
TNBC 08/2009 Chemo TAC, Mod Rad Mast,3 lymph nodes macro cells, radiation, 06/2010 clear, 08/2010 recurrence to liver. Chemo Gem-Carb, Parp trial 11/2010 stopped 2/25/2011 Mets spread liver


Posted By: trip2
Date Posted: Mar 28 2011 at 9:07am
Kathy I am so sorry you are having so much pain.  I hope the mri shows nothing wrong, please let us know and I hope you can find some relief, would a heat pad help?

-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: Martha
Date Posted: Mar 29 2011 at 3:08pm
Hello everyone. I'm a new member to this website. I am a TNBC patient. I just finished my 2nd treatment cycle of Gem/Carbo + iniparib in a clinical trial (expanded access). This is my third chemo regimen since my diagnosis in Oct 2008. I will get my first scan during my rest week in April, following cycle 3. I have had extreme fatigue and nausea with this treatment. My pre meds only include decadron, aloxie (both IV) and oral tylenol. I get both gem and carbo on days 1 & 8, and iniparib on days 1,4,8 & 11. My blood counts have really bottomed out.  First my ANC - which caused me to miss a treatment. And then, my plts....luckily I didn't miss any treatments for cycle 2. I now do neupogen shots on days 3-5 and 9-11 to help with ANC. I appreciate everyone's questions and comments. It really helps to know I'm not the only one with this horrible disease, and fighting the fight. I look forward to reading and learning about everyone's journey as I continue to fight my fight.
Martha


Posted By: 123Donna
Date Posted: Mar 29 2011 at 4:34pm
Martha,

I'm in the same trial as you.  My premeds include Decadron, Aloxi and Emend.  I haven't had any nausea, but I know what you mean about the fatigue.  I also had a scan after the 3rd cycle.  I'm halfway through my 5th cycle (day 8) and couldn't get chemo today due to low wbc and neutrophils and very high liver enzymes.  I'll finish out this week with the Iniparib only and then stop the chemo and trial.  I had a clear scan in February so we were doing 2 extra cycles.  Today was the first day I got a neupogen shot. 

Best to you and I hope your scan shows NED.  Please keep us posted.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: trip2
Date Posted: Mar 29 2011 at 8:58pm
Welcome Martha, no you certainly are not alone.  We all support each other in our various situations the best we can.  Thank you for sharing your story, we all learn from each other.
I certainly hope this improve for you soon, sounds like you are having a hard time, best wishes and keep us updated on your progress.  Hope that scan has good results for you, let us know.


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: LauraT
Date Posted: Mar 30 2011 at 8:35am
Martha,
 
Glad you found us here.  I have found everyone on this site to be loving, supportive and encouraging.  Hope your scan shows the chemo is rendering the cancer helpless.  If you are interested, we have a Spiritual Support thread (under Support Groups) with a daily devotional and the prayers and love of some wonderful people.  Would love for you to join us.  You'll be in my prayers and please let us know how you are doing.
 
Love,
Laura


-------------
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva


Posted By: Martha
Date Posted: Mar 30 2011 at 5:00pm
Hi Kathy. I have lower back pain. It started with my first chemo regimen (TAC) in 2008, and it continues now. It's not everyday, but usually once or twice a week. They've MRI'd, CT'd, etc. and say I have arthritis.....so started me on celebrex. I also have vicodin for break thru pain. I don't understand how it can be arthritis - and only a coincidence that the pain started with my first chemo regimen. I know I'm not a doctor, but I think the chemo is causing the pain. I'm 53, and spent 20 years in the Army. I retired in 1999....so I consider myself to be in pretty good shape. I try to walk for 30 minutes everyday, but some days my back pain prevents me from doing any activity. I keep telling my oncologist, but he doesn't think there is any connection. What does your doctor say about your back pain? Hope you feel better soon.
Warm Regards,
Martha


Posted By: Martha
Date Posted: Mar 30 2011 at 5:04pm
Thanks to all for your well wishes. I will keep you posted when I get scan results in April. This rest week started off a bit rough, but today I feel pretty good (Wednesday). This is so wonderful. I am so thankful to have discovered this site.
I look forward to hearing from you all.
Warm Hugs,
Martha


Posted By: rigatonismom
Date Posted: Mar 30 2011 at 8:53pm
Hey Martha,
I read your post about the back pain.  I had the same thing.  I know I have arthritis in my back, but it is much worse now than before chemo.  I asked my onc and she said it was rebound from the steroids.  Of course, she blames almost everything I complain about on steroids.  She said that if you have something going on, the steroids first make it feel better and then when you crash from them, your usual ache, like the back pain, is worse than it orginially was.  Her words, "it should get better with time".
Nita


-------------
DX 09/10 TNBC Stage3c, grade3, Tumor 2.7cm, chemo started 9/29/10, AC x4, Taxol x12, lumpectomy 4/11/11-tumor .6cm, 3+/22 nodes, radiation x 30 finished 6/30/11.Clinical Trial Cisplatin,PARP 8/23/11


Posted By: Martha
Date Posted: Mar 30 2011 at 9:17pm
Thanks Nita.  It's good to know it's not just my imagination. Has anyone been given any of the bone strengthening meds like actonel, boniva, etc....to help prevent bone mets? I've heard there may be a clinical trial to see if taking these really help prevent bone mets. I haven't found it yet on clinical trials.gov.....but wondered if anyone was already taking these types of meds, or if anyone has heard of the trial.  Hope everyone has had a good Wednesday.
Warm Hugs,
Martha


Posted By: 123Donna
Date Posted: Mar 30 2011 at 10:18pm
Martha,

After I finished treatment in 09, I entered a clinical trial for bisphosponates.  I had to leave the trial when I was dx with a recurrence in October.  There are several women on this forum that are participating in the trial or taking them outside of the trial, eg. Zometa infusions.  Here's the link to the thread:

http://forum.tnbcfoundation.org/bisphosphonates-clinical-trial-any-info_topic4591_page1.html?KW=bisphosphonate - http://forum.tnbcfoundation.org/bisphosphonates-clinical-trial-any-info_topic4591_page1.html?KW=bisphosphonate

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: 123Donna
Date Posted: Mar 31 2011 at 12:56am
Martha,

Here are a couple more threads to read.  The first one is a new drug called Xgeva (denosumab):

http://forum.tnbcfoundation.org/xgeva-new-denosumab-drug_topic7513.html?KW=Xgeva - http://forum.tnbcfoundation.org/xgeva-new-denosumab-drug_topic7513.html?KW=Xgeva

The other thread is on Zometa:

http://forum.tnbcfoundation.org/zometa-news-important_topic7575.html?KW=prolia - http://forum.tnbcfoundation.org/zometa-news-important_topic7575.html?KW=prolia








-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Martha
Date Posted: Mar 31 2011 at 3:48pm
Thanks for the additional information Donna. Very helpful.  I meet with my onc on 12 April. I will ask him about it and see what he thinks. Are you still on the gem/carb + iniparib trial? I start cycle 3 on Monday, 4 April. Hope you continue to be NED! You Go Girl!
Warm Hugs,
Martha


Posted By: 123Donna
Date Posted: Mar 31 2011 at 3:54pm
Martha,

This is my last week of Cycle 5.  Actually I didn't get chemo on Tuesday because my WBC and ANC were too low and my liver enzymes too high.  I am getting the Iniparib and Friday will be my last day!  Hoping to be NED forever!  Then onto radiation.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: 123Donna
Date Posted: Mar 31 2011 at 3:56pm
Martha,

Wishing you success with this treatment too.  Please keep us posted on how you're doing.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Martha
Date Posted: Mar 31 2011 at 4:24pm
Thanks Donna. The primary investigator of the trial I'm on (expanded access) said I should keep receiving the chemo and iniparib for as long as my body will tolerate it, so no specified number of treatment cycles. Scans are to be done after every 3 cycles...which is mid April for me (first scan since starting the trial). My Feb scan showed 1 tumor in my right pectoral muscle and 3 nodes - two in my chest area and one near my liver. Lungs and liver are still "clear". This is my 3rd recurrence.....all previously in the original site, right breast. I have lymphodema pretty bad in my right arm now. My original surgery was back in Nov 08 - complete right mastectomy with right axially dissection (1 / 10 nodes positive). I am just praying to be able to tolerate the chemo long enough to get me NED longer than 7 months. Each prior chemo has only given me 7 months of NED. I had radiation following the first chemo, but the first recurrence was on the mastectomy suture line. They did radiate the suture line - but only 3 days. The other targeted areas were my chest wall and drainage tube scars. Even with radiation - the disease came back exactly 7 months from when I stopped chemo. The first recurrence was surgically removed - to inlcude a skin graft from my thigh....so I have no breast tissue on my right side....just skin from my thigh. I did 5 cycles of xeloda + (I can't remember the name). Again, 7months NED...  And now, this damn disease came back in my right pectoral muscle (what's left of it). It seems the radiation did nothing to prevent recurrence. Sorry for rambling....I guess today I needed to vent! Thanks for letting me do this!
Warm Hugs,
Martha


Posted By: LauraT
Date Posted: Mar 31 2011 at 5:50pm

Martha - feel free to vent all that you need to!  This is the perfect place - I believe everyone here understands.  Seems like this disease is relentless and the fight just takes it out of us sometimes and/or makes us hoppin' mad!  Hope this chemo gets you to NED quickly and you stay there way for a very long time.

Fondly,
Laura


-------------
DX 10/09 @44, Stage I IDC tnbc, DCIS other side, Neoadjuvant TCx4, Bilateral Mastectomy w/Recon 1/10, 1.2cm 0/7 Nodes, 5/11 Mets to Lungs/Lymph Nodes, Avastin/Taxol, 10/11 Bone Mets, Xgeva


Posted By: 123Donna
Date Posted: Mar 31 2011 at 5:56pm
Martha,

This is the right place to vent because we get it.  This disease is hideous and seems to outsmart the best docs and chemo.  I think you'll find good luck with this chemo combo.  The biggest side effect I had was fatigue and low WBC/ANC. 

Hugs,

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Martha
Date Posted: Mar 31 2011 at 11:42pm
Thanks Laura and Donna.  I really appreciate your support.  Donna, did you say you are still working while on this chemo regimen?  I don't know how you do that......the fatigue is so bad, I spend several days sleeping all day. Only getting up to eat a bite so I can take my other meds. It would be great to meet face to face someday. I have chosen not to have reconstruction....and so glad I made that decision. I would not have found the recurrence nodule if I had the reconstruction. My husband says he doesn't feel I need to have reconstruction. He is so loving and supportive. The problem is.....I have a constant reminder, everyday when I look in a mirror. That makes it tough some days. With the skin graft, I don't know if reconstruction is even possible now. I am suppose to meet with the plastic surgeon sometime over the next 6 months. I'm not convinced I even want to have reconstruction. With this carbo/gem chemo, I haven't lost my hair yet. That's one really positive so far. I missed my hair alot more than I miss my boobs. That's for sure. I've been able to go without hats and/or scarfs since Christmas, 2010. I started this regimen 21 Feb 11. It's nice to still have hair. Donna, after 5 treatments, did you lose your hair? I'll start cycle 3 next Monday. It's good to "talk" with you all. Thanks for all your support and encouragement.
Warm Hugs,
Martha
I have a silly question. How do you all show your "vital stats" at the bottom of your messages? Is that considered your signature on your profile?


Posted By: 123Donna
Date Posted: Apr 01 2011 at 12:38am
Martha,

I'm just completing 5 cycles and I worked through treatment.  It wasn't easy.  If I had to continue treatment I don't think I could continue working at the same level as I did.  I'd either have to work from home or take some time off.  What type of scan are you getting?  I had a breast/chest wall MRI.

Where was your recurrence nodule?  Mine was in an internal mammary node and I couldn't feel it as it was under the rib cage.  I had reconstruction and I'm OK with it.  I think I'd be perfectly fine if I didn't have reconstruction either.  If someone told me that the implants should be removed to better my chances, I'd do it in a minute. 

I didn't lose my hair with this chemo.  I noticed a little more hair loss than usual, but my hair was pretty thick before so it's not too obvious.  I guess this is one good positive. 

To get your stats so that it show up at the bottom of your posts like mine, just go to the upper left side of the screen and click on Member Control Panel, then Edit Profile.  Scroll down until you see Signature.  Type your information in the box as you'd want it to appear in your posts, scroll down and save/update your changes.

To get your picture in your Avatar, go to Member Control Panel, then Edit Profile.  Scroll down until you see Select Avatar.  You'll see a link to Upload Avatar.  Click on it and find the picture you want to use that you've stored on your computer.

The TNBCF website limits the size of the avatar.  I took a digital photo I had stored on my computer and used the website below to resize it to meet the correct dimensions.  Once I did that, I saved the new image under a different name and then I was able to upload it.

I used this link to resize the picture and create an Avatar:

http://www.shrinkpictures.com/create-avatar/ - http://www.shrinkpictures.com/create-avatar/

Let me know if you have any problems with your signature or creating an avatar.

Donna





-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: Martha
Date Posted: Apr 01 2011 at 10:38am
Donna - I'm having a PET scan - from "eyes to thighs". I've been having PET scans done, so they want the same to compare for the clinical trial. This recurrence was not able to be felt, but the previous 2 recurrences I discovered myself. The first was a hard knot like on the mastectomy suture line. The second was 3 months later, just below the skin graft. Again, a hard knot like - but this one was very small. When they biopsied, it removed almost all of it. It was only 3 months following my skin graft surgery, so instead of more surgery, they started me on the chemo to fight it systemically. I remembered the name of the other agent - Ixempra + Xeloda was my second chemo regimen. I hate when I can't remember things. I guess I have "chemo brain" sometimes. If you don't mind me asking, what kind of work do you do?
Thanks so much Donna.Smile
Warm Hugs,
Martha


Posted By: 123Donna
Date Posted: Apr 01 2011 at 12:23pm
Martha,

I don't mind you asking.  I'm a co-owner of a small business.  We have 6 people working for us - all women.  For the most part, I sit at a desk and work on the computer.

My onc told me that I'll probably get another PET scan this summer after I finish radiation.  The PET scan gave us the first indication of the recurrence.  We monitored the chemo effectiveness through a breast MRI.  Yes, chemo brain is real!  I want to blame it on getting older, but I think chemo has a bigger effect on us.

Donna


-------------
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15



Posted By: trip2
Date Posted: Apr 02 2011 at 12:26am
Hi Martha, my very best wishes that your treatments go smoothly as possible.
 
I just received my latest Spring issue of Cure Today Magazine, it is free and they have a article on Chemo Brain,
http://www.curetoday.com/index.cfm/fuseaction/magazine.show/id/15 - http://www.curetoday.com/index.cfm/fuseaction/magazine.show/id/15
 
 


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Stage 2 2003
Stage 1 2007
BRCA 1+


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Date Posted: Apr 13 2012 at 11:39pm
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