I am having symptoms of it now after undergoing 2nd treatment which includes cyclophosphamide and Neulasta.  

Just finished course of antibiotic for various vague bladder symptoms, earache, recurrence of tiny breast hole discharge, and low-grade temp so really don't think it is UTI.  

Symptoms of cystitis started after second chemo treatment, so I am guessing in my case it may be because of the cyclophosphamide.  

I would say it is worth mentioning to doctor if not already mentioned.  

Wishing you the best,

Sue

Lee in Denver

Sorry it took so long to get back to you all - I was in the midst of my A/C therapy in 2009 when I began having symptoms - urgency, frequency, extreme bladder and urethral burning like a major UTI but without infection. Within a year of chemo I had chronic - every day - all day long burning and bladder pain. I was diagnosed with Interstitial Cystitis but believe that it may have been Hemorrhagic

Cystitis instead that my oncologist did not recognize because Cytoxan can cause this but according to the drug literature only at higher doses. Of course, we all know there are exceptions to everything. I probably drank a gallon or two of water daily living here in South Florida so I should have been pretty flushed out although in going to the Urologist for the daily medication I now have to take for bladder damage (Elmiron) he has found that I retain some urine. At this time I am almost 55 and was 52 and had 2 large babies so I do also have some prolapses.  I wondered at the time why I only peed red the first time i got out of the chair after chemo sessions and not over a day or two as was expected. It's all water under the bridge at this point but wouldn't want anyone else to go through this kind of pain if it could be prevented just because the drug companies only note "certain problems."