WHAT TYPE OF CHEMO?
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Topic: WHAT TYPE OF CHEMO?
Posted By: denise07
Subject: WHAT TYPE OF CHEMO?
Date Posted: Oct 16 2010 at 12:22pm
| HI I AM JUST WONDERING WHAT TYPE OF CHEMO EVERYONE HAD? I HAD ADRIAMICIAN, CYTOXIN,TAXATERE EVERY THREE WEEKS. JUST WONDERING IF ANY ONE HAD SIMILAR TREATMENT? |
Replies:
Posted By: snugltz
Date Posted: Oct 16 2010 at 12:25pm
| Those r the three recommened by the tnbc chemo doc at stanford |
Posted By: denise07
Date Posted: Oct 16 2010 at 1:07pm
| That makes me feel better. |
Posted By: denise07
Date Posted: Oct 16 2010 at 1:36pm
| Forgot to mention I had 6 treatments. |
Posted By: tninalabama
Date Posted: Oct 16 2010 at 2:11pm
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I had 4 every two weeks of epirubicin/cytoxan, then 4 every two weeks of taxotere. That was the first time. On my recurrence I had 6 cycles ( 2 weeks on, 1 off) of Xeloda, which gave me a slight hand/foot syndrome and not much help with the mets. ------------- Dx 11/07,stII bgr3,1/8+, metaplastic, recurrence 11/09, lymph dis 12/13+ 07/10, rad,x28 9/10,02/11 mets BRCA neg 5-FMC since 03/12 PET 04/12,no progression Bone scan clear 06/12 |
Posted By: unklez
Date Posted: Oct 16 2010 at 2:33pm
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Dear Denise, See the below sig for details of my wife's chemo. ------------- Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads. |
Posted By: 123Donna
Date Posted: Oct 16 2010 at 2:38pm
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Denise,
What was the size of you tumor? Lymph nodes? I had Taxotere/Cytoxin every 3 weeks X 4. ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: denise07
Date Posted: Oct 16 2010 at 4:04pm
| tumor was 2cm and there was 2 lymph nodes involved. |
Posted By: Billy
Date Posted: Oct 16 2010 at 8:09pm
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My wife had four rounds (every three weeks) of taxotere and avastin, then four rounds of adriamycin and cytoxin, with avastin added to first two of those four rounds. Avastin was part of B-40 clinical trial. ------------- DH/Debbi, dx tnbc 9/09; age 59; stage IIIA; grade 3; two tum:1.9 cm &.6 cm; lym nod; B-40 trial-4x taxotere&avastin; 2x A/C&av; 2x A/C; bi mastect 4/15/10; 1-2mm cancer in main tumor & 4 +lymph nodes; |
Posted By: Lillie
Date Posted: Oct 17 2010 at 3:32pm
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Hi Denise07
I had 4 cycles of ADRIAMICIAN and CYTOXIN every other week and then 4 cycle of TAXOL and GEMZAR every other week. The taxol has many similarities to taxatere. Every other week is referred to as Dose Dense. I also had gemzar as part of a clinical trial. It sounds like you had the main three TAC. God Bless, Lillia ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: snugltz
Date Posted: Oct 17 2010 at 5:42pm
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Would appear you have pretty much beaten this cancer Lillie. Wonderful!! Stanford tnbc doc said first two to three years are the most dangerous. You are really close to five. Just a few more months. I know it doesnt end on a certain date, but you have lots of hope. Fantastic. |
Posted By: Lillie
Date Posted: Oct 17 2010 at 9:56pm
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Dear Snugltz,
I wish I could convince my mind and body that I have beaten the cancer. I admit that my anxiety level is much less than the first three years, but I know that it stays in your mind way beyond that 5 year time factor. My last treatment was November 15th 2006 which makes me 4 years out from end of treatment. Of course if you start from diagnoses it's only months and not another whole year. I still do not take anything for granted and try to live each day to it's fullest. God Bless, Lillie ------------- Dx 6/06 age 65,IDC-TNBC Stage IIb,Gr3,2cm,BRCA- 6/06 L/Mast/w/SNB,1of3 Nodes+ 6/06 Axl. 9 nodes- 8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4 No Rads. No RECON - 11/2018-12 yrs NED |
Posted By: denise07
Date Posted: Oct 18 2010 at 10:10pm
| IT is interesting some of you had similar treatments and others had almost the same as me. I guess they treat every cancer different. I hope thats it for all of us. |
Posted By: 123Donna
Date Posted: Oct 18 2010 at 10:14pm
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Denise, I agree with what Kirby has said before, it seems like a crap shoot. ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: denise07
Date Posted: Oct 18 2010 at 10:18pm
| I agree. |
Posted By: CiGi
Date Posted: Oct 22 2010 at 2:28pm
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Denise - I just finished the same treatment - TAC every three weeks for 6 treatments. ------------- Age 40, 4/28/10 lumpectomy (3 cm) TNBC Grade 3 Stage 2 0/3 nodes, TAC 6x 3 week cycles start 6/15 finish 9/27, 33 rounds rads 11/22. BRCA1 & 2 neg. Lymphedema rt hand 8/14. Joint pain Dec 2010. |
Posted By: denise07
Date Posted: Oct 22 2010 at 3:33pm
| GREAT JOB! |
Posted By: Sugar77
Date Posted: Oct 23 2010 at 11:19am
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I had Taxotere and Cytoxan every three weeks for four treatment. ------------- DX IDC TNBC Oct. 27, 2009, age at diagnosis 45, Stage 1, Grade 3, <1 cm, 0/2 nodes, lumpectomy, Taxotere/CytoxanX4, finished Feb. 8, 2010, radiation completed Apr. 21, 2010. |
Posted By: guygirl
Date Posted: Oct 24 2010 at 8:39am
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I had 4 cycles of ADRIAMICIAN and CYTOXIN every other week and will have 4 cycles of TAXOL. I have had 6 treatments and have #7 tomorrow. Hope to have last treatment on Nov 8. ------------- Age 50 DX: 6/3/10 IDC, Stg 1A Grd 3 1.9cm, KI-67 85%, lump. w/SNB, clear margins, lymph node 0/1, 4 cycles A/C (dose dense) every 2 wks, 4 cycles Taxol(dose dense) every 2 wks, 33 rads, BRCA 1/2 neg. |
Posted By: lstorey
Date Posted: Oct 25 2010 at 4:57pm
I had 6 rounds of these same drugs over a 4 day period. Anti-nausea drug and then Cytoxin, Adriamician hooked up to a pump over 3 days and thenthe Taxatere. ------------- dx @ 36 YO 9/1/04 T2N0 - 6 rounds chemo (TAC) and 7 weeks of radiation BRCA negative |
denise07 wrote:Posted By: denise07
Date Posted: Oct 27 2010 at 8:29pm
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Istorey, Your treatment seems a little different,You had 6 rounds of treatment over a four day period? Usually the treatment is weeks apart.Noticed you were diagnosed in 04 great job. |
Posted By: msjag
Date Posted: Oct 30 2010 at 2:40pm
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hi I am new here, and so grateful for this site. I will be having chemo in a couple of weeks. I had a lumpectomy one week ago for 1 cm grade 3 , 0/2 negative nodes. I am 51, no family history. Did all of you have chemo through IV? some pills? and when you say rounds do you mean, one week you had it, one you didn't? Also, since you all seem to basically have the same chemo drugs, did you feel "ok" after a few days, or on your weeks "off?" I will have appt with oncologist, to ask/verify treatment, I just want to be clear on what this all means.
Thanks so much for your input. so helpful to me as I am just starting this journey!
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Posted By: unklez
Date Posted: Oct 30 2010 at 2:49pm
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Dear msjag, We are sorry that you have the misfortune to be here. But also want to reassure you that this website is a great information and support resource for patients and caregivers. Yes chemo is thru' IV. There are some drugs in trials, e.g. the bisphosphonates - technically not chemo - that are also available in pill form. A very commonly used chemo regimen is dose dense, which is given once every 2 weeks. The worst side effects are from 2-5 days after the chemo infusion. Good luck on your journey. ------------- Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads. |
Posted By: msjag
Date Posted: Oct 30 2010 at 3:37pm
| Thanks!! Just curious about some people having chemo every three weeks, vs every two...must be up to the onc. Any helpful hints on managing side effects would be greatly appreciated!! Don't know if I'm on the right forum to ask that, I'll find my way around! Thanks again. |
Posted By: trip2
Date Posted: Oct 30 2010 at 5:01pm
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Welcome,
Some of us have treatments 2 or 3 weeks apart. We have a forum section called "TNBC News/Resources and in there you will find a topic called "chemo tips", read thru those tips, they will be a great help and also you can always post any questions to us and we'll try to help.
A couple of good websites that might help are http://www.chemocare.com - http://www.chemocare.com and http://www.imaginis.com/breast-health/breast-health-1 - http://www.imaginis.com/breast-health/breast-health-1
The website http://www.lbbc.org - http://www.lbbc.org is another good one. They have a new booklet describing TNBC which you can download.
http://www.lbbc.org/Understanding-Breast-Cancer/Guides-to-Understanding-Breast-Cancer/Guide-to-Understanding-Triple-Negative-Breast-Cancer - http://www.lbbc.org/Understanding-Breast-Cancer/Guides-to-Understanding-Breast-Cancer/Guide-to-Understanding-Triple-Negative-Breast-Cancer
Also near the top is a link called Resources which might be of help. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: msjag
Date Posted: Oct 30 2010 at 5:12pm
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Thank you, Pam!! I will check those out.
JoAnn
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Posted By: denise07
Date Posted: Oct 30 2010 at 8:32pm
| msjac, I am sure you will do fine with your chemo you have to let us know when you start. Thank god I had no problems with my chemo. Good luck! |
Posted By: msjag
Date Posted: Oct 30 2010 at 8:42pm
| I will, thanks for the encouragement. Just hoping I will be able to work a few days each week, as I carry the health insurance!! All the tips I am reading about will be so helpful. What a great site this is!! So grateful to have found it. |
Posted By: unklez
Date Posted: Oct 31 2010 at 6:27pm
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Dear msjag, Traditionally most chemo was given every 3 weeks between infusions. This gave the patients time to recover from side effects and for the white blood cell count to come back into normal range. With the discovery of drugs to reduce/prevent vomiting/nausea (e.g. emend) and - probably more importantly - to boost the white blood cell count (e.g. neulasta/neupogen), the dose dense regimen (every 2 weeks) became a possibility. Some clinical trials have indicated that some of the chemos are more effective in the dose dense cycle than in the 3 week cycle. Hopefully this provides some background which I'd suggest be used in a consultation with the oncologist to determine the best chemo regimen for a particular patient. Hopefully you will find the tips in the links provided by Pam useful. Also wanted to add that some people take chemo on Wednesdays or Thursdays to maximize their working days during chemo. ------------- Wife Dx: Jul/09. Age: 37. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. E5103. DD ACB-> DD Abraxane (Taxol reaction). Zometa (S0307). Canadian Fraction Rads. |
Posted By: msjag
Date Posted: Oct 31 2010 at 7:59pm
| Thank you. I realize from reading posts that everyone can be so different, so I guess I will know soon enough what I will experience! Tomorrow I get the pathology report from lumpectomy, and although I realize there is only something like a 1% chance the tumor receptors will be positive instead of triple negative like the biopsy, I can still have a little hope!!! And if not, look what I've gained, wonderful people willing to help with this journey!! |
Posted By: denise07
Date Posted: Nov 01 2010 at 7:32pm
| msjag,Any news! |
Posted By: msjag
Date Posted: Nov 01 2010 at 8:35pm
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Denise, I am still in shock, as I think my surgeion, husband is too....er- pr+ and her2-. retesting everything and now having onc (not sure if that's the initials) test done also. He said its been a long time since this has happened. Even if it comes back triple N...again.... the rest of the report was good,1.2 cm, node negative, clear margins, no lympatic or vascular....so that's good!!! (biopsy was tested twice, two different places, triple N, but whole tumor may say different) won't find out for at least 2 weeks. |
Posted By: dmwolf
Date Posted: Nov 01 2010 at 10:08pm
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That's great, msjag! You should still do chemo, but your risk might be somewhat reduced. Though as for chemo, maybe, just maybe, you should do a mammaprint test to see whether your tumor is low risk. Who knows, maybe it is. If so, you can avoid chemo altogether. (wouldn't that be nice!) Best, Denise W ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: clwille708
Date Posted: Nov 04 2010 at 7:15am
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Yea Guygirl! Almost there. I am on the same "plan" as you, and had #1 yesterday, with 7 to go. I feel pretty good so far. Linda
------------- Dx Aug/10,age 62, Lump & SNB Sept/10,1.7 cm, grade 3, Triple Neg, Nodes clear. Annual screening due to family history of Ovarian C. BRCA - Chemo DD AC -->Taxol 21 Rads done. Hugs -Linda |
Posted By: msjag
Date Posted: Nov 04 2010 at 3:52pm
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I'm not sure what a mammoprint is...I'm having an oncotype dx test... PR came back positive; it said 25-75 percent. Anyone ever hear of iPR positive and ER is -.? (her2- also) I'm not really thinking anything is going to change, maybe not as agressive or as I learned here "dense" treatment, but then again, who knows. I feel lucky about the test results, so I guess...one step at a time...wish I was in treatment already though....the quicker I start the sooner I end!!!
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Posted By: fighter_34
Date Posted: Nov 05 2010 at 1:42pm
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I am being treated w/ Taxotere and Cytoxin. I feel pretty good w/ the choice so far.
------------- IDC, Stage 1, Grade 3, no node involved, DMX 9/23/2010 Chemo Taxotere and Cytoxin 6 rounds |
Posted By: msjag
Date Posted: Nov 23 2010 at 10:12pm
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well, how some things change!! I guess there was a problem with the serum something like that, that tested progesterone receptor, and it turns out I am still triple negative, not pr+...and we even had a + party at work!! oh well!!
Anyway, I will be staring T/C chemo on Dec 2, bonescan/chest xray tomorrow, with a scan of my abdomen to be done if insurance covers it. Onc said most insurances don't cover pet scan as a screening, only if symptoms. Chemo will be 1 every 3 weeks. no node involvement, 1 cim, stage 1 Onc said they can't prove anding the red devil does anybetter than T/C for non node involvement. Was wondering what your thoughts were on that?
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Posted By: chyxgrl
Date Posted: Nov 24 2010 at 12:04pm
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Hi
My mom is in a similar situation. She had a 1cm tumor, with no lymph node involvement. Stage 1, Grade 3. I took her to two oncologists and both said the same thing: TC one every three x 4 treatments. Then after that, she will get radiation for several weeks. The oncologists both said the same thing as your oncologist - no benefit extra benefit with the Red Devil. She has completed 1 treatment and will have her next on Dec 2. Her White Blood Cell dropped after treatment and she required Neupogen. Also, she developed a bad thrush, but that resolved by using several mouth rinses. Good luck with everything. ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: msjag
Date Posted: Nov 24 2010 at 3:05pm
| I start my chemo the same day your mom has her second round. Hope she does well. Did the mouth rinses get rid of the thrush? do you recommend the mouth washes/rinsing before they even start? Thanks for all the help everyone!!! |
Posted By: chyxgrl
Date Posted: Nov 24 2010 at 3:40pm
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They recommended using alcholol free mouth wash after you brush (like biotene) before chemo. You want to switch to an alcholol free mouth wash during all of chemo because chemo can dry the mouth out. Also, my mom uses a spray artificial saliva throughout the day because it is soothing. Three days after her chemo is when she got a few mouth sores and thrush. She was ordered Magic Mouthwash (combo of liquid benadryl/lidocaine/mylanta) for the sores and Nystatin (for the fungus of thrush). She also rinsed with salt/water/baking soda (recommended by Donna from this site). Because her white blood cells dropped so low, the thrush spread quickly and took all week to resolve. All the rinses definitely did help her though. They were soothing and did help clear it faster. You may want to ask for an order of Nystatin Suspension the day you get the chemo, that way if you get the thrush over the weekend, you can fill the order at a pharmacy. Also ask the doctor about when you should come back for blood work. I am guessing they will ask to see you Monday just to check on your white blood cell level. My mom needed a shot of Neupogen on the Monday, Wednesday, Thursday and Friday following the chemo. The next time she goes (12/2), she was told already that will get a shot of Neulasta on 12/3 because that is a longer acting agent and she will not have to return for as many shots as she did last time. Unfortunately, there was no way to predict that her white blood cell count would drop so low (they knew it would drop, but hers got real low). She will also be asking if she should use the Nystatin starting on 12/2.
Another note - because you are getting the chemo on a Thursday, make sure you have the number of the doctor on call for the weekend. My mom felt fine on Friday and even Saturday. Sunday is when she felt bad and noticed a few mouth sores/thrush. She called the number and a doctor called her back in under two minutes and called the pharmacy ASAP. My mom also started taking her temperature twice a day after chemo because they warned of fever. You may not feel it, but you should tell the doctor about any fever, even a low one. The Tuesday - Thursday after chemo she had a fever and in addition to getting those Neupogen shots, she got an antibiotic just in case she had an infection. She was right under 101F. If she hit 101F, she would have needed the hospital for IV antibiotics.
I know this probably sounds worse than what it was. I just want you to catch everything early. My mom was a little tired throughout the week, but despite the mouth sores and thrush, she had an appetite and maintained most of her normal activities (she stayed in when feverish, except for md appts, as a precaution but she felt well enough to leave the house). She never felt nauseous (got dexamethasone and Emend for treatment, got Aloxi during treatment, and Emend after treatment). She never threw up, never missed a meal, never slept in, rarely went to sleep early, etc. Getting thrush and having the white blood cell count drop are managable side effects. I was probably more upset than she was over this because I felt bad for her. But she was just like, "Ok..no prob..they have something to treat that...I'll just go to the doctor". So keep a positive attitude. Tomorrow she is cooking Thanksgiving dinner even though we all offered to help. She says she feels completely fine and wants to cook.
Please let me know if you have any other questions. I'll be rooting for you next Thur. ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: msjag
Date Posted: Nov 24 2010 at 8:35pm
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thanks for the info, it is so helpful. I will get the md's number, and ask about meds for sores/thrush. I saw on here about making a magic mouthwash, I am going to try to get biotine mouthwash/toothpaste. I heard that eating ice chips/cubes while on chemo may help with sores. I am going to be on a steroid day before, day of and day after. Did your mom get a steroid? I heard that taking Claritin or Claritin D the day before and of chemo helps with the N shot the day after chemo. I will be getting that one shot after each chemo treatment. I was also told my onc to take mild laxitive day before chemo and a few days after.
I feel prepared, but I guess I won't know what I need/don't need until it happens!! I guess it doesn't feel like cancer til you go through chemo, cuz I feel great after lumpectomy/ SN surgery.
Armed and ready!! Thanks again to you and everyone here, how lucky are we all to have such great support .
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Posted By: chyxgrl
Date Posted: Nov 26 2010 at 9:09am
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Hi
My mom did get a steroid (dexamethasone) and took it the day before, day of and day after (take it with food b/c it can upset your stomach). They said that was for the Taxol because it can cause allergic reactions and the steroid helps to prevent that. My mom took Allegra which is very similar to Claritin (she takes that every day even before chemo she has bad allergies). She didn't do the ice chip thing, but she might on Thursday this time now that she knows what can happen. She did take tylenol when she got the Neupogen shots...but just remember to take your temperature before you re-dose on tylenol, other you can get a lower temperature reading because the tylenol lowers it a bit.
As for the laxative, I would take the laxative like your doctor said. My mom got constipation the first few days, but then it changed to mild diarrhea and she stopped the laxative.
Good luck on Thursday. It may sound weird...but my mom is looking forward to Thursday because then she will have 2 of 4 treatments done...50% finished at that point...halfway mark. :)
------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: msjag
Date Posted: Nov 26 2010 at 11:51am
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I certainly can understand your mom wanting thurs to come quickly, I'm with her..by the end of the year, I will have two done also..can't wait. Already celebrated all the holidays last weekend with my adult kids who flew in...so I will be all set for the holidays!! I am going to chemo with quite the bag of tricks!!Most learned from here!! I also am told some cancer centers have patients put ther handsfeet/nails in cold water ice to prevent side effects. Frozen bags of peas, ice chips to eat and gloves/large socks to put ice in for first 1/2 of treatment was recommended. I'll try anything to avoid neuropothy, or mouth sores/bone pain. I will be working, when possible throughout my treatment, I carry the insurance, so I need to keep my job although I am lucky to have many sick/vacation days to help me along.
Thanks again, and I wish your mom a side-effect free chemo treatment.
JoAnn
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Posted By: msjag
Date Posted: Dec 03 2010 at 8:23pm
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Well, had my first chemo yesterday T/C, did the ice chips for mouth sores, and the ice for hand/feet. So far so good, not sure when these side effects start to show up. No nausea, feeling good, eating ok...sleep is another thing..those steriods you take prechemo, then during chemo, certianly keep you up. But that's ok..I drank water every time I got up and flushed those chemicals right out!! Chyxgrl, hope your mom did fine during her 2nd treatment. Tonight I will take a sleep aid, never have taken one before, but I want to sleep more than 1 hour at a time!!!
hope all is going well with everyone.
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Posted By: 123Donna
Date Posted: Dec 03 2010 at 8:35pm
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msjag, Glad your treatment went well. The first tx is the scariest because we don't know what to expect. Do you get the Neulasta shot? ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: chyxgrl
Date Posted: Dec 03 2010 at 9:06pm
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Hi msjag! I thought about you yesterday! Glad the first treatment is done! I asked my mom and she said she does feel like she had extra energy because of the steroids but she was able to sleep at night. Keep drinking the water and use salt water rinses or biotene if you feel anything funny in your mouth. My mom got a Neulasta shot today. We went to the diner before chemo for breakfast...then she got chemo and I hung out there...then we were hungry so we got tuna fish sandwiches at the bagel shop. Both of us got sick last night though...Ironically, she felt fine from chemo, but the tuna fish did us both in. Today she is better and has minor constipation. She said food tastes a little strange, but she definitely has an appetite. When do you go back for blood work? Take it easy this weekend. Let me know how you are feeling. Where are you from? We are from Long Island, NY. Hope you continue to do well Michele ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: 123Donna
Date Posted: Dec 03 2010 at 9:13pm
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Michelle, Your mom might try Collace or any stool softener. Chemo/steriods seem to cause constipation after treatment. ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: msjag
Date Posted: Dec 03 2010 at 9:44pm
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Donna,I didn't have the shot, onc is testing blood each week, if my wbc goes down, then I will get the shot. I guess cuz I'm not having red devil chemo, she feels that it is not necesasry unless count goes down.
Chygirl, I live in MA. I do have relatives that live on Long Island, Brooklyn, Queens! I was born in Brooklyn! Sorry to hear you both got sick. Hope you're mom does well this time around. I am faithfully using the biotene, and drinking lots of fluids!!
Next treatment is 12/23,
Well wishes to everyone!
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Posted By: trip2
Date Posted: Dec 05 2010 at 12:14pm
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Msjag I hope things continue to go smoothly and that you were able to get some sleep. Rest is important and many of us have used a sleeping pill. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: msjag
Date Posted: Dec 11 2010 at 5:36am
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hello all, checking in!! Well, it was an interesting week after first chemo. I was so lucky with mimimal s/e. no nausea and actually went back to work four days later. BUT NO SLEEP for 6 days. finally onc heard my pleading and I was prescribed ativan on wed. I have slept for 6 hours for the past three nights yahooo..not much but I literally didn't sleep during the day either!! so hopefully I will be armed with ativan after next chemo and sleep won't be a concern. My w/b/c was very low 1.7, and I have been eating, moving and feeling good, so I may have to start the N shot after my next chemo, I'm being monitored, was told this low was expected, now it needs to start climbing..keeping my fingers crossed. I hear conflicting reports, eat beta carotene, drink green tea, exercise for help with count, then I hear cant do anything, your body does it all. any hints/suggestions?
Hope everyone is doing well. Scalp is getting itchy, tingly, I guess I know what that means! Going to Look Good, Feel Better on Monday. I know this is crazy, but I feel so good today, and I keep wishing one treatment was enough,....don't we all wish that.
Oh I wanted to share that Edy's Lemon frozen bars were my best friend during the first few days of chemo, tasted great and made my mouth feel good!!!
Take care everyone!!!
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Posted By: denise07
Date Posted: Dec 11 2010 at 3:55pm
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msjag,
Glad your first chemo was okay,that is a good sign that you will be fine for the rest of your treatments. God Bless!
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Posted By: chyxgrl
Date Posted: Dec 13 2010 at 3:15pm
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Hi!
Glad you are doing well. My mom never had a problem with sleep...but everyone is different. Glad that is resolved now. When do you get your blood checked again? If you need to, get a neupogen shot. They helped my mom's WBC count rebound.
~Michele ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: TracyAMac
Date Posted: Dec 13 2010 at 11:09pm
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Hi msjag Glad you are getting some sleep - it will help you be strong for the rest of your chemo treatments. I don't understand why the practices are so different for the Neulasta/Nupregen shots - I would think that keeping up the white blood cell count from day 1 makes sense and everyone should get the shot - would avoid missed treatments, complications,stress, etc. Tracy in Toronto ------------- TN&non-TN tumors April/10 Gr3&2;1 metaplastic Rmast.1/9 nodes w/isolated t.cells Taxotere&Cytoxan x6 Bone cancer 1980 age17;surgery&chemo AC+Methotrexate BRCA-ve On hormone therapy & Metformin Trial |
Posted By: msjag
Date Posted: Dec 14 2010 at 6:00pm
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Tracy, My onc will test my blood one more week before giving the shot, because I'm on T/C not the "A". THey expect your blood count to go down, but it should be back up hopefully on thurs or else the N shot.
Great news today, all scans (bone, catscan of abdomen and chest xray) came back clear!! such a relief. Now 2nd chemo on 12/23, can't wait to be done.
Michele, hope you're mom is doing well. I feel great, now that i'm getting sleep. been back to work since last week. Hope the next chemo is this way. Did your mom feel more tired or have more side effects with second?
My hair is holding on, soon to come out I"'m sure, I have the itchy head, and it is day 12, so just a matter of time!
Hope everyone is well.
JoAnn
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Posted By: trip2
Date Posted: Dec 15 2010 at 3:34pm
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JoAnn congratulations on the clear scans! ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: msjag
Date Posted: Dec 15 2010 at 5:47pm
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Thanks Pam, and thanks for all the great info you put on this site. You certainly have helped me.
Today my hair is starting to "shed"...so its just a matter of days before I shave it! I'm ready, not freaked about my hair at this point. just want this over so I can start radiation.
Hope everyone is doing well.
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Posted By: trip2
Date Posted: Dec 15 2010 at 6:43pm
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JoAnn, that is one thing we can take control of, shaving our heads! Of course we all have to get to that point where we can do it, it is emotionally hard. Hope you have some headwear lined up. There should be some links for headwear in the TNBC News/Resource section of the forum.
Also I might throw in that I found having a sleeping cap was nice, especially for the Winter months and a satin pillow case is nice. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: chyxgrl
Date Posted: Dec 16 2010 at 8:14am
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Hi JoAnn
I shaved my mom's head for her day 14 after treatment. It was actually Thanksgiving night. I used an electric buzzer. She had prepared herself, so she wasn't that upset. Now she is using head covers around the house. When she goes out she either uses halos with hats or her wig. She got her halo pieces from headcovers.com and from the TLC catalog from the American Cancer Society.
Next treatment is only a week away. Time seems to be moving fast!
Michele ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: msjag
Date Posted: Dec 16 2010 at 4:32pm
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Thanks everyone, I will look into all your suggestins, I do have a wig and many scarves, but I don't have a halo or a sleeping cap.
Went to onc today, blood levels are right up there, so no shot, she told me she was at the San Antonio meeting, TN getting alot of buzz. She also mentioned perhaps increasing my treatments to six in stead of TC 4 times...depends on research/certain findings. I do notice some people get T/C 6 times while others get it 4. I guess I'll know more as the months go on.
Hope everyone is doing well....I'm so ready for 12/23 treatment...bring it on!!
Merry Christmas/Happy Holidays to all.
JoAnn
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Posted By: sue
Date Posted: Dec 16 2010 at 4:33pm
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Hi Joann, Happy news about the blood levels. Have a great Christmas holiday. Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: trip2
Date Posted: Dec 16 2010 at 4:36pm
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JoAnn that's good news about your blood levels.
I had Taxotere in 07, had already had Cytoxan previously. When I completed 4 treatments they asked if I wanted to stop or go for 2 more, I said "bring it on", lol, even though I was having a rough time. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Momof2NJ
Date Posted: Dec 17 2010 at 9:36am
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msaj
glad you are feeling well. I sailed thru my 4 cytoxan/taxotere treatements back in 2008/2009. Major side effect was fatigue, but no nausea. I just finished my 4th and final adriamycin/cytoxan treatment for a recurrence....adriamycin is pure evil. I begin 12 weekly taxol infusions the week after christmas and then radiation.
Hope you continue to feel well....stay strong...you can do it.
mary ellen ------------- 2008 BRCA 1+ dx stg 1,gr 3 IDC triple neg. BM w/ recon. CT x 4. Prophy TAH 2007. Recurrence 9/13/10. 10/5/10 tumor excised. ACx4, Taxol x3, abraxane x 9. 38 rads. 7/11 NED!!! |
Posted By: chyxgrl
Date Posted: Dec 17 2010 at 10:24am
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I wonder why some doctors do four treats of cytoxan/taxotere and other doctors do six. I am going with my mom to her appt next week, and I am going to ask about it. JoAnn and everyone receiving treatments - On Friday Dec 24 many doctor offices might be closed. Be sure to get the number of the covering doctor for the holiday weekend. Also, if you are receiving chemo on Thursday and need a Neulasta/Neupogen shot on a Friday...be sure your office is open OR you have a plan to get the shot some other way (for my mom - the office is closed, but we are getting the shot from the pharmacy and doing a self injection on Friday). ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: 123Donna
Date Posted: Dec 17 2010 at 1:15pm
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Just my 2 cents. I had 4 tx of T/C. I'd push for 6 treatments instead of 4.
------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: msjag
Date Posted: Dec 21 2010 at 7:24pm
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Thanks everyone for the encouragement and great information. My onc said we will decide after my 4th treatment if I should have two more.
I'm looking forward to getting 2nd t/c done on 23rd, but part of me wishes I didn't have to go incase it doesn't go as well as first treatment.
Michele, hope you're mom is doing well and does well on Thurs!
Merry Christmas to all of you!
JoAnn
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Posted By: sue
Date Posted: Dec 21 2010 at 9:19pm
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JoAnn, Sending positive thoughts your way for a smooth 2nd treatment. Wishing you a Merry Christmas. Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: chyxgrl
Date Posted: Dec 22 2010 at 9:14pm
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Hi Everyone Merry Christmas! Good luck tomorrow on the 2nd treatment JoAnn! Half done after tomorrow! Michele ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: msjag
Date Posted: Dec 22 2010 at 9:30pm
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Thanks everyone!! I should be in bed, but I'm trying to finish up wrapping and some baking so I can do nothing for the next few days!!!
who made the appt at 7:15 a.m!!! not doing that again!!!
It's snowing here!! White Christmas!!
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Posted By: msjag
Date Posted: Dec 25 2010 at 7:20pm
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Hello all!! doing pretty well for 2 days post 2nd treatment, with christmas and all that action!! I stayed home and rested and sent my family visiting x-mas eve and today...actually slept last night and today...hooray ativan...so different from the first treatment with no sleep for 6 days!!! Hope everyone had a great day!
Michelle, hope your mom is doing well, and hope everyone still having treatment and s/e's are doing well/better.
Here's to a happy healthy new year. So grateful to have this site with all of you.
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Posted By: zoomommy2
Date Posted: Dec 25 2010 at 10:56pm
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msjag,
7:15 am for chemo?????? Oh no! I had a hard enough time getting to mine when I had to have one at 8:30am. I didn't move very fast back in those days last year. Ativan is truly a savior for getting to sleep and putting those demons to sleep. So happy to hear all went well this time!
May 2011 be a great year for all of us.
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: chyxgrl
Date Posted: Dec 28 2010 at 8:00am
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Good Morning Everyone
7:15 is early! The offices around here aren't even open then lol.
My mom had some trouble with her third treatment. She broke out in a red, itchy rash on both arms which is probably from the Taxol. She took Benadryl and got plenty of rest. Yesterday she started to feel better and the rash started to go away (it came on Friday). Between Christmas and New Year, the next treatment day will be here asap!
Happy New Year!
Michele ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: msjag
Date Posted: Dec 30 2010 at 3:47pm
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Hello Everyone. Surviving 2nd treatment well, was a bit anxious on Monday when flights were being cancelled for my daughter due to blizzard here in MA, but got through that and was great by Tues. I've learned I need the first 4 days to myself, quiet, even though I don't sleep and am busy putting around during the day!! Not many side effects besides the lack of sleep, ativan helps, but it doesn't keep you sleeping. Wish my onc would let me have a sleeping pill for a few nights!! Anyway, I feel lucky to be able to manange well. Back to work on monday, had vacation for 2 weeks which really helped out. Thank goodness for all of you and your wisdom/advice/experiences.
Michele, hope your mom is doing well and her rash is gone. She must be so excited to only have one left!! I feel blessed to be half way through...well maybe..onc is going to make a decision about 4 treatments vs. 6. Did you ask you mom's onc about that? I'm reading more and more about taxol and the red devil not really benefiting people who are node negative, even with TN...so confusing sometimes.
Happy New Year all!
JoAnn
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Posted By: chyxgrl
Date Posted: Dec 30 2010 at 4:00pm
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Hi
I asked the doctor and she said only four treatments were indicated for her. I didn't really get a good explanation as to why though. If you find anything out, please let me know. Her rash is going away, so that is good. She is just very tired...more tired than previous treatments, but maybe all holiday excitement added to it.
I'm glad you are doing well. Yes...take the first days to yourself to re-group. Have you tried taking benadryl to help you sleep?
Happy New Year
Michele ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: denise07
Date Posted: Dec 30 2010 at 4:21pm
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chyxgrl,
Maybe your mom is getting four treatments instead of six is maybe because she is stage one. Did she have node involvement? if not that could be why to. I had 6 treatments but I was stage 2 with 2 nodes involved.
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Posted By: sue
Date Posted: Dec 31 2010 at 10:36am
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Hi Michele, Saw your post and wanted to add I am more tired with my second round of chemo, T/C, on 12/29/10. Glad to hear your mom's rash is better. Wishing you and your mom a happy, healthy New Year. ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: JulesSmith
Date Posted: Dec 31 2010 at 10:55am
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I was stage one with no lymph node involvement but we did 6 rounds of chemo and 48 rads. (8 were boosts). My onc said with Triple neg, 6 rounds were warranted. I checked the protocol with both MD Anderson and Duke University and they all agreed after reading my path report. I think it also has to do with a couple other things that you will find in the path report. I had IDC and DCIS
1). Lymphovascular invasion
2). Venous invasion
3). Mitotic score
4). Total nottingham score
5). Size of tumor
6). Tubule Formation score
7). Nuclear Pleomorphism score
I was presenting with very high scores and had both Lymphovascular and Venous invasion. The tumor was 1.05 cm and growing very fast. (I was in surgery within 2 days of finding the lump, back to surgery 2 days later (didnt get clear margins) then 10 days later, started chemo. Fast tracked!
Hope this info helps!
Julia
6 rounds ACT (taxotere). (I need to add my details onto my profile so I dont have to keep adding it on)....
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Posted By: 123Donna
Date Posted: Dec 31 2010 at 11:36am
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Jules, You can add your details in your profile by going to Member Control Panel, Edit Profile. Scroll down until you see Signature. Type your information you want to appear at the bottom of your posts, then go down and Update/Save your changes. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: JulesSmith
Date Posted: Dec 31 2010 at 11:44am
| Thanks Donna! I'll go in and add it! |
Posted By: trip2
Date Posted: Dec 31 2010 at 1:11pm
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Michele so glad your mother is doing better, sorry about that rash!
The treatments can cause the fatique to build up.
I had 6 treatments of Taxotere with my second diagnosis with no nodes involved. They said I could stop at 4 or do 2 more which I did but everyone's situation is individual.
JoAnn did your Onc say why you couldn't have sleeping pills? I had them during treatments.
------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: 123Donna
Date Posted: Dec 31 2010 at 1:29pm
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Joann, I too wonder about your onc not giving you sleeping pills. One of the first questions mine ask each visit is how am I sleeping. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: mjhoover@gmail.com
Date Posted: Dec 31 2010 at 3:19pm
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Happy New Year and good health and successful treatments!!! MJ ------------- 7/08 IDC L Br, mast 1/16 node +,St 2 gr 3, 6 rounds TAC 7/10 Mets to lungs, nodes abdomen BRCA- 8/10-1-11Abraxane/Avastin 7 11 3.3 cm tobrain sstem/rt cerribellium WBR 15 rds Poss trial at MDA after |
Posted By: msjag
Date Posted: Dec 31 2010 at 6:51pm
| Thanks for the info on the treatments, I didn't have any node or vascular involvement, everything was "good" on path report so maybe that's why the 4 treatments, I checked with three other breast cancer centers, and they say it is standard because of all the other factors. (some add 2 just "incase" because of triple neg or because of stage, ) onc said she didn't want to sedate me, especially the first few days incase I had temp or other issues. who knows! I find after the four/five days I get better sleep, but its always interupted. I'll probably have it all figured out and then chemo will end!!! I have been told my a few nurse friends to try the benedryl at night next time as they give it in the premeds before the T/C. I certainly willl!!! Glad your mom is doing better, Michelle. Happy New Year all, here's to a healthy 2011, and to a great 2010 because of being blessed to meet all of you. |
Posted By: chyxgrl
Date Posted: Jan 02 2011 at 9:35pm
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Hello Everyone! Happy New Year!! Thanks for the all the advice on 4 vs 6. I want her to have six and I'm going to ask her doctor again. My mom is not too thrilled at the thought of doing six though. She was more tired after her third treatment, and felt "strange"...mentally, she knows she has one treatment left and she doesn't want an additional two. But, six may be better for the long term. Her rash is gone, so that is good news! Denise - She did not have node involvement. She was stage 1B, Grade 3. How long ago did you finish treatment? How are you doing now? Sue - Sorry to hear you are feeling more tired. Unfortunately, my mom got more tired after the third as compared to the second. But tired is a better side effect than some of the other things that can happen. I keep telling her to rest, but I think like most moms, she does too much! Just try to take it easy. Julia - Thanks for the info. I will look at my mom's path report to see if that information is on it. Pam - I will continue to push her towards the six and ask the doctor again. Donna - Hope you are doing well! JoAnn - My mom didn't really have too much difficultly sleeping because of the chemo. However, when she took Benadryl for the rash, she said it did make her drowsy and she feel asleep faster. It can make you feel a little dry (like dry mouth, dry nose - so just use mouth rinses, saline nasal spray, chapstick). The only sleep issue she has is my dad is quite possibly the world's loudest snorer. Sometimes she can't fall asleep because of that...but the easy fix is a quick kick to wake him up :-) I understand that your doctor was worried about sedation, but I think its important to get a good nights sleep. Most of the medications they can give like Ativan don't last into the next morning, so a low dose would wear off by the morning and maybe you might sleep more comfortably. If not sleeping continues, I would bring the subject up again with the doctor and maybe find a compromise (like you can take your temperature before bed, take a sleeping pill and check your temperature the next morning). Happy New Year again! Michele ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: msjag
Date Posted: Jan 03 2011 at 5:57am
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benedryl and ativan worked great sat night...7 hours solid sleep!! Last night, it worked "ok" maybe six hours on off sleep, but I think my mind wouldn't shut off because of going back to work these next two weeks before the next treatment.
Michele, I can understand your mom's apprehension with going 2 more rounds. As much as I will do what onc says, I am thrilled to be 1/2 done. and dont even want to think of two more. It appears that t/c x4 is becoming standard treatment ( I am researching on other sites breastcancer.org, john hopkins "ask an expert".and it is common.) I am stage 1, no nodes, no vascular, 1 cm, I actually was told if this wasn't Triple negative, I would've just had the lumpectomy and rads. The chemo is for the "one" cell that may have gotten away!! So maybe that's why the four for both me and your mom. Two onc's did tell me that they don't have any reasearch showing anything more would be effective with no nodes/no vascular, but I'm sure things will change as they research this TN more.
When I mentioned, I"m not getting the A, they said, you can if you want, but gain, that is shown to help node positive, mets, not any better for node neg, just more side effects, esp with heart.
I'm going to ask onc about tumor marker tests, when that happens and what it means.
I feel like I'm back to day one researching everthing, it must come it spurts. Everythng seems to be based on under 50, and over 50 for tests, procedures, genetics. Well I was diagnosed officially at 51, put I presented the lump when I was 50, I don't want to miss anything. Well, hopefully work will keep me occupied the next two weeks before treatment 3. Everyone around me is getting the flu/colds. I am holding my own!! First time ever I got the flu shot, before chemo, maybe it was a blessing, I really wanted to refuse it!!
Stay well everyone, here's to a great week ((((((((((HUGS)))))))))))
JoAnn
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Posted By: sue
Date Posted: Jan 03 2011 at 10:27am
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Hi JoAnn, I also have 2 more treatments of T/C for total of 4. My diagnosis and situation is very similar to yours. Had flu shot too, which I had not had in years, few weeks before first chemo. So far, so good. Will be with you in spirit through the remaining treatments. The second treatment made me miserable at times about having the remaining 2, but will continue to fight the fight to get to the end as I feel it is my only hope for piece of mind in the long run. Hoping this will soon be a distant memory. Sending thoughts your way for a restful night tonight. Thanks for your positive thoughts. Hugs, Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: JulesSmith
Date Posted: Jan 03 2011 at 4:27pm
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Edluar works wonders for sleeping! It's a desolvable pill you put under your tongue. Just dont take it until you are ready to go right to sleep. It's pretty new and I still sometimes take it when needed.
Julia
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Posted By: msjag
Date Posted: Jan 03 2011 at 5:59pm
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Sue, hang in there, we are 1/2 done!! I really think the key is drinking water the first 48 hours non stop!! I had tea and protien shakes too. I think the faster we get these chemicals out of our bodies the better. I am hoping three and four go ok... I will talk to onc about sleeping aid, I'm not one that takes much (this cancer thing has my cabinet looking like a pharmacy!)
I will be thinking of you too Sue. ANd michele, it will be your mom's last one next week!
Julia thanks for the info on the sleeping pill. I will ask about it.
oh boy, today I wore my wig for the first time to work, then I had to take it off after noon, and just wore a scarf, people were in shock, many didn't know I had cancer. So I spent alot of time talking about it today. I think today was one of those days where I jsut kept thinking, "I can't believe I have breast cancer." blah! Heard on the news something about a test Johnson and Johnson are working on (I think it was them) that through a blood test, a cancer cell may be able to be detected and it will be able to tell if treatments are working. I'll try to catch more on the news this evening.
Happy Monday everyone.
JoAnn
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Posted By: snugltz
Date Posted: Jan 03 2011 at 7:48pm
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msjag
I am about like you in the cancer dx. Went to TN doc at Stanford. For my heart she left off the A also. Had 4 C/T and 35 rads. Said I was almost borderline for chemo, but since triple neg is so agressive she would recommend it. What my oncologists in Fresno also said. Made my chance of no recur go from 75 or 80% to 90% with treatment. So not a huge jump, but still significant. The side effects of the chemo were what made it kind of borderline. Were they worth the additional 10 % . But because of TN all recommended I have chemo. ------------- 1 cm, 0/2 neg nodes, lumpectomy 6/16/10, cytoxin/taxotere 4x every three weeks, rad start 11/8 33X |
Posted By: denise07
Date Posted: Jan 04 2011 at 6:02pm
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chyxgrl.
I finished my chemo almost three years ago, so far I am doing fine> How is your mom doing?
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Posted By: msjag
Date Posted: Jan 09 2011 at 7:50am
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Did you all have genetic testing? I was officially diagnosed this year at age 51, but I found it when I was 50 (a few months before). So the over 50 under 50 thing has me wondering if I should be tested. no signifcant family history, a great aunt 30 years ago, (she would be well over 100 if she was alive) and a first cousin 25 years ago, when testing wasn't really available. Just worry about my daughter who is 28, and her doc doesn't want to do any mammo or testing (until she is 35). She's in CA and her insurance is different, I think I will encourage her to insist on the mammo this year.
Hope everyone is doing well, gearing up for treatment #3 on thurs, yeah Michelle for your mom being done with her last chemo come Thurs!
Snugultz, we do have the same diagnosis and and have had/I will have the same treatment!! so I feel better about that.
denise, how wonderful for you hitting the three year mark. Its very encouraging to hear, especially with TN.
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Posted By: trip2
Date Posted: Jan 09 2011 at 4:36pm
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I was found be positive for a brca 1 mutation after my second dx at the age of 60 but do have a heavy family history. The first time at age 56 being tested was barely discussed, I brought it up but no one encouraged testing and frankly I wasn't as informed as I should have been.
Having 2 daughters who have now tested positive for my mutation, one being dx plus 2 sons I understand your concerns for your daughter.
You might consider speaking with a Certified Genetic Counselor. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: DianeEE
Date Posted: Jan 09 2011 at 5:35pm
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Hi,
I was found to be positive for the BRCA 2 mutation on Friday. It really surprised me because there is not one person in my recent family history that has had breast or ovarian cancer. There is a possibility of a great-aunt but she actually died of another cause. Anyway, the only risk factor that I had was that I am only 43. But, I am so glad that I know the results because I can make very proactive decisions about my treatment. I am doing chemo. before surgery right now in the hopes of shrinking the tumor. But, I do plan to get my ovaries removed as soon as it makes sense and I will probably end up having a bilateral mastectomy to further manage the risk of another cancer appearing. The breast decision will be made at a later date. Like I said, I am just thankful that I know up front. That way, I have all of the info. I need to make a decision about my future treatments.
On another note, I'm doing well with my first round of chemo. that was Friday. Minimal side effects so far. My fingers are crossed that it will continue. I have 5 more rounds of A/C/T to go and I have to get a Neulasta shot tomorrow to up my white blood cell count. One step at a time, though, right?
Thanks for all of the info., ladies. I so appreciate all of your being here.
Love from Michigan--
Diane
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Posted By: zoomommy2
Date Posted: Jan 09 2011 at 5:40pm
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DianeEE.
I'm glad you have the info on being BRCA2+. I'm glad you had the testing so you can go forward with the decisions. This gave you a heads up. Good luck in your continuing treatments. Yes, one step at a time!
Lee in Denver ------------- dx6/09,stageII,gr3,(L)mastectomy 7/09,ACx4,Taxolx7,Avastin study,gall bladder surgery 1/10,4/11 Stage 4, mets to lung, 4/11 Started Taxotere and Xeloda, 5/11 Taxotere stopped, off Xeloda |
Posted By: 123Donna
Date Posted: Jan 09 2011 at 5:49pm
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DianeEE, Knowing your BRCA status helps you make some important decisions regarding your treatment. It sounds like you are being very proactive. I hope all of your treatments go well. Donna ------------- DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09) 11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15 |
Posted By: chyxgrl
Date Posted: Jan 09 2011 at 8:30pm
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Hello Everyone Just a quick update: my mom is doing really well. We are so excited because Thursday is the last treatment. The weeks really went by fast. We met with the doctor who is going to do the radiation, and she will go for 33 radiation treatments starting in early Feb. Hope everyone has a great week and good luck for those getting a treatment this week! Michele ------------- My mom- 62y/o @ DX 9/2010; lumpectomy, Stage 1B, Grade 3, 1cm tumor left breast, neg nodes; TC once every 3 weeks x 4 doses then 33 rads; BRCA negative; 9/2011 mammo NED; 3/2012 MRI NED |
Posted By: sue
Date Posted: Jan 10 2011 at 2:04pm
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Thanks for the update Michele. Happy for you both and sharing your excitement about mom's last treatment. Sue ------------- Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11. |
Posted By: msjag
Date Posted: Jan 12 2011 at 9:53pm
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I should be sleeping, 3tx tomorrow at 7:15, major snow storm here in MA today, took my ativan and am wide awake..thank you pre-chemo steroid!! Good luck to everyone having treatment this week, I believe Sue and Michelle, your mom! Her last one YAHOOOOOOOOOOOO!!! I've done so much research on T/c x4 and T/c x6 that my head is spinning!! I have been adding exercise and lowfat diet to all this, so hopefully that helps. Hope everyone is doing well. JoAnn
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Posted By: mainsailset
Date Posted: Jan 13 2011 at 10:32am
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msjag, I that the onc lower my doseage of the pre treatment steroids and it helped with the sleep tremendously and didn't affect my treatment.
------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: JulesSmith
Date Posted: Jan 13 2011 at 10:41am
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I think if it werent for Ativan, I wouldnt have slept at all! I was up for days after treatment. I'd sit in the recliner and hope the world stopped spinning! No matter what they gave me I still had all the wonderful side affects. Extreme nauseau, vomiting and the other..... I slept in spirts and then after my last chemo, a week later, I slept for days. (I guess trying to catch up after 6 months of staring at the ceiling) LOL. We tried lowering the dose but it just wasnt an option for me. Hopefully, that will help you! One good thing about the steroids is it kept my appetite up even though I got sick. Instead of losing weight, I gained. ------------- DX 11/2006, Stage 1 IDC/DCIS, 1.05cm, node neg, 6 rounds ACT (taxotere), 48 rads - 4 years ned and counting! |
Posted By: JulesSmith
Date Posted: Jan 13 2011 at 10:46am
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My biopsy is scheduled for February 3rd. After seeing 5 different Dr.s none could tell me what this lesion is on my BC side. Had the breast MRI and Mammo, so now off to biopsy as they both didnt show enough to make a determination. We believe it is from my surgery in April of last year, but dont want to take any chances! Sometime I think if they stick another needle in me I'm going to lose it..... just temporarliy though.... Deep end is close by, but I always find the shallow end! LOL
Keep on trucking ladies! No matter what it is, I can and will win! So will you! ------------- DX 11/2006, Stage 1 IDC/DCIS, 1.05cm, node neg, 6 rounds ACT (taxotere), 48 rads - 4 years ned and counting! |