Another friend of mine had a bi-lateral mastectomy in March.  She was going crazy with some twitching issues for several months.  It would wake her up at night and annoy her throughout the day.  Now that her cancer is gone, the twitching is also gone.  One of her doctors said the twitching could have been related to the cancer, and her body's irritation with what was happening in her breast. 

 

Maybe these neurological symptoms are something to pay close attention to.  On first glance it would seem they wouldn't be related, but when you consider how connected our body is because of our nervous system, it makes some sense that there might be some neurological signs.  Of course, I am no health professional, so I have no real idea of how this would be connected.  But, I can tell you that after reading your posts, I won't be ignoring any itching in the future.

 

It can be,  http://www.mayoclinic.com/health/inflammatory-breast-cancer/DS00632/DSECTION=symptoms - http://www.mayoclinic.com/health/inflammatory-breast-cancer/DS00632/DSECTION=symptoms

I'm not a paranoid person, but this little voice inside has been saying something isn't right, but I really just put it on the back burner because of the brain met thing I've been going through since June.  I just decided to see if there have been any posts about this, and sure enough.

I am having a Breast Ultrasound tomorrow and Bone Scan, I'm due for Mamo next month, I think I'm going to see if they can do the mamo tomorrow as well.

Crap, here I go again!

 Praying for good results from your ultrasound and bone scan tomorrow.  I think the ultrasound is more definitive than the mammogram.  Just my experience over the years with the docs trying to decide between a cyst and a tumor.  The u/s always gave them the answer.

Lee in Denver

thanks, I just feel like "here I go again"

Judy

I don't think there is probably any way to get rid of the "deja vu"  feeling.  As the song by Mercy Me goes, "I can only imagine."  Praying for peace and serenity awaiting your tests.  You aren't alone.

Lee in Denver

 

Frgilistic, I had that creepy feeling on my skin last night.  It felt like a bug was crawling on my leg, but each time I looked or tried to brush it away, nothing was there.  I am on Taxotere.  Maybe it's from that. 

In a stronger state, I think this would not have happened because my body would have fought off whatever caused the rash.

And, just as it is starting to clear up, I have another treatment on Friday.  <Big Sigh>

so my itching is post chemo and post radiation.

I too had itching durning taxol and I think that is just one of the symptoms.

I had an ultrasound and then Mammo yesterday that showed nothing.  I put a call into my Rad. Onc. to talk to him about this as it seems that the breast itching is followed by a tumor several months later.

what I want to know is did anyone have the breast itching, have a mammo, and find the recurrance before it turned into a tumor?  for example, the mammo shows nothing, and then they had a breast MRI, or had a tissue biopsy and then find it, or simply let it run it's course and wait for something to show up?  I have this nagging voice saying something isn't right, and as I posted sometime earlier, I am not a paranoid person.

thanks, Judy

 

Take care everyone!

In answer to your question about finding it before it turns into a tumor, I personally don't think there is time. I say that because I was having a diagnostic mammogram every 6 months, I was on my 3rd (supposedly final) one when it was found. Itchiness started 3-2 months prior to that, which means logically it had been growing for awhile but they didn't catch it 3 months earlier, when they compared that mammo and ultrasound with the one 6 months prior. That tells me it just grows too darned fast to catch it that early. And, my surgeon told me he was really surprised the radiologist caught that, as he said he wouldn't have. Scary.

Here's a question....along with the intense itching, it made all my cysts (yes, I'm riddled with them) swell up in that breast. Had to go in to have a cyst aspirated, that's why they were looking so closely. Had the same thing happen in the other breast just a few months ago. They did a biopsy in a 'suspicious' area, but it came back negative. Am keeping my fingers crossed it's nothing.

It still gets sore fairly often. When I just went for my 6 month with oncologist, she did an exam to try and feel for it, and i hurt like hell for 2 days after.  They did another ultra sound just to make sure no change since they couldn't feel the enlarged lymph node the first time. No change, still big, but no bigger so no concern again. But when she did the ultrasound, with minimal pressure, I could tell immediately when she was on the lymph node that was enlarged, because it was tender even with lightest touch.

My port scar which is on my left side has always been pretty itchy...but now the itching is below the port closer to my boob. Basically the itch is at the top of where my breast starts to curve. and there are three little indentations (not sure if this is what everyone means when they refer to dimples) that were never there.  and while the itching feels like it is on the surface, when i push down on the spot, it really feels like the itch is deep on inside. It's like a can't get to the itch. It sucks...and now I am starting to be offically freaked...even though I just had a great check up and blood work. and a clean PET just 6 months ago. 

Am i overreacting???? when do we stop being paranoid?

melissa

Welcome to this site, even though none of us wanted to be here.  There is so much to learn about this disease.  Congratulations on only having 4 more Taxol treatments to go!!  This itching thing does need to be investigated.  Best wishes for the rest of your chemo.

Lee in Denver

Blair

I agree, wish we could capture it all somewhere. - A massive questionnaire completed by all TNBC patients? - designed by US since we experienced all the symptoms of this disease. 

Blair