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Not sure

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Category: TNBC Forums
Forum Name: Welcome New Members
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URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=6215
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Topic: Not sure

Posted By: ritamw
Subject: Not sure
Date Posted: Apr 25 2010 at 8:45pm

How do I know if I am HER2-negative ? I know I am ER and Pro negative with BCRA 1 . But it has been 10 years since I got my results and I don't know if they knew about HER 2 at that time . I have a felling I am but how would I find out . I still have my patology report .

Replies:

Posted By: SagePatientAdvocates
Date Posted: Apr 25 2010 at 9:04pm

Hi Rita,

they may have some of your original tissue block...they can test now for HER2/neu expression...ask them to use FISH technology if you decide to do it...

may I ask, though, why do you want to find out, now?

good luck,

Steve

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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates

Posted By: diane1234
Date Posted: Apr 25 2010 at 10:03pm

May I ask what treatment you had 10 years ago. What stage were you? How long have they been doing the genetic testing? Like Steve I would see if they could re test using the fish technology.

Lots of Love,

Diane

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dx 4/09 at 36 yrs old. dbl Mast. 5/09. 12 weekly Taxol 4 FAC tri weekly. 32 rads completed 2/2010. Its Back 5/2010!! Chest wall, Mediastinal node, Lft mammary node and liver. Back on chemo.