Welcome New Members - community forum/discussion

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community forum/discussion

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Welcome New Members
Forum Description: A place to introduce yourself to our community
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=4526
Printed Date: Mar 26 2026 at 11:24pm
Software Version: Web Wiz Forums 12.01 - http://www.webwizforums.com

Topic: community forum/discussion

Posted By: janinvan
Subject: community forum/discussion
Date Posted: Aug 30 2009 at 9:58am

I'm very selective about on-line sites, etc. and THIS one is terrific

I probably won't be asking too much here -- as I'm busy with many things now. I don't spend too much time on-line (it's usually intermittent)

BUT on breastcancer.org..--under TNBC discussion section one woman has provided a link to Oprah's community forum, etc. which, I think, is beneficial.. as African Americans make up about 30% of TNBC patients

I know that she has profiled tnbc .

Replies:

Posted By: cg---
Date Posted: Aug 30 2009 at 10:06am

Thank you very much for letting everyone know.

The more exposure we have - the better remembered we will be - and more interest wil be generated. We may only be 15% to 20% but we are no shrinking violets.

Keep well and keep us posted on your progress.

Love,

Connie

Posted By: unklezwifeonty
Date Posted: Aug 30 2009 at 3:59pm

Yes, we need to champion our own cause and spread awareness. None of the lay persons I have talked to knew about TNBC. They hear BC and think that the recent huge strides in BC, e.g. hormonal therapies, Herceptin, etc help us.

This site is great because it brings us TNBC sisters together. Some of us are white, latino, afro, asians, etc. but here we just are TNBC sisters.

-------------
Dx: Jul/09. Age: 37. Grade: High. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. Kicked from E5103 due to Taxol reaction. Now on AC->Abraxane. Zometa (S0307).