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Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Welcome New Members
Forum Description: A place to introduce yourself to our community
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=4487
Printed Date: Aug 09 2020 at 12:43am
Software Version: Web Wiz Forums 12.01 - http://www.webwizforums.com


Topic: .
Posted By: natalie07
Subject: .
Date Posted: Aug 25 2009 at 5:52pm
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Replies:
Posted By: cg---
Date Posted: Aug 25 2009 at 6:45pm
Dear Natalie,
 
Welcome and thank you for helping your mother with computer skills (I really need my daughter to help me and this mother thanks all the daughters).
 
The good news is that they caught the spot early.  They started your mother on a bisphosphonate which helps in a few ways.  It strengthens bone so they will not fracture easily, they circle the cancer spot and 'wall' it off, and the other thing they are studying in trials right now is bisphosphonate being able to prevent further spread.
 
I do not know what chemotherapy your mom had before - but triple negative responds very well to chemotherapy.
 
Please know if you have any questions there are many wonderful sources of information from the people on the forum and in the resource section.
 
Not that any place is good to have another location of the tumor showing up - but if I had to pick...I would pick bone before organs and she may find the bisphosphonate works really well for her.
 
Love,
Connie
 
 
 
 


Posted By: dmwolf
Date Posted: Aug 25 2009 at 9:15pm
Natalie,
I second what Connie said about bone mets.  People live with bone mets for many, many years.  If you go to the website Inspire for advanced breast cancer, you'll find women 10, 12, 15 years out with bone mets, living well.   So don't panic!   This may well just be a chronic condition that won't get in her way.  You are incredibly sweet to care for her like this.  She is a lucky mommy.
love,
d


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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.


Posted By: Kellyless
Date Posted: Aug 26 2009 at 1:03pm
My grandmother had bone mets for 17 years, she lived to 78 years old!  MD Anderson was her hospital.

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IDC, 2.2 cm, Stage IIb,lumpectomy 1/30/09 ACx4,Tx4 36 rads
6/1/16 Local recurrence same breast, same spot 1.8cm Carb.4x every 3 wks, Taxol 12x once wk. Dbl Mast. PCR!! Reconstruction fail, NED!


Posted By: natalie07
Date Posted: Aug 26 2009 at 1:14pm
Thank you Connie so much for that great information! It helps me understand it better...
I like this website, it is really supportive.
Thank You!!!Smile
 
And dmwolf...thank you as well...I will check out that other website!!
 
kellyless...i am sorry to hear about your grandmother...but wow 17years that is great!!! I will tell my mom! THANK YOU



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