?Lymphedema
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Forum Name: TNBC Talk
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URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=4461
Printed Date: Mar 26 2026 at 11:25pm
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Topic: ?Lymphedema
Posted By: gerriesue
Subject: ?Lymphedema
Date Posted: Aug 21 2009 at 3:05pm
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Hi All, I have been experiencing some swelling and warmth in the breast that I had a partial masectomy and removal of three lymph nodes including the sentinel node. Anyone else had anything like this? Thanks for responding. ------------- 57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane |
Replies:
Posted By: TNBC_in_NS
Date Posted: Aug 21 2009 at 4:46pm
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Hi GerriSue:
I would suggest you see your physician about this. Since you had your surgery, chemo & rad in 2008, I would check in with the dr. Keep us posted. Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: unklezwifeonty
Date Posted: Aug 21 2009 at 5:36pm
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Definitely check with a physician. It could be nothing or it could be lymphedema or something else. With only 3 nodes removed chances of lymphedema are slim but you never know.
------------- Dx: Jul/09. Age: 37. Grade: High. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. Kicked from E5103 due to Taxol reaction. Now on AC->Abraxane. Zometa (S0307). |
Posted By: unklezwifeonty
Date Posted: Aug 21 2009 at 5:38pm
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Hi TNBC_in_NS,
Wondering why your onco chose to give only CT X4 and no A. Can you please share the rationale? Hugs ------------- Dx: Jul/09. Age: 37. Grade: High. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. Kicked from E5103 due to Taxol reaction. Now on AC->Abraxane. Zometa (S0307). |
Posted By: TNBC_in_NS
Date Posted: Aug 21 2009 at 5:58pm
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Dear Unklezwifeonty:
I am not sure why my onc chose Taxotere (Docetaxel) and Cytoxan (Cyclophosphamide) only, but he is giving me Nuprogen so that my WBC don't drop as far as they did with the first round. What is the A? I will have 16 rounds of rad after chemo.
God Bless, Helen in NS ------------- Diag@57TNBC04/092.5cm Lquad 05/09 TCx4Radsx30CT03/01/10 FU03/31/10ClearBRCA- 01/2011 RTNBC BMX 06/14/2011~2013 clear |
Posted By: cg---
Date Posted: Aug 21 2009 at 6:52pm
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Dear Wondering Sisters, Adriamycin a.k.a. 'the red devil' is cardiotoxic (hard on the heart). It has historically been used for early breast cancer or its sister Epirubicin (in the FEC regimen).
I had dose dense AC + T(4 cycles of each - 2 weeks a part) supported by Neupogen to keep my counts up.
They have been doing some testing and have some rough figures suggesting that Adriamycin is effective in 8% of women with breast cancer - they could test specifically if you would be a candidate to use Adriamycin - but they don't.
It seems they have everything backwards...instead of testing and picking chemotherapy to suit the characteristics of the unique tumor the woman has - they just throw everything but the kitchen sink and hope something works....the alternative to that is doing NEOADJUVANT - chemotherapy before they remove the tumor to test effectiveness.
I had Adriamycin, left-sided mastectomy and radiation....and I am absolutely fine (except for the missing breast and lymph nodes).....do I know the chemotherapy worked - NO...I have no detected cancer 2 years later...but one never knows and that is what I call the 'cross your fingers treatment plan for breast cancer'. Not scientific...but all I had.
Love,
Connie
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Posted By: unklezwifeonty
Date Posted: Aug 21 2009 at 7:23pm
Hello CG,
What test can be done to test whether Adriamycin would work? I'm very concerned about using a cardiotoxic like Adriamycyin without having some indication of its effectiveness on my specific cancer.
Hugs! ------------- Dx: Jul/09. Age: 37. Grade: High. Size: 3cm. BRCA: -ve. Lumpectomy: Aug/09. Micromet 1/9 node. Chemo Start: Sep/09. Kicked from E5103 due to Taxol reaction. Now on AC->Abraxane. Zometa (S0307). |
cg--- wrote: