PINEHOUSE IS AN ANGEL NOW
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Forum Name: TNBC Metastasis/Recurrence Users
Forum Description: A place to discuss metastatic disease
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=4402
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Topic: PINEHOUSE IS AN ANGEL NOW
Posted By: CarynRose
Subject: PINEHOUSE IS AN ANGEL NOW
Date Posted: Aug 13 2009 at 3:14pm
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She passed away around 9pm PDT last night. I don't have any details on funeral , but will report if I hear anything. If anyone else hears something, please post. Lani was my hero, my teacher, and my mentor and I will carry her torch of education, faith, and strength for the rest of my life.
Love,
Caryn Rose ------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
Replies:
Posted By: dmwolf
Date Posted: Aug 13 2009 at 3:25pm
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That makes me really sad. Caryn, once there's an obit, could you be sure to share it with us? We'll want to honor and remember her. love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: Nancy
Date Posted: Aug 13 2009 at 5:45pm
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Dear Caryn,
I just posted your carepage entry and read about Lani. Oh Caryn, she was always here for anyone who needed encouragement, guidance and just pure love and compassion. I am so sad...
Love,
Nancy ------------- Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
Posted By: krisa
Date Posted: Aug 13 2009 at 6:34pm
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I am too. In the paper today, in anticipation of the Komen Race, inquiring minds want to know the lessons learned from having cancer. Questions like that really irritate me. read my lips! CANCER SUCKS! |
Posted By: trip2
Date Posted: Aug 14 2009 at 3:48pm
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I received an email from her husband this evening.
He said she passed away Wednesday August 12 surrounded by friends and family.
We miss you Lani.  ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: CarynRose
Date Posted: Aug 14 2009 at 4:47pm
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I got the same email from her boyfriend Paul. I asked him to let us know about funeral arrangements and an address to send condolences.
Caryn ------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
Posted By: texasgirl
Date Posted: Aug 15 2009 at 12:26pm
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I got the same e-mail. We know have another triple angel looking after us. I want to put what I put in the e-mail to Paul because Julie (Calgal) and and Lani(Pinehouse) were some of the first people on the site and helped many people.
To Paul, Julie’s family and friends Thank you so much for letting me know. It has been a couple of weeks since I have read her blog I am so sorry to hear of Lani passing. I met Lani and Julie at a Mestastic Breast Cancer at MDA a couple of years ago. We met though the Triple Negative Foundation Website and even though I was Stage 3, my last chemo was during the conference. Afterwards we went and had celebration dinner and didn’t really even talk about cancer. Lani and Julie gave me great inspiration when the doctors were not giving me much hope on a recurrence to Stage 4. They got me through the rest of my treatments and my surgery. Every time I felt sorry for myself, I thought of their courage and it put me in a better place. They also helped deal with emotions after treatment because people think that after your done your are cured everyone through everything was fine. Lani actually convinced me to take a break from cancer stuff and eventually recommended that I see a counselor. I am 1 ½ with no recurrence. I kept up with Julie and Lani and read her blog. Lani is a true hero in my mind. She never gave up hope and tried everything possible to fight this disease and never felt sorry for herself. When the insurance companies were denying her certain treatments I told her that my grandparents had a foundation and I could see if they could help with cost. But, Julie the fighter wouldn’t let the evil insurance companies get away with anything. Know that wonderful dinner with Lani and Julie will always be in my heart. Julie and Lani are pioneers for the rest of triple negatives because of the treatments they tried. I am going to make a contribution in her memory on the Triple Negative Breast Cancer Foundation and FORCE. I know these foundations were dear to her heart know that Julie’s sister has this horrible disease, we have to stop letting these beautiful young women die. I will continue to pray for all her loved ones. ------------- dx 5/11/07 (Age 41), Stage IIIC, Grade 3, 12 weekly taxol, 4 FAC, 8.5 cm, Extensive positive nodes, Masectomy 0/17 nodes, 30 Rads, Currently NED |
Posted By: Wendy2
Date Posted: Aug 17 2009 at 4:28am
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Deepest sympathy in yet another loss. We must keep fighting!
I must bring out a funny here though, in reading the posts, does Lani have a husband and a boyfriend? Good for her!! hee hee
In all seriousness, peace to Lani and her family.
Wendy ------------- dx 3/06 TN, taxotere/cytoxin x4; radiation x 40; mets. to lungs, lymph nodes 3/08 - to begin chemo 4/29/08 Abx/Avas., 9/08 Avastin maintenance, 1/09 - off meds to see if Avastin causing headaches |
Posted By: CarynRose
Date Posted: Aug 17 2009 at 8:21am
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LOL. Lani was never married. She and Paul were together since the late 90's and they lived togther in Ca. ------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |