Blessings to you, Katie

 

I do hope this is a small bump in your road, although ICU doesn't sound good. Know my thoughts are with you for a speedy recovery.

 

Healing energy is heading your way.  Rest and look fter yourself - you have helped many here and know all our prayers and well wishes will be with you (I am sure).

 

Love and hugs, Debs

 

Well Watson...ICU is where you need to be so they can keep a close eye on you...love you dear friend and my prayers are already on the way, and many  healing thoughts

 

Love and hugs,

Nancy....aka...Sherlock

So Pam, I'm so glad you're where people can help you, where you can catch your breath and get your feet back under yourself. This summer weather with all its smog makes it even tougher, I know.

 

Thanks Robin for the updates, we worry.

 

Hope you are feeling better and will be praying that you are well enough to go home very soon.

 

HUGS

Becca

 

 

 

Linda

 

Sending thoughts, hugs, prayers and hope for a speedy recovery your way. 

 

I think it is Congestive heart failure.  Did Pam get this from chemo?

 

Hugs and healing light still heading your way Pam.  Rest and recovery

Love Debs

Shelly

 

Hope the antibiotics work and you'll be feeling better soon!!

 

Big hug, Caroline

 

Rest rest rest and get strong. Maybe shut off your computer for a month or so to get back your chi.

 

Peace and Love,

Karen

 

I've had some experience with CHF myself, and I really hate to hear you're in its grip.  I so hope these antibiotics kick the infection's butt and you're taking easy breathes very soon.

 

Please be as calm and patient as possible to reduce your stress.  We miss you, but everyone wants the very best for you so we'll be patient too.  You are sooooo loved.  

 

Hugs to you Pam, and hugs also to you Robin -- take good care of my buddy.

 

Jessie  

 

I stood out on the porch and thought of Pam and the power of the storm crashing all round as it lit the sky with its majesty. I looked up and asked it to please go east, taking its beauty with it. Wind changed and off it went heading Pam's way.

 

I'm not comparing you to a storm dear Pam, well maybe I am, because your strength has always lit up my sky, but I'm letting you know there's alot of strength coming your way and it's not all in the form of lightning & thunder.

 

Know that I am sending you lots of love, peace and healing energy.  You are such an inspiration to me and many of us on this site.  Feel the strength and support from your friends here suround you.  Rest up, my dear. 

 

Much love,

Nancy Jane

 

They won't send you home without support.  Robin, grab one of those oxygen tanks and don't let go !!

 

Love you so much.  Will call over weekend.

 

Tight hugs,

Jessie

 

Get better - right now!!!   OK...  we miss you and I am sending tough love to scare the infection off (did it work?).  Healing energy is coming to you - seems abit slow though!

 

Love always - Debs

 

I just sent Robin a pm, and I agree with you 100%. If this hospital and the doctors there are not able to determine what type of infection Pam has, then it is their responsibility to refer Pam to another hospital/doctor who has the expertise to dignose her condition. Just another reason to lose what little faith I have in the medical profession. Must be their egos getting in the way of Pam's recovery.

Nancy

 

I have been told that this is an option that insurance companies have, but do not always use.  I would consider contacting Pam's oncologist and seeing if he will accept her in transfer.  He can talk with her current attending and that may work since they "speak the same language".  You can also check with the insurance company, they often would prefer that the patient is in a hospital with a higher level of care because it tends to decrease length of stay, which means they spend less money.  Anyway, try and get them to okay the move before you do it, and get the name of whoever says yes or no.  If it is no, ask to speak with a supervisor.  Let them know that you consider that she is at risk if she remains where she is.  How far is it to the other hospital?  Will she need to be transferred by ambulance, or can she go in a privately owned vehicle.  You do not want to get stuck in the middle of Nowhere, Oklahoma and have her unable to breathe.  Very scary.  I have even transported a patient to the Mayo Clinic by air ambulance, it was cheaper than a ground ambulance due to length of the trip and hourly cost of paramedics.

 

I hope this helps.  If I think of anything else, I'll let you know.  But I would contact her oncologist first, s/he would be the person who would probably help you the most with her current attending.

 

Maire

Hey I live in Norman and I can and will go pick Pam up and drive her up there totally no problem at all. Pam should have my number but just in case 405-366-7341, this really ticks me off. I havent been on hear lately but have been visiting with Pam on facebook, I didnt know she was even in the hospital though ( mbey why no response from her). We were pretty close I think the 1st two years I was dx, but just haven been in touch latley. Please call me if you need any help at all REALLY.

Please tell Pam to get better and that "I have my pasport", she will get it.

Hugs, love, and prayers to Pam

Myrna

 

Wishes and hugs heading to Pam - Cheers Debs

 

Karen

Kazza

 

     I had no idea that she had had to go,She must have had to go right after the last email she sent me.

 

     In our discussion she actually said that she thought that she might have a bad gall bladder,and that her liver enzymes were going crazy.We talked about the fact that she has been taking something that has acetaminafine in it for her arthritis for several years.(I cannot remember right now what it she said it was)But she was wondering if it could be one of the issues with her liver after they finally were talking about the effects of tylenol and the actaminafine in it.She said that she was going to dicuss this with her Dr. the next time she went in.

 

     Ladies ,any of you BC ladies that did not hear about what long term acetaminafine does to the liver and your dr. did not take the time to explain this to you when he suggested tylenol.Stop right now and find something else.The stress that your bodies have to get through is enough on the liver.

 

    I also tried to stress to Miss Pammie that if she did indeed think that there is a possibilty that she thinks that she has gall bladder problems,that she should make them run every possible test that there is to determine this.When my youngest daughter was in her 30's and she complained about her stomach the dr.'s wanted to treat her with  pills claiming she was a hypocondreat(bad spelling)Until a dr. fininally figured it out and it was removed.

 

     My son in law was in the hospital for a week before they figured out that his stomach pain was the gall bladder and by the time that it was discover a week later after admitence ,he had the beginning of gangrene.And my friends daughter suffered for almost a year simply because she had no insurance .Her gall bladder had swolen to 3 times its size and was the beginning of gangrene.Her Mother had to threaten a law suit,on them.

 

   So I was telling Miss Pammie to stay on them if that is what she thinks that her stomach pain is,but there is a possibility that she has not read that email because unbeknost to me she probably went to the hospital around that time.

 

     So Robin,We all know that you will make sure that our Miss Pammie knows how much we think of her and oh how much we love her.But as our Miss Pammie would also say,Robin ,you make sure that you take care of yourself also.If anything shoul happen to you,I do believe that our little friend,our little buddy would never be able to get over that.

 

     So sweet lady,keep us informed and tell her how we love her and miss her ,but make sure that you take care of yourself with your recent diagnosis.Lot and lots of hugggggssssss      Billie

 

http://www.ukcia.org/research/CognitiveFunctioning.html - http://www.ukcia.org/research/CognitiveFunctioning.html

 

 

http://www.marijuana-addiction.info/side-effects.htm - http://www.marijuana-addiction.info/side-effects.htm

 

 

 

 

Good links!  Anyone who has spent much time around habitual marijuana users would probably say their cognitive function was a little lacking when they made the decision to start using at that level, lol.  But 5 joints a day of the type available on the street today would keep you in a serious daze 24 hours a day!

 

As a person from California, I can tell you that many medicial marijuana users prefer alternate methods to the old fashioned "smoking" of the herb.  That's still for the stoners.  There are many alternatives.

 

Not an endorsement by any means, just saying.  :-)

 

Mary's Mom

 

Elaine

 

       It was not my intention to side track these ladies in all the good wishes and cyber hugs for you when I posted about our email on  acetiminifine and what it does to the liver.It was several years ago that I became aware of to much acetiminfine and what it could do.I used to go to a website called Tulsa Butterfly,and this lady was doing her best to notify everyone about what it would do.She had a weakened immune system to begin with,like lupus or one of the others and she was told by her dr. to take tylenol for the pain.So she did for several years and all of a sudden she was then diagnosed with liver problems also.

   

       She was heartbroken that her dr. did not take the time to explain this to her and She was trying to shout it to everyone.

 

      Can you imagine how many people take the tylenol for arthritis,tylenol for sinus ,and then tylenol for sleeping.Many other drugs have acetiminfine in them.Never once linking them together as to too much acetiminfine.And yes,people should have more sense not to do this,but when our dr.tells us to take this and yet he does not inform us as to what this can do to our liver we are in trouble.This is not uncommon and this happens to a lot of people. 

 

      Now my next question is this.If a persons liver ensymes are low and not to the point of total destruction and the person stops taking the daily acetiminfen.Can the liver repair its self?

 

    So,my dear friend ,I am so in hopes that you are beginning to feel much better and will be home soon but if not Are they still considering taking you to Tulsa? We out here want to know because we want our cyber huggggggssss   to go where ever you go.We miss you.  Billie

     

Cheryl

 

Bless her heart --- and bless your heart too Robin.  You're a wonderful sister !  I've always wanted one of those.  

 

Much love,

Jessie 

    So our sweet lady is home now.Hopefully she will get better every day,but she does not need to stop there.She needs to know(we need to know)what is causing her infection.With you living far away from her ,I can only imagine how tough that is on both of you.My sister lived about 1hr and 15 min from me,but she has moved to Dallas now and that is almost 4 1/2 hrs.from me.There is 16 months difference between the 2 of us.That is so sweet of you to share some of ya'lls growing up years.My sister and I had many many dissagreements, most of them over my wanting to wear her clothes.I was the youngest ,but I was the biggest.

     It is good that they are checking for everything that they can think of.I do not want them to find anything,but on the other hand something is causing this.And I do not understand why that hospital cannot send her home with some oxygen especially with her living so far away from a hospital.

     So sorry to hear that you are not feeling just right and surely do hope that you get to feeling much better soon.Oh and tell that sister of yours to take it easy at home and for her to get plenty of rest just in case she has to get on the road to Tulsa.I will email her and perhaps visit with you both on Facebook.Lots of Hugggggsssss   to you Robin     and take care of yourself.     Billie

I'm glad she is getting out of there but hope she follows up ( if she has to) at  a different hospital. For real, Im in Norman and if you feel there is anything I can do for her please let me know. She is a real sweetie and I do hope she can get this mees under her belt so she can get back to healing.

Myrna

 

Hope you are home and feeling well.  Although I dont want you rushing to the PC - I would love an update if anyone has one.

 

Rest well and get better.  Healing hugs heading your way

Love Debs

 

     MsBliss,I am so so sorry to hear of the loss of your friend from the accidental dose of actiminafine.Oh yes yes yes we need to all try to inform people as to what acetimifen can do to the human body,especially to the weakened immune system of our beloved sisters that have been diagnosed with BC,Actually everyone.I was having a touch of a little guilt about sharing with all what Miss Pam and I discuss in our emails,I got to thinking that perhaps she would prefer that I not do this.And then I was feeling guilty that while all of the ladies were trying to send her big possitive cyber hugs that my posting this would get them side tracked and they would forget to send her cyber huggggssss and welwishes.

 

   To you Lisa,I am so glad that you have helped me to understand a little more about actiminfine.I had no idea that even vicodine has acetiminfine in it.I was under the understanding that there was one called loratab that did indeed have acteinmifine in it but I was not aware of vicodine.Actully I had a beautiful sister in law that died a few years back from the abuse of loratab.At the time ,I had never heard of the word loratab.Her little body at the end looked just like those dolls with the great big eyes and her legs were actually seeping fluid.I had never seen anything like that and hope that I never do again.So So sad and such a waste.I am not accusing the hospitals or the dr.s of directly causing the people to take to much acetiminifine,because quite frankly there are not a whole lot of people that actually tell dr.s all of the over the counter drugs that they take.But it would only take a few minutes for the dr. that tells you to take something with acetiminifine in it to go home and make sure that you read on the pkg,any other amount of acetiminfine that you might be taking and how deadly it is. . .And I am so glad to also know that if the liver has not depleted all of its ensymes that if the causes of this is immediatly stopped it has a way of repairing its self.Am I right in this understanding?

 

   And this is for you Robin.I would email Pam to tell her this,but I am afraid that she is not able to read much on her computer.Robin,when you talk to Pam would you please explain to her that I am very concerned about her (and her liver)and if she gets the infection under control that the subject of the amount of acetiminifen that she has been taking could very well be the problem for her liver.Robin,Pam and I discuss many many different perscription meds,but very seldom do we discuss over the counter ones.When the info came out about the acetiminifine,she then told me about her liver enzymes gradually going down.And she said that she had actually taken darvocett for years for her arthridis and could that maybe be the cause of her liver enzymes doing this.and I of course said yes.Then this morning after I read the posting from Lisa telling that Vicoden also contained acetiminifien ,my dear friend had also commented to me that she still had some stonger pain pills (stronger than the ultram that we both take)Now I do not know if she maybe took some of these stronger ones because of the pain that she was in.I just do not know.But if this advice on tv had not come out like it did about acetiminfen(thank g-d) your sister and our dear dear friend would still be doing what she has always done.Never putting 2 and 2 together.So please ask Pam not to be upset with me discussing our emails.Everyone needs to know about taking acetiminifien.So if you don't mind Robin,would you have Coy look at everything that Our Miss Pam has in her medicine cabinet and if it does not tell the drugs that is in it for him to go to the computer and find out if it has acetiminifen in it.Like I said ,if she gets to feeling better,she again will continue on with the same way that she has been used to  taking medicines,and not even knowing what she is doing to her body.

 

    I know this is a long posting but this is about our beautiful friend and sister Pam(trip2)and we are just trying to find answers.Lots of Huggggggssssss to all of you beautiful ladies   Billie

 

     You are so right.My sisters path report is Nottingham Histologic Score 9 and Grade III.I will need to fix that.

 

     I totally agree.Occasional use of acetimifin is not a threat.

 

     Thanks and lots of Hugggggssssss    Billie

 

     So Happy to see that our dear dear friend Miss Pam(trip2)is back.I do not know if she is back to stay,but hopefully she can give us some good news.

 

      Love ya Miss Pamm and lots and lots of Huggggssssss    Billie

Having the support from this forum means so much and gives me much comfort as I have always looked at all of you as family.

 

Yes I am home on antibiotics. Was told I had 3 infections, hope they have answers next Monday.  Either way I plan on getting a referral to a Infectious Disease doc in Tulsa for peace of mind.  My doc said she would be happy to do that for me.  I'm a little nervous being home and not knowing what is going on in my body.  Not really feeling very well.

They did drain fluid from me because of the CHF but had to stop because my bp was going too low, that was disappointing but it helped some.

My doc is also looking at possible immune diseases as mine is not right.

I don't know, the whole thing very confusing.  Don't know if I need to see a doc who works with your immune system or not, I'm sort of lost right now.

 

I can't believe I sat in that place for a week on antibiotics accomplishing very little really.  Monday a social service lady and patient advocate came to my room wanting to know why I wanted out.  Ha, so then they explain their "rules", insurance company rules, finally I said "wait a minute, what about the patient here", think it went over their heads.  Too bad the patient who is footing the bill doesn't seem to have much standing.  My doc came back from being out of town, apologized and said she would release me as an outpatient.

 

My little sister, Robin is such a precious person in my life, she is a jewel. 
She just doesn't always listen to me.  It was so thoughtful of her to post here, she knows what all of you mean to me.

 

Please keep her in your prayers as she has Leukemia and is having a hard time right now.

 

Love you all,

 

3 infections !!!  Tell me more, are these lung infections?  flu-type infections?  Bless your heart.  I would think the infectious disease doc would be a good place to start.  Seems like identifying the infections would help determine the treatment and the cause(s) of your getting them.  Maybe an immune doc is also needed.  

 

Don't you just want to get your GP, an internal med guy, your onc, an infectious disease doc, and an immunologist in a room and say, "I've enjoyed this long enough, now put your heads together and FIGURE THIS OUT !"

 

I hate you're going thru this, sweet buddy.

 

Hugs and more hugs,

Jessie