CalGal (Julie)
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Topic: CalGal (Julie)
Posted By: dmwolf
Subject: CalGal (Julie)
Date Posted: Jul 06 2009 at 5:49pm
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An announcement from a rep on behalf of the family:
After
a 4 year battle with breast cancer, I am sorry to relate that Julie Ann
(Cook) Carpenter died on Friday, February 20, 2009 in her Los Angeles
home, peacefully and surrounded by family. Her courage and grace
during that battle were an inspiration to all who knew her.
A
memorial service will be held Saturday, March 7, 2009 at 10:00 a.m. at
Bethel Lutheran Church, 5750 W. Olympic Blvd. in Los Angeles,
California. A reception will follow. (Parking is often restricted on
the side streets in the Miracle Mile area, so please be careful.)
The
family asks that, in lieu of flowers, donations be made to the Julie
Ann Carpenter Memorial Fund, created to honor her memory and assist
women who are searching for new treatment options. For more
information, please visit http://www.julieanncarpenter.org/ - - www.JulieAnnCarpenter.org or call (213) 399-2161.
Born
in San Francisco in August, 1962 to Roy Cook and the late Ann Cook,
Julie grew up in Saratoga, California. She graduated from the
University of California at Santa Cruz with a Bachelors Degree, and
from the University of Southern California with a Master of Arts in
Urban Planning. She worked for the County of Los Angeles for over
twenty years, mostly with the Department of Beaches and Harbors. She
also served as President of the Miracle Mile Residential Association
from 1999 to 2001.
She
is survived by her husband, Tristram; her father Roy and her stepmother
Ana of Saratoga; her brother Greg and sister-in-law Jean, and their
children Landon and Gemma, of Oakland. She will always be loved and
remembered by her family, and will be greatly missed. She will be
buried in Saratoga, California with a memorial service in Los Angeles
on March 7.
She
was a determined breast cancer advocate, researching and promoting the
latest medical information on the most advanced treatments available to
breast cancer patients and networking with many physicians and patients
through multiple breast cancer organizations and forums. She
participated in the UCLA metastatic cancer support group, November 2006
Metastatic Breast Cancer Network Conference, May 2007 Revlon Run/Walk,
June 2007 AWOL retreat as well as many other organizations and events.
Julie was a fierce fighter and she will be greatly missed. Fond memories of her will always be with us.
With deepest sorrow,
Dikla
Dikla Benzeevi
Breast Cancer Patient Advocate
Los Angeles, CA
818-970-9446
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Replies:
Posted By: dmwolf
Date Posted: Jul 06 2009 at 6:09pm
member_profile.asp?PF=75&FID=5 - PineHouse
Senior Member
Joined: 05 Jul 2007
Location: Los Angeles
Online Status: Offline
Posts: 191
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new_reply_form.asp?M=Q&PID=23689&PN=3&TR=24"> new_reply_form.asp?PID=23689&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23689#23689"> Topic: Sharing sad news-CalGal
Posted: 20 Feb 2009 at 6:12pm |
With a deepest sorrow, I’m sharing sad news with you that CalGal passed away last night, with her husband and other family members by her side. She was a fierceful fighter and may the fond memory of her always be with us.
For those of you in California, plans for services have not been finalized yet. Her husband may come to this board and post some details.
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Stage IV lung-06/06 brain-12/08 BRCA1 TNBC
Avastin+Taxol,Carboplatin,PARP-Inhibitor,Navelbine+Xeloda,Avastin+Ixempra,Doxil+Cytoxan
Currently Abraxane+Gemzar (3/09)
http://pinehouse.wordpress.com/
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member_profile.asp?PF=130&FID=5 - Nancy
Senior Member
Joined: 23 Jul 2007
Location: Altoona, PA
Online Status: Offline
Posts: 3047
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new_reply_form.asp?M=Q&PID=23691&PN=3&TR=24"> new_reply_form.asp?PID=23691&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23691#23691"> Posted: 20 Feb 2009 at 6:48pm |
Oh Pinehouse,
Thank you so much for telling us...I had such a beautiful card
from her at Christmas, with pictures of her and her husband in Ireland.
She was such a beautiful person...so kind, and was the first
person to reply to me when I joined the site. Oh Pinehouse, she will be
missed so much. I do have her address, and do you think her husband
would object to me posting it?
Much love, as I know you will miss her terribly,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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member_profile.asp?PF=9&FID=5 - trip2
Senior Member
Joined: 03 Jun 2007
Location: United States
Online Status: Offline
Posts: 5392
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new_reply_form.asp?M=Q&PID=23693&PN=3&TR=24"> new_reply_form.asp?PID=23693&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23693#23693"> Posted: 20 Feb 2009 at 7:11pm |
We've lost another wonderful young woman who helped so many people over the last few years including me.
I have her picture here by my computer and just today I was
looking at her and thinking I need to check in with her. So
heartbreaking to loose such a precious young lady. This is so very sad
to hear.
My prayers and blessings to her friends and family.  |
Pam 
Stage 2 gr 3 dx 12/02
Stage 1 gr 3 dx 2/07
BRCA 1+
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member_profile.asp?PF=1222&FID=5 - Lauriejn
Senior Member
Joined: 18 Oct 2008
Location: United States
Online Status: Offline
Posts: 178
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damn
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Dx Oct2008- IDC Gr 3/Stage 3C
Mastectomy 11/7/08- 6/21 nodes
Bone Mets dx Dec 2008-Stage 4
Albany, NY BRCA neg
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member_profile.asp?PF=153&FID=5 - CarynRose
Senior Member
Joined: 04 Aug 2007
Location: Robbinsville, NJ, USA
Online Status: Offline
Posts: 786
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new_reply_form.asp?M=Q&PID=23695&PN=3&TR=24"> new_reply_form.asp?PID=23695&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23695#23695"> Posted: 20 Feb 2009 at 7:12pm |
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I just can't bear this.
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Orig dx 6/03 - St.2a, IDC
gr.3,0 nodes, TNBC/BRCA1+
7/07 St 4 mets to lymph node and lungs. PACA/Rads NED 11/07-10/08
Leptomeningeal mets 10/08-Intrathecal MTX/WBR & spine rads. 3/09-CSF benign
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member_profile.asp?PF=127&FID=5 - texasgirl
Groupie
Joined: 23 Jul 2007
Location: United States
Online Status: Offline
Posts: 40
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new_reply_form.asp?M=Q&PID=23698&PN=3&TR=24"> new_reply_form.asp?PID=23698&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23698#23698"> Posted: 20 Feb 2009 at 7:24pm |
Hi Pinehouse,,
Thanks for letting us know. My
deepest sympathy goes out to her friends and family. I had not been on
the site for awhile and sent her an e-mail after I found out about it
traveled to her brain. I was privileged to have met with you both at the Mets conference a couple of years ago. She
definitely was a fighter and from her e-mails it sounds like the last
couple of years she made the most of her life by traveling and spending
time with her friends and family. It does give
me some peace to know that she will be with her mother that also lost
her life way too early to this horrible disease.
I know this a big loss for you since you were so close. Both of you have been a wonderful inspiration to me. Know that both of you have been pioneers’ to all the triple negative and BRCA community by going through so many clinical trials and different combination of chemo’s. I think I have her address, but if you can reply or PM me with it along with a link to her obituary.
Cindy
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dx 5/11/07 (Age 41), Stage IIIC, Grade 3, 12 weekly taxol, 4 FAC, 8.5
cm, Extensive positive nodes, Masectomy 0/17 nodes, 30 Rads, Currently
NED
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member_profile.asp?PF=419&FID=5 - sunbearz
Senior Member
Joined: 02 Jan 2008
Online Status: Offline
Posts: 283
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My deepest sympathy.We learn and fight for those before us and after
us.Who ever we meet and touch during the journey strenghthens the link
we all share.
Jill
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Dx 1998 mast.Bone mets 2003
ac/xeloda,zometa,taxotere,,doxcil,rads to hip
triple neg brca-
2008 mets supraclav lym rads-gone
Gemsar
Abraxine
cytox
2008 Apr-gemsar/taxol combo
Taxotere
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member_profile.asp?PF=1515&FID=5 - dmwolf
Senior Member
Joined: 22 Jan 2009
Location: Berkeley, CA
Online Status: Online
Posts: 325
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I'm so sad to hear this. From her posts I could tell how full of life and love she was. f**k this disease.
With love and sorrow,
Denise
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DX 2/08 stg II IDC; gr2,no nodes. Neoadjuvant chemo, first ACx2 (didn't
work) then CarboTaxotere x 6 (much better). Lumpectomy, Rads x 36 until
11/18/08; Clodronate.
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member_profile.asp?PF=79&FID=5 - Lisa L
Groupie
Joined: 06 Jul 2007
Location: United States
Online Status: Offline
Posts: 99
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Rest in peace CalGal. We will miss you.
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Dx 8/05 age 43
mast & lat flap 10/05
Triple neg
BRCA neg
IDC 4.5cm rt br
0/1 sen node
6 A/C 5 Taxol, 25 rads 11/05-6/06
Central Illinois
Currently NED
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member_profile.asp?PF=574&FID=5 - nosurrender
Newbie
Joined: 13 Mar 2008
Location: United States
Online Status: Offline
Posts: 39
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This is such sad news. I never knew anyone like Julie. She was an amazing woman and so very dear.
My heart is breaking. We have had so many losses lately.
May God bless her and give comfort to her dear husband, and warm hugs to all of you as well.
Sadly,
Gina
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www.nosurrenderbreastcancerhelp.com
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Posted By: dmwolf
Date Posted: Jul 06 2009 at 6:10pm
member_profile.asp?PF=48&FID=5 - Bunnysmama
Senior Member
Joined: 19 Jun 2007
Location: Newburyport, MA
Online Status: Offline
Posts: 224
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Thank you for sharing the news, although I wish this didn't have to
be. She was a fighter and a beautiful person. She was also young and
should have had so much more life to live. My heart breaks for her and
her family. May she rest in peace.
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Dx 11/06 @ age 37
IDC
Stage I, Grade 3
BRCA2+
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member_profile.asp?PF=22&FID=5 - CalGal
Senior Member
Joined: 04 Jun 2007
Location: United States
Online Status: Offline
Posts: 159
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new_reply_form.asp?M=Q&PID=23724&PN=3&TR=24"> new_reply_form.asp?PID=23724&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23724#23724"> Posted: 20 Feb 2009 at 11:55pm |
[This is CalGal's husband]
Hello all, Thanks, everyone, for your prayers and thoughts for
Julie. She'd be proud and honored to know she helped so many of you
fight this terrible disease. There will be a service on Friday,
February 27 in Saratoga, California. Julie grew up there and will be
buried next to her beloved Mom, whose life was also cut short by breast
cancer. There will also be a service in Los Angeles, probably the following weekend. I'll post some details when it's more finalized. For those of you who may want to attend the Saratoga service, please email or PM me and I'll give you details. Pictures tell the story better. Here's one of me and my Angel: 
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BRCA1
9/04 Bi-lat lump, clear SNB
38x Rad'tn
12/05 Recurr bc & mets to liver
06 the year of chemo
NED for 13 mos until 7/07
Lung met. PARP trial until ...
2/08 Liver mets again
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member_profile.asp?PF=130&FID=5 - Nancy
Senior Member
Joined: 23 Jul 2007
Location: Altoona, PA
Online Status: Offline
Posts: 3047
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new_reply_form.asp?M=Q&PID=23725&PN=3&TR=24"> new_reply_form.asp?PID=23725&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23725#23725"> Posted: 21 Feb 2009 at 12:14am |
Dear Tris,
I am siiting here crying as I type....and I cannot express what I
am feeling to you. Julie was always so sweet and kind to everyone here
on the site....and I know she was that way to all who knew and loved
her.
She will be greatly missed....but never forgotten.
We will speak of her often, and will tell the new women of her fight
with this disease. Thank you so very much for writing to us....and may
you now find peace knowing that she does not have to fight any longer.
She is at peace.
Much love to you and her family
Nancy....Lori's mom
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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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member_profile.asp?PF=1545&FID=5 - josie33
Groupie
Joined: 30 Jan 2009
Location: New Jersey
Online Status: Offline
Posts: 81
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Please accept my deepest condolences on the passing of your
extraordinarily brave wife, whom I never met but feel I knew in a small
but profound way through reading her posts on this forum. Although i
know her loss is painful and incomprehensible, I hope you take some
solace in the fact that she is no longer suffering. My prayers and
best wishes to you and your family. As Nancy said, she will not be
forgotten.
Josie (sister of Lisa, DX'd with TNBC in Nov.2008)
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member_profile.asp?PF=779&FID=5 - krisa
Senior Member
Joined: 21 May 2008
Location: Portland, OR
Online Status: Offline
Posts: 649
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new_reply_form.asp?M=Q&PID=23764&PN=3&TR=24"> new_reply_form.asp?PID=23764&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23764#23764"> Posted: 21 Feb 2009 at 3:16pm |
Thank you so much for sharing that beautiful picture and for keeping us informed. Sending prayers to you and your family.
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lump12-07 chemo Jan-May AC/T DD
30 Rads 2.2 cm, n/node, grade 3, stage 2
Diagnosed granulosa ovarian cancer 2/09
"May the lord...give you His peace no matter what happens."
II Thessalonians 3:16 N
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member_profile.asp?PF=1248&FID=5 - Barb-42
Groupie
Joined: 26 Oct 2008
Location: Ohio
Online Status: Offline
Posts: 50
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I am very sorry for your loss.
My prayers are with you and your family.
Barb
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dx-1/2/08 @ 42 years old
lumpectomy w/clean margins/ 1/14/08- no nodes/stage 1/gr.3
1.5 CM IDC
chemo(AC-3 every 2 weeks) (Taxol weekly 12) 2/21/08-7/17/08
Rads-33 (including 8 boost)8/6/08-9/22/08
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member_profile.asp?PF=620&FID=5 - billie
Senior Member
Joined: 30 Mar 2008
Location: United States
Online Status: Offline
Posts: 311
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I sit here trying to type through eyes filled with
tears,and a heart that is weighing so heavy with sorrow that it fills
as if it could at any moment break into.
Billie for my beautiful sister Betty
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Billie posting for sis Betty/67/caucasion female/diagnosed
2-27-08/stg3/7mm/invasive ductal carcinoma/trip neg/clear margins/node
neg/4 X's taxotere-cytoxan/36 rads/7-08 PET/CT double image/no cancer
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member_profile.asp?PF=361&FID=5 - BrendaF
Senior Member
Joined: 07 Dec 2007
Location: United States
Online Status: Offline
Posts: 352
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new_reply_form.asp?M=Q&PID=23776&PN=3&TR=24"> new_reply_form.asp?PID=23776&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23776#23776"> Posted: 22 Feb 2009 at 9:03am |
Tris, I am so sorry. I have been worried since our Julie had such a
hard time at the holidays - then disappeared from the boards. I
dreamed of her over and over last night.
She was in such a quandary last fall over whether or not to take
the trip to Ireland. I hope you both were glad that you went and that
you don't have any regrets.
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Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
hilar node progression Nov 08.
1 brain met, G/K 1/09, bone mets 4/09 rads
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member_profile.asp?PF=1355&FID=5 - Kathleen
Groupie
Joined: 02 Dec 2008
Location: Eden Prairie, MN
Online Status: Offline
Posts: 47
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To CalGal's family,
I too am very sad to hear of your loss. She was and will continue
to be an inspiration to many on this site. I will keep your family in
my thoughts and prayers.
Kathleen
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Yours Online, Kathleen
12/99 bc initial dx-stage 1, Nottingham-tenovus cells - bilateral mast.
6/08 TN cells, only in lungs
Treatments: 6/08-5/09 Taxol & Carboplatin. 5/09+ Xeloda.
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member_profile.asp?PF=650&FID=5 - Wendy2
Senior Member
Joined: 10 Apr 2008
Location: United States
Online Status: Offline
Posts: 177
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new_reply_form.asp?M=Q&PID=23975&PN=3&TR=24"> new_reply_form.asp?PID=23975&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23975#23975"> Posted: 25 Feb 2009 at 8:42am |
CalGal's family;
I haven't been on here in a week or so. I am so very sad to hear
this news and shocked. She and I connected too, as she did with many of
us. Thank you for sharing her with us and for sending us a beautiful
photo. Thought and prayers are with you.
Very sincerely,
Wendy
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dx 3/06 TN, taxotere/cytoxin x4; radiation x 40; mets. to lungs, lymph
nodes 3/08 - to begin chemo 4/29/08 Abx/Avas., 9/08 Avastin
maintenance, 1/09 - off meds to see if Avastin causing headaches |
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Posted By: dmwolf
Date Posted: Jul 06 2009 at 6:11pm
Senior Member
Joined: 23 Jul 2007
Location: Altoona, PA
Online Status: Offline
Posts: 3047
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new_reply_form.asp?M=Q&PID=23990&PN=3&TR=24"> new_reply_form.asp?PID=23990&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=23990#23990"> Posted: 25 Feb 2009 at 1:09pm |
Pinehouse,
Thank you so much for posting this. Julie was the same age as our
Lori. It is just so wonderful to read that her family has reached
out already to all the women who are searching for new treatment
options.
Again,
Thank you,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008
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member_profile.asp?PF=1052&FID=5 - kikidan
Newbie
Joined: 18 Aug 2008
Location: United States
Online Status: Offline
Posts: 28
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To CalGal's Family,
Please accept my deepest sympathy. I am sorry to hear that Julie's battle is over.
Sincerely........Kiki
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member_profile.asp?PF=1650&FID=5 - cynbatt
Newbie
Joined: 25 Feb 2009
Location: United States
Online Status: Offline
Posts: 17
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new_reply_form.asp?M=Q&PID=24432&PN=3&TR=24"> new_reply_form.asp?PID=24432&PN=3&TR=24"> forum_posts.asp?TID=2933&PID=24432#24432"> Posted: 04 Mar 2009 at 10:15am |
I
feel your pain and hope that you can find the strength to get through
this time. You photo was beautiful, thanks for sending it!
We always think of those who meant so much to us. They are special in our hearts forever.
With sadness,
Cindy
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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.
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Posted By: SagePatientAdvocates
Date Posted: Jul 07 2009 at 7:43am
Dear all,
I first met Julie on a BRCA message board several years ago. I made a suggestion to her in a post and gave her my email and we corresponded off the board and then about six months later I met her about an hour before a support dinner we were both going to. We walked around Westwood and I can still vividly remember what we talked about and the very strong impression she left on me that is still in my heart.
She was a marvelous, caring woman. Very bright and very committed to helping others despite her own agonizing battle. I met her husband, Tris, at dinner that night. A lovely man.
Going to her funeral some months ago was a profoundly sad experience for me but it was very uplifting as well. Different women spoke so beautifully about who Julie was, the work she did and the work that remains to be done. She is part of the reason I am an advocate and I want to thank her for that.
Rest in peace, dear Julie.
with fond memories and deep respect for what she did for others.
Steve
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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