Welcome New Members - New to the site

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New to the site

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Welcome New Members
Forum Description: A place to introduce yourself to our community
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=3877
Printed Date: Mar 26 2026 at 11:25pm
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Topic: New to the site

Posted By: 1942lucy
Subject: New to the site
Date Posted: Jun 05 2009 at 8:23am

I'm new to this site, just found it last night --I was diagnosed in January 05 with Stage I tnbc, no lymph node involvement small 1.7 tumor -- had lumpectomy AC and radiation Recurrence in Jan 07 --similar tumor in exactly the same site - middle of the rad field, so double mastectomy and Taxol--now another recurrence Feb 09 with tumor in the shoulder area and spot on PT scan on the lung which can't be biopsied because of location - now they say Stage 4--Surgery to remove shoulder tumor and now on Taxol/Avastin combination -will redo PT scan end of July --hopefully I'll find a way to feel a bit connected to others with this dread disease.

1942lucy

Replies:

Posted By: dmwolf
Date Posted: Jun 05 2009 at 10:27am

Hi, Lucy. Sorry your most recent diagnosis has driven you to this site, but welcome - we're glad you're here. Come visit us in the metastatic/recurrence section of the site. You'll find a lot of support of every kind.
Love,
Denise

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DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10.

Posted By: outnumbered
Date Posted: Jun 05 2009 at 10:39am

Hi Lucy

Sorry you have cause to be here and sorry for your newest dx. Look around the site, you will find so much info and so much support. This place has really saved my sanity.

Best wishes and hugs!!!!

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~Sara

DX @ age 40 6/24/08 Stage 1 Grade 3 BRCA1+ 187delAG

BMX (nipple-areola-sparing) 8/5/08

Redo BMX (remove nipple and areola) w/ Lat Flap 7/6/09

BSO 9/3/09

NED since 08/05/2008

Posted By: trip2
Date Posted: Jun 06 2009 at 12:39pm

Hello Lucy,

First of all I would like to say welcome. I hope you find comfort and support here, the forum is filled with wonderful members who understand what it is like to deal with this disease.

As Denise pointed out there is a mets/recurrence section to the forum where you may feel more comfortable but we welcome your comments werever you choose to make them.

With time you will see the kindness that radiates from the hearts of the wonderful people who come here to talk about anything. How we are doing in treatment, we have a picture of a new grandbaby, maybe a vent maybe a joke, all are welcome.

If there is anything we can do to help you just give us a yell.

We have several long time survivors who peak in now and then to remind us of their stories and how one can survive and move on with your life.

An old friend Jill just posted in the mets forum, 12 years and she is beginning a new treatment.

Best wishes to you and just jump in when you are comfortable.

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Stage 2 2003
Stage 1 2007
BRCA 1+

Posted By: Loricarol
Date Posted: Jun 06 2009 at 1:33pm

Lucy

Can you have a surgery to remove the spot on your lung? I have a 4mm spot too that they called a benign pulmonary nodule. I found this before my BC DX. There has been no change in its size over 8 months. But i was originally offered to have it removed through cardio thoracic surgery just to be sure it wasnt CA. Mine too was not in a location that could be biopsied and too small at 4mm. BUT if i see any change in it now in light of the BC DX i plan to ask them to surgically remove that spot via a lobectomy or VATS procedure. Hopefully you can do the same.
Lung spots can be removed why leave it there?
God Bless you!
Lori

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DX 4/30/2009 IDC, stage 1 ,grade 3,2 tumors,node negative,clear margins ,BRCA negative left breast mastetcomy, 4 cycles of Adramycin and Cytoxan 12 weekly treatments of Taxol start 8/12. No rads.

Posted By: 1942lucy
Date Posted: Jun 06 2009 at 2:58pm

Thanks Lori -- They say it is in the lining of the lung --plan to do a PT scan near the end of July to see if the Taxol/Avastin has had an effect on it. I'm having to be off the Avastin portion for 6 weeks while they put a port in since none of my veins will cooperate anymore with the chemo. For now, I wait. The radiologist says it's not possible to get to it for biopsy.

Posted By: Loricarol
Date Posted: Jun 06 2009 at 3:59pm

Lucy
I will keep you in my prayers. I just had a port put in. So far it hurts me i hope that yours is more successful and with less pain. Im just beginning this journey with chemo therapy for the first time June 17th, Avastin what is iy like? Im supposed to be a part of a clinical trial of Avastin. Just wandering if side effects are bad on it?
God Bless
Lori

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DX 4/30/2009 IDC, stage 1 ,grade 3,2 tumors,node negative,clear margins ,BRCA negative left breast mastetcomy, 4 cycles of Adramycin and Cytoxan 12 weekly treatments of Taxol start 8/12. No rads.

Posted By: trip2
Date Posted: Jun 06 2009 at 4:32pm

Loricarol here is a link for you.

http://www.cancer.gov/cancertopics/druginfo/bevacizumab - http://www.cancer.gov/cancertopics/druginfo/bevacizumab

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Stage 2 2003
Stage 1 2007
BRCA 1+

Posted By: Loricarol
Date Posted: Jun 06 2009 at 5:06pm

Pam

Thanks again for the wonderful link to the info on Avastin!
Lori

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DX 4/30/2009 IDC, stage 1 ,grade 3,2 tumors,node negative,clear margins ,BRCA negative left breast mastetcomy, 4 cycles of Adramycin and Cytoxan 12 weekly treatments of Taxol start 8/12. No rads.

Posted By: 1942lucy
Date Posted: Jun 06 2009 at 5:57pm

Very limited side effects from Avastin -- my vision has actually improved just a bit My port problem with the Avastin is that it delays or impedes healing so they recommend 28 days off of it before any surgery and then another 28 days before you go back on it.