Archived Topics - Cancer of Unknown Primary and TNBC diagnosis

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Cancer of Unknown Primary and TNBC diagnosis

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Forum Name: Archived Topics
Forum Description: Archived Topics
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=3709
Printed Date: Mar 26 2026 at 11:37pm
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Topic: Cancer of Unknown Primary and TNBC diagnosis

Posted By: CynthiaW
Subject: Cancer of Unknown Primary and TNBC diagnosis
Date Posted: May 19 2009 at 6:10am

Dear Everyone

Newly diagnosed.....as TBNC and they cannot find anything in my breasts. Two lymph nodes involved and small tumor removed from my shoulder with poorly differeniated cells with no receptors....hence the tbnc diagnosis. I am scared of both CUP and TBNC.......all tests showed nothing else....anybody ever heard of both together? Help...feeling lost........

Replies:

Posted By: Nancy
Date Posted: May 19 2009 at 6:27am

Cynthia,

We just had a woman post this within the last week. CUP and TNBC, and a tumor in her shoulder. I will do a search and give you her user name. I just want to welcome you to the site, and tell you that there is a wealth of informtion here, and that we will all be here for you every day. I will now send you a private message with my email address so that I can send all the info that I send to the new members.

Many hugs,

Nancy

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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008

Posted By: Nancy
Date Posted: May 19 2009 at 6:33am

Cynthia,

The other woman with the same dx as yours is....cwells1023. I will send her a private message telling her of your post.

Many hugs,

Nancy

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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008

Posted By: trip2
Date Posted: May 19 2009 at 7:55am

Hello Cynthia, I'd like to give you a warm welcome to our forum.

Feel free to ask any questions or talk, vent, cry. We are always here.

-------------
Stage 2 2003
Stage 1 2007
BRCA 1+

Posted By: Nancy
Date Posted: May 19 2009 at 1:23pm

We now realize that Cynthia and cwells1023 are one in the same.

Bless your heart Cynthia, as Lori could well identify as to the first 5-6 week after being dx, that she too remembers very little. We are here for you, and whatever you need...just ask!

hugs,

Nancy

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Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008

Posted By: winnie
Date Posted: May 19 2009 at 11:49pm

Hi Cynthia, my aunt had bone cancer 20 years ago. They never found the primary cancer and believed it originated as breast cancer. In those days there was no way of determining whether it was hormone positive, it has always remained a mystery to us where it originated. Mysteries like that can be very frustrating.

I'll be thinking of you, it's a very frightening time, I hope you have the best of care during your treatment.