We need to get the message out for all triple negs.

I'd like to hear more of what everyone has to say whether they think it's fair or not.

 

Here's my opinion:

 

To me,  every person with cancer counts.

Doing a survey on a majority is really ignoring the rest of us who are not the majority.

Doing this kind of survey is like doing a survey on diabetics for Only the people who are of a certain race.

How can researchers possibly get accurate results.  The research has to be geared to everyone. 

If the survey is only being done on African Americans ( even though they are the majority )   what is that going to prove ??

However,  if they do a survey on Everyone who is triple negative regardless of their race,   then they will have a Complete picture of what is a common denominator amongst all of us.

If it's only done on black women,  then how would that show what other races have in common with them ??

 

Shouldn't the goal of researchers be to find, help, and save Anyone who has cancer -  and in this case  triple negative components ????

 

Or  are the researchers Only looking to find what will be beneficial to a particular race ??

 

Have they ever done a study on Only white women who are triple negative to show why they are the minority ????

 

If the majority seems to be important   -  then why wouldn't the minority be equally as important ??   

 

Aren't we all in the same situation ??

 

Yes,  certain diseases are more common in different races -  so does that mean that the other people who have it -  shouldn't be part of the same study ??

 

As far as I can figure -  there is No way a study can be accurate if the study starts off being limited  -   and this sounds like what this study will be.

 

They already know that it is more common in African Americans -  so why not Now study -  why it is less common in other races ??

 

That's just what I think and I hope no one is offended.

 

 

 

 

 

 

Now I'm thinking that Any "publicity"  for us  is better than none at all.

 

Thank you for addressing both sides of the coin.

 

 

I am by the way 58, white middle class and triple negative. Ihave found it really hard to raise the profile of tripl neg. disaese here in the UK..no one wants a 'negative' story.

 

 

Jane

 

And..I am a white younger person....

 

 

Kristina

 

We hope when you have a minute you'll introduce yourself and tell

us a bit about yourself.  Also would you please vote in our polls?

We are trying to gather up some information on triple negs from our

community.

Best wishes

 

 

Many breast cancer activists in the US do now recognise that there are worrying differences in the diagnosis, treatment and outcomes of breast cancer for different minority ethnic groups including women of African American origin. There were several papers about this issue at the National Breast Cancer Coalition (NBBC) annual training conference in Washington this year. The reasons for these differences are multi factorial and complex, but they must be explored, and not swept under the table by pretending either that women who get breast cancer are all the 'same' or that breast cancer itself as it affects different groups is the 'same'  In the UK there are worrying differences between survival rates among working class women on the one hand and middle class women on the other. Again, complex reasons for these differences, but this does not mean we should ignore race and class...or get defensive..rather we need to be critically aware of the impact which social divisons have on the progress of breast cancer (and other diseases.)

 

As I said in an earlier post I welcome Redbrook magasine seeking to write an article about African American womens' experience of breast cancer and hope that a member among this community will be able to do the interview. If not, and this small community is in fact all white...then this is in itself a cause for concern.

 

 

These issues matter to us all.

 

 

Jane

 

Would you please go to our welcome new member section and tell us about yourself and possibly vote in our polls?

I'm so sorry you've been diagnosed with breast cancer, what kind of bc and what chemo are you just starting?  Your Onc or Onc nurse should be able to give you an idea on when  or even if you will loose your hair.  Some chemos do not cause hair loss.

 

This foundation is going to be a great starting point for us to gather and get something going, we can all work together to gather information among us, spread the word to our friends who are triple neg and do what we can to help get the message out that we need better treatments.

 

Good luck to you and hope to hear from you soon,

 

I am fair, white and 53.  I want to do an article on titled...

 

Travesty of Care.  Breast Cancer in Ontario.

 

The results were just released July 19th regarding the low-fat diet which I have been following along with all the fruits, vegetables....... the women in this group gained weight over the other group eating a regular diet and there was no difference in survival at less than 2/10th of a percent.  I was really disappointed.

 

I am really sorry that you have been diagnosed with breast cancer, that's really tough, but we are a great group of ladies if I may say so and we're here for you anytime you have thoughts or questions.

 

I see you've just started your chemo treatments so if anyone can help w/questions we'd be happy to.

 

I had ACT 4 yrs ago every 3 weeks but they didn't have the additional meds to help you like they do now.  I am currently on Taxotere every 3 weeks and happy to have the Neulasta, it really helps.

 

Also they have better nausea meds so hopefully your treatment time will go smoothly as possible.

 

We hope when you have time you'll vote in our polls.  We're trying to gather information here thru our members to get an idea of what we represent.  This new foundation is thrilling!