Today....
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Forum Name: TNBC Metastasis/Recurrence Users
Forum Description: A place to discuss metastatic disease
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=3038
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Topic: Today....
Posted By: Joan2844
Subject: Today....
Date Posted: Mar 05 2009 at 10:38am
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I have a Facebook account, and it has a cute little application where
you can write 1-2 sentences about you -- what you've done today, where
you are, etc. So, I decided that we all need a little inspiration from each other, and I've decided to start a "Today...." thread. ALL I want on this thread are simple, brief statements -- whatever you have done or experienced today that is worth sharing. I'll start. You all continue! 
------------- 9/06 Stage2B. Pos Nodes; Neg BRAC; TAC/Lumpectomy/Rads/Xeloda. 4/08 Local Recurrence; Mast w/ Latissimus Flap;Taxol/Gemzar/Carbo. Zometa. NED since May 2008 :-) www.wow-matt14.blogspot.com |
Replies:
Posted By: Joan2844
Date Posted: Mar 05 2009 at 10:39am
Today.... I spent an hour in my basement -- boxed up three boxes for
Salvation Army and had my boys haul them to the van. Sad thing, you
can't even tell I was down there! Feels good to get a little bit
cleaned up and out of the house (cleansing, you know!), but after 2+
years of cancer treatment, there is still more to GO! 
------------- 9/06 Stage2B. Pos Nodes; Neg BRAC; TAC/Lumpectomy/Rads/Xeloda. 4/08 Local Recurrence; Mast w/ Latissimus Flap;Taxol/Gemzar/Carbo. Zometa. NED since May 2008 :-) www.wow-matt14.blogspot.com |
Posted By: cg---
Date Posted: Mar 05 2009 at 1:31pm
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Thank you for deciding we needed inspiration. I had hoped we were doing that already for each women who finds her way here. Please tell me what we are supposed to be inspired to do.
There are possibly many women going through treatment who feel guilty enough because they are too sick to get up from bed, and single mothers working full-time to keep healthcare benefits, trying to maintain some normalcy for their children - spring cleaning a basement may not be too inspirational for someone barely managing to make it through a day before collapsing.
Connie
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Posted By: CarynRose
Date Posted: Mar 05 2009 at 1:45pm
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Well, yesterday was cooler than today, so I'll tell you about yesterday. I spent about 5 minutes alone with Donny Osmond after his show. Got to tell him how much he has inspired me and thanked him. Took pictures and really had a good time. Love, ------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
Posted By: krisa
Date Posted: Mar 05 2009 at 1:56pm
| my oprah exercise clothes showed up today and they fit! i am very pleased. i checked my aero garden and it is growing without much interference from me. |
Posted By: myjourney
Date Posted: Mar 05 2009 at 2:25pm
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Connie, what you say is valid and true. But I like the inspiration idea. Today, when I was on the table getting prepped for my last rad planning appointment, I was crying. And the two nurses? over me looked down at me, one hot nurse my age, and the other beautiful 21 old girl, and they said, we know exactly how you feel. They both were survivors. So I cried harder. Inspired that they are alive and healthy, and sad that there is so much cancer.. ------------- 33 year old 1.8 cm tumor/Node Neg Lumpectomy 7/1/08 BRCA 1 & 2 Negative AC DONE!! 9/17/08 Four of 'em Taxotere done! 11 of 12 ~1/31/08 33 radiation My blog: heathersjourneytohealth.blogspot. |
Posted By: gerriesue
Date Posted: Mar 05 2009 at 4:04pm
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I am inspired today because I had chemo and now only have TWO more treatments to go!!!! Yeah!! And it is inspiring to read about how others are up and have energy to do things again. It gives me hope that someday soon I too will be up to doing exercise or cleaning out the closet. To know that life with return to some kind of normal..... Love and hugs to all of you ------------- 57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane |
Posted By: myjourney
Date Posted: Mar 05 2009 at 4:13pm
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It does! Before you know it. ------------- 33 year old 1.8 cm tumor/Node Neg Lumpectomy 7/1/08 BRCA 1 & 2 Negative AC DONE!! 9/17/08 Four of 'em Taxotere done! 11 of 12 ~1/31/08 33 radiation My blog: heathersjourneytohealth.blogspot. |
Posted By: dmwolf
Date Posted: Mar 06 2009 at 5:27am
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Yesterday I worked hard; took a long walk home taking in the beauty of all the gardens come to life after the rain; spent the evening with my sweet girls Aviva (11) and Talia (8) that included a steamy bath and cuddling; ate soup, salad, and ice cream, and then made love with my husband before dissolving into sleep. This weekend we go skiing for the first time in years. I can't wait to race down the mountain with the wind whistling in my ears, dreaded tumor marker test results be damned.
------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: Kcsacco
Date Posted: Mar 06 2009 at 12:24pm
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ahhh Today.....how about this evening? planning a trip to the "all the CRAB LEGS you can eat BUFFET" tonight with hubby and friends... this is my weeked off Chemo! Next treatment 3/13! and It will be an evil day for those TN cancer cells!
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Posted By: CarynRose
Date Posted: Mar 06 2009 at 1:11pm
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Today, I'm returning home from Las Vegas. Two of my 'bucket list items' have been checked off. In addition, I notice that I have more energy than I give myself credit for and so when I get home, I"m going to do more around my home and environs. I'm also going to start PT and Speech Therapy.
Cheers,
Caryn ------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
Posted By: tofu
Date Posted: Mar 14 2009 at 3:46am
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Today, I finished my 14th cycle of Capecitabin(Xeloda). And it is Pi Day (http://en.wikipedia.org/wiki/Pi_Day). I love natual science, so it is a special day for me, and eat an apple pai. Delicious, ------------- Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
Posted By: cduvall1
Date Posted: Mar 14 2009 at 8:29am
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Today I volunteered at our city library used book sale. My brother went too. We also picked up a dozen good books at a very modest price. The sun is shining and it is a cool 65 degrees right now. Life is good!
Carol ------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |
Posted By: thinkpositive
Date Posted: Mar 14 2009 at 9:29am
Today, my daughter and granddaughter are flying in from Virginia to join the rest of the girls in my family (2 daughters, 2 granddaughters, Mom, 3 sisters and SIL ) for my very first fashion show. I will be a Survivor Model at the Hope Fashion Show on Monday. Never thought I'd be walking the catwalk at 59!   ------------- dx 3/06 stg II 0/7 lymph bilateral mastectomy 7/06 AC/Taxol lung mets 1/08 Avastin Abraxene 02/08/9/08 Brca neg Avastin Xeloda 10/08 Curagen 2/09 Ixempra 6/09 Lung Mets Gemzar/ Carboplatin 9/09 |
Posted By: dmwolf
Date Posted: Mar 14 2009 at 11:11am
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This morning I sipped hot delicious coffee while reading the newspaper, then played with my good friend Debra, her daughter Zoe, and my girls Aviva and Talia. They swirled in the living room to music as we read magazines wrapped in blankets. Next, Joel and I go to a contact improv dance class. I'm trying to live fully in the present, and not be consumed with worry about my elevated tumor marker and what that probably implies (retake test March 30). -Denise ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: lisab
Date Posted: Mar 15 2009 at 3:54pm
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Today my husband and I drove to our cabin to "get away from it all" for a few days. The weather's still a bit cool, but hopefully, all the rain has stopped for a couple of days and the sun will peek out for us tomorrow.
Love and hugs,
Lisa B.
I love this thread!!! ------------- Diagnosed June 2004. Lumpectomy and radiation. BRCA2+. PBM w/DIEP Recon March 2005. Mets in chest wall June 2007. Chemo (Gemzar and Carboplatin) with radiation completed January 2008 - 5+ years ago. |
Posted By: gerriesue
Date Posted: Mar 16 2009 at 1:30pm
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Today I went to a movie with a friend, we laughed a lot. She brought the best home made brownies to share. The sun is shining, the wind is mild, it is a good day! ------------- 57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane |
Posted By: cduvall1
Date Posted: Mar 16 2009 at 3:49pm
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Today I visited with a friend I have known for 60 years. We first met when she was 5 and I was a "baby" of 4. This morning we drank capucino and laughed at old jokes. My friend is in a nursing home. She had a stroke 5 years ago and has been immobile on her left side all this time. We cherish our friendship! ------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |
Posted By: MaryinSarasota
Date Posted: Mar 18 2009 at 7:57am
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Such a beautiful day. 75, sunny and breezy. So I took a walk on the beach, felt the cool sand in my toes and again realizing how lucky I am to live by this wonderful body of water with its different hues of blue, the fish are jumping and the dolphins are showing off. To top it all off I didn't get pooped on by a seagull. (common occurrence). Having a great day!
------------- 53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08 NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
Posted By: Linda S
Date Posted: Mar 19 2009 at 6:18am
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It's a beautiful, cloudy, rainy day in Idaho. Up early and took my best friend out for his morning potty in the back yard. Great to inhale the clean, early morning air. On the computer now, in my robe with my coffee, planning a railway trip through the Canadian Rockies. ------------- Linda S DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast 11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets. |
Posted By: CarynRose
Date Posted: Mar 19 2009 at 7:27am
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Today, my brother and his wife are flying to China to explore the country and then meet and take home their new son. When they return in early April, I'll be an AUNT!!! ------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
Posted By: dmwolf
Date Posted: Mar 19 2009 at 12:27pm
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Today I'm worn out by having gone to couple's counseling in the morning and taking a visiting speaker to lunch at noon (and of course worrying about upcoming blood tests and scans), but as I sit here at my desk at work I feel good knowing that I am playing the cards I have been dealt with as much courage and equanimity as I can muster. Not exactly an expression of joy, but positive in its own way and the truth.
------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: BrendaF
Date Posted: Mar 19 2009 at 12:53pm
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Today the sun is shining and I spent most of the day at the computer, scanning photos of my kids in the early days - I got through the first album! There's been a woodpecker working the tree outside the window where I'm sitting. AND the daffodils are just about to bust! ------------- Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads. Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
Posted By: krisa
Date Posted: Mar 19 2009 at 3:23pm
I received my Yoga Journal magazine today and have been reading the ads and articles that inspire but most often make me laugh.---some ideas are so out there! |
Posted By: lisab
Date Posted: Mar 19 2009 at 3:41pm
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Today was a beautiful day in East Texas. I spent most of the day outside putzing around and taking my dogs for a walk. ------------- Diagnosed June 2004. Lumpectomy and radiation. BRCA2+. PBM w/DIEP Recon March 2005. Mets in chest wall June 2007. Chemo (Gemzar and Carboplatin) with radiation completed January 2008 - 5+ years ago. |
Posted By: josie33
Date Posted: Mar 19 2009 at 6:43pm
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Today I was reflecting a lot on the untimely and tragic death of Natasha Richardson and how odd it is that she woke up Monday morning perfectly fine and by Moday night was gone suddenly and without warning--and as I thought about that in relation to my sister's cancer, it just reinforced for me (as I believe Caryn Rose has pointed out) that we are all going to die, and none of knows when, and in some small way it allows you to just live your life despite cancer without feeling like you have a sword hanging over your head, because to some degree we all do. (I am sorry that I am not being very articulate, but her death has aroused some philosophical thinking!) Her death also reminded me of an episode of the TV show Thirtysomething that I saw years ago (does anyone remember that show? I used to love it!)--in this episode, all of the friends were at a hospital waiting to get news about one character, Nancy, who had ovarian cancer, and fearful the news would be bad; and as they found out she was going to live and not die (in the inimitable way TV wraps up such moments with a little bow), they simultaneously get the news that their friend Gary was killed in a traffic accident on his way to the hospital--and there is a poignant scene in the hospital where Nancy finds out, and she can't get her mind around the irony of it, and she says (and I never forgot this line) "But it was supposed to be me." And yet it wasn't her. I always remembered that episode but it has greater meaning for me now. Sorry for the long stroll down memory lane, but that episode just resonates with me right now with my sister undergoing treatment.
------------- Sister DX'ed 11/08 Lumpectomy & SN biopsy 12/08 1.6 cm tumor, poorly differentiated, lymphovascular invasion, node neg (0/2) Stage 1 DD A/C x 4, Taxol x 4, to be followed by rads |
Posted By: Linda S
Date Posted: Mar 19 2009 at 8:04pm
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Here's how I look at my diagnosis (most of the time): It seems to be part of our human nature that we take so much for granted. We just go through each day without seeing, hearing, etc. I feel almost blessed that I got this wake up call before it's too late. When someone (like Natasha Richardson) meets such an untimely, unexpected death, it makes me wonder what they left undone or unsaid. I am having the opportunity to take care of all those things. I am taking the moments to say the things that need to be said to my loved ones. I am taking time to resolve issues, both business and personal. I am really cherishing each moment. ------------- Linda S DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast 11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets. |
Posted By: Kcsacco
Date Posted: Mar 20 2009 at 2:28am
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Wow, Linda. lovely way to put it......and so very true.
The one that kept me thinking was the KC Mom (38) that vanished
right after Christmas. They still haven't found her body. She just
vanished......No opportunity to resolve issues or make any arrangements
for her children. No chance to appreciate how precious time is.
Two years ago when I was diagnosed, I was afraid I wouldn't live to see my daughters married, or grandbabies.
In 2008, both my daughters were married (one eloped) and I had My OWN HAIR for the pictures. And our 1st grandbaby was born in Nov 08.
What a year to celebrate! Now that my cancer has reoccured, I am cherishing every minute....I may be here another 10 or more years, and
I may not. but I intend to enjoy every minute, to take care of myself (instead of everyone else...I'm a nurse) and to Fight! ------------- Alisa DX 3/07 7cm tumor L breast, Neoadjuvant Chemo L Mastectomy 8/07 Radiation and more chemo Finished 12/08 NED 3/08 Reconstruction 9/08 Recurrance 1/09 Multiple chemos 3/10 Parp with chemo |
Posted By: BrendaF
Date Posted: Mar 20 2009 at 4:27am
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Today - it's cold again in Cleveland, and I'm looking forward to meeting with my "Old Ladies" from church (they hate when I call us that; it's the over fifties group). I missed it last month. Today the discussion is about sustainability.
And I was thrilled to find out this morning that our Fist Lady is putting in a vegetable garden on the south lawn of the white house to supply the WH kitchens! What a great example! ------------- Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads. Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
Posted By: cduvall1
Date Posted: Mar 20 2009 at 5:33am
I do love this topic I read many posts in the different forums, and I try to stay updated on research/resources, but coming to "Today...." reaffirms my faith in our power to face TNBC with strength, love, and humor. Hugs to all!
Carol------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |
Posted By: dmwolf
Date Posted: Mar 20 2009 at 8:14am
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I love this topic too. And thanks, Josie, for articulating so clearly what many of us were thinking upon getting the news about Natasha Richardson. It struck me exactly the same way, that the absolute, unequivocable truth about life is that none of us knows how much time we have on this earth, so we best drink up every drop with the understanding that every blessing is temporary. We feel singled out by cancer, but really, we are just made conscious of the human condition, our 'common weal' of transience and uncertainty about the future. I needed a reminder of this today, so thank you all for highlighting the thought. And yes, I used to love 30-something, and do remember that episode! As for a thought for today: today is my day off. I'll eat a leisurely breakfast while reading the paper, go to a yoga class, take a nap and spend time reading (Jumpa Lahiri's new book of short stories), and then pick up my 8 year old from school at 2:00pm. My 11 year old will be home a couple hours later, and my husband will return around 5:30. In the evening, I'll make a salad and we'll bring it and a fresh loaf of bread to my friend Stephanie's for dinner, where we'll meet her new fabulous boyfriend, Conrad. Love, Denise ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: BornInWA
Date Posted: Mar 20 2009 at 9:34am
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I'm going to use yesterday and say today because I'm just posting late. Today - I found out that my mets are only in one spot and for that I am thankful. I walked back into work after my doctor's appointment to find one of our computer tech guys had shaved their head in support of my upcoming chemo ordeal. I almost cried, it was so sweet. I'm finding support from places I never expected and finding lots of things to be very thankful for. I feel really good today and I'm going to enjoy my pre chemo health for all it's worth. I'm grateful for getting up this morning at 5:30 a.m. and having my seventeen year old daughter get up and walk with me for fourty five minutes. I enjoy our one on one time together to talk and I'm impressed that she will give up her sleep so I'm not walking alone in the pre dawn dark. How good it feels to come home to a warm house and jump in a warm shower and start my day. Beth ------------- DX 11/06 Stage IIB, Grade 3, IDC, Negative for BRAC 1&2 Modified Radical Mastectomy, chemo TAC x 6 (every 3 weeks), Radiation. DX mets to mediastinum 02/09. Currenly on Taxol/Avastin. |
Posted By: butterfly
Date Posted: Mar 24 2009 at 1:22am
| Today I went to yoga and whilst driving there I saw a dolphin having a morning swim, I live by the beach... what a blessing |
Posted By: CarynRose
Date Posted: Mar 24 2009 at 3:32am
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Today, I became an aunt for the first time. My brother and his wife are in China and just met their son. Can't wait til they come home so we can meet him.
CarynRose
PS - I pray that G-d allows me to live long enough and healthy enough to really get to know him. ------------- Orig dx 6/03 - St.2a, IDC gr.3,0 nodes, TNBC/BRCA1+ 7/07 St 4 mets to nodes/lungs. PACA/Rads NED 11/07-10/08 Lepto mets 10/08 Rads for 4 brain tumors 4/10. Leptomets return 6/10 |
Posted By: cduvall1
Date Posted: Mar 24 2009 at 4:59am
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I'm visiting my best buddy Bernie up here in Yuba City, CA. A few days ago my friend and I went for a walk in the rain. We were dressed warmly and had raincoats. I loved it! I'm from the Southern Calif. desert where we are lucky if we get an inch of rainfall per year. Everything smelled fresh and clean.
Caryn Rose, as you really get to know him, we'll be looking forward to regular updates on the growth and progress of your new nephew.  ------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |
Posted By: MaryinSarasota
Date Posted: Mar 24 2009 at 5:30am
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Someone sent me this link today. I can't stop smiling. It is a song sung by many different artists. Stand by me. http://vimeo.com/moogaloop.swf?clip_id=2539741 CarynRose, life does give us many good things. Congrats on you being an aunt. ------------- 53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08 NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
Posted By: cgraves3rv
Date Posted: Mar 26 2009 at 7:35pm
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Not sure if this is board posts in the central or eastern time zone so I'm using dates. I just had a scan 3/26 and they found cysts on my liver! I am so scared. I finished chemo April 30, 2008. Had a mastectomy with reconstruction because I didn't want to go through radiation. The oncologist said to expect the worst and hope for the best. So, I am going to start researching cancer of the liver. If anyone has any info on this, please post. My biopsy is April 1st, with a doctor appt. on April 8. Please put me on your prayer list. Connie Graves |
Posted By: gerriesue
Date Posted: Mar 26 2009 at 8:03pm
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Today I was told that my wound from breast surgery 6 months ago has Healed!! No More daily dressing and packing , no more debridements. Able to start on range of motion exercises and begin radiation. It was great news!!! I am very grateful to my wound care clinic and the team of doctors and nurses who cared for me and helped make this happen.!! They were as excited about the healing as I was. ------------- 57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane |
Posted By: Nancy
Date Posted: Mar 26 2009 at 8:10pm
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Connie,
It is after 1am here in Altoona, PA, but sweetie...consider your wish granted!!
I too will start researching on cancer of the liver. I will tell you that our youngest daughter (not our Lori who was dx with TNBC), had scans of her liver and they found cysts also, but they are I believe what they call congenital? She had pain in her side and that is why they did the scans. The doctor said that alot of people have them. We will hope for the best for you Connie.
Many hugs,
Nancy
------------- Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
Posted By: cduvall1
Date Posted: Mar 27 2009 at 3:50am
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As I write it is almost 6 a.m. out here in Calif. Anytime I read the words, "I am scared," my eyes immediately tear up and I send a prayer out to the one who has spoken. Connie, you have spoken. You have a good strong, fighting spirit by taking action with you research into cancer of the liver. My best to you and prayers too.
Today I'm going to accompany my friend Bernie to his cardiologist appoinment in Sacramento. Later we will have dinner at Frank Fat's, the oldest restaurant in Sac. After dinner we head for UC Davis for a K. D. Lang concert. Tomorrow is my one year anniversary of dx. I'm celebrating early!
Carol ------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |
Posted By: dmwolf
Date Posted: Mar 27 2009 at 9:19am
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Connie, I hope the liver thing is a false alarm. By getting scans, we really open ourselves to fear, as every little irregularity becomes suspect. Today is my day off. I walked my 8 year old to school; drove my 11 year old to school and my husband to bart; came home to breakfast, coffee, and a newspaper in a blissfully empty house; and took a long walk with a dear friend, going round and round the middle school track as we talked about our lives. So far, so good. ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: BrendaF
Date Posted: Mar 27 2009 at 11:19am
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Today - this morning showed the promise of spring, and this afternoon is saying "ha, just teasing - did you forget this is Cleveland?" But, I'm watching chickadees, cardinals, robins, and woodpeckers playing in the tree just outside the window, and feeling pretty good about my life.
Brenda ------------- Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads. Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
Posted By: HairSprayMom
Date Posted: Mar 27 2009 at 11:40am
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Earlier this week I put my fears and anxiety aside and spent the afternoon outside with my Baby Girl Nikole who is 3. For a whole hour I did not worry about anything just enjoyed listening to her laughter and chasing my dog Brandy around on a beautiful Alabama spring day. Regina ------------- 39 yr old. DX Metaplastic Carcenoma/Triple Negative IIIb 9-26-07, bilat mod rad MX 10-1-07, 2.7cm in Chest Wall. Dense dose Chemo 11/07-03/08 AC/Tax. NED 4-09 YEA! Deconstructed 12-13-10 & Happy! |
Posted By: josie33
Date Posted: Mar 27 2009 at 11:40am
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Connie, I will say an extra prayer for you--it could be a lot of things besides cancer--wishing you good news in early April and some peace of mind until then... ------------- Sister DX'ed 11/08 Lumpectomy & SN biopsy 12/08 1.6 cm tumor, poorly differentiated, lymphovascular invasion, node neg (0/2) Stage 1 DD A/C x 4, Taxol x 4, to be followed by rads |
Posted By: Linda S
Date Posted: Mar 27 2009 at 12:49pm
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Well, met with the thoracic surgeon yesterday. Reviewed all my scans and found there are three hot lymph nodes in the media stinum, a hot spot in the lining of the left lung and several nodules in both lungs. Also, a pocket of fluid on the left lung. The surgeon is talking three options, one of which he can't do (experimental/new procedure for the biopsy of the lymph nodes). He has forwarded all my files to a 2nd surgeon in another state. The two options he can handle himself involve a 3-5 day hospital stay. I am sure someone out there has been the happy recipient of some of this stuff. Long story short, the surgeon sent my file to the 2nd surgeon for review and the two of them staffed this with my onc. Apparently time is of the essence and the 2nd surgeon is out of town for the next week, so I'm not sure my onc will go for that. I am now waiting for a call from the surgeon to schedule whichever procedure they are going to do. Soooo... I am again in a holding pattern. I hope all this makes sense to someone, because I can barely keep it straight in my head. Scared? No. God is still in control. Same as yesterday, last year, today, tomorrow... My prayers to you, Connie, that all goes well. ------------- Linda S DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast 11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets. |
Posted By: Beth Anne
Date Posted: Mar 27 2009 at 4:12pm
Today another early morning trek to Doctor to check in with the onc only to find out I have a blood clot in my leg ughhhh.... The great news I got today  .... At last my cyber knife treatment is scheduled for Tuesday afternoon at 2:30! It was one month today from being dx with brain mets!  What a roller coaster it has been if someone body finds the stop button please hit it so I can get off  Life is good and no one ever said it would be easy  Hugs, Beth Anne
------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: dmwolf
Date Posted: Mar 28 2009 at 1:42pm
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Beth Anne, I'll be thinking of you on Tuesday, wishing you perfect results from your surgery and a fast recovery. Today I took a walk in the city with Alan, my baby brother, and his husband Daniel. We walked all over the city (SF), taking in all the wonderfully weird gardens and architecture. On the way home I stopped at Flowerland to buy some more plants for my garden - more strawberries, edamame, squash, cucumbers, and tomatoes. In the afternoon I harvested some spinach, planted all my new babies, and am about to take a nap. The kids are running around, singing with the karaoke machine and making messes in the kitchen, and my husband is putting together a bunk bed for Talia. Tonight we go to dinner at a dear friend's. A good day! Love, d ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: cgraves3rv
Date Posted: Mar 28 2009 at 4:48pm
| Thanks to everyone for the encouragement, prayers and messages. Linda S. you are in my prayers also. The biopsy is April 1, and the follow up is April 8. We haven't told my sister who just had a liver transplant. I don't want to worry her. I have searched the forum and there are 20 pages with the word liver (and deliver) and I've gone through 10 of them. I took a few days off and now I'll hit the books again so to speak. I want to be informed just in case. I'm more optimistic but like all of us, not happy. Good new is I celebrate 22 years with a wonderful supportive husband March 30th. We got new wedding rings a few days ago so there's some new bling to look at. Hugs and prayers to everyone. Connie |
Posted By: cduvall1
Date Posted: Mar 28 2009 at 4:56pm
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Today was another day of planting flowers in my friend Bernard's yard. Soon I will leave here and head home, but I will have left the promise of tomatoes and pretty flowers in his yard.
Yesterday evening we went to a k d lang concert. She was great. I thought about the adaptations she has had to make in her life, all the while trying to share her tremendous singing talent with the public. The audience of over 2,000 at the Mondavi Center in Davis, Ca was so tremendously receptive and appreciative of her talent. What a day! Thanks again to the women of TNBC for being here.  ------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |
Posted By: Barb-42
Date Posted: Mar 28 2009 at 5:14pm
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Today I attended a Seminar titled...
Positive Steps After the Diagnosis of Breast Cancer There were various subject's and speaker's. Coping Strategies Management of Lymphedema,Healthy diet Tips, Helpful exercise. Family Communication and Survivorship Care Plan I really enjoyed being there among other's who have gone or are going through what I have. Take Care, Barb ------------- dx-1/2/08 @ 42 yrs.old lumpectomy w/close margins/ 1/14/08- no nodes/stage 1/gr.3 1.5 CM IDC chemo-AC-3 Dose Dense Taxol wkly 12- 2/21/08-7/17/08 Rads-33 w/8 boosts 8/6/08-9/22/08 BRCA 1/2 Neg. |
Posted By: Yankeespie
Date Posted: Mar 28 2009 at 6:10pm
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Connie my thoughts and prayers are with you! We all will be with you April 1st and 8th.
And Extra warm blanket of hugggs for you...
Bev ------------- Dx 2-10-09 Er neg Pr neg Her2 neg 1+ Double Mastectomy 3-2-09 2.7cm grade 3 Lymph Nodes neg NO reconstruction, NO chemo KNOWLEDGE IS POWER |
Posted By: Linda S
Date Posted: Mar 28 2009 at 7:05pm
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Bev, Your 'blanket of hugs' for Connie brought me a very warm thought I wanted to share. When I was initially diagnosed, each of the people I worked with (both men and women), made a quilt patch. I could easily identify the creator of each square based on the theme. One lady volunteered to piece them all together and the beautiful quilt was presented to me at a staff meeting. It was one of the most beautiful and wonderful gifts I have ever received and I keep it near for strength when I need it. ------------- Linda S DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast 11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets. |
Posted By: cgraves3rv
Date Posted: Apr 04 2009 at 8:14pm
| Well I had a wonderful radiologist for the liver biopsy. He showed me and DH the scan from the previous week. One large cyst and about 5 small ones. He biopsied the large one. No pain or discomfort at all. But before they start the procedure they run you through the tube a few times and I broke down for the first time. They were wonderful and stopped everything and gave me some medication (joy juice of some kind). When I was ready they did the biopsy. I'll see the oncologist on Wed. and I'm prepared to start battle #2. So many of you have fought and won so I'll join your ranks. Connie |
Posted By: Yankeespie
Date Posted: Apr 05 2009 at 2:07am
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My thoughts and prayers will be with you on Wed.! This song is for you and my other Sisters here... http://www.youtube.com/watch?v=0Zbn7Khv8zM - http://www.youtube.com/watch?v=0Zbn7Khv8zMExtra Warm Blanket of Hugs to you Connie!
Love, Bev ------------- Dx 2-10-09 Er neg Pr neg Her2 neg 1+ Double Mastectomy 3-2-09 2.7cm grade 3 Lymph Nodes neg NO reconstruction, NO chemo KNOWLEDGE IS POWER |
Posted By: Beth Anne
Date Posted: Apr 05 2009 at 2:55am
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Connie, Sending you hugs for good news  Beth Anne ------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: Kcsacco
Date Posted: Apr 05 2009 at 5:00am
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Hello all. Today I'm grateful for good friends.
On Wednesday, we (my Oncologist and I) decided the current Chemo wasn't working (Tumor markers continue to elevate). so my tumor is Taxane resistant (was on Imprexa). Switched to Epirubicin with Avastin on Friday. Planning to add Navelbine with the next go round in 3 weeks.
and we continue the fight. ------------- Alisa DX 3/07 7cm tumor L breast, Neoadjuvant Chemo L Mastectomy 8/07 Radiation and more chemo Finished 12/08 NED 3/08 Reconstruction 9/08 Recurrance 1/09 Multiple chemos 3/10 Parp with chemo |
Posted By: Yankeespie
Date Posted: Apr 05 2009 at 5:55am
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Keeping fingers and toes crossed for you Kcsacco... Extra warm blanket of Hugs for you!
Love, Bev ------------- Dx 2-10-09 Er neg Pr neg Her2 neg 1+ Double Mastectomy 3-2-09 2.7cm grade 3 Lymph Nodes neg NO reconstruction, NO chemo KNOWLEDGE IS POWER |
Posted By: Linda S
Date Posted: Apr 05 2009 at 8:06am
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Alisa:
My heart and prayers are with you. You are sooooo very brave. Keep up the good fight! ------------- Linda S DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast 11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets. |
Posted By: Linda S
Date Posted: Apr 05 2009 at 8:49am
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Just got back from a week visit with my daughter and her family. LOVE THAT GRANDBABY! Have an appt on Wednesday with surgeon who will see if he can do a less invasive lung biopsy through the bronchial tubes. This would be out patient or overnight at worst. The first surgeon could only do an invasive procedure requriing 3-5 days inpatient, so he referred me for this other procedure. Keeping my hopes up but too many hot spots showing on PET/CT so not setting myself up for disappointment. Gaining my courage from all of you out there who are going thru this. True sisters in such an awful battle. ------------- Linda S DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast 11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets. |
Posted By: dmwolf
Date Posted: Apr 05 2009 at 10:27am
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This morning I did yoga with dear friends at Laura's beautiful house, then sat in the sun on her deck drinking lattes and talking. Now I'm home, about to work in the garden and maybe finally get started on the mosaics that currently live only in my imagination. Tomorrow we go to Monterey, and then to LA for Passover. Our van will be full, with me, Joel, our girls, and three dogs. Life is precious!! -Denise ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: BrendaF
Date Posted: Apr 05 2009 at 12:06pm
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Today I felt so much better than the past couple of days after Zometa on Thursday. The sun was out, we went to church and sang in the choir. This afternoon I repotted some plants and took cuttings of herbs to root and sell in pots on Earth Day.
THEN.... I spent time moving dirt on my tractor. We got connected to the public sewer this week and I had it bid that I would do the finish grading. I LOVE my red tractor! ------------- Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads. Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6. brain, lymph, pleura, bone mets. Started Xeloda 8/24/09 |
Posted By: trip2
Date Posted: Apr 05 2009 at 2:16pm
Brenda my husband is looking for someone with a tractor, are you free to do a driveway? We need lots of dirt/gravel and someone with a tractor to grade it all out.
I have been a bum today. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: cgraves3rv
Date Posted: Apr 05 2009 at 6:28pm
| Pam, where do you live? We are east of Memphis and my brother in law has a tractor. Might be able to help if you are close. Connie |
Posted By: Terri
Date Posted: Apr 06 2009 at 5:58am
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Today I am going for my 6 month mammogram. Last time around, they found alot of scar tissue but they scared the sh*! out of me before they came to that conclusion. Ultrasound showed possible recurrence and had to wait weeks and fight with insurance to get MRI. So I am very nervous that I`m going to have to go through that all over again. ------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: MaryinSarasota
Date Posted: Apr 06 2009 at 7:26am
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Terri, Here's the good news. I transcribe CTs, mammograms and MRIs every day all day. Almost always the bad news (abnormalities) get sent to the doc the second the radiologist reads them, after we type them of course. So, no one ever, ever should have to wait weeks for any type of scans that show an abnormality. All of my docs send them out the second they get typed and this is the norm for all radiology transcription. Also, I feel for you on the insurance issue. My insurance company actually said "You have only had this policy 15 days, how can you have breast cancer?" They truly are the meanest bunch. Good luck on your mammogram today. Make sure you tell her that you are a BC survivor. Mary ------------- 53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08 NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
Posted By: Terri
Date Posted: Apr 06 2009 at 9:30am
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Mary,
The place I go to have mammo`s is the place I was diagnosed and my chemo onc and sx are in the building as well. Still, I always remind them that I need a diagnostic mammo, but they are always on top of things. They give me the results as I wait, then do an ultrasound right away if they see anything. That happened last time and they were concerned about an area of the ultrasound. So the waiting came in when I had to schedule an MRI and my insurance made me wait weeks while they had everyone jumping through hoops.
Today they did the mammo & also brought me in to do an ultrasound because an area under my breast along the bra line feels thicker and painful. The radiologist dr said he didn`t see anything on the ultrasound to worry about. So I will discuss this with my surgeon when I see him on the 17th.
Thanks for all the info. It`s nice to know what goes on behind the scenes.
I can`t belive the insurance co said that to you! Like you really WANTED to get breast cancer, maybe just to spite them and have them pay for things!!
Terri ------------- IDC DX 8/17/07 (age 41) Stage 1 Grade 1-2, 1.35 cm 2 nodes neg, Lumpectomy 10/07 Chemo: FEC 100 x 6, 35 rads BRCA 1/2 NEG PET/CT & Brain CT Nov 09 Brain MRI Aug 2012 NED |
Posted By: MaryinSarasota
Date Posted: Apr 06 2009 at 9:59am
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Sounds like good news from your ultrasound. I get so worked up sometimes since I do this and sooo many women get the news every day that their mammos are abnormal not to mention the PET/CT scans. It is nice to be able to read my own reports when the come back though. I guess I should post on the recurrence anxiety page. It is a good day. We got some much-needed rain. Mary in Sarasota is waving upwards to Clearwater. ------------- 53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08 NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
Posted By: trip2
Date Posted: Apr 06 2009 at 11:33am
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Terri,
I am so happy to see everything appears normal.
 Way to go!Connie, honey I was playing with you but thank you so much for offering to help if we lived nearby. We really do need to find a tractor but we live in Ok so a bit long to haul that baby all of the way out here. They are so expensive now to hire, whoo!
------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Kathleen
Date Posted: Apr 06 2009 at 6:35pm
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All -
Today I tried a recipe for multi-grain bread. Notice that I didn't say "made a loaf of multi-grain bread." It's edible but good looking enough like the ones in bakeries. I love bread and wanted to make one that added more fiber and nutrients to my diet. I'll have to work on perfecting my technique. At least the house smelled wonderful. ------------- Yours Online, Kathleen 12/99 bc initial dx-stage 1, Nottingham-tenovus cells - bilateral mast. 6/08 TN cells, only in lungs Treatments: 6/08-5/09 Taxol & Carboplatin. 5/09+ Xeloda. |
Posted By: krisa
Date Posted: Apr 06 2009 at 6:40pm
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hmmm, homemade bread! today i went to my bridge lesson and actually remembered how to bid the hand correctly and played the hand (partner was the dummy) to win. another sign of Spring-----buds blossoming, brain cells developing.... |
Posted By: Linda S
Date Posted: Apr 06 2009 at 6:54pm
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krisa: You're enjoying Portland! Lucky you! We just drove from Boise to Spokane this weekend and almost kept going to the Oregon coast. We would have if I didn't have this darned respiratory virus thing going on! ------------- Linda S DX 5/08, A/Cx4,carboplatin, abraxane,bi-lateral mast 11/2008, 9 cm,21/22node positive.rad 5 wks; mets to mediastinum/lungs 4/09. Xeloda/Navilbine w/pending biopsy for skin mets. |
Posted By: cduvall1
Date Posted: Apr 07 2009 at 6:58am
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Today I pulled some carrots, beets, and green onions from my very small garden. Can't brag about the carrots and beets, but boy those onions are going to go well with dinner!
Carol ------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |
Posted By: dmwolf
Date Posted: Apr 08 2009 at 7:16am
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Monday we drove to Monterey - Joel and I, our kids Aviva and Talia, our dogs Merkin and Dingleberry, and our 'nephew' dog Rafi. While Joel took his deposition, the girls, dogs and I went to the beach in Carmel and frolicked with the doggies in the surf. Later we went to the aquarium and saw the most amazing sea horses. They looked like kelp-adorned dragons. Last night, after dropping the kids off at my Mom's in LA, Joel and I went dancing at a 'Sweat Your Prayers' happening. There was much hippie gyrating around the room, us included, as we danced hard, like every day, every evening matters. Later, deep in the night, we made love in the faint glow of the clock, our bodies striped by the little bit of night skylight filtering through the blinds.
Denise ------------- DX 2/08@43 stg II IDC; gr2,0 nodes. Neoadj chemo, first ACx2 (fail) then CarboTaxotereX6(better). Lump, Rads done 11/08; Clodronate. False alarm queen: PetCT lung & TM marker. NED. PBM w/recon 9/10. |
Posted By: cg---
Date Posted: Apr 08 2009 at 4:00pm
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Mary, the rule applies if they have a policy to that effect, and the report is transcribed in-house, it is not done by voice recognition and needs to bed edited, and it is not sent off-shore to be transcribed!
Mary, I had my biopsy May 7, a report was not available until May 15 and it was really bad news! Two weeks is common for a report to be made available in Canada - good news or bad news.
In the ideal, stress-free world of cancer care - it would be wonderful to have reports available immediately in Canada. I had a CAT scan January 28 - never found out the results until March 2, and I was calling and trying to chase down the report the whole time. It was a really long month. Only ONE copy of report is sent to the requesting oncologist. I could not a copy for my GP because it had to be released and agreed to by the requesting physician....if that is not bureacracy at its finest I do not know what is!
Connie
|
Posted By: cgraves3rv
Date Posted: Apr 08 2009 at 5:01pm
| Beautiful Day in Memphis only to be spoiled by the dreaded expected news. The tnbc has spread to the liver. To be safe I'll have an MRI on the brain and bones Friday. A new portacath put in on Monday and chemo starts next Wed. in Memphis unless the onc. finds a trial he thinks I should be in and can get in. He's initially considering the AA combination for now but this can change. Not a candidate for RFA or sir spheres. Connie |
Posted By: cgraves3rv
Date Posted: Apr 08 2009 at 5:08pm
| Pam, yep, too far for the tractor to travel...Hopefully you can find a good used piece of equipment or find someone to do the job at a reasonable price. Good luck. Connie |
Posted By: Nancy
Date Posted: Apr 08 2009 at 5:13pm
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cgarves3rv,
Dear Connie,
I am so sorry to hear the dreaded news. There are just no words to express how I feel when one of you post that you have to endure more treatments. My heart goes out to you tonight, and I wish I could hug you for real. As Tai says...I will have you wrapped in a blanket of love, and I can only hope that will provide some comfort.
Much love and many hugs,
Nancy ------------- Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
Posted By: gerriesue
Date Posted: Apr 08 2009 at 5:53pm
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Dear Connie, Much love to you. Hang in there. Miracles are possible and one never knows what our future holds. Just one step at a time, one moment at a time. Don't get too far ahead of this one moment, where you are whole. we are here for you. Luv, Gerrie Sue ------------- 57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane |
Posted By: MaryinSarasota
Date Posted: Apr 09 2009 at 4:46am
|
"Mary, the rule applies if they have a policy to that effect, and the
report is transcribed in-house, it is not done by voice recognition and
needs to bed edited, and it is not sent off-shore to be transcribed!
Mary, I had my biopsy May 7, a report was not available until May
15 and it was really bad news! Two weeks is common for a report to be
made available in Canada - good news or bad news.
In the ideal, stress-free world of cancer care - it would be
wonderful to have reports available immediately in Canada. I had a CAT
scan January 28 - never found out the results until March 2, and I was
calling and trying to chase down the report the whole time. It was a
really long month. Only ONE copy of report is sent to the requesting
oncologist. I could not a copy for my GP because it had to be
released and agreed to by the requesting physician....if that is not
bureacracy at its finest I do not know what is!"
Connie, I am so sorry your reports took so long. I should have thought more about my reply before typing. In my case I type at home for a hundred different docs from all over the US and it all comes through software via the internet. Most times the turn-around-time is less than 24 hours or STAT (right away.) Please forgive me the assumption that all countries are the same. As I said, I should think more about my replies before I type, I was just trying to give some positive information. On another note... today is a beautiful day. I think I will have lunch down by the marina and take a walk. ------------- 53 @ Dx 5/08 Stage 1, grade 3, IDC 1.6 cm, 0 nodes, TNBC, lumpectomy, chemo TAC-6, radiation-34 12/18/08 NED-10/09, PBM w/TE recon. 7/10, removal of TE/infec 8/10. CT chest. Rec fat-graft & stem cells |
Posted By: Beth Anne
Date Posted: Apr 09 2009 at 7:34am
|
Kathleen, Your bread story made me laugh and took me back to another time in my life.... were after a bad divorce I found myself alone and living in all places Portland OR where I knew very few people... So I would have days off and nothing to do and not much money... I LOVE to cook and I am not too bad at it I have to say... So I made it a goal at least one of my days off every week I would try and make bread and then make some kind of soup to go with it all from scratch... Bread is an art that with a lot of practices can be amazing.... I think may favorite at the time ended up being a honey curry almond braided loaf. So thank you for you story it made me smile.... Hugs, BethAnne ------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: trip2
Date Posted: Apr 09 2009 at 7:42am
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Connie, cgraves, hon I am so sorry they think if may have spread to the liver. Did they see this on a scan?
I pray the tests Friday are clean, please let us know. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Nancy
Date Posted: Apr 09 2009 at 7:44am
|
Beth Anne & Kathleen,
If you really want some really delicious bread, free of white flour and the sugar, which are both a no no for anyone dx with cancer, please try the spelt flour and use honey in place of the sugar. Lori has a bread machine, (and is on her third one now), and that is the only bread she eats now.
The spelt flour is a whole grain flour, not whole wheat. Lori just does not have the time for making bread the regular way, although she did at one time.
Hugs,
Nancy ------------- Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
Posted By: Beth Anne
Date Posted: Apr 09 2009 at 8:09am
|
Nancy, Bread machines are for cheaters....LOL I have one also and I have to say it gets used more then my hands ....heeee I have seen the Spelt flour at trader joes... I will have to try it. Beth Anne ------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: Beth Anne
Date Posted: Apr 09 2009 at 8:16am
|
Connie hold on tight it is going to be a bumpy ride! I am sending love and hugs for you to hold on to. I am crying as write this right now.... why is this happening to us we are all amazing women with so much too offer to all that we have created in our lives.... we all need more time.... damn it we all deserve more time... My heart beaks daily for all of us.... Love, Beth Anne ------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: trip2
Date Posted: Apr 09 2009 at 8:33am
|
Beth Anne I wish I could dry your tears.
What can we do to help? ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Beth Anne
Date Posted: Apr 09 2009 at 4:29pm
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Dearest Pam, I don't know how to stop the tears.... We are having to sell our house before the bank takes it, we will list it the week after next... This week we are putting up the going out of business sign for my shop after pouring my heart and soul into it for the last 6 years... I feel as if my life is imploding and there is nothing I can do to stop it. Then of course there is the brain mets... I had the cycberknife surgery a week ago Tuesday and spent the follow 6 days in the hospital trying to control the pain and swelling. Now I can barley walk with out falling and my eyes are not working well at all... I need to get back to work to keep our health insurance and the doctors don't think I am ready and I have to say they are correct I know this must sound like I am holding the worlds largest pitty party but thats really not it... I am just sooo scared and sad I just don't know how to move forward and this is not the person I use to be. I don't know this new scared me who's life is out of controll and I am not sure I want to know this person.... I will listen to any advice out there.. hug, Beth Anne ------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: gerriesue
Date Posted: Apr 09 2009 at 4:39pm
|
Dear Beth Anne, Sounds like tears are appropriate, you have a whole lot going on. Any one of the things you listed would put most people over the edge. But, I can tell you are a strong and creative woman, give yourself just a little time to heal up. I don't know but I would imagine cyberknife surgery would/could affect you emotionally. Making things even more overwhelming. If you continue to cry, you should probably give you doctor a call. It could be something related to the surgery and you might need something like medication to help. As I said I am no expert here but I would think brain swelling might cause some pretty weird symptoms. A big, big hug to you. Feel our love and support during this difficult time. Love, Gerrie Sue ------------- 57 yrs. old at DX Oct. 2008 Stage 1, Grade 3, TNB, 1.7 cm tumor,Negative nodes TX partial masectomy, 4 rounds A/C, 4 rounds Abraxane |
Posted By: trip2
Date Posted: Apr 09 2009 at 4:41pm
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Beth Anne, bless your heart. You know not being in your shoes I cannot understand completely but I can imagine selling your home and losing your business in itself has to be very heart breaking. You have a right to feel things are out of control at this moment. But you know what? Maybe this change will end of being something even more special? There may be something that opens up for you to get involved in that you never even thought of. Maybe your new home will provide being close to someone who will become very special to you and your life. There are so many possibilities and they aren't all bad. Many could be very good. You just don't know that yet.
You've been thru the ringer, big changes are happening besides your dealing with cancer. Honey I cannot imagine. Are you taking something to help with the anxiety and stress?
You are not having a pity party. You are saying it like it is in your life right now and I'm so glad you wrote about this activity in your life right now. We are scared of change, you have big changes going on and you are worried about your cancer.
Don't be too hard on yourself. You will pull out of this, it will be ok. One hour at a time. Big hug,  ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: Joan2844
Date Posted: Apr 09 2009 at 5:33pm
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Today.... the topic of this particular thread. I meant this thread to be encouraging --"Today I had the energy/desire/ability to ______ (fill in the blank)." Each day is a blessing, and if we look, we can find small victories in each day. But, I neglected to consider that some days are completely full of pain. We become overwhelmed by our treatment, our circumstances, our emotion. And this forum is a safe place to express those emotions. One of the strange comforts of chemo/radiation for me was that the people there understood me. I didn't like getting treatment, but I felt comfortable in the environment. And this forum is a place where we are understood and we feel comfortable. That should never be taken away. So.... I'm not sure how to get this discussion back on track? I'm not sure if it appropriate to even try? I will leave it up to the ladies who visit -- do we move forward (within this thread) trying to find something to be grateful/excited about each day? In light of mets, terrible treatments and foreclosures, that can seem like an unattainable challenge. After my first treatment, I told my husband that I would not be strong enough to fight cancer a second time. That if it came back, it would overwhelm me and beat me because I had already given everything I had during the first fight. I truely, truely believed that. But, the cancer did come back (very soon, as well!), and it was a much, much tougher fight the second time around. I didn't even want to try to get through it, and especially not with a "good, upbeat" attitude that made everyone else around me feel more comfortable. I was pissed off and scared. But the thing that I learned is that I am much STRONGER than I ever imagined. I guess that is what I why I started this thread. Let's talk to each other: How/why do you know you are strong? How have you grown, despite (or because of) your situation? Today.... I leave the decision to you. Where do we go from here, ladies? Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Matthew 6:34 ------------- 9/06 Stage2B. Pos Nodes; Neg BRAC; TAC/Lumpectomy/Rads/Xeloda. 4/08 Local Recurrence; Mast w/ Latissimus Flap;Taxol/Gemzar/Carbo. Zometa. NED since May 2008 :-) www.wow-matt14.blogspot.com |
Posted By: Beth Anne
Date Posted: Apr 09 2009 at 5:35pm
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One thing I failed to mention was that as soon as all of our belongings are sold, we will be moving to Ireland. It will be much easier for us to be poor in Ireland then here in the states and I won't have to worry about not having insurance, It is a sad state of affairs that if you work hard most of your life in this country in a time of desperation this USA turns it's back on you... This move will be hard on my daughter to give up all that she has build here for her life with her dance and music and then there are here family here that she go with out seeing. I can only pray that I am not going to damage for life the one most important thing I have in my life... She is an amazing child that deserves only the best life has to offer.... Like I said before I just need more time! Thank you for all your kind words it all helps, Beth Anne ------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: Beth Anne
Date Posted: Apr 09 2009 at 5:46pm
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Joan, Forgive my posts and I will not post again... Beth Anne ------------- Dx 5/07 DCIS Stage3 gr9 A/C x 6, Abrax x 16 Bi-Mass 2/08 Navelbine x 12, finished radiation end of July 08. DX Brain Met's 2/09StageIV CK3/09.Brain resection4/09 WBR Dreaming of dancing with Ned! |
Posted By: Nancy
Date Posted: Apr 09 2009 at 6:02pm
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Beth Anne,
Yes it is a sad state of affairs when our country turns it's back on you. My heart goes out to you and the millions of people affected by this downward turn here in the states. This happened due to the greed of the very wealthy, but does not affect them at all.
Beth, children are very resiliant. My husband retired from the Army in 1978, and our daughters moved all the time. Lori went to 10 schools in 10 years. I can well understand that your daughter is the most important thing that you have in your life, but as you said it is easier to be poor in Ireland, and she will rebound.
Our youngest daughter is putting her house up for sale also, and lost her job in January. She has worked since she was 16, and now divorced, lost custody of her 2 girls due to lies of the ex, got one back, but she is 15 and pregnant. However she is not fighting for her life as you are. I do worry that all this stress will lead to something for her.
Perhaps there will be a migration from the states if things continue as they have. You are always in my thoughts Beth, and I wish there was something to help you stay where you are, so that you could have some peace.
Much love,
Nancy ------------- Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
Posted By: myjourney
Date Posted: Apr 09 2009 at 6:56pm
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Girls! Beth Anne, Love! Joan...
Beth Anne, you can post here whenever you want. I am appalled by the post of Joans. This site, is a free for all. Each and every ONE of them. We are here for each other in every aspect. If you want to talk about something/anything feel free to any-where. As I see it, we each read these threads, and are brought to share something. Yes, Joan, your thread still has/is grounded in your original intention and will go back to it. But be a sister here, and don't try to shut a sister out because you want to go back to your original PLAN. Disgusted, Heather ------------- 33 year old 1.8 cm tumor/Node Neg Lumpectomy 7/1/08 BRCA 1 & 2 Negative AC DONE!! 9/17/08 Four of 'em Taxotere done! 11 of 12 ~1/31/08 33 radiation My blog: heathersjourneytohealth.blogspot. |
Posted By: Nancy
Date Posted: Apr 09 2009 at 7:23pm
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Beth Anne, You post here or anywhere on this site whenever and with whatever feelings you have. We have cgraves..Connie who just posted that she has mets to the liver. That is what happened to her"Today", and any one ever dx with cancer fears that or any other dx. I too am appalled at you post Joan.
I am not the one dx with bc, and every day I fear that Lori will have another dx, and then that will be "The Today" post.
Beth is losing her home, selling all her worldly posessions, moving to Ireland so that she will have health care that possibly that will prolong her life, because in the US she cannot survive, uprooting her child from the only life she has ever known, and now Joan you want her to post only happy posts? Rethink this Joan.
I don't give a crap if the thread goes back to the original plan. Today is what it is...women living with breast cancer and trying to make the most of it.
Beth, I tried to send you a private message as soon as I saw your last post...to assure you that you do have the love and support from me and many others...but sweetie your pm box is full.
Much love and many hugs Beth Anne,
Nancy ------------- Nancy DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
Posted By: krisa
Date Posted: Apr 09 2009 at 7:32pm
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I read Joan's post a totally different way and think she was trying to be sensitive to what is going on with our members. aside from that, Beth Ann, when my father in law had surgery for his brain cancer, we were told that he would be emotional and he cried all the time, which wasn't his nature. His doctor put him on Prozac and that helped a lot. Plus, you have so much going on and I wish I could help you! Connie, I am so sorry to hear about your liver mets. You are all in my thoughts and prayers every day! |
Posted By: cg---
Date Posted: Apr 09 2009 at 8:16pm
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Posted By: cduvall1
Date Posted: Apr 10 2009 at 3:30am
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Joan and all who post to this thread, Joan, I think your post of 4/9/09 was a response to a PM I sent you wherein I expressed my appreciation for this thread or at least what I interpreted as its intent. By rereading the early pages of this thread it appears others had the same idea. Ladies, let me take responsibility for the bad feelings that have resulted from Joan's post. She was only answering my need for a place where we can focus on those precious moments in our lives that shine like jewels against the forboding shadow of a cancer diagnosis. I have expressed it before and will do so again...this site has been an unbelieveable source of inspiration and knowledge! I'm so grateful you are all here, and I'm so sorry my PM to Joan has caused these hard feelings.
Carol ------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |
Posted By: trip2
Date Posted: Apr 10 2009 at 7:18am
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We all have our "todays", some are good and some are not so good but that posting is what our "today" was to that member. To think that a member can not post where they might like is hurtful nonsense.
We are here to love and support not attack someone for posting their feelings of what their "today" was all about.
We had two members, Connie posted with her liver mets news and Beth Anne whom is having a horrible time, her whole live is being uprooted, how could someone cold shoulder their feelings and what is happening to them?
In this forum one can post wherever they like and if their "today" has bad news then we rally around that person, not tell them they are in the wrong place.
Rude and hurtful. BethAnne and Connie should have apologies. ------------- Stage 2 2003 Stage 1 2007 BRCA 1+ |
Posted By: krisa
Date Posted: Apr 10 2009 at 10:33am
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I don't think Joan is rude or hurtful, nor did she ask anyone not to post in the Today thread, she asked if we should continue the Today thread in light of all the horrible days members on this forum have...in other words, is the Today thread a good idea? I don't know Joan, but I think she is a good and kind person and would not go out of her way to hurt people, or tell them if they can post or not post. None of us are perfect 100% of the time, nor do we write or read perfectly 100% of the time; we all have way too much on our plate. |
Posted By: cduvall1
Date Posted: Apr 10 2009 at 10:39am
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For any hurt I may have caused I offer my deepest apologies and ask for forgiveness. This is indeed the "Metastasis/Recurrence" forum. Perhaps the "Today..." thread, with a clearly defined intent, would have met its need and purpose under a different forum heading. The "Today..." thread has had many hits, so I imagine there are others who logged on to read about events that were happening to the beautiful ladies in our tnbc community. On the day with discussions of baking bread I could almost smell that wonderful yeasty smell. How uplifting!
Connie and BethAnne, let me personally apologize to you. This discord is a direct result of my own doing. Carol ------------- Carol dx 3/08 age 63, invasive metaplastic carcinoma, 2cm, node neg, grade 3, stage I, lumpectomy 5/08,AC 4x, Taxol 12x weekly, radiation 5wk, NED 4/29/09 |