Archived Topics - Constantine???

Constantine???

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URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=2956
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Topic: Constantine???

Posted By: daughter858
Subject: Constantine???
Date Posted: Feb 23 2009 at 6:33pm

I am new to this site but I see many people getting advise from Constantine. I have listed my mothers condition on the new members forum under "words of wisdom". I'm having a very very difficult time finding an aggressive doctor in the Northeast Ohio area. Everyone we met with seems to want to follow "standard" bc teatment. I thought Constantine might know of someone in this area that is more on the aggressive side when fighting tnb.

Thanks

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Amy

My Mother Laurie
DX 2-6-09 at age 55
Invasives Ductal Metaplastic Carcinoma (metaplastic part is very rare)
TNBC / grade 3
2.5cm - 4cm ??
BRCA??

Replies:

Posted By: sibu
Date Posted: Feb 23 2009 at 6:45pm

I think Constantine posts on:

www.nosurrenderbreastcancerhelp.org/

I haven't seen any direct posts from him on this site, rather people who go on both sites who sometimes quote him here.

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Donna, age 42
Dx IDC 12/06, 5/18 Nodes + BRCA1+
Double mast. 1/07
Chemo 6 X TAC 6/07, rads 10/07
Hyst./Recon. 12/07

Posted By: PineHouse
Date Posted: Feb 23 2009 at 10:30pm

Daughter, you can e-mail him directly mailto:edge@evidencewatch.com - edge@evidencewatch.com

You can ask him for both oncologist suggestion and what he knows about treatment options for your mom's rare condition.

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Stage IV lung-06/06 brain-12/08 BRCA1 TNBC
Avastin+Taxol,Carboplatin,PARP-Inhibitor,Navelbine+Xeloda,Avastin+Ixempra,Doxil+Cytoxan
Currently Abraxane+Gemzar (3/09)
http://pinehouse.wordpress.com/

Posted By: BrendaF
Date Posted: Feb 24 2009 at 4:23am

Daughter,

I am in Cuyahoga County and go to the Cleveland Clinic. However, at University Hospitals there is Dr. Barr, who is doing research on TNBC. He's the one with the clinical study about to start up for the triple negative vaccine that has been the topic of conversation for a few months. If I were choosing an oncologist now, knowing what I know, I would try to get him.

Here's the conversation, and somewhere on the web I saw a video of an interview with him.

http://www.tnbcfoundation.org/tnbc/forum/forum_posts.asp?TID=2405&PID=19806 - http://www.tnbcfoundation.org/tnbc/forum/forum_posts.asp?TID=2405&PID=19806

Here's a video I found, but this was before he had received funding for his trial. I know there is a later one on one of the major news shows somewhere.

http://www.truveo.com/Dr-Joseph-Barr-from-University-Hospitals/id/3086440451 - http://www.truveo.com/Dr-Joseph-Barr-from-University-Hospitals/id/3086440451

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Dx 2005 2 cm, 5/12 nodes, A/C + T, 28 rads.
Dx mets 12/07 mediastinal and supraclavicular nodes, carbo + taxotere X 6.
brain, lymph, pleura, bone mets. Started Xeloda 8/24/09