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Christine Applegate

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Topic: Christine Applegate
Posted By: krisa
Subject: Christine Applegate
Date Posted: Aug 19 2008 at 10:53am
An interview and is this one reason why people generally don't have a clue about breast cancer when they read that someone like Christine does not have cancer anymore after her surgery.
I would love it if that was 100% true!
 

Applegate ‘Definitely Not Going to Die’

NEW YORK (Aug. 19) Christina

Applegate

is taking the long view of her battle with

breast cancer the

really long view.

Speaking on ABC News’ “Good Morning

America” in her first interview since announcing

her diagnosis earlier this month,

the “Samantha Who?” star said she had a

double mastectomy three weeks ago. She’ll

undergo reconstructive surgery over the

next eight months.

The 36yearold

actress elected to remove

both breasts even though the disease was

contained in one breast. She said she is now

cancerfree.

Applegate called the operation a logical decision.

Her mother battled breast cancer,

and she tested positive for the BRCA1 gene

mutation linked to breast and ovarian cancer.

“I just wanted to kind of be rid of it,” she

said. “So this was the choice I made and it

was a tough one.”




Replies:
Posted By: cg---
Date Posted: Aug 19 2008 at 1:19pm
Please forgive them their naivete...
 
Many of us were led down the same garden path with the propaganda of early detection, mammograms, breast self-examination....= cure.
 
What they failed to inform us of is that mammograms are only 44% accurate at picking up breast cancer, and that is only after you had to fight to get one if you were "under-age";  the lumps we discover on self-examination are summarily dismissed as "cysts"....(my same "cyst" in the same location in 1997 - was the "triple negative tumor" just bigger and more life-threatening in 2007).
 
All of the directives for women and breast cancer have the undertones of women being responsible for their outcomes!!! That has to be one of the biggest pieces of medical misinformation ever put on the television or in a magazine. Women are held hostage by the medical professionals, and the insurance companies. Women are denied testing, treatment, until they convince a doctor and/or an insurance company that they have a problem in their breast!
 
Just thank Ms. Applegate because she is going to raise money for breast MRIs and gene testing.....
 
How underserved and underdiagnosed many women are because they do not routinely have access to these tests which could change their diagnosis, and ultimate treatment for them and others in their families.
 
 
 
 


Posted By: Nancy
Date Posted: Aug 19 2008 at 4:16pm
Let's see,
 
I just Googled her the other day for GinaMarie, and they said she was going to be just fine. OK I assumed that possibly she was dx with DCIS. GinaMarie said that she had read Christine was not going to have chemo. That was one of the reasons Gina was saying she wasn't going to have chemo. Now she has had a double mastectomy and is BRCA1?
 
Also, she is cured? Wow! The media does such a great job. Ms. Applegate had the financial means to have every test in the book.  Right Connie?? Lori knew her "cyst" was there 2 years before dx. Possibly 10 years, due to the fact that she had "lumpy" breasts, and that lump was there.
 
They said....don't worry....be happy....it's just a cyst. Ultra sound....it's a cyst! Sure we'll take it out if it is "bothering" you! Cancer doesn't hurt! Cancer isn't "itchy".
 
I do thank Ms. Applegate if she will raise money for MRI's and gene testing. Perhaps then they will say that a mammogram is worthless.
 
Nancy


Posted By: Terri
Date Posted: Aug 19 2008 at 6:13pm
I was upset when I read an article about her the other night proclaiming herself to be cancer free. Although of courseI feel for her and what she has gone through , I don`t feel statements like that really help our cause. It just makes it seem like every BC caught early is "curable" and no big deal and minimizes what we go through. My best friend had that dismissive attitude about my dx for that very reason. She wouldn`t take the time to understand the triple neg situation because I was stage 1. Then she bailed out on me because she thought I was doing SO WELL during chemo (I didn`t lose 50 lbs attached to a morphine drip). 
 
Terri


-------------
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED


Posted By: krisa
Date Posted: Aug 19 2008 at 7:05pm
.


Posted By: trip2
Date Posted: Aug 20 2008 at 8:44am
I think Ms. Applegate needs to educate herself a little more before she begins raising money for gene testing or possibly anything else.  Any wrong information put out there by whoever it is does not help one iota.

-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: cg---
Date Posted: Aug 20 2008 at 9:29am
 
You know something Pam....there are so many, many intelligent, educated people who think we are "cured". I have a whole family that thinks I am "cured" - just like after the end of a course of antibiotics - the infection is "all gone".
 
There are many doctors who tell women they "got it early" are "cured".  Ms. Applegate's telling the world she took charge with being vigilant, having follow-up, and MRI and "saved her life by her surgery" and not having chemo - diminishes each of us...as if we did not do these things or try to get the best care we could.
 
What I believe is irresponsible for a high-profile star such as Ms. Applegate who may have fans that think "Gee, a rich star who could have and afford any treatment  - she did not have chemo or radiation, so why should I?" We do not know her hormone status, her HER-2/neu status, or her lymph node status. But, a blanket public statement acknowledging she did not have chemo - may seem like an endorsement and a woman who truly should be having chemo may refuse it!
 
But, having said all that,  if she cannot enlighten the world with the reality of breast cancer....then at least turn her high profile public exposure into a positive and raise money for those who cannot have the MRIs and genetic testing because they are cost prohibitive. 
 
Of course, my ex-onc never let me for one moment think I was cured from the "it's a crap shoot picking the chemo" to the "you still have breast cancer even though you were treated", to the "don't feel guilty when it comes back because there is nothing you did wrong". 
 
Yeah, if I did not have you wonderful, supportive women to hold my hand, lift my spirits, and allow me to talk freely about the truths we live each day since being diagnosed....my world would be much scarier.
 
Cyber hugs,
 
Connie


Posted By: trip2
Date Posted: Aug 20 2008 at 10:33am
Well I've said my piece but I did send this over to my daughter and she quickly wrote me back and commented that she thought Ms. Applegate was possibly being interviewed too soon after being diagnosed and having surgery.  Ok, I can go with that, it probaby is too soon.   Maybe she is in denial, there are many things that factors in to this as we all know but let's don't go on TV w/millions of viewers and state a fact when we know that could start a mess of wrong info as you so wisely pointed out in your post Connie.
I still think she should gather her facts before she reaches out to the public which we could use very much but not with incorrect information, it will flail.


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: Terri
Date Posted: Aug 20 2008 at 10:35am
Connie I wonder if her dr`s told her she is cancer free? Or is she in denial? And I think Nancy mentioned maybe she had DCIS.  I noticed on GMA she mentioned she only had "cells" not a tumor.
 
Anyway, I feel better that I`m not the only one who feels her statements are irresponsible and diminishing to our battle. My husband (who agrees with us) had to hear me ranting on my soapbox the other night! 
 
I really do appreciate this site so much too. It`s nice to have your feelings validated by people who know where you`re coming from!
 
Terri


-------------
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED


Posted By: Terri
Date Posted: Aug 20 2008 at 10:44am
Pam,
 
I think your daughter may be partially right.
 
When I watched the interview on GMA I was looking at Robin Roberts and wondering what must have been going through HER head. She is TN. I was wondering if she was as stunned as I was by Ms. Applegate`s proclamation!!


-------------
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED


Posted By: trip2
Date Posted: Aug 20 2008 at 10:46am
Go get em Terri!
 
 
Connie and Terri also as you both point out an error on our Onc or surgeon's part can play into this when they use the word cured.  I too heard it the first time and the second time, hmmm.
 
 


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: trip2
Date Posted: Aug 20 2008 at 10:49am
Terri,
 
Heidi did say that Robin Roberts pointed out that indeed there is a chance it could come back but I don't know when that was said, I didn't see the interview.


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: cg---
Date Posted: Aug 20 2008 at 10:52am
Cells!!
 
Obviously, she did not hear the "Once upon a time there a cancer "cell", and it grew and grew and it usually takes 10 years for it to be 1-cm, and sometimes "cells" break off and they go somewhere else in the body and it is called "metastases".
 
I got the "Breast Cancer for Dummies" speech on my first visit from ex-onc on the first visit and I want to assure everyone that even though we are just a hard-working, blue-collar, middle class family I  have not lived in a cave, without being able to read and write for the past 55 years that I have been on earth.
 
Connie
 
 
 
 


Posted By: Jessie
Date Posted: Aug 20 2008 at 11:11am
Oh, save me from the self-proclaimed experts who know just enough to be DANGEROUS !  Angry
 
Jessie


-------------
IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06,
systemic MRSA post surgery
septic shock, heart attack
triple bypass 1/07
no chemo due to infections and heart issues
so far NED!


Posted By: Terri
Date Posted: Aug 20 2008 at 11:29am
I just watched it again on the GMA website and didn`t see any discussion between she & Robin and on recurrence.  Hmmm

-------------
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED


Posted By: trip2
Date Posted: Aug 20 2008 at 1:39pm
Well maybe Robin Roberts mentioned it before or after the interview?

-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: Terri
Date Posted: Aug 20 2008 at 4:05pm
Yes Pam,
 
Robin said in a voiceover that Christina chose the tx that would give her the best chance to avoid a recurrence but didn`t question her about it. I`m sure Robin was just being gracious.


-------------
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED


Posted By: Cheryl51
Date Posted: Aug 20 2008 at 4:21pm
I've been out of the country for 3 weeks and just heard this on the radio this morning.  The dj's thought Christina A's attitude was "just great" and how "fabulous that she has put this behind her".. bla bla.
 
I just about crashed my car into the Golden Gate Bridge I was so pissed off. 
Cheryl51


Posted By: KCinFL
Date Posted: Aug 20 2008 at 4:49pm
Gosh, these are all great points.  When Ms. Applegate first announced that she had bc and that it was caught early, I felt like we weren't hearing the whole story.  Especially since she is young.  Maybe she is feeding the press a little bit at a time.  First she was going to be okay, because it was caught early.  Next, she had the bi-lateral mastectomy because that was her best shot at taking care of the problem.  Maybe there will be another announcement that her and her doctor felt it best if she did have the chemo. 

On a separate note, my sister Linda is totally bummed that someone as young and beautiful as Ms. Applegate wasn't having chemo and wouldn't be on display with her bald head.  She wanted a beautiful, bald spokesperson. 

I do hope that we hear more on her.  The more recently diagnosed women may not make the right choices with the limited information that has been passed on over this one.


-------------
Inherited BRCA1 mutation 5385INSC from my mom. Sister Linda dx with TNBC 5/23/08. Mom is a 22 year breast cancer survivor.


Posted By: cg---
Date Posted: Aug 20 2008 at 5:11pm
Dear KC,
 
Your sister need not be disappointed, there are many young and beautiful bald women who are our spokepersons.... who just do not have their own hairstylists and makeup artists.
 
No matter how beautiful, wealthy, or powerful,  women put on their panti-hose one leg at a time like the rest of us. Breast cancer seems to be the great equalizer crossing all classes and ethnicities.
 
Personally, I will feel sorry for her as the world looks at her "newly created" cleavage as she stands on a red carpet at some movie premiere.
 
I pray for the women who think they will keep their looks and not undergo chemo treatment because the beautiful Ms. Applegate chose not to.


Posted By: Nancy
Date Posted: Aug 20 2008 at 5:42pm
Ladies
 
When GinaMarie first mentioned her name, I didn't have a clue as to who she was. Then I Googled her, and found out she is an actor. I am in no way trying to diminish the fact that she was dx with breast cancer, but I know many more important women than Christine Applegate.
 
These are the women who I know.....Lori, Pam, Connie, Billie, SandraJean, Sibu(Donna), CarynRose, Ronda, Jessie, Jill, CalGal, Netterz, MsHutch, SadieRose, Bunnysmama, Footballfan, Beth Anne, Linda, Sandy, Marly, GinaMarie, Heather, Eileen, Elaine, English Jan, Terri, Kymmie, ............and the list goes on and on and on and on!!!
 
These are women who will be there for you on the days that you are really down.
 
These are women who will tell you in a heartbeat exactly what to expect as to the treatments you have to take.
 
These are women who will search for answers for you when you are too ill, or too terrified to do it on your own.
 
These are women who, if you can't get the care you need, will put you in touch with someone who can get it for you.
 
These are women who have offered to do a conference call with your onc, just in case he/she is not listening to your concerns.
 
These are women who, when they read your post as to how terrified you are at that time, are crying when they read your post. They know exactly what you are feeling.
 
These are women who have "been there...done that"...some of them more than once.
 
These are women who will tell you the best docs to see, the best facilities to go for treatments, and then will tell you where to buy the prettiest scarves for your beautiful bald head.
 
These are the women who will not mince words when you say you are not going to take chemo, because they know that perhaps you life may depend on that treatment.
 
These women may not be able to go on Tv shows to spout that they have been cured...........................
 
because they are the most intelligent women on the face of the earth...................
 
and they know that a cure has not been found for breast cancer..................or for any cancer.
 
These are real women who I am honored to know. They are my friends!!! All of them!!
 
Over 1000 strong!!!
 
Many, many hugs,HugHeart
Nancy
 
 


Posted By: cg---
Date Posted: Aug 20 2008 at 5:47pm
You make me cry and I am proud to be your friend....
 
 
Connie


Posted By: Nancy
Date Posted: Aug 20 2008 at 6:00pm
Connie,
 
I am crying...and I yours!!! I just get so sick and tired of hearing of the "beautiful people", who will be out there getting the awareness of bc, and the millions who are so sick and possibly dying waiting for a damn cure!!
Nancy


Posted By: Terri
Date Posted: Aug 20 2008 at 6:02pm
Nancy you don`t know how many times you have lifted my spirits when I was feeling down.  Made me laugh through my tears. Thankyou for always being here for us !!
 
Terri


-------------
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED


Posted By: Nancy
Date Posted: Aug 20 2008 at 6:15pm
Terri,
 
You are so welcome! I am glad that I can make you laugh. I have always made people laugh, all my life.
 
Never in my wildest dreams did I think that I would be on the site after Lori was finished with tx's. I am by nature a very compassionate person, and very empathetic to every person I have ever met who is experiencing tough times. Our family has been through some rough/bad/sad times, as I'm sure most families have.
 
Lori says that she feels this is my ministry. I don't know what it is. I just feel a closeness to all you gals and to the families. I may not ever meet you in person, but there is always room in my heart for another beating heart. Humans and animals.
Hugs,
Nancy


Posted By: KCinFL
Date Posted: Aug 21 2008 at 1:42am
Nancy, that was beautiful!  Lori is right, this is your ministry!

-------------
Inherited BRCA1 mutation 5385INSC from my mom. Sister Linda dx with TNBC 5/23/08. Mom is a 22 year breast cancer survivor.


Posted By: Marly
Date Posted: Aug 21 2008 at 4:19am
I saw her interview on Entertainment Tonight and thought the same thing!  If it were only that simple . . .


Posted By: QH RDR
Date Posted: Aug 21 2008 at 4:20am

Nancy, you have your ticket to heaven.  I am just constantly amazed at the pure, raw, decent humanity that exudes from all the people on this website!  Thank you Nancy, and ALL the women on this website that have lifted me from some of the darkest moments of my life.  I simply can't thank you enough.

Sandy



-------------
Dx 6/30/08, IDC, node positive, skin-sparing mastectomy 7/21/08, A/C (4 cycles) started 8/29/08


Posted By: Marly
Date Posted: Aug 21 2008 at 4:21am
Thank you, Nancy!!!!!!


Posted By: trip2
Date Posted: Aug 21 2008 at 4:56am
I too feel very proud to be a friend of Nancy's, I cannot imagine life without her,
 
 
AKA WatsonHeart


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: Jessie
Date Posted: Aug 21 2008 at 10:04am

Love you too -- all of you !!   And Nancy, you've really voiced our feelings !  Thank you for this wonderful group hug !!

Jessie


-------------
IDC,Stage I,Grade 3,dx 4/06
dbl mast 5/06,
systemic MRSA post surgery
septic shock, heart attack
triple bypass 1/07
no chemo due to infections and heart issues
so far NED!


Posted By: jdmelo
Date Posted: Aug 22 2008 at 5:01am
Nancy,
 
I do not post very often yet (just in the beginning, chemo starts 8/28)
But every post I wrote, you gave me some great hope.  I do read all the posts.
Thank you  
Diane M.


Posted By: Shoozy
Date Posted: Aug 22 2008 at 6:08am
Ms. Applegate is forgetting to say one simple thing.  That although her tests CURRENTLY show that she may be canger free, this does NOT mean that that cannot change.  She has the deep pockets to guarantee that she gets everything she needs, but to mislead people by saying she is cancer free without the caveat that clearly states that NO ONE should forgo chemo or other treatments based on HER diagnosis !!!
 
Sure its great that she is speaking out and trying to raise money...but just as important she needs to TELL people that each person is different and to NEVER NEVER NEVER base your decisions concerning YOUR treatment on what someone else has done..no matter who they are.
 
 


Posted By: sharon in Mich
Date Posted: Aug 22 2008 at 7:44am
Cherly51--I loved your reply, laughed out loud, but am glad you didn't crash into golden gate bridge!

Sharon


Posted By: Nancy
Date Posted: Aug 22 2008 at 10:56am
Shoozy,
 
Welcome to the siteClap What a great first post!!! You are so right!Clap
 
I couldn't sleep night before last, and I had the TV on around 2:30 AM. Christine was on with Robin, and the only thing that I heard her say was that it was ok to cry, etc. CRY???? Lori was screaming, sobbing, you name it, she did it!! Actually, I didn't think that she appeared to look well. She couldn't.
 
Then there were 3 other women talking about her dx, etc. They didn't know squat about BC! Who are these people??
 
Perhaps she can raise "awareness", but to actually get MRI"S for gals....she has to fight the insurance companies for that. If she wants to dig into the "deep pockets" for that quest, then have had it!!!
 
 
That is why this site was established...to provide information to those dx, so that they could form their own opinions as to what was the right treatments for them. Each gal is different, and for the media to talk this up is so irresponsible. But then...that's what they do. They are just actors also. I give no credence to anything that they say....ever!!! Good thing there are gals such as is on this site with the intelligence to see there reporting for what it is. Hype!!
 
Again Shoozy.......welcome.
Hugs,
Nancy (Lori's Mom)
 
 


Posted By: Nancy
Date Posted: Aug 22 2008 at 11:00am
jdmelo,
Thank you, and please keep posting to tell us how you are doing. I have a list of "TIPS" for chemo and rads that I am compiling, given to me from the gals on the site. I will send them to you if you want them, but the only problem is that they are in Microsoft Works, and many could not open it. Do you think that you could?
 
Nancy


Posted By: Nancy Bell
Date Posted: Aug 22 2008 at 11:23am
Nancy
You are such a wonderful person.  I read most of the posts and you never miss a newcomer or a chance to encourage anyone who is feeling down.  I believe it really is your ministry and I admire you for your diligence and passion for all of us. 
I also want to mention that my daughter & I discussed this the other day and she was confused by the way it was portrayed as well.  Like I told her  "this is why I don't watch much T.V."  We then got into the discussion of how sad it is that we (people in general) pay so much more for entertainment than we do for education. Disapprove Where is the priority?
I love you all.
Nancy


-------------
dx 8/17/2007 IDC Grade 3 Stage2
lumpectomy 9/19/2007
1.2cm w/extension into multiple intramammary lymph nodes
SNL 0/1
Ki-67 81%
Dose Dense AC/T completed 2/21/08
37 rads completed 5/02/08


Posted By: Nancy
Date Posted: Aug 22 2008 at 1:07pm
Nancy,
 
Thank you, but it is not I who does the research for all you gals on the site. That would be Pam, and she is on here daily posting articles that she has found. I really don't know how she does it, as I have looked, and don't come up with the "news" that she finds. Billie and I think that the TNBC Foundation site should send her a laptop so that she could sit more comfortably for the hours she "searches". She is the one who has contributed many of the "Questions", and the "tips" which I have typed. I have the time. I am not the one who was dx TNBC. I know what Lori has endured, and I know how it tormented her dear body. Just as it has yours and all the other gals here.
 
Pam, like many of the gals here, has "been there...done that", not once, but twice, and it is the knowledge from her and the other gals, who have made this site what it is today.
 
I do not watch very much TV. I believe that the media tells us what they want us to hear. I form my own opinions based on what I read. Everyone who posted as to Christine, was quick to respond with resounding...."I don't believe what they are saying".
 
Smart gals here...everyone of youWink
Hugs,
Nancy
 
 
 


Posted By: billie
Date Posted: Aug 23 2008 at 7:14pm
Hi my dear friend Nancy,
       Oh yes ,you have expressed out loud the feelings that so many many of us feel.A closeness that I call a bond that will always be there for the highs ,the lows and all the in betweens.My computer crashed,and guess what ?This is my first writting on my little emachine.This is all the computer that I need.But as Nancy mentioned.I think that it would be a wonderful jestor for the foundation to buy Miss Pam a new laptop that has every thing that she might need to help to keep us informed as well as what she has been doing.She works tireless hours to get to us much needed information.I know for a fact that she has a little book keeping system going for herself in regards to this foundation and yet she also finds the time to be right beside Nancy to welcome each and every one of us.I read in a posting one time that she had made and if I remember correctly,it was mentioned that she shoud get a salary for all that she does for this foundation.Her words were that she would never want a salary,because she gets so much back from doing the research for us.I mentioned to Nancy that I personally think that the foundation should buy her a laptop of her very own.Nancy agrees with me.I am in hopes that Nancy sends a message to Haley for this.Miss Pam was having some tests done on her tummy and she had to be away from her beloved computer for several days and she could not wait to get back to her beloved foundation.If she had a laptop,she would be able to stay in touch ,no matter what she was having to have done.What I think that I am going to do is to start a topic for the foundation to buy Pam a laptop for her dedicatedness to this foundation.Pam has had BC not once but twice and she is still working tirelessly for us.I think that she has mentioned this in her postings,or I would not mention it now.After her last chemo last year ,she has been experiencing problems with her tummy being sore all the time.Her own Dr. has been trying to help her to find out what this may be,but to has not found out the reason.So she was sent out of town to get some big tests done checking out her upper and lower stomach.That is when I just knew that this beautiful lady needed a laptop,so that she could constantly be in touch with her wonderful foundation while she was trying to also take care of herself.These tests were done this past Tues. and Friday ,and of course you ladies know how hard the waiting for answers about your health especially having been diagnosed twice with BC.So I am asking each of us to be saying a wonderful prayer together these next few days for Pam also known as trip2. We can only imagine how scared we would be after getting the diagnoses TWICE.
    The ladies on this wonderful,wonderful foundation helped me to help me to inspire my sister and to help me to be able to research for what I call the double whammy.Not only are we hit with the fact of breast cancer,well you had better suck it up,because there is much more to learn about what you have just been diagnosed for.So much to try to wrap your head around that stands for Triple Negative.That is why that I call it the double whammy.
     I do not believe that our Miss Nancy ever sleeps.She is tireless at her home ,painting the inside of her house and tireless on this foundation.And brother I would always want her on my good side and never my bad.Oh I forgot to also mention that Miss Nancy also teaches swimming in her tiny amount of spare time. I know that if I was to check to see if Miss Nancy is on right now she would be there welcoming each and everyone,also like me (with a tear streaming down her face and oh yes anger.That is our Nancy.
     Sometimes when I read a posting and I can feel the desperation in someones typing,I try to find the exact words to let them know that even though it may be a little while later,that I know for a fact that one of or several of these ladies will answer them as soon as they read their posting,and will be there to help in what ever way that is needed.I do this while I am constantly wipeing the tears from my eyes.I can feel in their typing the desperation that my sister and I had at one time.Bye the way,my sister is at this time doing fine,she is just trying to get through the radiation.She is almost half way through.We are gathering a second wind,and absolutely ready to fight again,if that should happen.
     So ladies,lets say many many blessings for Miss Pam, that the results to all her tests come back wonderful, and yet they finally find out what her tummy problem is and that it gets fixed.So I am going to now post a topic on Why the foundation should buy Miss Pam a laptop.
  Huggggssss  to all   Billie


-------------
Billie posting for sis Betty/67/caucasion female/diagnosed 2-27-08/gradeIII/7mm/invasive ductal carcinoma/T N /clear margins/node neg/4 X's taxotere-cytoxan/36 rads/7-08 PET/CT double image/no cancer


Posted By: hayleyd
Date Posted: Oct 06 2008 at 7:13am
I am so proud to be part of this site and to be associated with all of you . . .

Believe me, all of us at the TNBC foundation are absolutely horrified by the nonsense that Ms. Appelgate has been spreading. We're trying so hard to get our message across. We haven't given up on Oprah and are hoping to one day be able to educate the millions of women who watch her show about the reality of bc and tnbc in particular.

As to Pam, I thought she just got a new laptop . . . am I mistaken? Does she need one?


Posted By: Nancy
Date Posted: Oct 06 2008 at 8:31am
Hayley,
 
Thank you for the post as to Ms. Applegate. However, the media has done nothing to correct her statements, and the young women who are her fans are being mislead as to the diagnosis and treatments for BC.
 
Is there a way to contact the media and stop this nonsense that she is spreading? I got on her web site, which is not quite finished, and sent a comment telling her to stop telling the public that she is cured, when there is no cure for cancer, and that she is misleading the public by making that statement. Of course, I have not gotten a reply. I will send a comment to Oprah, but that will probably not help either.
 
Yes, Pam does have a lap top, but if this one stops working we will definitely let you knowWink 
Nancy


-------------
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008


Posted By: trip2
Date Posted: Oct 06 2008 at 9:23am
Hi Hayley,
 
It is so nice to "see" you!
 
We know you are working hard and it gives us a feeling that finally help is out there.  You'll never know how much we appreciate what the Foundation is doing.
 
Love


-------------
Stage 2 2003
Stage 1 2007
BRCA 1+


Posted By: krisa
Date Posted: Oct 06 2008 at 10:32am
we could each write a letter to the editor of our local newspaper===this is october, ie. breast cancer awareness month.

a couple of weeks ago, the owner of the real estate company that I work for, sent out an email encouraging everyone to participate in the Komen Race For The Cure...as he stated: 
" we are so close to a cure"

Well, this was news to me. Smile





Posted By: Nancy
Date Posted: Oct 06 2008 at 11:09am
Krisa,
 
Did you tell this out-of-touch-doesn't know what he is talking about owner, that there is no cure, and that we are no closer to finding a cure than we were 70 years ago? That the only treatment is poison which is infused through your veins to the point of killing you. Then you are given meds to offset the poison, and that these meds actually do harm to your dear bodies also.
 
Writing a letter to the editor is an excellent idea. We need to inform them as to what Ms. Applegate is telling the public, and that the information is false and misleading.
 
We need to tell them to visit the TNBC Foundation site, and to read what the gals, their families and friends are posting. Also, to visit all the other BC sites.
 
We need to tell them that if they checked, they would find that only 20% of the donations for The Susan G. Komen for the Cure actually go to research. Thjat is what Connie had posted just a few days ago.
 
We need to tell them that there is no specific treatment for TNBC, that they give you gals the same tx as for BC+. Yet TNBC is a very aggressive BC.
 
Enough with the "awareness" as CarynRose stated. Just find the cure.
 
Nancy
 
 


-------------
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008


Posted By: krisa
Date Posted: Oct 06 2008 at 1:30pm
Nancy,
He is my boss and I would like to have a job when I go back to work. LOL
I have met women who have had breast cancer who believe there is a cure, so i can't fault my boss for not knowing.
Writing is not my forte, but I am going to compose a letter for the Oregonian.


Posted By: Darla
Date Posted: Oct 06 2008 at 2:21pm
Hello Ladies,
 
I just wanted to jump on the "Nancy Fan Club Bandwagon" - Nancy thanks for all you do - and all of you ladies. No wonder people quit there jobs and become full-time advocates - there is so much crap being propogated out there, and I'll say it again - I hate October! Maybe I'll call it Breas Cancer Misinformation Month - For all the "awareness" campaigns out there I bet if you took a survey the majority of people would say that BC is curable if caught early and would seriously underestimate the number of women who die from it.
 
I mean "their" jobs - damn this post-chemo brain.


Posted By: Nancy
Date Posted: Oct 06 2008 at 3:06pm
Darla,
 
Oh! They do! They do!! They tell Connie "you will be just fine"! Connie said she would be sure to tell her doctor that!
 
Or they say, I know women who had this 10 years ago and they are "just fine". Yeah!!! Well Sweetheart! This ain't your grandmother's breast cancer!!
 
Or....How is Lori doing? She's all done now? What the H---? Yeah! Lady! She's all done now! Of course.....there's nothing else to do now!!! Just sit and worry, but that is my job!
 
I think my letter to our Altoona Mirror will say just what you said: "BREAST CANCER MISINFORMATION MONTH". How much do you want to bet that when I send this letter, with Ms. Applegates' BS propaganda message as so very wrong, that they will not print it?
 
I will send it, and if/when it is published, I will post it on the site. In fact, all of you who do send a letter to your paper should post it also!
 
Chemo brain....senior moment...Darla they are one in the same sweetie!
Nancy
 
is anyone else having a problem typing a reply? Everything is all shaky and the little blue circle keeps coming up when I move my mouse beyond the reply section.


-------------
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008


Posted By: billie
Date Posted: Oct 07 2008 at 8:07am
Good morning Ladies,
        Hi Haley,yes our dear friend has a laptop now,and I along with Nance will be sure to let you know right away if it crashes.
 
       So ! Let me tell you how our beloved Miss Pammie got a laptop.Even tho Connie,Nance,nor I could not figure out a way for us to purchase her one,we put out the word that if anyone had one just laying around that was not being used and guess what!!!Nancy (whom I call Nance)Ya'll have to try to forgive Nance and I ,while we do not have chemo brain,we certainly can relate with all of you , as to ours  ,we call ours senility.So one day,when Nance had time to direct her brain towards something other than the foundation she happen to remember that her son in law(Lori's Husband,a while back happened to ask her if she would like a used laptop.At that time Nance said no ,but that she was going to ask if he still had one on hand,and he did.Not only did Nance and her family send one to Miss Pammie,Nance's son in law took time to clean the lap top up for Miss Pammie.The last time that Pam and I had mention of her new baby(her new laptop). she was propped up against pillows and a heating pad for her aching back and her feet and legs were stretched out in front of her on her bed,(her feet and legs,bent and hanging down) begin to hurt if she is at her computer desk for to long a period.What a wonderful gift for such a dedicated member of our foundation.
     So you see ladies,the moral of this story is that you have to open up your voice and ask for what your dear friend or even  your needs are for.No one can help you unless you speak up.And that is the same way I feel about getting information to John Q Public about Triple Negative Breast Cancer.
 
     I used to watch Ellen everyday.But I have to say that I am a little put out with her,but I intend to keep trying.I have sent 2 emails to her with no responce from her or her staff.AngryAngry
    I simply asked her to get on her laptop and read the postings on the TNBC foundation.I know that she already raises a lot of monies for the Komen foundation due to the fact that her mother is a 30 year survivor.And she raises money everytime her show airs from the dunking of one of her audience or one of  the celeb guests...
   What both of my actual email's were trying to get her to do,is to provide a meeting place for all of the senior members.What a wonderful thing she  could do for all of you.My heart would be so full,if I could just know that just one time all of you ladies could get together and for the first time see and be with each other even if it was for just a short period of time.(Possibly a cruise for all of you)Probably not possible for that,but an  over night thing at a nice meeting place to have dinner together ,pre paid for all of you, would be just a wonderful gift and blessing.I even went to the extent of trying to explain that she and her new wife could very well get the diagnosis of this subtype at anytime. Contrary to what  you may read about this subtype,it now includes women of all color and women of all ages and that at this time there is no humane way of treating it other than the horrible poisen of  chemotherapy.And at the meeting of my sisters back Dr. yesterday, my sister and I were both to learn that even radiation can cause the bones to thin.
    I do not feel that money being spent for this, instead of monies being donated for the cure,would hurt the BC foundation in any way.It would be such a blessing for all of these ladies to get the chance to meet each other.I personally think that they should change their words about the Koeman Walk For A Cure.It should say Walk and Donate for a way to keep Breast Cancer  in Remmission.
   You know ladies,it is my belief that there is never going to be a cure for Breast Cancer(there is too much notariaty and monies to be made for the scientist at the pharmasudical companys ,But I would be content right now if the wonderful scientist could at least figure out an alternative for the treatment of Breast Cancer.To many of the ladies ,their first choice is for the removal of their body parts along with the horrible horrible poisen being pumped into their bodies along with radiation that can leave the once healthy human body with so many different lingering cronic illnesses.But of course this is a better choice than the alternative.(DEATH)
 
   It has been 40-60 years ,and every year the numbers grow higher and higher,and every year more subtypes mutate with no cure in site.The scientist sometimes develope(and for us ,it would be a mericle,) an alternative in the treatment plan .You betcha we will take that.But,before that,God Bless them, they are discovering ways trying to make your journey on chemo a little more tolorable. My prayers everyday are with all of us as women and of course some men that some how someone finds a way to fix this EPIDEMIC .Lots and Lots and Lots of Hugggggsssss     Billie 


-------------
Billie posting for sis Betty/67/caucasion female/diagnosed 2-27-08/gradeIII/7mm/invasive ductal carcinoma/T N /clear margins/node neg/4 X's taxotere-cytoxan/36 rads/7-08 PET/CT double image/no cancer


Posted By: krisa
Date Posted: Oct 07 2008 at 8:12am
  I decided to compose a 3 or 4 questions to send to my friends and family, to find out what their perception/knowledge is when it comes to our disease. 


Posted By: Nancy
Date Posted: Oct 07 2008 at 9:26am
Krisa,
 
I have written a letter, while not yet "polished", and am going to copy and paste it here.
 
Here it is, but will be revised many times probably.
 

October is “Breast Cancer Awareness Month“. The stores are filled with items from jewelry to t-shirts to kitchen items. We are being asked to buy these products and a portion of the sales will go for “research” for breast cancer. That amounts to probably a penny on a dollar for most of these manufacturers. There is even a key chain “Thingamaboob” for sale. It represents the different sizes of lumps. Not sure what moron designed that. Anything to turn a profit from some ones grief.

Christine Applegate has been on Oprah, and is telling the world through the media, that she is “cured”. She had a bilateral mastectomy and a hysterectomy, and an oophorectomy. Ms. Applegate carries the BRCA (breast cancer gene mutation, and that is why she decided to have the surgery. She will not have chemotherapy, or radiation, due to the fact that she is “cured”. There is a distinct possibility that Ms. Applegate has triple negative breast cancer, as 80%-85% of BRCA carriers have that diagnosis.

I would like to rename October Breast Cancer Misinformation Month.

THERE IS NO CURE FOR CANCER! If there was, 183,000 women would not be diagnosed with BC every year and 40,000 would not be dying here in the United States alone. One person every 60 seconds would not be dying somewhere in the world from cancer! Ms. Applegate and her entourage need to stop feeding the public this lie. Women all over the world are outraged at her statements. Any person ever diagnosed with cancer is outraged!

Last year our daughter, (age 45 then), had an ultrasound and was told that she had a breast fibrodenoma cyst. It was not a cyst, as they discovered during the surgery. She was diagnosed with Triple Negative Breast Cancer in June 2007. She then had a mastectomy at Magee Women’s Hospital.

Our daughter never smoked, drank, not even coffee, has been exercising for over 25 years, was in a triathlon 3 years ago, and led a very healthy lifestyle. Cancer does not discriminate.

She had 6 chemotherapy treatments, 1 every 3 weeks, consisting of Adriamyicin, aka “the red devil”, Cytoxan and Taxotere. All 3 drugs, every chemo. Our daughter had that poison infused in her veins, which almost collapsed, because there is no cure. She then had 28 radiation treatments. Because there is no cure Did you know that the radiation could cause more cancer? While on chemo, she took many other meds to off set the side effects of the chemo, (because there is no cure), which in turn have side effects.

She lost all the hair on her body, everything that she ate tasted like metal, and through many of the treatments, she was very ill. She now has neuropathy in her feet, has lost her eyelashes/eyebrows, 4 times, and probably will be feeling the side effects of chemotherapy for many years. However, she goes to work every day, and with the exception of chemo day and 2 days after, she went to work through all her treatments. Triple Negative breast cancer is a very aggressive cancer. There is no specific treatment for TNBC. This is a cancer not driven by hormones as most breast cancers. Patients receive the same chemo regimens as for BC positive. However, TNBC patients cannot take the new drugs on the market for after chemo, as can the BC positive women.

They say “the cure is close”. They lie. They are no closer to a cure now than they were 60 years ago. You can lick all the lids you want, buy all the pink items you choose, and just a tiny portion of those sales go for research. One foundation in particular gives only 20% of their donations to research. If you really want to help someone diagnosed with cancer, help that one person. Do their shopping, do their laundry, care for their children, scrub their toilet, cook their meals once a week for a year. When that year has passed, and after the horrible poison has affected every part of their body, just be there for them. Do not tell them that they will be fine. No one has that assurance, because there is no cure! They say that many people die from the chemotherapy as it causes your body to become malnourished.

“They” tell you that if you have a positive outlook that will help cure you. Really?

If you want to learn more about Triple Negative Breast Cancer, I would invite you to read the posts on the TNBC Foundation site. Read the posts of over 1000 members. Read the posts of the gals with Stage IV cancer, metastasis, second time around gals, and hear what they have to say about Ms. Applegate and “the cure”. See what they have to say about those who tell you that, “cancer is a gift“!

My maternal grandmother died of ovarian cancer when my Mother was 9 years old in 1922 and still there is no cure for ovarian cancer. Our grandson was diagnosed with leukemia at age 3, and went through 3 years of chemotherapy. He is now 20. There is no cure for leukemia. This family has seen all the cancer we ever want to see, and we know there is no cure, nor are they even close to finding a cure. If our government will not fund stem cell research, the “cure” will be probably 100 years from now. The pharmaceuticals are making a killing from the chemotherapy drugs, and if a cure was discovered that would cut into their profits big time. They have no reason to push for a cure. Just more drugs will be manufactured to attempt to kill the cancer cells, but never to find the cause or the cure.

 
Nancy


-------------
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008


Posted By: Darla
Date Posted: Oct 07 2008 at 9:36am
Nancy,

So well said! I love the way you write, your passion really comes through.

Darla



Posted By: Nancy
Date Posted: Oct 07 2008 at 9:50am
Darla,
 
If anyone wants to copy the entire letter, or even portions, please feel free to do so. You all have that personal side of your particular story as to your dx, and I have a tendency to become very emotional when it comes to my loved ones, and your posts as to what you have been through.
 
I doubt very much that our Altoona Mirror will even publish this. They never want to offend some public figure. Especially those adamantly against stem cell research. If it is published, those in the far right will write to say I am a baby killer. That is the mind set here. Even though the sperm banks are depositing the embryos in the trash.
 
Nancy
 
 
 


-------------
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008


Posted By: ReneeST
Date Posted: Oct 07 2008 at 5:46pm

I just received an email from Safeway . . ..subject line:

 
Shop & Support Breast Cancer Awareness
 
 
If they wanted awareness, I'd lift my shirt up and show them my scars.   This was too much to receive in my email today after reading the above entries which are so true.


-------------
56 yo Seattle, WA Stage 1, Grade 3, 1.3 cm IDC Lumpectomy Aug 2008
SNB neg;4 rds Taxotere & Cytox. BRCA-2 Variant. 16 Rads Jan 2009 "Canadian Study"
www.reneesbumpintheroad.blogspot.com


Posted By: Darla
Date Posted: Oct 07 2008 at 6:18pm
Renee,

I am with you all the way. First of all, one would have to live in a cave not to be "aware" of breast cancer! Aside from all the snide names I'd like to rename October, they really should rename it to Breast Cancer Education or Research or something. Second, I know that money is raised for research and education via the donation of profits but honestly I don't ever want to see the words SHOP and BREAST CANCER in the same sentence. Honestly, why don't they call it "Buy Crap you don't need because it has a pink ribbon on it and feel good about yourself for helping raise awareness of Breast Cancer and forget all about it until next October Month" and from the selling side, why don't they call it "Pink Ribbon Gold Mine Month"


Posted By: Nancy
Date Posted: Oct 07 2008 at 7:17pm
Darla,
 
May I include  some of the statements that you have made in my letter to the Altoona Mirror? They are the true faces of BC awareness month!
 
Nancy


-------------
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008


Posted By: Darla
Date Posted: Oct 08 2008 at 6:23am
Of course Nancy - just don't name me Smile


Posted By: kimm
Date Posted: Oct 08 2008 at 8:23am
Hi everyone,
 
I hope everyone doesn't get mad at me but I take the opposite point of view regarding Christina Applegate and Breast Cancer awareness month.
 
Although I to get tired of seeing all the companies using BC as a way to sell thier products I am just grateful for anything that brings attention to this disease.  My best friend was treated for thyroid ca at the same time as I was involved with my BC. There is NO attention or support or fund raising for her cancer and it is every bit as real and scary and can also be quite deadly. 
 
Think of all the illnesses that are rare and get very little funding for research. Although there may not be a cure in the very near future for us, at least they are working towards it.  As we all know the words "triple negative" were not even heard of not very long ago. 
 
As for Christina Applegate,  how many of you actually give someone the gorry details of how you are Really doing when asked?  I always find myself giving people the answers they want to hear as to not make them uncomfortable.  Besides I really don't want everyone to know how I am really diong or how scared I am of the possibility of a recurrence.  Most people can't handle that info including my own family members. 
 
I agree that she should choose her words carefully as they can affect so many, but do you really think women will choose not to have chemo if her Onc feels it is necessary because Christina Applegate didn't have it?  I imagine she also may be presenting a positive outlook for the sake of her public image and career.  I would bet that she is very aware of what her future could bring. 
 
I just think we should give her a break.  She is one of us.  With all the same fears and just because she chooses not to broadcast them we should not rip her apart. 
 
 


Posted By: Terri
Date Posted: Oct 08 2008 at 6:55pm
Kimm,
 
I have to agree with you on some things.  My mom has Lupus, rheumatoid arthritis, fibromyalgia and reynauds disease. She has been battling these diseases for 11 years and has seen her health deteriorate steadily. There are a few times she was so sick we didn`t think she would make it! 
 
So a few years ago we were somewhere with pink ribbons and pink merchandise all around us. She expressed her frustation about how much attention and money BC gets to find a cure, and her diseases aren`t even talked about. Little did she know her sisiter and daughter would eventually be dx with BC in the same year! But she had a good point. Her diseases have stolen her health, she`s been hospitalized, taken numerous meds with bad side effects, had sx on her deformed fingers and will never get better. Where`s HER Ribbon?
 
I also agree that Christina is one of us. Of course! But I was one of the first people to write about how damaging her words were to our cause. I believe she`s been given bad info. And I agree that she is trying to put on a brave face for the public. We`ve all done it at times to, like you said, to avoid making people feel uncomfortable.
 
But....there was a young lady on this very site who gave chemo a second thought because of what Christina said. And some people I work with took her at her word she was "Clear". They were asking me why I just didn`t get a double mastectomy and be done with it. So I think it`s a little irresponsible of her not to explain better why she is claiming this. I take the time to explain to coworkers, friends, and whoever wants to know about TNBC and why it is a different disease than hormone pos BC.
 
Kimm, you have a kind heart. I think it`s great that you see this from a different perspective. I think we can get too cynical sometimes!!
 
Terri


-------------
IDC DX 8/17/07 (age 41)
Stage 1 Grade 1-2, 1.35 cm
2 nodes neg, Lumpectomy 10/07
Chemo: FEC 100 x 6, 35 rads
BRCA 1/2 NEG
PET/CT & Brain CT Nov 09
Brain MRI Aug 2012 NED


Posted By: Nancy
Date Posted: Oct 09 2008 at 8:07am
Terri and Kimm,
 
I was the one who responded to the gal who was not going to do chemo due to Ms. Applegate's statements. That is when all the gals started posting.
 
She is definitely a "sister". Anyone dx with bc is a sister. My heart goes out to her. It is her onc and her entourage who are being so irresponsible. Her agent should publicly state that they were wrong in declaring that she is cured. I'm not sure if any of you read Hayley's post as to Ms. Applegate, but just back up on the posts on this topic to page 4 and you will find it.
 
Hayley and the TNBC foundation were also taken back by what she has been feeding the media.They are working so hard to get the word out on TNBC, and then the media is almost pooh poohing the real truth. If Ms. Applegate carries the BRCA gene mutation, there is a distinct possiblity that she is TNBC. I "think" that from what CarynRose has said that 80% of BRCA1 are TNBC.
 
From the few snips that I have seen of Ms. Applegate on TV, she looks terrified, and I can see that look in her eyes just as I have seen in Lori's eyes. No amount of make up can cover that up.
 
Kimm, you do have a sweet, kind heart, Red%20Heartand we are here for anyone dx with bc.
 
Terri, your Mom has endured so much, and her life has certainly not been normal by any means. She's right! Where is her pink ribbon.
 
Hugs,
Nancy
 
 


-------------
Nancy
DD Lori dx TNBC June 13,2007
Lumpectomy due to incorrect dx of a cyst
mastectomy July 6 2007
chemo ACT all 3 every 3 weeks 6 tx Aug-Nov
28 rads ended Jan 2008


Posted By: Nancy Bell
Date Posted: Oct 09 2008 at 8:51am
Kimm
I agree and I remember when I was diagnosed, I didn't know this would be something I would have to live with everyday for the rest of my life. I didn't have all the information. And I felt like I was in a whirlwind when I started finding out more and more info.  In fact, it was actually months before it all sank in.  I think this might be where she is coming from as well.  Yes, she should chose her words carefully.  But so should we.
N


-------------
dx 8/17/2007 IDC Grade 3 Stage2
lumpectomy 9/19/2007
1.2cm w/extension into multiple intramammary lymph nodes
SNL 0/1
Ki-67 81%
Dose Dense AC/T completed 2/21/08
37 rads completed 5/02/08



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