TNBC Talk - Tnbc specialists/ clinics

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Tnbc specialists/ clinics

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: TNBC Talk
Forum Description: A place to chat
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=13899
Printed Date: Mar 26 2026 at 6:05am
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Topic: Tnbc specialists/ clinics

Posted By: HelenD
Subject: Tnbc specialists/ clinics
Date Posted: Sep 20 2025 at 4:11pm

Hi all,

I was diagnosed with tnbc July 24 when breastfeeding.

Did all the standard treatment,mastectomy, Pembrolizimab, radiotherapy all went fairly smoothly but I have local recurrence on breast and supraclavicular lymph nodes. I'm her2 low, so have started enhertu, but my gut feeling is it isn't doing much so far.

I'm in UK, but willing and able to travel if needed.

I'm keen to explore other options such as neoantigen vaccines, or any potentially helpful US trials. I'm new to all this, as I didn't read up at all first time round and am not sure who are the experts in tnbc.

Any advice welcome!

Replies:

Posted By: cookie54
Date Posted: Sep 21 2025 at 9:12am

http://https://www.mskcc.org/cancer-care/doctors/tiffany-traina" rel="nofollow - http://https://www.mskcc.org/cancer-care/doctors/tiffany-traina

Hi, So sorry to hear you are dealing with a recurrence. Here is a good place to start MSK in New York does participate in research and clinical trials. I'm not sure of what's offered now but I did use Dr Tiffany Traina for my second opinion she specializes in her TNBC. I was very pleased her with knowledge and she worked together with my current oncologist to come up with my plan . Sending you good vibes and strength as you navigate through this.Hugs.

-------------
8/16,IDC,StageIA,Gr3,0/1 nodes ER-PR-HER2-
9/16 BMX,AC
6/20,StageIIIC,Gr3,ER-/PR-HER2-
6/20 Carbo/Gem/pembro
10/20 ALND 5/8 nodes,Rad x25
11/20 thyroid ca
Xeloda2/21
Stage IV 6/22 lung mets

Posted By: HelenD
Date Posted: Sep 26 2025 at 3:45pm

thanks :-)