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New diagnosis

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Welcome New Members
Forum Description: A place to introduce yourself to our community
Printed Date: Apr 01 2023 at 10:51pm
Software Version: Web Wiz Forums 12.01 -

Topic: New diagnosis
Posted By: Tracy67
Subject: New diagnosis
Date Posted: Oct 02 2022 at 5:56pm
I was diagnosed with breast cancer in August. Had lumpectomy and 8 nodes removed last week. Diagnosis: The predominance of the lesion is ductal carcinoma in situHowever, there is a focal area of invasive ductal carcinoma. This area is 4.2 mm.  Invasive carcinoma of no special type (ductal)
Grade 2. All margins negative for invasive carcinoma. TRIPLE NEGATIVE T1a.  
I donít know where to go next. Looking for oncologist w specialty in TNBC. I have an appt Oct 7 at Christ Hospital in Cincinnati but donít know how much experience this doc has. I looked at doc profiles at The James cancer Hospital in Columbus Oh and found one doc that listed TNBC but cannot get appt until Nov 7. How should I proceed. Should I wait for Nov appt? Is there a way to get appt moved up?  TIA

Posted By: cookie54
Date Posted: Oct 03 2022 at 7:02pm
Hi Tracy, Sorry that you find yourself here dealing with breast cancer. It's definitely a club nobody wants to join but we are drug in!

So I see you have an appointment with Oncologist on Friday and that's a good place to start. It's possible that the doctor will be able to get you in sooner by reaching out to the TNBC specialist. It's also possible your oncologist can collaborate care with the TNBC doc. I have been with my MO since initial diagnosis in 2016 but recently got a 2nd opinion with A TNBC specialist at Sloan Kettering. So together they are collaborating my treatment plan. Discuss your options with your MO on Friday and see where it leads.
I see you're in Ohio, would you consider going to The Cleveland Clinic? There is a wonderful member on here Steve who helps many women find a doctor. Perhaps he will see your post and have additional information. Also you can private message him, it's worth a shot.
I don't know if I helped at all but I most importantly wanted you to know you are not alone. Good vibes and best of luck with your appointment on Friday. Keep us posted. 

8/16,IDC,StageIA,Gr3,0/1 nodes ER-PR-HER2-
9/16 BMX,AC
6/20 Carbo/Gem/pembro
10/20 ALND 5/8 nodes,Rad x25
11/20 thyroid ca
Stage IV 6/22 lung mets

Posted By: Tracy67
Date Posted: Oct 03 2022 at 9:40pm
Thank you,Andrea!
Your response was very helpful. I now have more questions to ask my MO on Friday. Cleveland seems a little too far. The cancer center at the James in Columbus is 90 min away and that soundís doable. I would still like to talk with Steve. How do I pm?
Thanks again, Tracy

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