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A long, long overdue Symposium

Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Palliative Care: Supportive Care Resources
Forum Description: Improving quality of life for TNBC patients
Printed Date: Nov 19 2019 at 2:05pm
Software Version: Web Wiz Forums 12.01 -

Topic: A long, long overdue Symposium
Posted By: SagePatientAdvocates
Subject: A long, long overdue Symposium
Date Posted: Mar 21 2014 at 12:03am
For the first time in its 50 year history ASCO (the word's premiere organization of clinical oncologists) will have a Palliative Care Symposium in Boston in the fall.

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I am delighted ASCO has taken this step. 

In recent months I have helped several patients who needed supportive care services and the oncologists, unfortunately, micro-managed everything instead of referring the patients to a supportive care unit or a hospice unit.

The head of a major cancer center told me several years ago. "We are not properly trained in palliative care issues (both supportive care service and at-home and in-patient hospice). Our training is to heal. We generally want to manage every aspect of the patient's care, even when we don't have the time or knowledge to do so. It is a huge problem." Finally, it seems ASCO is directly addressing the issue. The effort is long, long overdue but, at least, this is a start.

I believe the conference will be well done and I am looking forward to attending.



I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates

Posted By: 123Donna
Date Posted: Mar 21 2014 at 7:22am
Thank you Steve for sharing this important topic.  

DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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