Survey request from LBBC
Printed From: TNBC Foundation
Category: TNBC Forums
Forum Name: Archived Announcements
Forum Description: Old Announcements - Keeping for history reference
URL: http://forum.tnbcfoundation.org/forum_posts.asp?TID=11680
Printed Date: Mar 26 2026 at 12:20pm
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Topic: Survey request from LBBC
Posted By: arleneb
Subject: Survey request from LBBC
Date Posted: Dec 06 2013 at 1:28pm
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Our friends at Living Beyond Breast Cancer are conducting a https://www.surveymonkey.com/s/BCNeeds2013" rel="nofollow - national survey to assess the unique information and support needs of all women with breast cancer. Available online until midnight PT on Friday, Jan.10, the survey asks about the information and support available to women with breast cancer. The organization will use the survey findings to identify and address gaps in services for people with specific breast cancer diagnoses, such as triple-negative, hormone-positive or HER2 positive. Who May Participate? All women who have ever been diagnosed with or treated for breast cancer may https://www.surveymonkey.com/s/BCNeeds2013" rel="nofollow - take part in this survey . Participants may be recently diagnosed, in treatment, post-treatment, have had a return of breast cancer, or be living with metastatic (stage IV) disease. We seek people with a diversity of experiences, so please spread the word about this opportunity. All responses are anonymous. Every participant who completes the survey, which takes about 30 minutes, will receive a coupon for a free LipDrink SPF 15 lip balm with any $50 purchase from jane iredale. Participants may also enter a drawing for a chance at one of four $150 amazon.com gift cards. How Will LBBC Use the Survey Findings? Survey responses will help shape future Living Beyond Breast Cancer materials, and they will help us develop programs for unique groups of women affected by breast cancer. We will share what we learn with healthcare providers and other organizations. A summary of the findings will be published in 2014 on lbbc.org. How Do I Participate? You may start now by https://www.surveymonkey.com/s/BCNeeds2013" rel="nofollow - completing the survey online . If you have questions or concerns, please call LBBC at (610) 645-4567. Survey link below: https://www.surveymonkey.com/s/BCNeeds2013" rel="nofollow -
https://www.surveymonkey.com/s/BCNeeds2013" rel="nofollow -
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Replies:
Posted By: nonna1642
Date Posted: Dec 26 2013 at 6:30pm
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Thank you for this information. ------------- Dx: age 70 IDC TNBC Grade 3 5/10 left mastectomy Stage IIB 5.1 cm no reconstruction followed by chemo of Taxotore & Cytoxin then radiation |
Posted By: clarkjennifer
Date Posted: Dec 27 2013 at 6:30am
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Thanks for the informative post. This survey will lead us to know more about breast cancer and the women suffering this. It will help yhem. |
Posted By: Melissa P.
Date Posted: Dec 27 2013 at 11:37pm
 Done!Survey till Jan. 9th. Questions specific to TNBC. I just finished... lets get it done ladies, this benefits all of us! Thank you, Melissa http://www.lbbc.org/About-LBBC/LBBC-Newsletter-and-Publication-Archive/LBBC-News/National-Breast-Cancer-Survey" rel="nofollow - http://www.lbbc.org/About-LBBC/LBBC-Newsletter-and-Publication-Archive/LBBC-News/National-Breast-Cancer-Survey ------------- "Hope for more Tomorrows" TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads Triple Negative Breast Cancer, "I Won't Back Down!" mlsspaskvan.blogspot.com |
Posted By: mainsailset
Date Posted: Dec 28 2013 at 11:24am
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I'm disappointed in the survey. It's poorly worded, and seems to have an agenda of its own rather than to delve into the experiences of women with cancer and what their subsequent needs are. Sorry, but after completing it I just shook my head. ------------- dx 7/08 TN 14x6.5x5.5 cm tumor 3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear |
Posted By: Melissa P.
Date Posted: Dec 28 2013 at 11:22pm
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I posted a link to the survey to my online support groups, many have already participated in the survey. ------------- "Hope for more Tomorrows" TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads Triple Negative Breast Cancer, "I Won't Back Down!" mlsspaskvan.blogspot.com |
Posted By: dawncoskren
Date Posted: Dec 29 2013 at 2:30pm
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I completed the survey ------------- DX 6/14/13 TNBC-IDC 7/15 BRCA 1 Positive 7/16 double mastectomy 7/23 Post surgery Pathology- Stage1,tumor 2cm nodes clr. 8/16/13 4 A/c and 4 Taxol 1/6/14 implants 3/13/14 ovaries and tubes removed |
Posted By: Melissa P.
Date Posted: Dec 29 2013 at 10:39pm
 Great! ------------- "Hope for more Tomorrows" TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads Triple Negative Breast Cancer, "I Won't Back Down!" mlsspaskvan.blogspot.com |
Posted By: arleneb
Date Posted: Jan 10 2014 at 3:04pm
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Today is the final day to participate in this survey. Please take a few minutes to provide your input. |
Posted By: Melissa P.
Date Posted: Jan 21 2014 at 11:01pm
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Thank you from Living Beyond Breast Cancer: LBBC
would like to thank everyone who participated in our national survey to
assess the current and emerging needs of those affected by breast
cancer. We owe a great many thanks to all who responded to the survey,
as well as the many LBBC allies — most notably the http://www.kintera.org/TR.asp?a=7nJJIOOhFbIMIOMxD&s=hmKVLaNVJnI7LnM0ItE&m=bqKILWNCJhLMJ5L" rel="nofollow - We have a lot of data to analyze, and we promise we will post our findings throughout the next year. We hope to announce our first findings in the upcoming months. Follow us on http://www.kintera.org/TR.asp?a=djIVK6MFKgKVI9O0E&s=hmKVLaNVJnI7LnM0ItE&m=bqKILWNCJhLMJ5L" rel="nofollow - Facebook and http://www.kintera.org/TR.asp?a=bhJRJ0PxGeJSLWOKH&s=hmKVLaNVJnI7LnM0ItE&m=bqKILWNCJhLMJ5L" rel="nofollow - Twitter , and check http://www.kintera.org/TR.asp?a=flKZKcNNIiI0J9N1F&s=hmKVLaNVJnI7LnM0ItE&m=bqKILWNCJhLMJ5L" rel="nofollow - lbbc.org for updates on the survey results! ------------- "Hope for more Tomorrows" TNBC dx August 2009, Age 41, Stage 2, 2cm, 0 nodes Lumpectomy/ACx4,Taxolx4/33rads Triple Negative Breast Cancer, "I Won't Back Down!" mlsspaskvan.blogspot.com |