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Anyone experience neuropathy?

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Category: TNBC Forums
Forum Name: Welcome New Members
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Printed Date: Jan 27 2021 at 3:34pm
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Topic: Anyone experience neuropathy?
Posted By: PHCA
Subject: Anyone experience neuropathy?
Date Posted: Oct 29 2012 at 12:53pm
I just finished my 4th chemo treatment (TC) and am experiencing neuropathy...fingers and toes are asleep and tingly, and both my arms and my legs are painful, expecially in the morning, have no strength in my arms or legs, and difficult to even carry my purse.
I'm taking B6 and B12, tylenol, but doesn't seem to be giving me any relief. My doctor has suggested I try glutamine (powder) 3x a day.
Anyone out there experiencing this? Appreciate any input.


Posted By: becca
Date Posted: Oct 29 2012 at 4:41pm
I had it and it does get fingers are back to normal but Istill have some in my toes..but small price to pay for getting better :) Nothing helped me at the time but once I was done with chemo it slowly got better. I remember getting out the step stool on day to wash some windows ( I was feeling pretty good between treatments ) I tried to step up on it and did not have the strength in my legs to do it. I sat down and cried thinking that I would always be that way but of course I am now doing those windows Tongue Hang in there it will get better.

Age58 DX 12/07
Grand Junction, Colorado
Lumpectomy 1/08/08
Stage IIIA grade3
5/19 nodes
chemo 5/08 radiation 7/08
clear pet 9/08

Posted By: PHCA
Date Posted: Oct 29 2012 at 5:24pm
thanks so much for your message. It sure makes me feel better. Smile


Posted By: trip2
Date Posted: Oct 31 2012 at 2:24pm
Hi PHCA, sorry to read about the neuropathy issues, they can be a problem.
I found Neurontin helped me but when you first start taking it the med makes you sleepy.  With time this settled down. - - -

Stage 2 2003
Stage 1 2007

Posted By: amawmaw
Date Posted: Nov 07 2012 at 7:22am
Good Morning, I finished chemo on September 4, 2012. I first had cytoxin and adriamycin every 21 days X 4. Then I had 12 weekly taxol treatments. I have neuropathy in my fingers and hands and worse in my toes and feet. I experience muscle pain in my arms and legs. I also feel that my hearing and eyesight has diminished. Chemo brain is bad. I have people finishing my sentences, while I am search my brain looking for words.
How long does it take to get my senses back. The Dr says, "in time" it should lessen.
I fall because I can't feel my feet. I drop things.  I am a surgical medical assistant on medical leave since my surgent December 2011
 How can I go back to work if I can't feel the instruments?

age 56 at DX IDC~TNBC~stage 1 grade 3,< 1cm,lumpectony,4 nodes/neg ,cytoxin/adriamycin~taxol, radiation to end 11/19/12

Posted By: 123Donna
Date Posted: Nov 07 2012 at 8:18am

I used B6 100 mg twice a day.  It took a year after treatment stopped before my symptoms got better.  I never used it, but other members have tried and said glutamine works too.  I was told to try 4 tsps 3 times a day.  


DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

Posted By: Lillie
Date Posted: Nov 07 2012 at 11:51am
Dear amawmaw,
Glad to hear you are finished with your treatments.  I'm also welcome you to the TNBC site.  I had the same chemo that you had and it left me with quite a bit of neuropothy.  It was at least a year before my neuropathy became 'manageable'....  I had to learn my limitations.  I know this is not what you want to hear and Donna has posted a couple of things you may try. 
Some people do not experience the neuropathy as much as others. 
I don't totally understand your job, but could you go back with a lesser demanding role for a while.  Maybe things will go better than you think. 
As you can tell; we Understand.  Keep posting and let us know how things go for you.
God Bless,

Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED

Posted By: CAfree12
Date Posted: Nov 07 2012 at 5:51pm
I tried every prescription and supplement that was suggested by my medical team.  At one point I was on Lyrica at night, Alpha Lipotin and L-Arginine plus Metanx which is a bioavailable form of B6,B12, folic acid that's prescribed for diabetic neuropathy.  I finished chemo in April and my neuropathy was there but not terribly significant - more a nuisance and reminder. I slowly weaned off the supplements as I finished the bottles sometime in May/June and I stayed on the Lyrica and Metanx until mid-summer (it was helping my hair grow!!).  Now I'm just on a regular vitamin B complex.  I have nothing in my hands, occasional stinging in feet, especially at night.  I started working out with a cancer fitness specialist in May to strengthen my legs and increase endurance and I'm back to 100% - maybe even stronger than I was preop! 

Diagnosed Oct 2011 @ age 53, Stage 1c, grade 3, 1.5Cm, neg nodes;double mastectomy with TE, dose dense AC+Taxol; BRCA neg; treatments finished April 2012

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