Preventing chemotherapy without evidence |
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tofu 
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Joined: Feb 22 2008 Location: Yokohama, Japan Status: Offline Points: 37 |
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 Posted: Feb 19 2009 at 5:01am |
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Hi every TNBC member,
I finished 13th cycle of Xeloda. There are the Xeloda side-effects, but not severe. I feel low level fatigue, a little pain and dry skin of my feet. I will listen the result of the CT and mammography screening next week. Spring is come. But we have a chance of snow today. God bless you, |
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Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 19 2009 at 6:14am |
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Hi Tofu, it is so good to hear from you.
Sounds like the side affects have not been too bad. Are you taking anything for the pain and trying lotion for your feet or do those things help?
Good luck on your tests next week and prayers they are good results.
Let us know what you find out.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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tofu
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Joined: Feb 22 2008 Location: Yokohama, Japan Status: Offline Points: 37 |
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Posted: Feb 21 2009 at 12:54am |
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Hi Pam,
Tnank you! I used three medecine for my side-effect. (1) Vitamin B6 20mg tablet, three times a day (2) Urea cream after bathing (3) Betamethasone valerate Gentamicin sulfate Now I need not (3) since I had not inflammation of feet recently, mostly use (1) and (2) only. I will inform my results from my checkup. |
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Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
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tofu
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Joined: Feb 22 2008 Location: Yokohama, Japan Status: Offline Points: 37 |
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Posted: Feb 24 2009 at 2:22am |
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Hi Pam, and every TNBC member,
Today I knew the result of the CT and mammography screening on 30 Jan. NED ( No evidence of disease ) I was relieved to hear that, and so I will continue more 3 cycle of Xeloda. It will finish it on 24th April in spring. Thank you for picking me up when I've been feeling down. I'll be seeing you.  Edited by tofu - Feb 25 2009 at 4:07am |
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Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
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cg---
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Joined: Jul 20 2007 Location: Canada Status: Offline Points: 1379 |
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Posted: Feb 24 2009 at 2:32am |
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Dear Tofu,
Congratulations!! What wonderful news. Very soon the chemotherapy will be finished and you can just enjoy life without any my side effects.
We were waiting to hear from you. Nancy and I were wondering how you made out because you and I had CAT scan and tests at the same time - I will find out March 2.
Isn't that the most beautiful phrase...No Evidence Disease?
Go and celebrate.
With much love and hugs coming your way.
Connie
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tofu
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Joined: Feb 22 2008 Location: Yokohama, Japan Status: Offline Points: 37 |
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Posted: Feb 24 2009 at 2:56am |
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Dear Connie,
Dear Nancy, I am near to tears seeing your message. "Nancy and I were wondering how you made out because you and I had CAT
scan and tests at the same time - I will find out March 2."Thank you, "Doumo Arigatou"  I pray your No Evidence of Disease! I also think "No Disease " is the best for ordinary people , but for us, there has never been a better word "No Evidence of Disease". God bless you, Edited by tofu - Feb 25 2009 at 4:14am |
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Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
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Nancy
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Joined: Jul 23 2007 Location: Altoona, PA Status: Offline Points: 3814 |
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Posted: Feb 24 2009 at 8:01am |
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My dear dear Tofu,
"Doumo Arigato" also. For all the information from you, which I know proves so helpful to our sisters here in the states, and other parts of the world, and for translating the chemo and radiation tips for all our sisters in Japan.
I too am so happy to hear that they see "No Evidence of Disease" for you and "No Disease" would indeed be "the" words that everyone in the world wants to hear.
I just keep thinking that if they would take all the money ever given for cancer research from all over the world....from the governments, and through donations...and as Connie has said many many times....give it all to the brightest and best scientists IN the world and set them free to find the CAUSE...and the CURE...we would not have this beast in our lives!!
I do not know if you read the post about our dear sister CalGal. She passed last week, and we will all miss her so very much. I have vowed to never forget her and to speak of her often, and to tell all the new members how kind she was to everyone on this site.
We will wait to hear from Connie on March 2, and I cannot understand why anyone has to wait more than a few days for any test results. That is so stressful.
love,
Nancy
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Nancy
DD Lori dx TNBC June 13,2007 Lumpectomy due to incorrect dx of a cyst mastectomy July 6 2007 chemo ACT all 3 every 3 weeks 6 tx Aug-Nov 28 rads ended Jan 2008 |
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tofu
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Joined: Feb 22 2008 Location: Yokohama, Japan Status: Offline Points: 37 |
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Posted: Apr 24 2009 at 6:27am |
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Hi every TNBC member,
I completed 16th cycle of Capecitabine(Xeloda) today. A little fatigue  , a little pain and a little dry skin of my hands and feet rest now. But they will be reliesed day by day.A half of my heart is joy for ｍｙ completed treatment , and the other half is anxiety for my no treatment from tomorrow. But I continue to enjoy an active life when I live. You helped me with your loves and hugs  . I feel blessed to have gotten to know you. Thank you, thank you, thank you. |
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Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
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SagePatientAdvocates
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Joined: Apr 15 2009 Status: Offline Points: 4748 |
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Posted: Apr 24 2009 at 11:14am |
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Dear Tofu,
I am very new here and I just caught up with your thread... First of all, I am delighted that you are NED.....My daughter is coming up on her 5 year marker and I will be very relieved to hear that again. Absolutely the sweetest acronym on the planet..You are in my prayers that NED is solely what you will hear for the future. What I found remarkable in all of this was the honesty, intelligence and courage you exhibited throughout and the support you received from so many on this marvelous site. It is really a very special authentic place and I am very honored to be a part of it. just wanted to belatedly say hi and let you know that I am in your corner, Steve |
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I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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tofu
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Joined: Feb 22 2008 Location: Yokohama, Japan Status: Offline Points: 37 |
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Posted: Nov 02 2009 at 10:23pm |
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Hi every TNBC member,
A half year has passed since I completed 16 cycles (one year) of Capecitabine(Xeloda). When I had Xeloda, I maybe had a little chemo brain and felt hard to concentrate my research work.But I had my conference presentation last month, and had a good feeling about it. I recovered the all side-effects (fatigue, hand feet desease, skin problem) in this half year and went back to work fully in my field. I had a short operation of my reconstructed breast two weeks ago for ajusting the shape and excising the scar. Now I'm very fine. These years made me realize how much support I got from you. Thank you for all TNBC members' kindness. |
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Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
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Suzanne
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Joined: Jun 13 2007 Location: San Francisco Bay Area Status: Offline Points: 191 |
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Posted: Nov 02 2009 at 10:55pm |
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Tofu, thanks for telling us how you are doing. It makes my heart sing every time I read that one of our TNBC members is doing fine. I hope for the day when triple negative breast cancer is no more dangerous than the common cold. Eventually, it will happen.
All the best to you,
Suzanne
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1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Nov 08 2009 at 6:28pm |
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Hi Tofu,
So nice to hear from you and that you are doing well.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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cg---
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Joined: Jul 20 2007 Location: Canada Status: Offline Points: 1379 |
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Posted: Nov 08 2009 at 7:59pm |
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Tofu,
I was just thinking about you when someone gave me some Japanese green tea. I am thrilled you are doing so well.
Doesn't the sun seems brighter and the sky so much bluer once we have complete treatment and taken our lives back?
One of the many wonderful things about this forum is that no one is ever alone and help is just a message away.
Be well and happy dear Tofu.
Love and best wishes,
Connie
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tofu
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Joined: Feb 22 2008 Location: Yokohama, Japan Status: Offline Points: 37 |
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Posted: Feb 04 2010 at 11:12am |
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I finished the second annual check, and ....a small calcification was found at the other breast
 , but the result is NED  . For celebrating the result, I'll have 19 day vacations in Boquete (Panama), Uyuni (Bolivia), and Atacama (Chille) via Dallas and Miami airport. This is the first overseas trip after my breast cancer treatments. It will start at the carnaval season, next week end. My most favorite thing is watching deserts, and dunes. Now I'm studying Spanish every day, and it is very difficult. Buenas Noches, mis TNBC amigas! Tofu in Yokohama Edited by tofu - Feb 04 2010 at 11:14am |
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Aug/07 age:48 IDC TNBC Neo-adjuvant EC+T Feb/08 Mastectomy & reconstruction with DIEP-flap. 4.7x2.7cm N0 g3 May/08-Apr/09 Xeloda to4f.blog110.fc2.com |
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Suzanne
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Joined: Jun 13 2007 Location: San Francisco Bay Area Status: Offline Points: 191 |
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Posted: Feb 04 2010 at 4:36pm |
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Buena suerte y buen viaje, mi amiga.
Susana
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1/2/07 IDC, stage 1 (T1c), 1.56cm, lumpectomy 1/8/07, triple neg., grade 3, sentinel lymph node biopsy negative, BRCA 1/2 negative; 4 AC/4 Taxol dose dense, 30 rads 2/07-7/07
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trip2
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Joined: Jun 03 2007 Location: Under Palm Tree Status: Offline Points: 8549 |
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Posted: Feb 05 2010 at 6:13am |
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Wonderful Tofu! You deserve every bit of that trip, enjoy to your heart's fullest.
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Stage 2 2003
Stage 1 2007 BRCA 1+ |
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