Post surgical chemo after neoadjuvant chemo? |
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MLindaG 
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Joined: Feb 16 2013 Location: Pittsburgh PA Status: Offline Points: 380 |
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 Posted: Feb 07 2014 at 6:52am |
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Simple, Thinking of you and wishing you the best! I had my lumpectomy last year 2/13! Keep positive thoughts going! :)
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Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.
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simplelife4real
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Joined: Oct 24 2013 Location: Crossville, TN Status: Offline Points: 73 |
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Posted: Feb 07 2014 at 7:23am |
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MLindaG, Thanks! Congratulations on your one year and getting a pCR. Hopefully, 2/13 will be a lucky day for me too.
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DX Aug 2013 @ age 60, Stage 2b, grade 3, 2.3 Cm, node positive, BRCA-; neoadjuvant taxolx12 and ACx4:
2/13/14 LX and ALND-2mm residual in 2 nodes |
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MLindaG
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Joined: Feb 16 2013 Location: Pittsburgh PA Status: Offline Points: 380 |
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Posted: Feb 07 2014 at 8:43am |
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Simple, Do you how similar our journeys are?? Just to let you know.......on my 9th Taxol treatment my Onc said....I feel something but I'm not sure it is still the lump or just fibrous tissue that is sometimes left after the cancer is gone.......then at my 12th visit......could not feel anything....... Went for an MRI......they saw nothing but said you can't be sure until after surgery and they do the path report. I did not get any scans during or between my chemo's ( I did the A/C first and the 12 taxol second). They felt I should leave my port in just incase they felt I needed to do Chemo after surgery. I ended up having the port out in June which they gave me a choice of keeping it in or taking it out. Will be thinking of you next week! Prayers coming your way! Fingers crossed for a PCR!
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Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.
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simplelife4real
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Joined: Oct 24 2013 Location: Crossville, TN Status: Offline Points: 73 |
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Posted: Feb 07 2014 at 10:18am |
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Linda, I noticed the same thing about how similar our situations have been! My MO has approved taking my port out, but I'm seriously thinking of telling them I want to leave it in. Just in case.
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DX Aug 2013 @ age 60, Stage 2b, grade 3, 2.3 Cm, node positive, BRCA-; neoadjuvant taxolx12 and ACx4:
2/13/14 LX and ALND-2mm residual in 2 nodes |
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simplelife4real
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Joined: Oct 24 2013 Location: Crossville, TN Status: Offline Points: 73 |
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Posted: Mar 02 2014 at 7:46pm |
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Well, I had my surgery. I couldn't decide until the day of the surgery whether to let them take my port out. I told them to take it out at the last minute.
I got my path report. There was no sign of the primary tumor in my breast, but I had 2 positive lymph nodes with my ALND. The largest amount of cancer was 2mm in one node. I didn't think to ask how much cancer was in the other node when the BS called with the path report. I have appointments with both my MO and BS on Wednesday. I also have an appointment with the RO that day too. Long day.... I plan to question my MO in particular about what the significance is of the cancer in my nodes after neoadjuvant therapy. I cried for two days after I got the call with the report, but now, after doing some research...I'm realizing I was very close to a pCR. At least, I think I was. I'll learn a lot more on Wednesday.
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DX Aug 2013 @ age 60, Stage 2b, grade 3, 2.3 Cm, node positive, BRCA-; neoadjuvant taxolx12 and ACx4:
2/13/14 LX and ALND-2mm residual in 2 nodes |
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JulieKCA2013
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Joined: Mar 12 2013 Location: United States Status: Offline Points: 217 |
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Posted: Mar 03 2014 at 6:52pm |
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I had my surgery July 2013. At the time I was not sure what the path report would say. I could feel a hardening where I had first felt my lump but I hoped the mass was just scar tissue. I too felt crushed when I got the news I had some residual. Mine was .9mm left in the largest diameter. I had 4 out of 24 nodes with positive. They did not measure the cancer in the nodes but I was told it did not break the node capsule and they were not the most axillary nodes (not the farthest from the primary from what was taken). When my doctor said standard care was just to observe I too wanted more. We know chemo acts better on a smaller cancer load, why not come out guns loaded? I was fortunate the eribulin trial was in state for me. My doctor almost halted the trial, she wasn't familiar with the drug and didn't like that it was "taxol like" and I had already experienced some neuropathy. Also I would have to do radiation with the treatment. You must start the treatment prior to radiotherapy. So I did my research and found eribulin is used with radiation in metastatic therapy. I convinced her I would be fine and if there were any ill effects I couldn't handle we would re-evaluate.
I handled the trial fine. Along side of radiation I was very burned. The center I go to uses a bollus material for 25 treatments to bring the ray up to the surface. I had to stop using the bollus after 25 treatments and still had some raw skin. I used Domboro salt washes and aquafor to keep the area clean and moist. I had some neuropathy, but whether it was residual from Taxol I do not know. I do not have neuropathy now, I had my last treatment 12-3-2013. but I do notice my toe nails are not growing, also when very cold my feet hurt bad. Thanks to coldest winter in Michigan for decades. :) I wish you the best, and hope you find what you are looking for. Remember you are your best advocate and you can battle anything you put your mind to. Love Julie
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Dx 3-7-13 TNBC, 5cm pT2N1M0
3-19-13 ACx4, 5-14-13 Taxolx4 7-17-13 BMX ypT1N2M0(.9mm) 4/24 nodes. 10-8-13 completed Rads x 30 12-3-13 completed Eribulin Trial 10-18-13, 3-19-14 Bone/Ct Scan Clear |
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simplelife4real
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Joined: Oct 24 2013 Location: Crossville, TN Status: Offline Points: 73 |
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Posted: Mar 03 2014 at 7:09pm |
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Thanks Julie. I talked to my MO about this trial several months ago. She wasn't real crazy about it just because of the particular chemo, but you are the second person I that has contacted me that has participated in it without problems. It would be the easiest trial for me to participate in because they have a location in Nashville, TN which is where I'm currently getting my treatment.
I'll post about it, whatever I end up doing.
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DX Aug 2013 @ age 60, Stage 2b, grade 3, 2.3 Cm, node positive, BRCA-; neoadjuvant taxolx12 and ACx4:
2/13/14 LX and ALND-2mm residual in 2 nodes |
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