5.social drinker, generally wine, maybe a couple glasses a month. Occasional smoker, depending on stress. a pack or less a week. Sometimes months and years w/o.
6.my mother passed away from ovarian 2 weeks before my dx.
7.3 pregnacies, only 2 to term
8.All the usual childhood diseases, those listed
9.no symptoms
10. felt lump while showering
11. no reoccurance [it has been 7 years !]
12.I had had a couple. It had been 18 months prior from when I found my lump
13.no blows
14.no, was still having regular periods
15.none, extremely healthy other than stress
16. no antibiotics
1. yes I took BC in my early 20 for 5 years at the most
2. Yes, I breastfed, 13 months the first time, 16 months the second
3. yes, dense breasts
4. Negative for BRCA 1 & 2
5. I eat healthy although overweight and excersize regularly and have for 15 years before dx. I run 5 days a week and do other cardio and weights, time allowing
I am new to this site today -- and thought your survey questions were insightful and responses would be useful to someone looking at the entire triple negative group of responders...
1/ How old are you --- 55 yrs old
2/ Where were you born and where have you lived -- born in Minnesota and have lived here most of my life
3/ What is the specific name of your type of cancer Other than it being
triple negative -- invasive ductal carcinoma
4/ What is your blood type -- A
5/ Are you a drinker or a smoker -- only occasional drinker
6/ Has anyone else in your family had Any kind of cancer -- yes, one of my 4 sisters currently has stage 4 renal cancer on her hip bone and in lungs
7/ How many pregnancies have you had -- none
8/ What childhood diseases have you had : Mumps, Measles, Chicken Pox -- all of these listed
9/ Did you have any symptons of your breast cancer --NO
10/ How was your cancer first discovered -- mammogram on 2/14/07
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur -- just diagnosed on March 8, 07, still in treatment
12/ How often did you have mammograms Before you were diagnosed-- annually until year 2000; then I didn't have another one till Feb 07
13/ Have you ever had a traumatic blow to your body and where was it -- NO
14/ Have you ever had your hormones checked Prior to being diagnosed -- NO
15/ Before you were diagnosed, what medications were you on -- BP medications only since 1 month before diagnosis
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed --- no
-- RE: Birth control pills -- took them from age 21 thru 35 with a few breaks in-between. Stopped taking them after severe headache side effects at age 36.
-- RE: breast tissue -- do have dense tissue.
-- Family history--my grandmothers, mother and 4 other sisters have not had any breast cancer diagnosis.
2/ Where were your born and where have you lived Born in South America, Lived in Chicago, then Houston
3/ What is the specific name of your type of cancer Other than it being
triple negative Stage 1, DCIS 3cm, Invasive 1.9cm
4/ What is your blood type A+
5/ Are you a drinker or a smoker Occasional drinker, never smoker
6/ Has anyone else in your family had Any kind of cancer Father stomach cancer, Paternal aunts 3 out of 4 with breast cancer--2 of the three died--I believe it was because it was too late in the diagnosis
7/ How many pregnancies have you had 2
8/ What childhood diseases have you had : Mumps, Measles, Chicken Pox chicken pox, bronchitis
9/ Did you have any symptons of your breast cancer Yes, sensations pulsing or "electrical" in around the tumor area of left breast a few months before tumor was taken out, sensations have decreased down to zero after lumpectomy and 2nd AC chemo combined.
10/ How was your cancer first discovered self examined
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur No, this was my first diagnosis
12/ How often did you have mammograms Before you were diagnosed Yearly
13/ Have you ever had a traumatic blow to your body and where was it I don't think so
14/ Have you ever had your hormones checked Prior to being diagnosed No how are they checked?
15/ Before you were diagnosed, what medications were you on only Nexium for stomach ulcers, and Exedrin for tension headaches during the cylces--sometimes similar to migraines
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed Yes
Birth control pills L'Ovral for about 9 years on and off
I am very new here and have found the survey very interesting. I am amazed at the ages of everyone here - I hope it's okay if I add another dimension to the survey that I have oftened wondered about in my own diagnosis. I am a psychotherapist and noticed in reading the responses how many of us were on antidepressants when diagnosed. Since the ages many of us are when we were diagnosed would put us in the catagory of married with small children, that being an unusually stressful time of life, I wondered if (as in my own life) there were marital probs, anger and resentment, depression, or any other psychological traumas that may have been present two or so years prior to diagnosis. All of those were definately present for me, two young children, marital tension and stress, angry grudges being held inside of me towards family members, ect...
Since I cannot take anything for my trip neg state, I also along with vitamins, veggies and excercise, focus a lot on my emotional well-being. I think anger and resentment suppress the immune system and I try to be very aware of my stress level and my emotional state. I would be so interested to hear about this from people if they are comfortable sharing this - thank you!
One other question, if you took adriamycin are you in menopause or have you developed heart issues? I am in menopause and do now have heart issues.
Okay - Here's my info -
1/ How old are you? 42, now 39 at dx.
2/ Where were your born and where have you lived?Born NYC, raised in Bergen Cty NJ, lived in Central Jersey past 10 years. College in Allentown PA
3/ What is the specific name of your type of cancer other than TN? 75% IDC,25% DCIS , Stage 3, Poor Differential Grade 3/ 4 cm tumor, Left Breast, 20 positve nodes of 26
4/ What is your blood type? O-
5/ Are you a drinker or a smoker? Drank and smoked in HS and college. Smoked a lot of pot in college, nothing since age 20 except for very occasional drinking.
6/ Has anyone else in your family had Any kind of cancer? Yes - On Maternal side: GM died of BC age 80, Aunt Died BC age 70, 2nd Aunt Died of OVarian age 75, she was BRCA1 - her two daughters, one diag BC age 51 - ER+, on Tamoxifan, recurrance after 4 1/2 years, died at age 57 mets to bone, and brain. Her other daughter, BRCA1 - now in tx for colon cancer. MY mother - BC 1 year after me, she is Triple Neg as well - she and I are bother BRCA NEG. Paternal GM - luekemia
7/ How many pregnancies have you had? 3 preg, two live births 8/ What childhood diseases have you had? Chicken Pox 9/ Did you have any symptons of your breast cancer? I was diagnosed with lupus 6 months prior to my BC diagnosis, I was feeling exhausted with severe pains in my hands and wrists
10/ How was your cancer first discovered? Had pain, reached over in the shower and found two hard palpaple lumps, one in breast and one in armpit 11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur? NO - diagnosed 9/10/04 -three years clean this past Sept!! 12/ How often did you have mammograms Before you were diagnosed? Yearly since age 40 13/ Have you ever had a traumatic blow to your body and where was it? Flipped over the handle bars on my bike in 8th grade, broke my wrist 14/ Have you ever had your hormones checked Prior to being diagnosed? No 15/ Before you were diagnosed, what medications were you on? I had started on Synthroid three weeks prior to finding the lumps. This was because for about 7 yrs I had nodules on my thyroid. About 7 months before dx I had a biopsy on my thyroid and was still getting over the fear that I had thyroid cancer. I also was and still am on Ultracet for the pain in my joints that I thought was from the lupus but now think a lot was from the chemo.
16/ Have you been prescribed antibiotics more than once in a year?Probably because the flu season before my then 3 and 6 yr old had strep and every other cold ect that I am sure I did. 1) Have you ever been on birth control? Yes, from 19- 27 ortho-novom, triphasil
2) If you have children, did you breastfeed? For how long? Yes, breastfed 13 months and 10 months 3) Do you have dense breast tissue?YES
4) Have you tested positive for BRCA1/2 negative
5) Exercise and diet? Before BC - poor diet always about 130 after kids about 160, minimal exercise. NOW EXCELLENT Veggie diet, occasional wine not much excercise. Lost all the weight due to chemo making me not want to eat, have been 130 past two years since tx ended.
I was diagnosed a couple of months ago with congestive heart failure and feel like Adriamyacin is to blame but that is just my feelings. I took it in 03.
I'm one of those who was older, 56, the first time I was diagnosed so I didn't go thru menopause but my 39 yr old daughter was diagnosed earlier this year and just finished her treatments. About a month ago she had a hysterectomy and is having problems with hot flashes.
But that doesn't really answer your question. I do remember about your age I did go thru pre-menopausal experiences.
As you mentioned there are alot of younger members that have been diagnosed on our board so hopefully they'll come along soon and answer your question specifically.
You might go to the Talk board and start a new topic so they'll be sure and see your question.
I had AC in the spring of 2001. It definitely put me in menopause which I looked upon as being a bonus for going thru treatment.
I have not had any heart problems. Even at that time they would not do more than 4 rounds because more than that could be detrimental to the heart. I did have a stress test, fairly soon after, which came out perfect. The problem was eventually dx as esophogeal spasms which I had never had prior.
2/ Where were your born and where have you lived born in Chicago Illinois and have been living in Israel for over 20 years.
3/ What is the specific name of your type of cancer Other than it being
triple negative Invasive Ductal
4/ What is your blood type AB+
5/ Are you a drinker or a smoker have never smoked but I drink a glass or two of white wine a week. does that count?
6/ Has anyone else in your family had Any kind of cancer no
7/ How many pregnancies have you had 3
8/ What childhood diseases have you had : chicken pox, measles
9/ Did you have any symptons of your breast cancer had a lump I felt
10/ How was your cancer first discovered I found the lump
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur no evidence of cancer recurring
12/ How often did you have mammograms Before you were diagnosed had ultra sound at age 45 and mammogram at age 48 or 9 and then at 50 when I was diagnosed
13/ Have you ever had a traumatic blow to your body and where was it no
14/ Have you ever had your hormones checked Prior to being diagnosed no
15/ Before you were diagnosed, what medications were you on aspirin and Buticort for asthma
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed no
2/ Where were your born and where have you lived Hastings NE - Denver CO for at least 30 yrs., minimally time in Sparks NV and Colo Springs as an army air corp brat
3/ What is the specific name of your type of cancer Other than it being
triple negative IDC
4/ What is your blood type
5/ Are you a drinker or a smoker No, former smoker. Drinks 2-3 month
6/ Has anyone else in your family had Any kind of cancer YES
7/ How many pregnancies have you had 3
8/ What childhood diseases have you had : Mumps, Measles, Chicken Pox Chicken Pox
9/ Did you have any symptons of your breast cancer Slight pain
10/ How was your cancer first discovered I found tumor
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur No - only one year out
12/ How often did you have mammograms Before you were diagnosed Annually since age 24 when first B9 tumor was removed - same breast
13/ Have you ever had a traumatic blow to your body and where was it No
14/ Have you ever had your hormones checked Prior to being diagnosed Is this to see if I was menopausal? If so, yes and I was pre
15/ Before you were diagnosed, what medications were you on Prozac, Triazalom for sleeping
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed Good question. I think so
2/ Where were your born and where have you lived? born and raised in Austin, Texas, went to college in Colorado, and have lived in Kansas, San Antonio, Washington D.C. suburb, and San Francisco Bay area
3/ What is the specific name of your type of cancer other than it being
triple negative? IDC, 1.56 cm, stage 1
4/ What is your blood type? A+
5/ Are you a drinker or a smoker? have never smoked and used to drink a glass or two of wine per month
6/ Has anyone else in your family had any kind of cancer? no
7/ How many pregnancies have you had? 1
8/ What childhood diseases have you had? chicken pox, measles
9/ Did you have any symptons of your breast cancer? no
10/ How was your cancer first discovered? annual mammogram
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur? no evidence of cancer recurring; 10 months since diagnosis
12/ How often did you have mammograms before you were diagnosed? almost yearly since 2000
13/ Have you ever had a traumatic blow to your body and where was it? no
14/ Have you ever had your hormones checked prior to being diagnosed? no
15/ Before you were diagnosed, what medications were you on? none, other than calcium and multi-vitamins
16/ Have you been prescribed antibiotics more than once in a year before you were diagnosed? yes
17/ Have you ever been on birth control? For how long? What kind? yes, about twelve years, several types
18/ If you have children, did you breastfeed? For how long? yes, about 1 yr.
19/ Do you have dense breast tissue? no
20/ Have you tested positive for BRCA1/2? tested but negative
21/ Exercise and diet? I exercise (aerobics and light weights) about six hours per week. My diet is good - little meat, no fast foods, and no transfats.
22/ Weight? in average range for my height (5' 10 1/2")
I don't think age, size, grade, stage, childbirth, location or anythings has a thing to do with triple negative hormone breast cancer. I think it has to do with environment, defective receptors, and the unwilling research given to this odd form of cancer.
If I believed in this poll, I would take the survey, but I've taken zillions of worthless surveys and they accound for nothing. The fact is, scienctist and physicians are taking the easy way out by using these rediculous polls to avoid the reality of what the possible genetic, environmental, and ineffective treatments to which we are subjected.
I don't think they care. I don't think anyone cares. The only ones who care seem to be those who love the patient suffering from this deviation of breast cancer. Give us some anwers, give us some truth. I've seen enough polls; we need research, brilliance and a serious, honest approach to the reality of what triple negative hormone receptor breast cancer's origins and treatments will once day bring about a sensible and forthright answer.
Sorry, but I am tired of all this nonsical trasj which we all seem to wade thogh.
2/ Where were your born and where have you lived born Rochester, NY lived in Boston Ma 5yrs. and Orlando Fl
3/ What is the specific name of your type of cancer Other than it being
triple negative Poorly differenciated ductal carcinoma, right breast no nodes involved Stage 1
4/ What is your blood type O Positive
5/ Are you a drinker or a smoker Wine or mixed drink occasionally never a smoker
6/ Has anyone else in your family had Any kind of cancer Fraternal Grandmother breast cancer, Maternal Aunt breast cancer, mother colon cancer, both grandfathers cancer, maternal uncle lukemeia
7/ How many pregnancies have you had 3 one miscarriage two children
8/ What childhood diseases have you had : Mumps, Measles, Chicken Pox Chicken Pox, Measles, Scarlet Fever
9/ Did you have any symptons of your breast cancer calcifications 3 yrs prior to Breast Cancer
10/ How was your cancer first discovered I found lump between mamograms
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur No
12/ How often did you have mammograms Before you were diagnosed Every year
13/ Have you ever had a traumatic blow to your body and where was itNo
14/ Have you ever had your hormones checked Prior to being diagnosedNo
15/ Before you were diagnosed, what medications were you on Levoxyl, Zyrtec, Nexium
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed Yes
I wanted to add: Hodgkins Disease at age 32 stage 2 6 wks radiation
2/ Where were your born and where have you lived born Rochester, NY lived in Boston Ma 5yrs. and Orlando Fl
3/ What is the specific name of your type of cancer Other than it being
triple negative Poorly differenciated ductal carcinoma, right breast no nodes involved Stage 1
4/ What is your blood type O Positive
5/ Are you a drinker or a smoker Wine or mixed drink occasionally never a smoker
6/ Has anyone else in your family had Any kind of cancer
Fraternal Grandmother breast cancer, Maternal Aunt breast cancer,
mother colon cancer, both grandfathers cancer, maternal uncle lukemeia
7/ How many pregnancies have you had 3 one miscarriage two children
8/ What childhood diseases have you had : Mumps, Measles, Chicken Pox Chicken Pox, Measles, Scarlet Fever
9/ Did you have any symptons of your breast cancer calcifications 3 yrs prior to Breast Cancer
10/ How was your cancer first discovered I found lump between mamograms
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur No
12/ How often did you have mammograms Before you were diagnosed Every year
13/ Have you ever had a traumatic blow to your body and where was itNo
14/ Have you ever had your hormones checked Prior to being diagnosedNo
15/ Before you were diagnosed, what medications were you on Levoxyl, Zyrtec, Nexium
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed Yes
I wanted to add: Hodgkins Disease at age 32 stage 2 6 wks radiation
2/ Where were your born and where have you lived -Melbourne Australia, lived in every state of Australia exceptTasmania and Western Australia
3/ What is the specific name of your type of cancer Other than it being
triple negative- IDC
4/ What is your blood type - B Neg
5/ Are you a drinker or a smoker - moderate drinker, smoked one pack of cigarettes in my lifetime
6/ Has anyone else in your family had Any kind of cancer - father has multiple myeloma and prostate cancer, aunt and uncle with bowel cancer, uncle with prostate cancer, uncle with bone cancer (all paternal side)
7/ How many pregnancies have you had - 3 pregnancies, 1 miscarriage, 2 live births
8/ What childhood diseases have you had : Mumps, Measles, Chicken Pox - measles, german measles, chicken pox,
9/ Did you have any symptons of your breast cancer - lump in breast which was not picked as suspicious at first mam/us - reason given as dense breast tissue, lots of women have it, so don't worry
10/ How was your cancer first discovered - second mam/us 2 years after first one - had light pain and tenderness under the arm. Core biopsy and fnd confirmed diagnosis
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur - only diagnosed Sept 07
12/ How often did you have mammograms Before you were diagnosed- only my second one
13/ Have you ever had a traumatic blow to your body and where was it - yes - got the breast with lump whacked by a car door being opened, probably 4 months before 2nd mam.
14/ Have you ever had your hormones checked Prior to being diagnosed - no
15/ Before you were diagnosed, what medications were you on - nil
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed - no was always healthy!!
1/ How old are you? 37 (33 at diagnosis)
2/ Where were your born and where have you lived? New Zealand
3/ What is the specific name of your type of cancer Other than it being
triple negative? Invasive Ductal
4/ What is your blood type? 0
5/ Are you a drinker or a smoker? smoked 10 years ago, social drinker
6/ Has anyone else in your family had Any kind of cancer? No
7/ How many pregnancies have you had? 3
8/ What childhood diseases have you had : Mumps, Measles, Chicken Pox? Chicken pox, glandula fever
9/ Did you have any symptons of your breast cancer? lump
10/ How was your cancer first discovered? Clear Mammo,ultrasound and fna, core biopsy confirmed
11/ Have you had a re-occurence in the past 2 years and if so, where did it re-occur? no
12/ How often did you have mammograms Before you were diagnosed? too young (33)
13/ Have you ever had a traumatic blow to your body and where was it? no
14/ Have you ever had your hormones checked Prior to being diagnosed? yes
15/ Before you were diagnosed, what medications were you on? birth control pill
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed? yes
dddd
rural Colorado, Denver near Rocky Moutain Arsenal for 10 years when they were actively storing chemical weapons (exh has prostate cancer) / back to rural Colorado
3/ What is the specific name of your type of cancer Other than it being
triple negative - IDC
4/ What is your blood type/ not sure
5/ Are you a drinker or a smoker
quit drinking 20 years ago - quit smoking 7 years ago
6/ Has anyone else in your family had Any kind of cancer
no immediate family
7/ How many pregnancies have you had - 2
8/ What childhood diseases have you had :
Mumps, Measles, Chicken Pox - so did practically everyone my age in the days before vaccinations! :)
9/ Did you have any symptons of your breast cancer -
Fatigue, general feeling of being unwell,
Interesting that other women also say they were tired for a year or more, since the docs keep saying we "don't have symptoms" of breast cancer. I had been going to the doctors for 2 years telling them I didn't feel good and having all sorts of tests - that missed cancer. I iimmediately felt better/ different after mass was removed.) I also had PAIN where the mass was growing but keep hearing "if it's not painful, it's not cancer."
I also had dreams of my home being invaded for at least a year (by evil people, evil spirits, wild animals, etc.)
10/ How was your cancer first discovered mammo - ultrasound
11/ Have you had a re-occurence in the past 2 years and if so, . . . DX in May 2007
12/ How often did you have mammograms Before you were diagnosed/ Annually but had skipped the last year
13/ Have you ever had a traumatic blow to your body and where was it/ I fell off a skateboard & hurt my hip when I was 38! don't think that's related -- except that it is a source of INFLAMMATION which I think is related and was chronic before the DX.
14/ Have you ever had your hormones checked Prior to being diagnosed/no
15/ Before you were diagnosed, what medications were you on/ dilantin, asthma meds
16/ Have you been prescribed antibiotics more than once in a year Before your were diagnosed/ yes
BUT ALSO, when I was little we used DDT to spray for flys in our barns. I live by irrigated fields which have ariel applications of herbicides and pesticides and the spray comes close enough that it kills trees and shrubs on the perimeter of my acerage. I ate some lead paint when I was a baby. I started coloring my hair before 1964. I have used lotions, makeup, and shampoos that contain ingredients known to be carcinogens in lab animals and that are banned in the EU but still being sold in the U.S.
We are exposed to toxins that make us toxic and then they use toxins to treat us. In this kind of environment, where do we even begin a discussion like this?
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