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123Donna View Drop Down
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Post Options Post Options   Thanks (0) Thanks(0)   Quote 123Donna Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2013 at 10:45am
Steve,

Thanks for sharing and so glad you did.  You know we all love you and will lift you up dear friend.  We will be waiting on the results with you and hoping you can be renamed False Positive too!  I have all my fingers, toes and eyes crossed.

Hugs,
Donna
DX IDC TNBC 6/09 age 49, Stage 1,Grade 3, 1.5cm,0/5Nodes,KI-67 48%,BRCA-,6/09bi-mx, recon, T/C X4(9/09)
11/10 Recur IM node, Gem,Carb,Iniparib 12/10,MRI NED 2/11,IMRT Radsx40,CT NED11/13,MRI NED3/15

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Post Options Post Options   Thanks (0) Thanks(0)   Quote cheeks Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2013 at 10:55am
Dear Steve,

Hoping you are feeling better today and that all test results will be excellent.

    

Blair
Lump found 11/08
DX: 2/09 @52 TNBC
L. Mast. 3/26/09, SN-, BRCA-,
4.5 cm (post surgical)T2NOMO
Chemo: 4/09-10/09 Taxol x 12,
A/C x 4, No rad.No recon. NED 1/17. New Primary right breast TN, 2/2018.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2013 at 11:34am
Dear Puakai, Natalie, Turtle, Diana, Deb, Denise, Diana, Lisas, Judy, Lee, Harbin, Martin, Donna and Blair,

Thank you, all, for your kind wishes. I just read the whole thread and was deeply moved by the sincerity of your words and realize how lucky I am to have such a wonderful TNBC supportive family. 

Whatever happens, if is very comforting to me to know that you are all in my corner. In fact, we are all here for each other in a gentle, intelligent, caring way and that is the hallmark of this wonderful resource. 
There was a wonderful, spunky lady who posted as Caryn Rose who first introduced me to this forum many years ago. She received wonderful support here as she fought the fight and suggested I come here. I am so thankful to her for that introduction. From the first moment I felt welcome and have been ever since.

By the way, I don't think I ever shared my first meeting with Caryn Rose. We had spoken on the phone, corresponded a lot, for maybe a year but never met. She lived in New Jersey and I in Los Angeles. We were 'cousins' in that she had the exact BRCA mutation I and my daughter have and she, like my daughter, had TNBC. She was in active treatment and we agreed to meet in the waiting room of the hospital. "How will we know each other?" I asked...I don't think we had pictures on the site in those days..."we will find each other...I will be posting" and sure enough there was Caryn in the corner of the room typing away...and we joyfully embraced. She had just finished a radiation therapy session but found the time to introduce me to a ton of friends, nurses and even an administrator who gave me a tour of the facility. She then drove me to her house where we picked up her in-laws and we went to a Jersey diner, which is always a treat.

I guess the point I am making is that the culture of caring that she described is still here and it is so very, very precious. As best she could, she was always supportive and informative to all of us. Obviously, I don't know what next week will bring but my heart will always be here even if at certain times, my fingers, will not. And I know everyone will understand. Everyone 'gets' it here. There is no requirement to post and people, sometimes, return after a long absence and they are always welcomed with love and support. The re-entry is seamless as it should be. There are no cliques here which might make people uncomfortable. Sure, when you are here for awhile you know more people than a newbie, and friendships are formed away from the site, which is great, but a newbie will find, I believe, a lovely warm welcome and continued support for as long as they desire. And there is one woman, A, whose friendship I cherish who reads everything posted every day but doesn't post. A, thank you for your beautiful text and sending you and S. cyber hugs.

with my love for all and thank you again for helping me with my angst,

Steve


I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote LRM216 Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2013 at 8:42pm
Dear Steve:
 
Just read your post and want you to know that all my prayers, thoughts and wishes for a negative result are with you.  I am so very sorry that you have to go through this and all the anxiety that comes along with it.  Please know that I care and I am keeping you close to my heart during this difficult time for you.  God speed.
 
Love and a big hug for you,
Linda
Linda - diagnosed at age 62
Diag 2/23/09 IDC 1.2 cent. IDC right breast,Stage 1, Grade 3,0/1 nodes - Triple Neg
4 DD AC every two weeks, 1 Dd Taxol, then 3 Taxotere every three weeks - rads x 33
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MLindaG Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2013 at 9:11pm
Steve,  I have not been on this site for very long but I have had the benefit of your knowledge and obvious caring attitude!  Blessings to you and your family through all this!
 
As for telling your family...........I had that decision to make myself last year right around this time.......lump found 5/29.........Biopsy 6/4..........My son was graduating from his MBA program 6/9 and all my kids/spouses/girlfriends were going to be there for the event.  Do I tell them now about what I'm facing or do I wait until I know.  Since all of them live out-of-town I thought a face to face talk telling them about the biopsy/lump was better than after the weekend telling them by phone with all of them being shocked that I didn't say anything at the time.  So I plunged through it......I managed to be able to tell each of them separately and I'm so glad I did. I asked them all to pray for me.  When I got my news on Mon. 6/11 I was a bit of a basket case and ended up very emotional as I called each one.  I also called as many of my extended family and friends so they could pray for me.  I firmly believe in the power of prayer.  I have put you and your family on my prayer list.  Here's hoping for good news!
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote shortstuff Quote  Post ReplyReply Direct Link To This Post Posted: May 24 2013 at 9:22pm
Steve,

I haven't been on here much in the past few weeks and this is the first post I read. I am thinking of you and praying for good results.  You are a rare soul, in this world it is hard to believe such a selfless, supportive and kind person exists. Wishing for the best and hoping for an update soon.

Shortstuff
My mom has TNBC.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote arabella Quote  Post ReplyReply Direct Link To This Post Posted: May 25 2013 at 8:27am
Dear Steve,

Just this moment read this thread and my heart goes out to you.  I am so sorry that you are having to walk down this road for even a moment,  but if anyone can do it with grace and peace, I believe it will be you.
Your postings have been so important to me here.  I always read them and come away better informed each time.  Your kindness is so comforting.
Please know that you're in my thoughts and prayers.
I am sending ++++++ energy to you for negative results.

Kaye
Dx TNBC 1/2013; age 63; 1.1 cm; Stage 1, Grade 1(?); lumpectomy clear margins; ALND -; severe SEs to first TC and treatment stopped; radsX25; BRCA -
Recur 6/2015 Mastectomy
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: May 25 2013 at 12:06pm
Dear Linda, MLindaG, shortstuff and Kaye,

thank you for your kind thoughts.

MLindaG-it's funny, I think we all have a tendency to think our experiences are unique. For many here, TNBC was the first cancer experience and it is a good thing, I feel, to share that experience with others who have gone through it and often it is comforting to know you are not alone and that is one of the reasons TNBC is such a good resource. We all can share and hopefully learn.

Until I read your thread about your son's MBA (congratulations by the way) I felt my agonizing over the following was unique and obviously it is not. An explanation. My second to youngest son is 29 and hopefully (it's not done, done yet but it is looking good) he will be graduating university with a PhD in 3 weeks. He defended his thesis successfully last summer and his main thesis advisor signed off on his written thesis last week as did the second on his committee. Still waiting for the 3rd. Anyhow, it is very rare that all of my children are in the same place at the same place as my two daughters live on the East Coast (NY and PA) and my four sons in California (two in No. CA and two in Southern). Hopefully, we will be together soon.

Everyone with the exception of my daughter in NY will be at his graduation and I thought..."I could tell them all in person the Saturday night before the graduation" and maybe the biopsy is negative and I may not have to say anything at all. But what if it is positive and I 'ruin' the graduation with my news?
I am very much an 'in-person' person meaning that I like to be there, in person, for important meetings/discussions. Some of you know that I have travelled across the country to be at consultations with oncologists. I don't think that being on speaker phone is the same but at times it must suffice.

So here you are MLindaG agonizing over what to do as I did. The core of all of this is that the last thing most of us want to do is hurt our children but sometimes because of circumstances, we have to, and they will become upset and worried about us (as we worry about them), and that is part of life. The same son who is graduating soon wrote a email to me  "please let me know if there's anyway I can be helpful during this time." A 29 year old reaching out to a 69 year old. Sweet stuff.

I am going to follow my own advice, today, and try to find the beauty in each day. That will start with watching (for probably the 200th time) a 19 second video of my grandson. That will be followed by spending the day with my wife. She has graced us with her presence for the last 33 years. 

Well, we just Skyped with my grandson, daughter and SIL. when my wife first got on she was upstairs and thought I might be asleep but I was up. My grandson held his hands up and said Grandpa? so we just spent 37 minutes together. Fantastic, and I am going to concentrate on that.

wishing you all a lovely holiday weekend. 

Thanks to everyone again...Your support means so much to me. 

with my love,

Steve


I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Lillie Quote  Post ReplyReply Direct Link To This Post Posted: May 25 2013 at 12:26pm
Dear Steve,
I just saw your posts a few minutes ago.  I am so sorry you are faced with this horrible waiting for answers from a bioposy.  Just know that I am praying for you, whatever the outcome and, "May it be Negative dear God".
 
You made a good decision to include your family in this; also a good decision to share it with your TNBC family.  All of us want to support you in these anxious days.
 
Love and God Bless,
Lillie
Dx 6/06 age 65,IDC-TNBC
Stage IIb,Gr3,2cm,BRCA-
6/06 L/Mast/w/SNB,1of3 Nodes+
6/06 Axl. 9 nodes-
8/8 thru 11/15 Chemo (Clin-Trial) DD A/Cx4 -- DD taxol+gemzar x4
No Rads.
No RECON - 11/2018-12 yrs NED
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Post Options Post Options   Thanks (0) Thanks(0)   Quote MLindaG Quote  Post ReplyReply Direct Link To This Post Posted: May 25 2013 at 4:38pm
Steve,  Last year when I went up for the graduation we brought our Grand daughter back to stay with us for a week (she was 2 1/2 years old) while my son and dil went to Boston to look for housing. (He had gotten a job! )  When I found out about the cancer the following day she keep me laughing through all my tears as she ran around getting into everything!  She was a great distraction to my troubles and was such a funny little thing.  I could not be too upset with that sweet smiling face saying "Grandma play!"  LOL  She brought me right back to what life is all about and kept me sane! Nice that you have a Grandson to think about and give you pleasure!  Grandchildren are wonderful aren't they!!  I now am answering questions like "Grandma can you tell me one more time why your hair is white now? LOL  Got to love them!!   Take care........prayers to you and your family! 
Dx TNBC 6/12; age 59; Stage 3, Grade 3; 3.5 cm, 3/10 nodes + chest wall nodes; A/C x4, T x 12 completed 12/12 with PCR, 2/13/13 lump; IMRT Rads x 33 completed 5/22/13 BRCA 1 negative.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Autumn10182001 Quote  Post ReplyReply Direct Link To This Post Posted: May 25 2013 at 10:21pm
Steve,  thoughts and prayers are with you.. you are such a support here, please know we are all here for you... fingers crossed...
DX2/99 Stg I,ER+PR+ Chemo lumpectomy - Neg nodes,rads, tamox,femara. DX4/09, Stg IIB /III, TNBC IDC, Grade III, 2.5CM, mastectomy. 4AC DD,12 wkly taxol,BRAC1&2Neg, Right Mast 11/25/09
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Allison Quote  Post ReplyReply Direct Link To This Post Posted: May 26 2013 at 6:13pm
Steve,

So sorry to hear of your health concerns. I'm so glad that you were able to share with the group, however. You are very special and important part of what goes on here. I'm glad that you have given us the opportunity to share our thoughts and prayers with you and your family just as you have for each of us.

Hoping for false positives for all!

Allison
9/07 IDC, trip neg, BRAC-, Lumpectomy with SNB (all clear) 10/07, FEC & Taxatere 11/07 - 2/08, 32 rads, 3/08 - 5/08.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote Hajdenwurcel Quote  Post ReplyReply Direct Link To This Post Posted: May 26 2013 at 6:49pm
Dear Steve, Thinking of you and praying that your name will change to False Positive!!!!!!
Lot of kisses from Brazil with hope that the results will be negative!!!!
Judy

DX IDC TNBC 8/10 age 50; Stage 1; Grade 3; 2 cm; 0/5Nodes ;
KI-67 90% ; BRCA 1 +positive; 8 cycles DD AC/Taxol; 3/11 bi-mx, recon, 6/12 BSO
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: May 26 2013 at 7:22pm
Dear Lillie and Autumn,

thank you!

Dear Judy,

muito obrigado e espero que você esteja bem.....I wish I could say I have been practicing Smile...thank you for your wishes..

To all,

I really have been trying my best to think positively and I definitely have found much beauty these last couple of days. But when my son said to me at lunch yesterday "if the false positive rate is 35% why don't you concentrate on that?" I wish I could. Instead, probably stupidly, I have been doing a bunch of research on PCa. There is an outstanding urologist I met at a conference a few years ago named Peter Carroll at UCSF. He was quoted in an article I read as saying "There is more good information out there on how to buy a toaster oven than how to treat prostate cancer." I quoted that line to a urologist friend of mine and he laughed and said..."wow, what a great line." 

So besides the fact that I still have a long wait till Thursday and the uncertainty is a pain I have been reading about, at least, ten different treatment protocols....all dependent on whether I have PCa of course and what Stage it is. It is admittedly a poor exercise because I don't even know if I have PCa but my nature is to try to do research and become more knowledgeable so that when I do meet the urologist this week I am able to have a more intelligent discussion. I already am better prepared than I was a few days ago and I would like to continue learning. 

There are also certain more advanced genetic tests that might be useful. It is also impossible for me to make appointments for a second opinion until I know if I have PCa. 

Having said all of the above, your prayers and good wishes mean so much to me and truly help me, even though I am a bit funky. The warmth I have received is just so precious to me and appreciated more than my words can properly say.

So, again, thank you all.

with my love,

Steve




I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote mainsailset Quote  Post ReplyReply Direct Link To This Post Posted: May 26 2013 at 8:01pm
Well Steve, a favorite book of mine is entitled 'How to Think like DaVinci" and of the many great lessons it passes along is that DaVinci believed in taking frequent breaks from his projects, working a short shift so to speak and then going out and letting his mind shift gears. So Steve, in the name of getting your mind off it, here's a little video with the wisdom of Ben Rumsfeld to give you a smile   http://www.youtube.com/watch?v=AQjw5F6SnzE
Mainy
dx 7/08 TN 14x6.5x5.5 cm tumor

3 Lymph nodes involved, Taxol/Sunitab+AC, 5/09 dbl masectomy, path 2mm tumor removed, lymphs all clear, RAD 32 finished 9/11/09. 9/28 CT clear 10/18/10 CT clear
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: May 26 2013 at 8:19pm
Dear Mainy,

Thanks so much and look at the young Clint Eastwood. Your short videos are great. I probably should look at some Tim Conway playing the boss with Carol Burnett. That always cracks me up. Thanks for the distraction.

Got some Pacers vs Heat to watch and my wife is cooking pasta and zucchini so I should be in shape for awhile.

warmly,

Steve
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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Post Options Post Options   Thanks (0) Thanks(0)   Quote michelle525 Quote  Post ReplyReply Direct Link To This Post Posted: May 27 2013 at 8:31pm
Steve,
 
I just saw your post.  I hope that you are feeling better.  My thoughts and prayers are with you and I am hoping that you soon will hear the words "false positive." 
 
your friend,
Michelle
DX IDC TNBC 1/96, age 30, Stage 2, Grade 3, 3.5 cm, o nodes, lump, rads, ACx6, finished 7/96. 7/11 recur/new, TNBC, Stage 1, Grade 3, 2 cm, BRCA-, mast w/recon. 9/11, CTx4, finished 1/12
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Post Options Post Options   Thanks (0) Thanks(0)   Quote christina1961 Quote  Post ReplyReply Direct Link To This Post Posted: May 27 2013 at 9:05pm
Steve,
I have not been on here in weeks and just saw your post.  I am so sorry to hear of this and certainly hope that you hear the words "false positive." 
 
Best regards,
Christina
2.5 cm TNBC, BRCA-, diag. 2/11, neoadj chemotherapy, uni MX, y2cm,2/16 nodes, RCBII, tumor retested 5-10%ER+,PR-,Her2-, rads, clin trial eribulin 10/11-2/12, tamox.
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Post Options Post Options   Thanks (0) Thanks(0)   Quote sue Quote  Post ReplyReply Direct Link To This Post Posted: May 27 2013 at 10:48pm
Steve,

My hopeful thoughts and prayers for only good news are being sent your way as you wait for your results.

Love and Peace, Sue
Dx 7/10, age 53. TNBC left breast, stage I, grade 3, IDC 0.5 cm, DCI 2.5 cm, 0/8 lymph nodes neg. BRCA-. T/C x4 finished 2/09/11, rads x34 finished 4/21/11.          
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Post Options Post Options   Thanks (0) Thanks(0)   Quote SagePatientAdvocates Quote  Post ReplyReply Direct Link To This Post Posted: May 28 2013 at 9:33am
Dear Michelle, Christina and Sue,

Thank you!!!!

Dear TNBC family,

Seeing urologist today at 1. He kindly called me yesterday after I sent him an email about some side effects. He said he may have biopsy results today and if he tells me I will pass it along. 

All of your kind wishes and support I have received from family and friends really helps give me strength. 

Thank you all, again.

Wishing you all a good day and please try to find the beauty in each day. And very special wishes to several women fighting advanced disease who took the time to call me and offer support. To be honest, I feel awkward about this. I don't even know if I have cancer but the beauty of their feelings towards me...well, I can't find the words...but thank you, all. 

with my love to all here,

Steve




Edited by steve - May 28 2013 at 2:01pm
I am a BRCA1+ grandson, son and father of women affected by breast/oc-my daughter inherited mutation from me, and at 36, was dx 2004 TNBC I am a volunteer patient advocate with SAGE Patient Advocates
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